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  • Activity
    • 3 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 7 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 4 hours, 23 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 23 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 40 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 4 hours, 40 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 40 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 42 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 6 hours, 2 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 6 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 6 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 6 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 6 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 6 hours, 6 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 6 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 6 hours, 8 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 9 hours, 4 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 9 hours, 4 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 9 hours, 5 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 9 hours, 5 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 9 hours, 51 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 10 hours, 19 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 10 hours, 20 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 10 hours, 21 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 10 hours, 21 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    On average, how satisfied are you with the general customer service provided by T1D supply companies?

    Home > LC Polls > On average, how satisfied are you with the general customer service provided by T1D supply companies?
    Previous

    Do you have extra insulin in addition to what you received in your most recent prescription re-fill? If so, how long would that additional insulin last you if needed?

    Next

    If you wear a CGM, how do you get your supplies?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    26 Comments

    1. Bob Durstenfeld

      I am satisfied with the manufacturers (Dexcom. Tandem, etc.) but not so much with the contract suppliers.

      2 years ago Log in to Reply
    2. lis be

      I signed up for a supplier a few years ago that I no longer use, they switched to a robocall method of confirming prescription renewals that would call me 5 times a day from different area codes. It was near impossible to talk to a real person to get removed from the stalker-like robocall service!

      2 years ago Log in to Reply
    3. Nevin Bowman

      I work in customer service, and my experience has been better with diabetic supply companies than general run-of-the-mill companies. Most people are more than willing to resolve whatever the hold-up is. If there is a problem, it is almost always with insurance companies that the supply companies are powerless to do anything about.

      2 years ago Log in to Reply
    4. Jana Wardian

      Recently, I’ve had customer service representatives resolve issues with insurance by setting up a 3-way call on the spot to discuss and resolve the issue. I love this! Previously, it was like a game of hot potato as the blaming never seemed to end and I was stuck.

      2 years ago Log in to Reply
    5. David Smith

      My biggest challenge was presented when I shifted from a health plan with my employer to Medicare. Medicare requires regular certifications from my Endocrinologist that I still have diabetes and that I’m using the insulin pump and CGM supplies I order, and Medicare is extremely strict about the specific wording of the documentation they require. My prior insurer did not require a similar process. Medicare’s requirements are unreasonable, especially given the senior population they serve. Getting your T1D supplies shouldn’t be more difficult as you get older, and especially not for artificial, bureaucratic reasons!

      2 years ago Log in to Reply
    6. Amanda Barras

      Don’t even get me started. I was always able to order directly through pump manufacturer before but new insurance only allows third party dme vendor for supplies now. Supply order went ok with existing pump. But, now that I’m out of warranty and ordering a new pump they have had that order since Jan 13th and have still not submitted to insurance or shipped! I’m critically low on current pump supplies because I thought it silly to reorder supplies for current pump if I would have new pump in a few weeks to a month. Now we are sitting 2 months later with nothing and having a huge problem! I hate that I’m stuck with these guys because my insurance dictates it!

      2 years ago Log in to Reply
    7. Greg Felton

      I answered very dissatisfied, but in fact I find the persons answering calls at the supplier to be knowledgeable and helpful. I am dissatisfied with the company’s website and inability to do their job. I should not have to call customer service multiple times.

      2 years ago Log in to Reply
    8. Sherolyn Newell

      I answered other. I have always been very impressed with Omnipod. The people are great and you are hardly ever on hold waiting for someone to answer. I started on Dexcom right about the time G6 came out. I think it was the new product causing extra calls, but I would be on hold for 15 to 30 minutes every time I called. I tried the “call you back when it’s your turn once”. When it called me back, it said my wait time was 20 minutes, so I didn’t do that again. Consequently, I hated having to call Dexcom. It is not nearly so bad now.

      2 years ago Log in to Reply
    9. Gene Maggard

      I answered that I’m very satisfied only because I very seldom have to be in contact with anyone at my third-party supplier. Since they are in a competitive situation with other third-parties (unlike Medtronic or other manufacturers) they keep on top of things and take care of contacting my endo to ensure they have the correct Medicare-approved backup to what I need. When supplies need to be ordered I get a text message, then I mostly do everything on the website which works well for me.

