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    • 19 hours, 46 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 19 hours, 52 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
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      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 20 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 20 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 22 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 23 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 23 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 17 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
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      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply!

    Home > LC Polls > When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply!
    Previous

    After you've had what you consider a very low blood glucose reading (usually a reading between 50 mg/dl or 2.8 mmol/l and 60 mg/dl or 3.3 mmol/l), how long does it take for you to feel like you've fully recovered?

    Next

    When you're experiencing low blood glucose, what symptoms do you typically experience? Select all that apply!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    23 Comments

    1. Ahh Life

      Unlike the unmitigated hell of low BG, I feel nothing with highs 400, 500, 600. Meh?

      2
      2 years ago Log in to Reply
    2. sdimond

      Looking at my CGM I see that my high for the day was 94. I seldom get above 125. This is low carb eating and MDI.

      1
      2 years ago Log in to Reply
    3. Molly Jones

      My BG is often above 200 or 250, but this does not last for extended periods of time, just for short bouts after eating.
      The only time I have felt the one symptom of increased urination was when I was first diagnosed and also during DKA after a surgery. I assume hyperglycemia needs to last a certain length of time or be above a level for me to experience symptoms.

      1
      2 years ago Log in to Reply
    4. Trina Blake

      At 140-150 I get horrid heartburn – my own personal CGM alert system I ‘spose. I learned early on that that was a great alert system, long before we had CGM’s. I appreciate it.

      1
      2 years ago Log in to Reply
      1. Anne Blayney

        I was coming to say much the same! And at the same threshold, which is really interesting — it’s not what people would think of as particularly high, but I absolutely feel it at that point.

        2 years ago Log in to Reply
    5. Annie Wall

      I chose malaise but the truth of the matter is, I can’t really describe what I feel when my blood sugar skyrockets and it happens much less often now that I have Tandem CQI. Ironically, a friend was just asking me what high blood sugar feels like to which I responded “I can’t really tell you”. But I sure can tell anyone what low blood sugar feels like!

      3
      2 years ago Log in to Reply
    6. Janice B

      Have to be very high for symptoms to occur

      2
      2 years ago Log in to Reply
    7. Donna Condi

      Feeling extremely tired is the only symptom I can remember because thanks to Dexcom I no longer hit 300-400.

      2 years ago Log in to Reply
    8. Gary Rind

      I have neuropathy in my feet and when my sugar is high, my feet feel really uncomfortable.

      2 years ago Log in to Reply
    9. Tina Roberts

      Makes me feel drunk. I get real flipping funny!😂

      2 years ago Log in to Reply
    10. Tod Herman

      It’s been years since I’ve had any lengthy high glucose values, thus I rarely have any notable symptoms. This initially was the result of moving from MDI to a pump (and a CGM).

      1
      2 years ago Log in to Reply
    11. Jeffrey Joseph

      Oddly I just feel off. I feel it in my blood. This awareness has been increased ever since the miraculous BG improvements via the Minimed 780G whereby I’m usually flatlined through the day in range >90% most days. With a BG >200, I instantly feel it and need to correct manually which the pump then readjusts me down.

      2 years ago Log in to Reply
    12. Janis Senungetuk

      I don’t feel anything different until my bg is over 400. When my meter test tells me that I’ve reached the Extreme High level (600+) my skin becomes very itchy ad I’m hot. Fortunately that has only happened a few times that I’m aware of. Since starting to use a CGM in 2017 I’m well aware, long before I get to the 400+ level, and can take a correction bolus or, more likely, injection.

      1
      2 years ago Log in to Reply
    13. Amanda Barras

      Additional Other:
      Tightness in chest

      2 years ago Log in to Reply
    14. Becky Hertz

      Not sure what this question considers high blood glucose. I usually don’t feel anything unless my bg’s are over 300 (which is very rare) and then it’s usually thirst.

      2 years ago Log in to Reply
    15. Lawrence S.

      As most of you have already commented, I don’t get long lasting highs very often. Steroids can put me into that condition. Most commonly, it happens when I forget to take my insulin before a meal. I checked “irritable.” I get irritable and grrrrrumpy!

      2 years ago Log in to Reply
    16. Lynn Smith

      This is hard for me to answer. I takes medications for allergies and depression/anxiety. All of those cause dry mouth and the dry mouth causes excessive thirst. So I can’t tell what’s causing those symptoms. 😬🙄😳

      2 years ago Log in to Reply
    17. Juha Kankaanpaa

      The foremost feeling for me is that I feel tired and not willing to do anything, lethargic. For me, I start to get this when bg is getting close to 10 (180).

      2 years ago Log in to Reply
    18. KarenM6

      off topic, but I’m only seeing half of the website… The left half. I use chrome. Now I’m typing, but I can’t see… Oh! there we are..
      Is there a recommendation for using a new web browser?
      Thank you.

      2 years ago Log in to Reply
    19. William Bennett

      I checked “None.” Have to get up in the range of 250+ to feel anything at all really, and I almost never let that happen since the bad old days, what with tools like CGM and faster insulin. If there’d been a box for “Annoyed at myself for screwing up,” I’d have checked it, but that’s not really a symptom is it.

      2 years ago Log in to Reply
    20. mbulzomi@optonline.net

      The typical low glucose symptoms.

      2 years ago Log in to Reply
    21. vbaum1956

      High energy,

      2 years ago Log in to Reply
    22. T1D4LongTime

      Symptoms are not significant for me until I reach close to 300. 250-300 I will be thirsty and have a dry mouth. Again, it depends how fast the BG rises as to how severe the symptoms are.

      2 years ago Log in to Reply

    When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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