Which of the following best describes your connection to the diabetes community? Select all that apply!

Activity
- 13 hours, 4 minutes ago
  
  Patricia Dalrymple likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 14 hours, 18 minutes ago
  
  lis be likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 20 hours, 51 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  It's rare I have questions, but if I do, I send a message to my Endocrinologist, and she responds quickly.
- 20 hours, 54 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I use the patient portal to ask my doctor.
- 20 hours, 54 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
- 20 hours, 54 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  When I come up with a question between visits, I usually just do some research.
- 22 hours, 27 minutes ago
  
  Mike S likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I use the patient portal to ask my doctor.
- 22 hours, 28 minutes ago
  
  Mike S likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 22 hours, 44 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  How to avoid the rebounding effects of a low blood sugar.
- 22 hours, 44 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  After making pump setting changes due to new Mounjaro, why are my post meal glucose levels so high and how do we fix it?
- 22 hours, 44 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Will I be okay during pregnancy, especially now that I'm over 40?
- 22 hours, 47 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 23 hours, 17 minutes ago
  
  Carrolyn Barloco likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 23 hours, 18 minutes ago
  
  Carrolyn Barloco likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Will I be okay during pregnancy, especially now that I'm over 40?
- 1 day, 10 hours ago
  
  kilupx likes your comment at
  Do you currently take metformin?
  Before I was correctly diagnosed the primary care physician said I must be type 2 due to my age of 36, even though I was always very thin and had rapidly lost even more weight. He prescribed metformin- I proceeded to get sicker and sicker. Finally got to an endocrinologist who tested and said I was T1D, and I was put immediately on insulin. What a game changer.
- 1 day, 10 hours ago
  
  kilupx likes your comment at
  Do you currently take metformin?
  Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
- 1 day, 20 hours ago
  
  Kristi Warmecke likes your comment at
  Do you currently take metformin?
  Wow!
- 1 day, 20 hours ago
  
  Kristi Warmecke likes your comment at
  Do you currently take metformin?
  I've had T1D for 50 years. I started taking Metformin 9 months ago. I take full dose at bedtime to manage my morning glucose rise. It keeps the liver from releasing glucose. It has helped.
- 1 day, 23 hours ago
  
  Lawrence S. likes your comment at
  Do you currently take metformin?
  I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
- 1 day, 23 hours ago
  
  Gerald Oefelein likes your comment at
  Do you currently take metformin?
  Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
- 1 day, 23 hours ago
  
  Gerald Oefelein likes your comment at
  Do you currently take metformin?
  I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
- 2 days, 8 hours ago
  
  René Wagner likes your comment at
  Have you had to switch diabetes medications in the past year due to health insurance changes?
  I hate formulary changes mid year. They should not be allowed!
- 2 days, 8 hours ago
  
  René Wagner likes your comment at
  Have you had to switch diabetes medications in the past year due to health insurance changes?
  I will be possibly switching from Humalog to Novalog next year. There is NO Medicare Part D plan in my county that now covers Humalog. Complicated by the fact that I use a Humalog specific Smart Pen, it will be one more hassle in T1 world. My endo will submit a formulary exception request next year. My hoarded supply of cartridges will carry me through while waiting for the response 🤞🏻I cannot believe that this is the broken system that we have to settle for in the richest country in the world.
- 2 days, 18 hours ago
  
  NANCY NECIA likes your comment at
  Have you had to switch diabetes medications in the past year due to health insurance changes?
  My doctor switched me without telling me from Humalog to novolog and told me it was due to insurance. I’m on Medicare and I never saw anything that said that was necessary. They call me periodically to see how I’m doing and I told them I didn’t appreciate being switched without being told. I thought initially it was a mistake when I picked it up at the pharmacy but they said that’s what the doctor ordered. Then the next visit, he told me all my issues with insulin switching and preauthorization holdups was my fault basically because he says “I have the wrong insurance”. Like I’m going to NOT use Medicare. My opinion? I think I have the wrong doctor, but it’s a hassle to switch.
- 2 days, 18 hours ago
  
  NANCY NECIA likes your comment at
  Have you had to switch diabetes medications in the past year due to health insurance changes?
  Not this year, but in 2026, I need to switch from Humalog to Novolog.
Clear All

Which of the following best describes your connection to the diabetes community? Select all that apply!

In what year were you (or your loved one) diagnosed with T1D?

Sarah Howard

Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

17 Comments

Ahh Life

I have lived 7-1/2 decades and only known T1D as a way of life. I was elected to this community by unanimous vote before I could even vote or even read or write. Thank you all. (👍 ͡❛ ͜ʖ ͡❛)👍

5

4 years ago Log in to Reply
1. Joan Fray
  
  I love your knowledgeable comments! Hope you don’t have too many complications….
  
  1
  
  4 years ago Log in to Reply
2. Ahh Life
  
  PDR, PDN in lower legs, gastroparesis. Goes with the territory. Or the office. Maybe I should hang the awards on the wall. Wadda ya think?
  
  4 years ago Log in to Reply
Gary Taylor

I’ve had T1D for 45 years and a daughter with T1D for the last 12 years.

4 years ago Log in to Reply
LizB

I’ve had Type 1 for 34 years, plus one sister who was diagnosed later in life around 10 years ago.

4 years ago Log in to Reply
Patricia Kilwein

Diagnosed as an adult. Both parents diabetics. Mom T2D, dad T1D. All 5 of my siblings are either diabetes or pre now. Some nieces are diabetics as well. My 2 adult sons are not.

4 years ago Log in to Reply
1. Joan Fray
  
  Boy, that’s alot of diabetes in you family. Do you talk about it a lot?
  
  4 years ago Log in to Reply
Joan Fray

I’m lalmost 72 and got T1d in 1962. April 2022 will be my 60th Anniversary. Woo hoo! I’ll have a party and serve only champagne and serve roasted chicken salad, gluten free crackers. (Celiac too), veggies and fruit and cheese for dessert.

6

4 years ago Log in to Reply
1. cynthia jaworski
  
  I would like an invitation to your celebration. I am 2 years younger than you, but we started this lifestyle in the same year. Your menu sounds perfect.
  
  1
  
  4 years ago Log in to Reply
2. Christina Trudo
  
  Congrats! I will also celebrate 60 years “diaversary” in 2022 (July)[
  
  1
  
  4 years ago Log in to Reply
3. ConnieT1D62
  
  I will celebrate my 60 year “diaversary” in 2022. Congratulations to all of us long haulers!!!
  
  1
  
  4 years ago Log in to Reply
4. n6jax@scinternet.net
  
  And I will be 90 with 69 years T1D.. I want to join the party also!!
  
  4 years ago Log in to Reply
maria prel

I have surgical diabetes, after surgery for a neuroendocrine tumor in the pancreas.

4 years ago Log in to Reply
Brett Jorgensen

I had sudden onset T1D at 68. Because it also happened to my mom when she was 58, I knew what it was and ignored the er doctors who said I had type 2 .

4 years ago Log in to Reply
Sharon Lillibridge

type 1

4 years ago Log in to Reply
Pauline M Reynolds

I (age 46) and my nephew (age 11) were diagnosed within three months of each other in 1987!

4 years ago Log in to Reply
bckdjv

Son with Type 1 and also am a primary care physician

4 years ago Log in to Reply