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When your blood glucose is rising, which of the following options most accurately describes at what glucose range you most often start experiencing symptoms of hyperglycemia? (For example, feeling extra thirsty or tired, urinating more frequently, etc.)
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I’m lucky, before there were CGM devices, my body was a CGM device. I start to et heartburn at 140 or so bg. I could nip a high bg in the bud.
In the ninjutsu I’m used to in the randomness of our lives, low BG is felt and felt intensely. High (400? 500? 600? – can you even measure this last one?) levels are not felt at all. I am so accustomed to dosing and correcting that high BG does not stay high for extended periods. 🙃🙂🙃
I do t let my BS get high. I treat right away. Yesterday I had a little pastry from Starbucks. And yes had to treat a couple of times. )was worth it). If I go up at night I do have to get up and pee But I treat right away
Dangerous high
I notice a feeling of being “ off” long before specific symptoms appear.
Back in the bad old days of R/NPH and the Exchange Diet I’d experience nausea/headache/urination but since CGM I just don’t let it get that high. On rare occasions I might hit 220 or so, and that might start to have an effect if it stayed up there for hours, but CGM alerts me and I always get it down before symptoms set in.
I said 250+, but I’m not really sure. I don’t feel hyperglycemia very often. I usually correct my insulin too soon to feel the hyperglycemia. Perhaps, when I am sick, I remember the feeling.
I am not really sure. With a CGM, my sugar doesn’t very often get very high and at least not for long. Even before my CGM, symptoms rarely occurred and it seemed that I would have to use the bathroom more often at 150 than at 250.
I had all of those symptoms when I was diagnosed more than 57 years ago. Since I’ve been using a CGM (for more than 22 years), I haven’t had a glucose over 150 for more than 3 hours at a time so I don’t think any of those symptoms are caused by hyperglycemia. I do, however, get thirsty when I’m dehydrated, tired when I’m not getting enough sleep, and urinate more frequently because I have an enlarged prostate.
Interesting question. I feel my blood glucose rises and I also feel when my insulin starts to work. So, I typically experience symptoms at 140 like going to the bathroom, feeling thirsty etc. Because of this, I treat early before it goes above 180.
“unsure”
I feel those symptoms for a variety of reasons almost all of the time and have no idea when/if they are increased by my BG.
Do you, as I do, have conditions in addition to T1D?
My geneticist says I’m on the spectrum of a not-well-known connective tissue disorder (EDS), and thus I have so many comorbidities that have similar symptoms to those seen in my fellow pwT1Ds.
I said unsure. I rarely go above 250 when I go high and don’t have symptoms there. Maybe if I went higher?
I always walk to lower glucose when it reaches 180 & in the rare event it reaches 250, I take a correction dose- so I don’t know whether I would feel the effects of hyperglycemia above 250.
I feel it when i am at 120 mg/dL.
Oh, I get irritable, brain foggy, more POTSy, tired, etc. at 135 mg/dL!
Would love to say I never get above 250, but that would be lying. (Eek!) I wonder if folks here who haven’t experienced labile blood sugars (the old term was “brittle diabetes”) don’t have chronic conditions in addition to T1D. I have or suspect I have a number of autoimmune conditions and autoimmune-adjacent ones that increase inflammation in the body.
I really think a lot of us with labile/brittle diabetes need to be evaluated for thyroid diseases, mast cell activation syndrome (MCAS), and connective tissue disorders like EDS.