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    • 2 hours, 9 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 2 hours, 9 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 6 hours, 46 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 7 hours, 23 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 7 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 18 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 1 day, 18 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days, 6 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days, 6 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 7 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 7 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 7 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 8 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 8 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 8 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 8 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 22 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 3 days, 3 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 3 days, 3 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 3 days, 3 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
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    Which of the following best describes your connection to the diabetes community? Select all that apply!

    Home > LC Polls > Which of the following best describes your connection to the diabetes community? Select all that apply!
    Previous

    In what year were you (or your loved one) diagnosed with T1D?

    Next

    If you use a CGM, do you usually hear and wake up to its alerts while you are sleeping, as opposed to sleeping through the alerts?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Ahh Life

      I have lived 7-1/2 decades and only known T1D as a way of life. I was elected to this community by unanimous vote before I could even vote or even read or write. Thank you all. (👍 ͡❛ ͜ʖ ͡❛)👍

      5
      4 years ago Log in to Reply
      1. Joan Fray

        I love your knowledgeable comments! Hope you don’t have too many complications….

        1
        4 years ago Log in to Reply
      2. Ahh Life

        PDR, PDN in lower legs, gastroparesis. Goes with the territory. Or the office. Maybe I should hang the awards on the wall. Wadda ya think?

        4 years ago Log in to Reply
    2. Gary Taylor

      I’ve had T1D for 45 years and a daughter with T1D for the last 12 years.

      4 years ago Log in to Reply
    3. LizB

      I’ve had Type 1 for 34 years, plus one sister who was diagnosed later in life around 10 years ago.

      4 years ago Log in to Reply
    4. Patricia Kilwein

      Diagnosed as an adult. Both parents diabetics. Mom T2D, dad T1D. All 5 of my siblings are either diabetes or pre now. Some nieces are diabetics as well. My 2 adult sons are not.

      4 years ago Log in to Reply
      1. Joan Fray

        Boy, that’s alot of diabetes in you family. Do you talk about it a lot?

        4 years ago Log in to Reply
    5. Joan Fray

      I’m lalmost 72 and got T1d in 1962. April 2022 will be my 60th Anniversary. Woo hoo! I’ll have a party and serve only champagne and serve roasted chicken salad, gluten free crackers. (Celiac too), veggies and fruit and cheese for dessert.

      6
      4 years ago Log in to Reply
      1. cynthia jaworski

        I would like an invitation to your celebration. I am 2 years younger than you, but we started this lifestyle in the same year. Your menu sounds perfect.

        1
        4 years ago Log in to Reply
      2. Christina Trudo

        Congrats! I will also celebrate 60 years “diaversary” in 2022 (July)[

        1
        4 years ago Log in to Reply
      3. ConnieT1D62

        I will celebrate my 60 year “diaversary” in 2022. Congratulations to all of us long haulers!!!

        1
        4 years ago Log in to Reply
      4. n6jax@scinternet.net

        And I will be 90 with 69 years T1D.. I want to join the party also!!

        4 years ago Log in to Reply
    6. maria prel

      I have surgical diabetes, after surgery for a neuroendocrine tumor in the pancreas.

      4 years ago Log in to Reply
    7. Brett Jorgensen

      I had sudden onset T1D at 68. Because it also happened to my mom when she was 58, I knew what it was and ignored the er doctors who said I had type 2 .

      4 years ago Log in to Reply
    8. Sharon Lillibridge

      type 1

      4 years ago Log in to Reply
    9. Pauline M Reynolds

      I (age 46) and my nephew (age 11) were diagnosed within three months of each other in 1987!

      4 years ago Log in to Reply
    10. bckdjv

      Son with Type 1 and also am a primary care physician

      4 years ago Log in to Reply

    Which of the following best describes your connection to the diabetes community? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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