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    • 6 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 7 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 7 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 6 hours, 2 minutes ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 6 hours, 3 minutes ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 6 hours, 4 minutes ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 6 hours, 52 minutes ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 6 hours, 53 minutes ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      Extremely. I have a certificate in Medical Billing & Coding.
    • 10 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 10 hours, 33 minutes ago
      atr likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 10 hours, 45 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Roughly half my lows are caused by my auto correct system now. I expect AI hallucinations to make it worse. I have enough hallucinations when I'm low and need non-hallucinatory help. We all need more info on this subject to make better decisions. As my favorite 80's AI robot (Johnny 5) said, "Need input."
    • 10 hours, 45 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I'm not comfortable for many reasons: 1) AI hasn't proven respects boundaries, quite the opposite, too many reports of AI tend to view its responsibilities and decisions as NOT mine; 2) the companies behind AI systems do likewise in not respecting my data as mine and jumble it in with their own; 3) AI systems haven't proven themselves as reliable parties regarding data and actions. There are many more; AI systems have a long way to go before I entrust one with dosing strategies while I'm awake, let alone while I'm asleep!
    • 10 hours, 46 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’ve done a large 2 week focus group through Syracuse University on AI. I’ve also been watching shows on European news about AI and medical issues. AI still has too many glitches when it comes to medical issues.
    • 11 hours, 2 minutes ago
      TEH likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 11 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Having recently dealt with ongoing tech issues involving our heat and electrical-use notifications for more than six months — and it’s still not fully resolved — I’m not always a fan of too much technology. That said, I am interested in advances like the Twist Insulin Pump potentially detecting scar tissue or helping with infusion-site issues. But then reality kicks in: taking devices off for MRIs, replacing failed equipment, and navigating Medicare when it’s primary insurance can become a nightmare of paperwork and delays. And honestly, AI in some call centers has been pretty frustrating. Sometimes it feels like no one can answer a real-world question anymore. I think we should tread lightly and make sure technology actually makes life easier for people living with T1D — especially older adults who already manage enough complexity every day. Some days I think about a less stress free life and going back to a syringe and insulin. over 45 years of doing that, and now 25+ of devices, I'm tired of the challenges in getting replacements, and scar tissue, and mail order supplies and on and on.
    • 11 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 1 day, 6 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 1 day, 6 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 1 day, 6 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’m uncomfortable not knowing when and when it isn’t being used, but I’m not sure why really. A “singer” named Benny Rivers popped up in one of my feeds. I really liked the music, until I found out it was a total AI fabrication. Then I was uncomfortable. Why? I felt “taken”, like someone pulled a fast one on me, pulled the wool over my eyes. I liked the music less then. I didn’t like that I couldn’t find a tour date, things like that. But I was most uncomfortable not truly understanding why it made me uncomfortable. The music was still enjoyable.
    • 1 day, 8 hours ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Having recently dealt with ongoing tech issues involving our heat and electrical-use notifications for more than six months — and it’s still not fully resolved — I’m not always a fan of too much technology. That said, I am interested in advances like the Twist Insulin Pump potentially detecting scar tissue or helping with infusion-site issues. But then reality kicks in: taking devices off for MRIs, replacing failed equipment, and navigating Medicare when it’s primary insurance can become a nightmare of paperwork and delays. And honestly, AI in some call centers has been pretty frustrating. Sometimes it feels like no one can answer a real-world question anymore. I think we should tread lightly and make sure technology actually makes life easier for people living with T1D — especially older adults who already manage enough complexity every day. Some days I think about a less stress free life and going back to a syringe and insulin. over 45 years of doing that, and now 25+ of devices, I'm tired of the challenges in getting replacements, and scar tissue, and mail order supplies and on and on.
    • 1 day, 8 hours ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 1 day, 8 hours ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 1 day, 8 hours ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 1 day, 9 hours ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 1 day, 9 hours ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
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    We’d like to know our Online Community better, please share what your primary connection to T1D is:

    Home > LC Polls > We’d like to know our Online Community better, please share what your primary connection to T1D is:
    Previous

    If you use a CGM, at what glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your local time zone.

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    What do you define as a very low blood glucose reading?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    21 Comments

    1. Phyllis Biederman

      I have T1D and am also a medical professional workin the diabetes space.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Me too.

        2 years ago Log in to Reply
    2. jamesmpii

      LADA is Type 1. The question reinforces a constant misconception that LADA is not Type 1. If you want to differentiate, ask if our Type 1 onset was as a juvenile or as an adult. Whether it comes on suddenly at age 10 or comes on slowly at any age, it’s all Type 1.

