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    • 1 hour, 24 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 6 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 33 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 33 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 33 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 46 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 46 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 47 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 29 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 52 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 50 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply.

    Home > LC Polls > When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    47 Comments

    1. Ginger Vieira

      I’m still using the Libre 14-day because it CANNOT ALARM! All those alarms give me anxiety after two pregnancies. There are certainly times when I wish my CGM could alarm, but I make do. Yes, I scan my Libre a lot, but I enjoy the peace and quiet, too. No alarm fatigue for me.

      1
      2 years ago Log in to Reply
      1. Lori Lehnen

        Interesting. Thank you for sharing.

        2 years ago Log in to Reply
      2. Mitch Chernoff

        I now use the Libre 2, but with a reader rather than my phone. Unlike the phone app the Libre 2 reader has an option to turn off all alarms.

        2 years ago Log in to Reply
    2. Nevin Bowman

      My pump and phone are always on vibrate.

      1
      2 years ago Log in to Reply
    3. Kathy Hanavan

      My alarms are already on vibrate, so unless it is an urgent low (unlikely to happen), nobody else knows about my alarms.

      2 years ago Log in to Reply
    4. Grey Gray

      I normally keep my alarms on vibrate at all times. Should something stupid happen and my pump actually does put out an audible alarm. Answer it as fast as possible and hope it interrupts things less than the baby crying that someone else should have left at home.

      4
      2 years ago Log in to Reply
      1. ELYSSE HELLER

        I LOVED YOUR COMMENT!

        2 years ago Log in to Reply
    5. Phyllis Biederman

      All my alarms are already set to vibrate.

      1
      2 years ago Log in to Reply
    6. Jane Cerullo

      The only alarm I have on is high alert which never happens. Also if under 60 the alarm will sound. But I have numbers on my applewatch so I keep an eye on numbers.

      2 years ago Log in to Reply
    7. Sherolyn Newell

      I haven’t really felt the need to turn off or silence alarms. I keep an eye on the CGM though to try and head them off. There are a couple places I can think of that I would.

      1
      2 years ago Log in to Reply
    8. KCR

      I put my phone in silent mode and keep it in my purse to muffle any CGM alarms and rely on my watch (Bluejay GTS) to check BG levels.

      2 years ago Log in to Reply
    9. KIMBERELY SMITH

      I keep it on

      1
      2 years ago Log in to Reply
    10. Annie Wall

      I chose “do something else”. All my pump alarms are on vibrate except for the Dexcom’s urgent low. I never turn my phone off but always turn off my phone ringer and I put my phone on do not disturb.

      1
      2 years ago Log in to Reply
    11. ELYSSE HELLER

      If anybody was to moan about my alarm alerting me that I was heading into a possibly dangerous medical event I would tell them “Oh, I am SO SORRY that my disease is annoying you”.

      2
      2 years ago Log in to Reply
    12. mlettinga

      I always have my sounds set to vibrate. I turn my I-watch to theater mode.

      1
      2 years ago Log in to Reply
      1. Anneyun

        Me too.

        2 years ago Log in to Reply
      2. KarenM6

        There’s a “theater mode” on an I-watch?! =:0 How cool!! I don’t have an I-watch, but maybe they’ll lead the way for other devices. 🙂

        2 years ago Log in to Reply
    13. Scott Rudolph

      All my sounds come into my hearing aids, so no one else ever hears them.

      2
      2 years ago Log in to Reply
      1. Janis Senungetuk

        Wish I could do that! Do you control sound levels thru a phone app? When purchased 2 yrs ago, told phone would stream calls thru aids, not happening.

        2 years ago Log in to Reply
    14. Lawrence S.

      I am rarely, if ever, in situations where I need to silence my devices. I could see myself turning the volume down on my phone. However, I doubt I’d do anything with my pump. I guess it would depend upon the circumstances.

