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    • 9 hours, 44 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 9 hours, 44 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 11 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 11 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 11 hours, 1 minute ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 11 hours, 2 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 2 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 11 hours, 3 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 4 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 11 hours, 4 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 13 hours, 5 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 13 hours, 43 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 13 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 14 hours, 27 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 14 hours, 49 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 15 hours, 12 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 15 hours, 13 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 15 hours, 13 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 15 hours, 28 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 16 hours, 29 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 16 hours, 30 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 7 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 7 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 7 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 13 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    When you get lab work done, does your T1D health care provider discuss the results with you?

    Home > LC Polls > When you get lab work done, does your T1D health care provider discuss the results with you?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. T1D4LongTime

      My endo and I go through all bloodwork. Since the endo’s office portal came online, I can see my bloodwork results prior to the appointment. This is very helpful as I have questions prepared prior to the visit.

      4
      3 years ago Log in to Reply
    2. Tina Roberts

      Yes but she has never checked my feet!!!!! My pc does.

      3 years ago Log in to Reply
    3. Deyait Watson-Irvine

      As many T1’s I have several specialists. They sometimes overlap in their request for lab work. My primary is the clearest in discussions of my lab work, while my endocrinologist is not as transparent. We of course discuss the A1c.

      3 years ago Log in to Reply
    4. anj1832

      Usually just makes a comment about it on MyChart.

      3 years ago Log in to Reply
    5. Donna Condi

      They will call if a medication needs to be changed. And the nurse practitioner will go over the results at the next appointment but if my appointment is with the doctor he does not.

      3 years ago Log in to Reply
    6. TEH

      We go over my A1c compaired to my TIR & average SG. Also check TSH levels every time.

      3 years ago Log in to Reply
    7. Jane Cerullo

      Get labs at Endo office about two weeks before appointment. We always discuss results. For T1D and graves. I always have questions.

      3 years ago Log in to Reply
    8. Yaffa Steubinger

      My endo has me do the labs the week before my appt with her so she can discuss all important results.

      2
      3 years ago Log in to Reply
    9. Gary Rind

      endo refuses to order labs ahead of appointment, drives me nuts! if something is out of range, he’ll send me a message about it.

      3 years ago Log in to Reply
    10. Brian Vodehnal

      The lan sends it to both of us and electronically discuss results if an appointment is too far away.

      3 years ago Log in to Reply
    11. KIMBERELY SMITH

      They will call me

      3 years ago Log in to Reply
    12. Bruce Schnitzler

      Lab work performed after seeing doctor. Written report takes about 10 days. Doctor or nurse calls is anything is amiss.

      3 years ago Log in to Reply
    13. Marty

      My primary care doctor normally comments “Labs are all stable” in MyChart unless something is seriously wrong. Then she’ll call me to discuss what to do about it. I don’t recall ever discussing lab results, like A1cs, with my current endo. She focuses on actual BGs from my CGM.

      3 years ago Log in to Reply
    14. Lynn Smith

      I chose “Sometimes” because there is rarely anything to talk about because all the results are well within range. On the rare occasion a result is not what it should be, of course we always talk about it. My labs are done through Quest and the results are normally available online within a few days after. So, I have always looked over everything myself days before my appointment with the doctor or NP. That way I can have any questions ready to ask. Works great!!!

      2
      3 years ago Log in to Reply
    15. Trina Blake

      I am quite disciplined in terms of lab work – I go i every 3 months whether I have an upcoming appt or not. I also upload from my pump/dexcom every month and let the Endo office know the data is there is they want to take a look. I was surprised by the response were their Endo wants the lab work done after the appt. Makes no sense to me.

      3 years ago Log in to Reply
    16. Janis Senungetuk

      My endo does, but the NP I see as a primary on annual appointments only mentions results if I ask a question. I make an effort to have labs a week or less before the 90 day endo appointments so the results are available for us to discuss in person. The HMO now charges for any messages I send to healthcare staff that require time spent looking at my chart to answer. In the past I’ve used the messaging option in my chart to ask my CDE pump, CGM or insulin dosage questions or to ask the endo what labs were needed before an appointment. I won’t do that now.

      3 years ago Log in to Reply
      1. Janis Senungetuk

        MyChart messaging is email. What I wrote above was auto-corrected to my chart, not the same thing.

        3 years ago Log in to Reply
    17. ConnieT1D62

      She has labs drawn at time of visit and posts any comments in My Chart portal. For years my labs have been and are generally pretty stable. If something is way off she will email an alert or her nurse will call me – but this has happened very rarely.

      3 years ago Log in to Reply
    18. Kristine Warmecke

      Yes she does. I did send her a message vis MyChart and haven’t gotten a reply back yet from my last lab work. I have an appointment Monday, so I hope to get my answer then.

      3 years ago Log in to Reply
    19. Amanda Barras

      Usually she just sends me a note saying all good or suggests a minor change to medication. I don’t sit and discuss I don’t get results until after Appt.

      3 years ago Log in to Reply
    20. PamK

      He only goes over my A1C and if any other readings are not within range. So, I chose “sometimes,” because he does not review everything every time.

      3 years ago Log in to Reply
    21. PatC

      Only the A1C

      3 years ago Log in to Reply
    22. Jeff Balbirnie

      Discuss never, lecture/patronize typically

      3 years ago Log in to Reply

    When you get lab work done, does your T1D health care provider discuss the results with you? Cancel reply

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