      5
      2 years ago Log in to Reply
      1. Carol Evans

        Or comes on fast as an adult. If you don’t produce any insulin at all, you are Type 1. If your immune system decided to go to town on your beta cells and destroy them, at whatever age, you have the autoimmune disease called Type 1 diabetes. I don’t understand the LADA distinction, other than for research purposes.

        4
        2 years ago Log in to Reply
      2. William Bennett

        Yeah, the LADA thing confuses me too. I think the typical profile has to do with the slow speed of onset, hence “latent,” in combo with “Adult.” But it doesn’t fit me.

        I was dx’d when I’d just turned 28, and it went from first noticing I felt kinda crappy all the time to incipient DKA in about 6 weeks. That was in 1983 when Type 1/Type 2 wasn’t a thing, let alone LADA, so my record actually says “Juvenile type” anyway.

        1
        2 years ago Log in to Reply
    3. Patricia Dalrymple

      Thank you to the respondents who clarified LADA v. T1D. I marked LADA but probably should have marked T1D. I’m still trying to come to terms with the fact that my own body attacked my pancreatic cells at age 40.

      1
      2 years ago Log in to Reply
      1. Carol Meares

        That is roughly the age I was diagnosed. 39

        2 years ago Log in to Reply
    4. Ruth Schwartz

      Looking for Frontline anwers for the Trigger of the AutoImmune Response of TD1, and what is the Strategies for the Stopping/ Restoration of the Pancreas Functions and Islet Cells. Questions seem to be mpre of the Focus on Big Pharma Marketing vs. Cellular Restoration and Functions?

      2 years ago Log in to Reply
    5. Katherine Kettig

      I was diagnosed at 65 but was told I have type 1. Not sure what LADA is.

      2 years ago Log in to Reply
    6. james zellerhoff

      Watch your TID site daily
      For any “news” on TID
      MY diabetic DR Erl Hirsch — well known—Seattle WA
      I am neither type 1 or type 2
      So do studies with “Rariant”
      On Humalog insulin
      Go to the Diabetes care center @ the uw facility
      In Seattle WA
      JIM ZELLERHOFF.

      1
      2 years ago Log in to Reply
      1. Sue Martin

        I’m with another doctor in the same clinic.

        2 years ago Log in to Reply
    7. Kristi Warmecke

      I’ve been apart of the T1 community since 1972 when my brother was diagnosed at 7 months old. I was diagnosed 10 years later.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      I would have checked several boxes, I have T1D, my eldest son has T1D, and my eldest granddaughter has T1D. Sort of runs in the family.

      1
      2 years ago Log in to Reply
    9. Carol Meares

      I have been told that LADA is not an official diagnosis although that may have changed. I put LADA because I figured by the question you wanted to differentiate the Type ones to know your audience better. My diagnosis is now Type 1 although for many years the diagnosis was Type 2 even though I was on insulin and was not characteristic of Type 2, i.e. insulin resistance. I was diagnosed at age 39. The term LADA may not have even been coined at the time (1993). I am now almost 70.

      1
      2 years ago Log in to Reply
    10. Ken Raiche

      I would figure by the title of this site it would be an extremely high percentage of T1D.

      2 years ago Log in to Reply
    11. Sue Herflicker

      I live with LADA and I also raised 2 T1ds before my diagnosis. Also my brother is a T1d.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      Multiple responses apply to me, but could only select one:
      – I live with type 1 diabetes
      – I am a family member of someone living with T1D
      – I work in diabetes/diabetes research

      1
      2 years ago Log in to Reply
    13. Bill Kast

      I identify as a T1D but actually I am not auto-immune compromised. My entire pancreas was removed in an attempt to avoid Early and Certain Death from Pancreas Adinocarcinoma. The procedure was about 9 years ago, and my recovery was slow but has been excellent. I am in good health (for a 75 year old man…) Anyone interested in my journey is welcome to browse my WordPress Blog that documents my adventure. https://billspancreas.wordpress.com

      2 years ago Log in to Reply
    14. ConnieT1D62

      Would have been nice to be able to select more than one answer as several of us have more then one primary connection to T1D.

      2 years ago Log in to Reply
    15. Michele Dougherty

      I’ve had type 1 diabetes for 43 years

      2 years ago Log in to Reply
    16. jamesmpii

      I am T1D.

      2 years ago Log in to Reply

    We’d like to know our Online Community better, please share what your primary connection to T1D is: Cancel reply

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