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    • 17 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 10 hours, 59 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 12 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 12 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 12 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 14 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 14 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 14 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 15 hours, 22 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 16 hours, 45 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 18 hours, 42 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 16 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 18 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 19 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    Do you have hyperglycemia (high blood glucose) unawareness?

    Home > LC Polls > Do you have hyperglycemia (high blood glucose) unawareness?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    22 Comments

    1. Molly Jones

      If hyperglycemia is above 200, I never feel any of the symptoms mentioned and am completely unaware. I only ever feel these symptoms when my BG is above 350 which is a rare occurrence.
      My blood sugar quickly soars and falls. I use @7 units of basal insulin daily with a correction factor of 90-120mg/dL.

      2
      2 years ago Log in to Reply
    2. Kathy Hanavan

      It depends on how high I am. Low 200’s – no symptoms, but as it rises, I get thirsty and tired.

      2
      2 years ago Log in to Reply
    3. Jim Andrews

      … and hypo as well. I can be at 40 or 300 and not feel a thing.

      2
      2 years ago Log in to Reply
    4. Lawrence S.

      When my blood sugars rise above 240, I generally feel irritable; above 300 exhausted. But, is my awareness, exhaustion, lethargy, irritability, thirst. I said sometimes. There are times when I can work right through it. Generally, I know when I’m going high because I am constantly looking at the numbers on my insulin pump, or it’s beeping. I also go high after most meals, especially breakfast.

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      My CGM will alert at 180. I rarely go over 200.

      2 years ago Log in to Reply
    6. Daniel Bestvater

      I would have to say always. I think anything above about 90 would be the onset of hyperglycaemia in a non diabetic. I rely on my cgm to head off elevated glucose levels.

      2 years ago Log in to Reply
      1. Anita Stokar

        I would doubt that anything above 90 in a non-diabetic would set off hyperglycemia. Anything under 100 is fine in a fasting state in a non-diabetic. From what I have read, non-diabetics can easily go to 130-140 after eating but their systems quickly get their blood sugar back under control.

        2 years ago Log in to Reply
    7. Sherolyn Newell

      I’ve messed up and forgotten insulin a few times. I can get up to 350 without symptoms. Dexcom lets me know.

      1
      2 years ago Log in to Reply
    8. LuckyPineapple

      I think I only really start noticing anything if I’m over 400 for a while, and even then, it’s just having to pee often. I bet I could probably push well into the 600 range before physically feeling anything.

      I am SUPER aware of lows though, so I am almost never low. If I could feel my highs like my lows, I’d most likely do whatever I could to avoid that feeling and I’d stay in better range. It sucks.

      2 years ago Log in to Reply
    9. Annie Wall

      I’ve always felt that symptoms of hyperglycemia are not obvious. Maybe that’s why I lived for six months of being thirsty, peeing all time. It wasn’t until I had unexplained weight loss that I finally thought something was wrong. Even then I didn’t realize how utterly exhausted I was. Today I don’t feel the symptoms and my pump alerts me when I’m arising above 170.

      2 years ago Log in to Reply
    10. Shelly Smith

      As others have mentioned, if it wasn’t for my CGM, I would hardly know when my bg went up. I rarely feel any of the symptoms.

      2 years ago Log in to Reply
    11. lis be

      I answered, “yes, sometimes”. I must say that is probably the same answer my Dexcom would give if asked. 🙂

      2 years ago Log in to Reply
      1. lis be

        separate thought, I only get hungry when my blood sugar rises, which was my tip off before I had CGM. Otherwise, I wouldn’t know my sugar is raising.

        2 years ago Log in to Reply
    12. mbulzomi@optonline.net

      Thank God for my Dexcom Sensors and TandemX2 Pump. Sure, takes the worry out of UNAWARENESS!

      2 years ago Log in to Reply
    13. Bea Anderson

      My bg levels can creep up unnoticed to 200-250 when I begin to feel lethargic. Higher, I’d feel sleepy. BUT I have CGM alarm set at 140 when home and 160 when out and about.

      2 years ago Log in to Reply
    14. Carol Meares

      It depends what you call high or hyper.

      2 years ago Log in to Reply
    15. William Bennett

      I mean, I dunno if I’d call it “unawareness.” I rarely peak over 200, and then only for a limited time, and that doesn’t feel like anything. Is it supposed to? I do seem to recall feeling yucky and peeing a lot back on the old insulins when hitting 300 and staying up there for hours was occasionally a thing, but that was decades ago, back on the old R/NPH regimen. With modern insulins, pump and above all CGM I’d freak if I saw those kinds of numbers now.

      2 years ago Log in to Reply
    16. Trina Blake

      My “pre-CGM” system worked very well – I get horrid heartburn at 130+ bg. So, no – especially with my Dexcom/Tandem system.

      2 years ago Log in to Reply
    17. KIMBERELY SMITH

      Whole lot

      2 years ago Log in to Reply
    18. KarenM6

      For sure. The symptoms of high BG don’t show up until much later than they used to!

      2 years ago Log in to Reply
    19. Anita Stokar

      It is weird, but I seem use the bathroom more often at 150 than I do if I happen to hit 180 or higher.

      2 years ago Log in to Reply
    20. Steve Rumble

      Not physically, but yes via my CGM!

      2 years ago Log in to Reply

    Do you have hyperglycemia (high blood glucose) unawareness? Cancel reply

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