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    • 3 hours, 13 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 4 hours, 40 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 4 hours, 40 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 4 hours, 40 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 6 hours, 53 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 6 hours, 53 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 6 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 7 hours, 36 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 8 hours, 59 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 10 hours, 57 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 10 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    What was your most recent co-pay for insulin?

    Home > LC Polls > What was your most recent co-pay for insulin?
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    At what age were you (or a loved one) diagnosed with T1D?

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Steven Gill

      With BCBS my copay was $75 a month. Last year with no insurgent cost total was $90-ish a month. Through the VA insulin costs me $8 a month.

      2 years ago Log in to Reply
    2. John McHenery

      0 payment. The joy of the UK NHS.

      3
      2 years ago Log in to Reply
    3. Lawrence S.

      $60 for a 90 day supply.

      2 years ago Log in to Reply
    4. Jane Cerullo

      $35 for one month of insulin pens. Medicare should cover all in my opinion.

      1
      2 years ago Log in to Reply
    5. Gary Rind

      because I had reached my out of pocket max for an unrelated operation, I didn’t pay for insulin last year. haven’t purchased any yet this year

      2 years ago Log in to Reply
    6. Jerome McClellan

      $80 for 3 month supply.

      2 years ago Log in to Reply
    7. Bruce Schnitzler

      Zero co-pay since I have been using an insulin pump.

      2 years ago Log in to Reply
    8. Justin

      $60 for 90 days of Humalog and $60 for 90 days of Toujeo. $120 for 90 days or $40 a month.

      2 years ago Log in to Reply
    9. KCR

      $38 for a 3-month supply of Humalog for my pump.

      2 years ago Log in to Reply
    10. William Ervin

      I don’t have insurance and need to drive to Canada every six months to buy insulin, which I am still paying $25 per vial.

      2 years ago Log in to Reply
    11. William Bennett

      Zero. Medicare covers insulin as DME if it’s for a pump. It was kind of a PITA to get it set up b/c no one on the Medicare or Pharmacy side seemed to know what the heck I was talking about, and I had no idea how to do it either. I use Walgreens, and the big breakthrough was the discovery that they have an entity called the Medicare Benefits Manager or something like that who has to get the info from your doc. Has to be renewed every time you fill a script, is the other thing. But it works.

      2 years ago Log in to Reply
    12. Gary Taylor

      The insurance plan has a “maximum out of pocket” limit for any one prescription of $175. I get 7 bottles of Humalog for 3 months. Average out of pocket for each bottle is $25.

      2 years ago Log in to Reply
    13. Diane Roberts

      6 vials for $110.00 for 3 months

      2 years ago Log in to Reply
    14. Annie Wall

      My last insulin purchase was in December when I had original Medicare and a supplement so I paid $0. However, I’ve changed to a Medicare Advantage plan for 2024 and haven’t purchased yet but I believe I will have a $35 co-pay for my 90 day supply. I have to change to Novolog from Humalog but I’m fine with that.

      2 years ago Log in to Reply
    15. Katherine Kettig

      $70 for a box of 5 pens. Doubled from my last refill in November 2023.

      2 years ago Log in to Reply
    16. Bob Durstenfeld

      Mine was $54. Much better than the >$350 last year. I was also finally able to find a pharmacy that would supply insulin under Medicare Part B.
      Thank you Walgreens.

      2 years ago Log in to Reply
    17. Jana Wardian

      This was for 3 months and new yearly deductible.

      2 years ago Log in to Reply
    18. Thomas Cline

      Shouldn’t you have specified the number of months? I paid $80 but that was for 3 months, not 1. My copy for 3 months has risen $10 each of the last three years. This year seemed to see the biggest increase in medical insurance copays. On the other hand, piggy-backing on my wife’s great health insurance rather than Medicare, I always max out my copays pretty early in the year, so I can’t really complain.

      2 years ago Log in to Reply
    19. Eva

      I get six vials of Fiasp for $75.

      2 years ago Log in to Reply
    20. Stephen Woodward

      I use Medicare Part D, $35, however, because Lyumhev is not on the Medicare formulary I cannot get for $0 because it’s used in a pump.

      2 years ago Log in to Reply
    21. Juha Kankaanpaa

      I paid about USD 25. This will last me over a year.

      2 years ago Log in to Reply
    22. Jen Serrano

      Per month I pay $35 because that’s what the online savings card allows. I get 3 months at a time, which means my copay is $105.

      1
      2 years ago Log in to Reply
    23. Brian Vodehnal

      $120 90-Day.

      2 years ago Log in to Reply
    24. Andrea Panganiban

      Levimir skyrocketed to $150 from $50 for a 90 day supply. Looks like they are charging more for whatever is leftover since it is being discontinued.

      2 years ago Log in to Reply
    25. dholl62@gmail.com

      Copay of $45 is for a 90 day supply of insulin for my pump

      2 years ago Log in to Reply
    26. Mick Martin

      Not Applicable as I live in the UK (United Kingdom of Great Britain and Northern Ireland) where my insulin costs are paid for via our NHS (National Health Service), which is financed via direct taxation of all working people that earn more than a given amount.

      2 years ago Log in to Reply
    27. T1D4LongTime

      I pay the mail-order pharmacy $60 for a 90 day supply (4 vials) per the contract with my insurance company. I only can choose Fasp or Novolog at that price.

      2 years ago Log in to Reply
    28. Anita Stokar

      I believe my copay was $70, but that was 3 bottles which lasts me a few months

      2 years ago Log in to Reply
    29. mbulzomi@optonline.net

      Once apron a time I was getting 8-9 vials of NovoLog, free. Now with the price of a single vial at $35. I pay $65 for 8 vials. I have not been able to get an answer “Why” from my Federal Blue Cross Blue Shield insurance company.????

      2 years ago Log in to Reply
    30. KarenM6

      I think it was either $1200 or $1700 or ?. I don’t remember precisely, but it’s always outrageously expensive at the beginning of the year.

      2 years ago Log in to Reply
    31. PamK

      This was for a 90 day supply!

      2 years ago Log in to Reply

    What was your most recent co-pay for insulin? Cancel reply

    You must be logged in to post a comment.




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