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    • 9 hours, 11 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 9 hours, 11 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 9 hours, 11 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 14 hours, 58 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 14 hours, 59 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 15 hours, 58 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 9 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 16 hours, 18 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 37 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 16 hours, 40 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 53 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 12 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 12 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 12 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 13 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 13 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 14 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 15 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 15 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 15 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 15 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 16 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 16 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 16 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 16 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
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    In the month of August, how much did you pay out-of-pocket for all your T1D-related medications and supplies?

    Home > LC Polls > In the month of August, how much did you pay out-of-pocket for all your T1D-related medications and supplies?
    Previous

    Recent advancements in insulin pens have led to the availability of “smart” insulin pens, pen caps, and other attachments with higher tech features compared to standard insulin pens. Do you currently use any of the following smart insulin pens/caps, or smart attachments?

    Next

    In the past 7 days, have you stayed up later than you planned to make sure your blood glucose levels were stable before going to sleep?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. LizB

      I get my pump supplies & Dexcom quarterly and my last shipments for those were in July. I have zero co-pay for insulin, so I didn’t spend anything in August.

      1
      3 years ago Log in to Reply
    2. Mick Martin

      I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes-related supplies are paid for via our NHS (National Health Service), which is financed via direct taxation of all working people.

      5
      3 years ago Log in to Reply
      1. Lawrence S.

        Cheers for the UK helping the health care of it’s citizens. !

        3
        3 years ago Log in to Reply
      2. Mick Martin

        @Lawrence S. Bless you, sir. I have mentioned on here in the past about ‘losing’ diabetic ‘friends’ in the United States who’ve ‘lost their lives’ due to not being able to afford insulin. This has been over the space of several years and it still brings tears to my eyes that a so-called civilised [civilized] society CHOOSES not to help those in need.

        1
        3 years ago Log in to Reply
    3. Denise Carter

      I already met my out of pocket maximum m for both medical and pharmacy.

      3 years ago Log in to Reply
    4. KIMBERELY SMITH

      My insurance paid for it

      1
      3 years ago Log in to Reply
    5. Jane Cerullo

      $70 for insulin
      $20 InPen ($240) year
      $9 pen needles
      $6 glucose tabs.

      3 years ago Log in to Reply
    6. Gary Rind

      have reached my out of pocket max due to a non-diabetes related surgery

      3 years ago Log in to Reply
    7. Lawrence S.

      I only paid for my Endocrinology visit this month. So, zero for medications and supplies for T1D.

      3 years ago Log in to Reply
    8. Mary Halverson

      This was the month, though, to order pen needles, meal-time insulin and to try Afrezza. Last month my cost was 0.

      3 years ago Log in to Reply
    9. Lindsey Whitnell

      We generally meet the max out of pocket $8,000 by August

      3 years ago Log in to Reply
    10. Bill Williams

      I pay $245 per month for a Medicare supplement and a Part D plan. As a result, my co-pays on everything I need are $0 whether they’re T1D-related or not.

      3 years ago Log in to Reply
    11. Edward Geary

      Ask me how much I paid in co-insurance and co-pays and the number climbs to over one thousand dollars, for kidney, eye and vascular complications including scans, retinal photography and ultrasounds. Those costs are growing exponentially.

      1
      3 years ago Log in to Reply
    12. Eve Rabbiner

      new lancing device and glucose tabs. Under $25.

      1
      3 years ago Log in to Reply
    13. James Cheairs

      My prescriptions are quarterly which is why I have no OOPs for August.

      1
      3 years ago Log in to Reply
    14. Becky Hertz

      I get 3 month supplies if all my D needs.

      3 years ago Log in to Reply

    In the month of August, how much did you pay out-of-pocket for all your T1D-related medications and supplies? Cancel reply

    You must be logged in to post a comment.




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