      1
      2 years ago Log in to Reply
    15. terrih57@msn.com

      I don’t go to many events where devices need to be silenced but I don’t normally change anything. Always thinking everything is in good control. Lol. Occasionally I have had it beep but I have it set to low volume and just a single beep so it’s never been an issue

      2 years ago Log in to Reply
    16. Marty

      I seriously annoyed the person sitting next to me at an opera by glancing too frequently at my lighted watch face to check my BG. When I explained to my brother why I wanted to switch seats with him at the break, he commented (loudly) that the guy might prefer having to step aside for the paramedics when they had to rescue me from passing out from a low BG. It did kind of spoil the event for me, but I’m not sure what else I could of done after a brisk walk up a hill to get to the opera house after eating an unfamiliar meal at an unusual time.

      4
      2 years ago Log in to Reply
    17. AnitaS

      I may change my CGM low alert. I usually have it at 85 but I will lower it to 70, or even 60 if I know I have already taken steps to avoid a low if needed

      2 years ago Log in to Reply
      1. AnitaS

        I very rarely feel a vibration from the vibrate mode so I don’t typically use that setting.

        1
        2 years ago Log in to Reply
    18. Yousif Devlin

      Alarms already reduced to the most important ones like going low. All the ones that rise or high reminders are already off on my pump. Watch and phone are already linked to cgm, so vibrate is all I need.

      0
      2 years ago Log in to Reply
    19. Mary Halverson

      I turned off my phone at a funeral I recently attended, and had taken steps to make sure my bg would be good for that hour. At an opera, I would turn it to vibrate.

      2
      2 years ago Log in to Reply
    20. Jen Farley

      Sometimes I do notify them that due to a medical condition I am unable to silence my devices. If I get a – then you must leave – I will silence what I can and excuse myself before any noise is made. I have noticed with my most recent Tandem pump replacement you can turn all alerts to vibrate. Not sure if it works like that but I do what I can to fix anything that may sound an alarm.

      2
      2 years ago Log in to Reply
    21. Becky Hertz

      I have an iPhone and Apple Watch. I get a vibratory alert from my watch before my Dex or pump goes off so am able to silence any alarms that might happen.

      2 years ago Log in to Reply
    22. Jodi Greenfield

      My cgm does not have an alarm feature. My pump has no way to silence or turn off all alarms, so I put my pump control device in my purse and be prepared to respond as fast as I can.

      1
      2 years ago Log in to Reply
    23. Amanda Barras

      None/Something else.
      I always have mine silenced because I don’t mind a vibrate, but I hate hearing it scream all the time. So, unless it’s a critical low alarm, I am always set to vibrate for everything.

      1
      2 years ago Log in to Reply
    24. cynthia jaworski

      I am glad to turn my phone completely off. However, my cgm only alerts me through its scanner (libre), and that is left on.

      2 years ago Log in to Reply
    25. Yaffa Steubinger

      Dexcom G7 has a silence feature that I use. It allows me not to receive any alarms but I’ve got my Apple watch to periodically check to be sure blood sugar is in range.

      1
      2 years ago Log in to Reply
    26. Janis Senungetuk

      I’ve only experienced one time when there was a complaint…and it was during a medical appointment. The followup appointment after cataract surgery my CGM (Dexcom) kept warning of a low trend. I ate a couple gummies to avert the low, but by the time I was in the exam room, 40 minutes later than scheduled, I started getting severe low alarms. The staff member who had just started the vision test was extremely annoyed by the sound. He told me to turn it off and take it off. I explained what the alarm was, that I wasn’t going to remove it, and that I needed to very briefly reach my purse, where I had more gummies, to treat the low. He stormed out of the exam room. I sat there for maybe 10 minutes eating my supply of fast acting carbs before another staff person popped their head in the door to ask if I needed any assistance. By then the alarms had stopped and my glucose level was quickly raising from all of the carbs. I let her know that I was OK, that the exam could continue. The guy who had been so annoyed returned, rushed through the vision test and told me to go back to the waiting room. Five minutes later I finished the appointment by speaking with the surgeon. I mentioned to her that a staff member had been very annoyed by my CGM alarm. She was aware of that, no apology. Fortunately, that was the second of my two cataract surgeries and I’ve had no reason to need her services again.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        That employee was WAY out of line. That is NOT patient care. He should have been fired for his extremely rude behavior. I’m glad it didn’t happen to me. I don’t think I would have been so diplomatic. I hope you find a different Ophthalmologist.

