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    • 1 hour, 22 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 22 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 23 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 19 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 42 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 39 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 4 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 5 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 14 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Home > LC Polls > In 2023, how many appointments did you have with your main T1D healthcare provider?
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    Do you have any appointments currently scheduled with your main T1D healthcare provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    19 Comments

    1. William Rone

      4 appointments.

      2 years ago Log in to Reply
    2. Ahh Life

      3. But I have to sell my soul and lie to medicare that the number is really 4. Before the age of 65 I never had to lie about anything. What’s wrong with this picture ¯\_(ツ)_/¯?

      4
      2 years ago Log in to Reply
      1. TEH

        We’re with the government and we’re here to help?

        2 years ago Log in to Reply
      2. Marty

        I’d probably lie, too, if I could get away with it since 3 of my 4 annual visits are a waste of time. Unfortunately, my supplies providers require my doctor to send them chart notes from the visits and I don’t think my doctor would go along with the deception. This is such a common complaint that I don’t know why the powers that be in setting Medicare requirements continue to ignore it. Could there be a history of massive fraud in funding of unnecessary diabetes supplies?

        2 years ago Log in to Reply
    3. GLORIA MILLER

      I do twice a year which is one more than I need to go, in my opinion. The staff said I had to go four times a year for Medicare to cover it but they have learned that is not accurate since my prescriptions are filled with once every six months visit.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Just had 2

      2 years ago Log in to Reply
    5. Brenda Lipscomb

      I was unemployed for seven months, so was able to only see my PCP once. 🙁

      1
      2 years ago Log in to Reply
    6. Meerkat

      Two with my endo and two with his PA.

      2 years ago Log in to Reply
    7. Carol Meares

      3 in person 1 tele

      2 years ago Log in to Reply
    8. Donald Cragun

      This is a strange question. I would have expected, the possible answers to be 0, 1, 2, 3, 4, or more than 4; but instead of “more than 4”, we get “more than 5”.

      2 years ago Log in to Reply
    9. Gustavo Avitabile

      I answered other because my healthcare team is very supportive and I have frequent contacts. We have group visits, where 6-10 patients exchange their experience with a doctor supervision. We have walks where healthcare members walk with a group of patients, helping with management, especially prevention and care of hypoglycemia. We have meetings dedicated to AID systems and experiences. I am grateful for such an extended care.

      5
      2 years ago Log in to Reply
      1. Jneticdiabetic

        Hi Gustavo – I love this! Sounds like a great way to build a community around T1D care. ❤️

        2
        2 years ago Log in to Reply
    10. Bruce Johnson

      2023 was a year that health professionals moved to different places across Canada due to very poor federal input and management by the federal government. the Liberals wouldn’t know how to give you a bandaid
      Healthcare is not something they care about. I had to change my diabetes healthcare provider tree times because of
      poor management. The majority of good diabetes Healthcare professionals left Albert and Canada in disgust
      The best diabetes knowledge professional are the Practical Nurses who had to replace the doctors who no longer saw Canada as an asset for diabetics except in Ontario (Treadeau land)

      2 years ago Log in to Reply
    11. Becky Hertz

      I said 3 but it could’ve been 2.

      2 years ago Log in to Reply
    12. John McHenery

      Video training to go on closed loop system so probably 7 in all

      2 years ago Log in to Reply
    13. George Lovelace

      3, 2 by TeleVisit, 1 in Person to get A1c, 60 yrs T1 and A1c in Low 6’s and a First time 5.4 with 0 Hypos for 4+ years until my Wife died in Oct. Now I’m starting a New Life.

      2 years ago Log in to Reply
    14. Jen Farley

      I was seeing him every 6 weeks, but I think, my endocrinologist and I, have moved on to every 8 weeks. Maybe I will have less medical debt.

      2 years ago Log in to Reply
      1. KarenM6

        Hi Jen Farley!
        Less medical debt is something I also wish for!

        Just wanted to let you know I gave a long reply to the pros and cons of the Eversense. I don’t keep up with this site every day and I wanted to make sure you knew that I had responded… but I couldn’t respond to your reply.

        Anyway! I’m happy to answer any questions if you have them… just respond to my original post!
        Thank you. KarenM6

        2 years ago Log in to Reply
    15. ConnieT1D62

      Had 6 visits with her n 2023 because I was having insulin absorption issues … she took me off the pump for 3 -4 months to allow infusion site scar tissue to heal. She saw me every month during the off pump problem solving phase June, July, August, September. A1C went from 8.1 in June (a rare elevation – it hadn’t been that high in over 20 years) to 6.7 in December.

      2 years ago Log in to Reply

    In 2023, how many appointments did you have with your main T1D healthcare provider? Cancel reply

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