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    • 13 hours, 24 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 13 hours, 30 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 13 hours, 37 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 10 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 16 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 11 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    We’d like to know our Online Community better, please share what your primary connection to T1D is:

    Home > LC Polls > We’d like to know our Online Community better, please share what your primary connection to T1D is:
    Previous

    If you use a CGM, at what glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your local time zone.

    Next

    What do you define as a very low blood glucose reading?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Phyllis Biederman

      I have T1D and am also a medical professional workin the diabetes space.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Me too.

        2 years ago Log in to Reply
    2. jamesmpii

      LADA is Type 1. The question reinforces a constant misconception that LADA is not Type 1. If you want to differentiate, ask if our Type 1 onset was as a juvenile or as an adult. Whether it comes on suddenly at age 10 or comes on slowly at any age, it’s all Type 1.

      5
      2 years ago Log in to Reply
      1. Carol Evans

        Or comes on fast as an adult. If you don’t produce any insulin at all, you are Type 1. If your immune system decided to go to town on your beta cells and destroy them, at whatever age, you have the autoimmune disease called Type 1 diabetes. I don’t understand the LADA distinction, other than for research purposes.

        4
        2 years ago Log in to Reply
      2. William Bennett

        Yeah, the LADA thing confuses me too. I think the typical profile has to do with the slow speed of onset, hence “latent,” in combo with “Adult.” But it doesn’t fit me.

        I was dx’d when I’d just turned 28, and it went from first noticing I felt kinda crappy all the time to incipient DKA in about 6 weeks. That was in 1983 when Type 1/Type 2 wasn’t a thing, let alone LADA, so my record actually says “Juvenile type” anyway.

        1
        2 years ago Log in to Reply
    3. Patricia Dalrymple

      Thank you to the respondents who clarified LADA v. T1D. I marked LADA but probably should have marked T1D. I’m still trying to come to terms with the fact that my own body attacked my pancreatic cells at age 40.

      1
      2 years ago Log in to Reply
      1. Carol Meares

        That is roughly the age I was diagnosed. 39

        2 years ago Log in to Reply
    4. Ruth Schwartz

      Looking for Frontline anwers for the Trigger of the AutoImmune Response of TD1, and what is the Strategies for the Stopping/ Restoration of the Pancreas Functions and Islet Cells. Questions seem to be mpre of the Focus on Big Pharma Marketing vs. Cellular Restoration and Functions?

      2 years ago Log in to Reply
    5. Katherine Kettig

      I was diagnosed at 65 but was told I have type 1. Not sure what LADA is.

      2 years ago Log in to Reply
    6. james zellerhoff

      Watch your TID site daily
      For any “news” on TID
      MY diabetic DR Erl Hirsch — well known—Seattle WA
      I am neither type 1 or type 2
      So do studies with “Rariant”
      On Humalog insulin
      Go to the Diabetes care center @ the uw facility
      In Seattle WA
      JIM ZELLERHOFF.

      1
      2 years ago Log in to Reply
      1. Sue Martin

        I’m with another doctor in the same clinic.

        2 years ago Log in to Reply
    7. Kristi Warmecke

      I’ve been apart of the T1 community since 1972 when my brother was diagnosed at 7 months old. I was diagnosed 10 years later.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      I would have checked several boxes, I have T1D, my eldest son has T1D, and my eldest granddaughter has T1D. Sort of runs in the family.

      1
      2 years ago Log in to Reply
    9. Carol Meares

      I have been told that LADA is not an official diagnosis although that may have changed. I put LADA because I figured by the question you wanted to differentiate the Type ones to know your audience better. My diagnosis is now Type 1 although for many years the diagnosis was Type 2 even though I was on insulin and was not characteristic of Type 2, i.e. insulin resistance. I was diagnosed at age 39. The term LADA may not have even been coined at the time (1993). I am now almost 70.

      1
      2 years ago Log in to Reply
    10. Ken Raiche

      I would figure by the title of this site it would be an extremely high percentage of T1D.

      2 years ago Log in to Reply
    11. Sue Herflicker

      I live with LADA and I also raised 2 T1ds before my diagnosis. Also my brother is a T1d.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      Multiple responses apply to me, but could only select one:
      – I live with type 1 diabetes
      – I am a family member of someone living with T1D
      – I work in diabetes/diabetes research

      1
      2 years ago Log in to Reply
    13. Bill Kast

      I identify as a T1D but actually I am not auto-immune compromised. My entire pancreas was removed in an attempt to avoid Early and Certain Death from Pancreas Adinocarcinoma. The procedure was about 9 years ago, and my recovery was slow but has been excellent. I am in good health (for a 75 year old man…) Anyone interested in my journey is welcome to browse my WordPress Blog that documents my adventure. https://billspancreas.wordpress.com

      2 years ago Log in to Reply
    14. ConnieT1D62

      Would have been nice to be able to select more than one answer as several of us have more then one primary connection to T1D.

      2 years ago Log in to Reply
    15. Michele Dougherty

      I’ve had type 1 diabetes for 43 years

      2 years ago Log in to Reply
    16. jamesmpii

      I am T1D.

      2 years ago Log in to Reply

    We’d like to know our Online Community better, please share what your primary connection to T1D is: Cancel reply

    You must be logged in to post a comment.




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