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    • 7 hours, 15 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 7 hours, 15 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 11 hours, 52 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 12 hours, 29 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 13 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 23 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 1 day, 23 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days, 11 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days, 11 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 12 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 12 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 14 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 3 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 5 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 3 days, 8 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 3 days, 8 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 3 days, 8 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
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    When purchasing a new smartphone, do you consider the phone’s compatibility with T1D devices and apps?

    Home > LC Polls > When purchasing a new smartphone, do you consider the phone’s compatibility with T1D devices and apps?
    Previous

    If you were diagnosed with T1D as an adult, on a scale of 1-5, how easy or difficult was it to find an endocrinology clinic near you? (1 = the easiest, 5 = the most difficult)

    Next

    How do you handle unsolicited advice and judgements about T1D from family and friends?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Wanacure

      Yes, I did AND I REGRET IT.

      1. I had to pay more.

      2. Transmitting your personal medical info (easily hackable) via WiFi or the internet can violate your privacy resulting in higher insurance costs.

      3. I want my doctor to see the good, bad and ugly of my lifestyle and blood glucose levels. With a smartphone, you can” “adjust” your blood glucose readings. This is a very self-defeating choice IMHO.

      If your doctor gives you bad advice on objective readings, FIND ANOTHER DOCTOR. TRYING TO FOOL YOUR DOCTOR IS NOT IN YOUR BEST INTEREST.

      1
      4 years ago Log in to Reply
    2. connie ker

      I know I am certainly in the minority, but I bought my first mobile phone in 2019. Being a senior with T1D, I decided to start simple and purchased a Jitterbug Flip phone for seniors. The larger buttons, ease of use, and a 5Star alert button all seemed good options for me when I am out. When I am home, I use this laptop and landline phones. The contract for the Jitterbug flip is $14.99 plus the tax and surcharges = $22 a month. I can take pics, unlimited texting, and 250 minutes monthly, but no DATA.

      4 years ago Log in to Reply
    3. Clare Fishman

      I am using my phone to Loop so it does a lot more than just be a phone for me. It is command central for all insulin delivery.

      1
      4 years ago Log in to Reply
    4. Larry Martin

      T1D devices should be required to be compatibile with EVERY smartphone. T1D controls enough of our lives. If these companies do not care enough to be universal, screw them! It’s my life. My choice.

      2
      4 years ago Log in to Reply
    5. Jenn Velez

      That’s my first thought when buying a smartphone.

      4 years ago Log in to Reply
    6. Retired and glad

      I use my phone to see my CGM readings, count my steps (and stair climbs), and hold other health data. The calendar alerts me to doctor visits and other important appointments. Sometimes it seems that actually using it as a phone is secondary. I also now have an Apple Watch which delivers all that to my wrist, meaning I don’t have to continually pull out my phone. Even better. I believe in embracing the technology, because every new innovation helps me improve my life.

      3
      4 years ago Log in to Reply
    7. Sue Martin

      I brought a phone then returned it since it didn’t allow my DexCom app. I am glad that I did. Same with a smartwatch.

      4 years ago Log in to Reply
    8. Lawrence S.

      I spent an extra $100+ to buy a Samsung Galaxy A71 5G phone. I downloaded the Dexcom G6 app. I tried it for about 1 1/2 months. During that period, my transmitter signal got lost between 8 and 32 times per day. I worked with Dexcom technical staff and Tandem technical staff. We could not figure the problem. They replaced numerous sensors, two or three transmitters, and finally tried a new Tandem X2 pump exchange. I finally figured out that the Dexcom G6 app was causing the problem. When I turned off the G6 app., all of my problems went away. So now I get my readings from my pump. My Dexcom receiver is not working (went through several of those). They are too expensive to keep replacing. Medicare won’t pay for another one for 5 years. I went through a lot of expense, and stress with no benefit from using the phone app.

      1
      4 years ago Log in to Reply
    9. kristina blake

      I answered no. Two reasons: First my TAndem pump and Dexcom are integrated, I can see my bg on my pump, and take whatever action I need to. It is also easy to upload to my computer on TConnect and the data goes to the Endo’s office. Second, I choose phones for my partner and I that are similar to the ones we are replacing (we are android phone folks) and let’s just say he is a painter and sculptor, well-versed in centuries old technology – moving into the 21st century kicking and screaming. The second reason is that I don’t always want to have to carry the (damned) phone with me. Don’t know if it’s cuz I was on call 24/7 at times while I was working or what, but I have a sense of freedom when the phone is at home and I’m not! The pump is connected to me and my clothing. I don’t have to carry anything else.

      5
      4 years ago Log in to Reply
    10. Tina Roberts

      I’ve always used an iPhone, so I don’t worry. It seems everything uses iPhone.

      4 years ago Log in to Reply
    11. Kristine Warmecke

      No, but I use iPhones. Mostly because I can take all business info with me, so I’m not tied to being home to run it. I try to use the tConnect app, when it stay’s connected, so I don’t have to worry about uploading to my laptop, and my endocrinologist has access to real time readings.

      4 years ago Log in to Reply
    12. George Lovelace

      iPhone

      4 years ago Log in to Reply
    13. Patricia Kilwein

      I have minimed 770g. The minimed app works great with my Samsung phone. Just bought Samsung s20.

      4 years ago Log in to Reply
    14. Janis Senungetuk

      Yes, that’s the primary reason. I also control my hearing aids with a phone app.

      4 years ago Log in to Reply
    15. Brad Cohen

      This question and it’s answers are a bit misleading. Yes, I consider it but wouldn’t not buy an iPhone because the new omnipod doesn’t have an app for it yet.

      4 years ago Log in to Reply
    16. betsy valian

      for something this important… I use the receiver for the CGM exclusively.

      1
      4 years ago Log in to Reply
    17. Sarah Berry

      I have not in the past but will be with future purchase.

      4 years ago Log in to Reply
    18. Beth F

      Currently use a phone that is not “Dexcom-approved” and found a developer to make it work anyway. Dexcom and phone companies/software shouldn’t be determining this stuff anyway. There’s almost always a work-around. I feel safer with a receiver since there’s only bluetooth to keep the data local to the device.

      4 years ago Log in to Reply
    19. Molly Jones

      I chose yes, as I had only had one inexpensive mobile phone before using Dexcom, but it was necessary to purchase an iphone unless I wanted to carry along another medical device provided by Dexcom. The cost was very shocking. I think they have expanded their compatible phones now.

      4 years ago Log in to Reply
    20. Donna Owens

      This was the first time I considered T1D devices/apps when purchasing a new smartphone; but it wasn’t a primary factor in my decision.

      4 years ago Log in to Reply
    21. PamK

      I always check to see if the phone is compatible with my Dexcom.

      4 years ago Log in to Reply

    When purchasing a new smartphone, do you consider the phone’s compatibility with T1D devices and apps? Cancel reply

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