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    • 1 hour, 27 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 hour, 27 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 5 hours, 25 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 5 hours, 25 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 5 hours, 26 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 5 hours, 26 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 5 hours, 40 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 6 hours, 1 minute ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 6 hours, 7 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 6 hours, 8 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 7 hours, 5 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 7 hours, 54 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 7 hours, 54 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 7 hours, 55 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 7 hours, 55 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 7 hours, 58 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 7 hours, 58 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 7 hours, 59 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 8 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 8 hours, 1 minute ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 1 minute ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 6 minutes ago
      Gary R. likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 6 minutes ago
      MT likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 8 hours, 24 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 8 hours, 24 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?

    Home > LC Polls > Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    17 Comments

    1. Lawrence S.

      I answered, “unsure.” I have never been diagnosed with attention-deficit hyperactivity disorder, but I believe I exhibited symptoms, especially when I was young. Also, my brother, and his son, who was diagnosed, exhibit the symptoms. I often get distracted and have difficulty concentrating. Sometimes I find myself stopping in the middle of what I am doing to do something else that distracted me. I am easily distracted.

      2
      2 years ago Log in to Reply
      1. Ahh Life

        Lawrence S, you and billions of Earth’s residence are being encouraged, reinforced, and mandated by the digital likes of Amazon, Meta, Google, Microsoft, et al to shorter and shorter attention spans. Most of society hates it, while the big. monster companies just rake in the cash. Sigh!

        1
        2 years ago Log in to Reply
    2. mlettinga

      I thought I was the only one with adhd. I think of many times I had to check my trash when I was young to see if I gave my shot. Or gave double insulin forgetting I already gave my shot. So much easier now when I can just look at my pump. 55 years type 1 and still going strong.

      4
      2 years ago Log in to Reply
    3. Bob Durstenfeld

      I live with mild AdD. One of my sons has ADD, but not T1D. My son with T1D does not have ADD.

      2 years ago Log in to Reply
    4. mbulzomi@optonline.net

      I check-off “NO”, no comment necessary.

      2 years ago Log in to Reply
    5. ConnieT1D62

      yes I live with both TID and ADHD (non-attentive type) since my early childhood. However the ADHD was not diagnosed until I was in my late 40’s. I have been on a very low dose of generic Adderall for several years and it does make a difference to stabilize my scattered attention difficulties and tendencies.

      2 years ago Log in to Reply
    6. Kristi Warmecke

      I’ve not heard of connection between T1D & ADHD before. Is this a new discovery from some research?

      1
      2 years ago Log in to Reply
    7. Daniel Bestvater

      T1D for 45 years and I most definitely have many of the behaviours associated with ADHD. I have a brother without T1D that exhibits many of the same behaviours. At least 10 things on the go at the same time and nothing ever gets finished!!

      2 years ago Log in to Reply
    8. Richard Vaughn

      My wife is diagnosed with Dementia. She has the symptoms of ADHD, too. The symptoms of both ADHD and Dementia can be very similar.

      1
      2 years ago Log in to Reply
    9. Edward Geary

      Diagnosed at age 50. Routinely told it was diabetic fatigue until I consulted a neuropharmacologist.

      2 years ago Log in to Reply
    10. Lynn Smith

      I answered No, but I probably have symptoms. I have always had trouble sitting still and at times I know my focus should be better. But, my judgment of symptoms is greatly affected by raising my severely ADHD son, who is not a T1D. He is grown now and has a daughter who is ADHD and is also not T1D. Both have been tested for T1 autoantibodies and they were both negative.

      2 years ago Log in to Reply
    11. Andrea Panganiban

      I have type 1 diabetes. My husband has ADHD.

      2 years ago Log in to Reply
    12. Ceolmhor

      I said “Other”. I have T1D. Our oldest son has T1D, our youngest son has ADD (i.e., ADHD without the hyperactivity — they never should have combined the two names). Our middle son has MS. We all seem to have very active immune systems. 😉

      2 years ago Log in to Reply
    13. Sue Herflicker

      My son diagnosed at 23 months with T1D had some form of ADD. We managed it without meds but as an adult he has had to seek help for it. He is doing excellent on his new medication. It has made the world of difference for him.

      2 years ago Log in to Reply
    14. kim bullock

      I have type 1 diabetes and possibly ADD. I don’t have the hyperactive but I am do have the symptoms of other stuff.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      Badly phrased question. Irrelevant someone else’s ADD/ADHD has no affect or influence of my D symptoms, or treatment. They are entirely separate creatures.

      2 years ago Log in to Reply
    16. babyish aggregate

      I have been diagnosed with type 1 diabetes for 45 years, and I fnaf very certainly exhibit many of the behaviors that are associated with attention-deficit/hyperactivity disorder.

      1 month ago Log in to Reply

    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love? Cancel reply

    You must be logged in to post a comment.




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