        2
        2 years ago Log in to Reply
    27. PatC

      I put my phone into Airplane Mode and leave my pump alone. If it sounds off, I step out and take care of myself.

      2 years ago Log in to Reply
    28. KarenM6

      My old system, I would do anything and everything possible to avoid a low and turned all high alarms off. The plays I go see are in a small-ish venue and it would disturb the whole theatre if anything beeped or blurped or vibrated.
      I have no idea (yet) how to turn things off on my new system… and being the complicated device that it is, there’s likely something I would miss. So, I haven’t been to a play recently.
      I did not do anything when I had jury duty. I figured that it was better that I beep aloud there so that any trials could stop for me. But, I didn’t even make it into a courtroom, let alone on a jury panel.

      In the past, I would also change my CGM (if necessary) and pump early to make sure there were no “you’re almost done with X” beeps.

      Like others, I have alarm fatigue!

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        Yes, KarenM6, I too have alarm fatigue.
        I was deleted from being called to jury duty many years ago because I am a T1D. I have not heard from a jury duty call since the 1980’s.

        1
        2 years ago Log in to Reply
    29. Donna Condi

      I will eat a glucotab to avoid a low.

      2 years ago Log in to Reply
    30. Laura G

      I’m a professional orchestra musician, and loud alarms are absolutely not acceptable. I’ve done all of these strategies to avoid alarms, I’ve been successful so far, but it feels unnecessarily stressful and risky. I can always find a way to cope with or work around a low BG discreetly, but I could get fired from a job I really love for a single loud alarm. I keep hoping that pump manufacturers will let users sign a form to release them from liability and be given opt-in access to an “All-Silent-Mode” setting for work that would override every alarm. I understand this isn’t for everyone, but I’m probably not the only PWD with professional obligations who would be very grateful for this option.

      4
      2 years ago Log in to Reply
    31. PamK

      I chose “None” because I normally have my alerts/alarms set to vibrate, so no change is needed. I only set my phone to “airplane mode” when in this type of situation.

      2 years ago Log in to Reply
    32. Cristina Jorge Schwarz

      I notify the theatre at least a week in advance of my situation – including the pump screen occasionally being on. Under the ADA, they have to allow me some reasonable accommodation. They’ve always been understanding.

      2 years ago Log in to Reply
    33. Melinda Lipe

      I keep all alarms on vibrate due to my job as a nurse, so I do not have to silence anything.

      2 years ago Log in to Reply
    34. Jeff Balbirnie

      Summoned to local jury duty, I am literally unable to silence the CGM re lows. Called the courts ADA (American Disabilities Act) clerk what the judge required for diabetes tech? She had no idea what it was, why I could not turn off the alarm, entirely clueless. Sigh…. Contempt of Court for Severe Hypoglycemia Unawareness has a nice ring to it don’t you think???

      2 years ago Log in to Reply
      1. Marty

        I was once dismissed from jury duty when I explained about having jelly beans with me to treat possible lows because “No food is allowed in court”.

        2 years ago Log in to Reply
    35. mbulzomi@optonline.net

      As checked off, I turnoff my phone, however I always keep my “T” Slim pump alerts on. Thats tough “Do Do” if my beep bothers them!!!

      2 years ago Log in to Reply
    36. ChrisW

      On my phone I quit the dexcom app when I need to silence alerts.

      2 years ago Log in to Reply
    37. Kim Murphy

      I turn my blue tooth off because there is no way to silence some of the Dexcom and Omnipod 5 alerts. I just have to hope I don’t have any lows below 40 while my Bluetooth is off.

      2 years ago Log in to Reply

    When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply. Cancel reply

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