      2 years ago Log in to Reply
    10. Kristine Warmecke

      When I switched to Medicare and had to switch DME supplier’s Byram was the only choice at the time. I had all my supply information in front of me when I called to place my first order, so I was feeling good. That lasted only 24 hours and went downhill from there. All of last year was a fight to get the correct pump supplies that ended with a Tandem rep. calling them and being hung up the same as I was, when they tried to explain that VariSoft sets are not discontinued & they needed to provide me with them. Much better costumer service being back with EdgePark. I haven’t had to refuse sites because I am down to one box and have no idea when my DME company will get me the correct ones.

      2 years ago Log in to Reply
    11. Mike S

      Really should be a way to differentiate between suppliers. OmniPod is always super responsive and never fails to answer quickly, send a new pod for a failed one, or help me navigate insurance. Dexcom technical support is great, but billing and ordering are a mess with long wait times and no willingness to understand move paperwork to solve insurance issues. Fortunately/unfortunately I will know have to go through a supplier for my Dexcom supplies. (Solara?) Fingers crossed they are better at jumping through the insurance hoops than Dexcom was.

      2 years ago Log in to Reply
    12. Steve Rumble

      I receive my supplies through my HMO, Kaiser Mid Atlantic, and they have always been responsive and timely.

      2 years ago Log in to Reply
    13. John Henninger

      You forgot the option of “Satisfied” which is different than “Indifferent” as you had in the middle of your options. It is also better than “Somewhat Satisfied” and not as bad as “Somewhat Dissatisfied.” My answer is “Satisfied” and please make note of that.

      2 years ago Log in to Reply
    14. Sasha Wooldridge

      I’m a die-hard Edgepark fan. They always take care of my problem or can answer my question with minimal effort on my part. Usually just one phone call. They’ve even saved me with a complimentary box of supplies here and there when my doctor’s office wasn’t responding to the paperwork they needed. They can’t do it all the time, but they will if you’re really in a bind. If I’m playing ring-around-the-rosey with medical crap, I always saved them as my last call if I can, because at least I’ll end the craziness with a positive experience.

      2 years ago Log in to Reply
    15. Mick Martin

      I’ve only ever dealth with Medtronic/MiniMed since I’ve been using a pump in 1999 and can say that I’ve received nothing but courtesy and professionalism when I’ve had dealings with any of their representatives. So far, I’ve appreciated the advice and service that I’ve received from them. The one thing that I personally feel lets them down is that I can’t order my Guardian 3 Sensors through their eShop. This is PROBABLY due to the fact that I don’t have to pay for my diabetes-related supplies as it’s covered by our NHS (National Health Service) so they need to make sure that supplies are going to be paid for by my local hospital. A shame really as I can order anything else from their eShop without question.

      2 years ago Log in to Reply
    16. Annie Maley

      I recently was switched from having Medicare as my primary. My husband’s new contractor has more than 100 employees so it dropped Medicare into secondary. GEHA as primary. I found when Medtronic was dealing with Medicare there were a lot of what seemed like redundant documentation that they needed, including visits to doc every 3 months, which I don’t need medically speaking. Now with the primary insurance change it’s been a nightmare with Medtronic getting my supply order out in a timely manner. Even though they put it in a priority/expedite status, I’m going to run out of infusion sets before I get the supply order. They already sent me 2 infusion sets as an emergency supply, but I had to pay $12.50 to have them overnight ship it. So frustrating. I know that with new insurance that they have to get authorization for all supplies from the new insurance. I just wish they had a better method of expediting this process for people who rely on life giving/saving medical supplies. It sucks! Done with my rant. 🙂

      2 years ago Log in to Reply
    17. Michelle Shampine Smith

      Disgusted. Edgepark gives us an issue every three months for the past 4 years for my son’s supplies. It is board line medical neglect and indifference.

      2 years ago Log in to Reply
    18. Eileen Heveron

      Everything was great for me when I was able to get supplies directly from the manufacturer (Tandem and Dexcom). Then I turned 65 and went on Medicare plus Scan. Although getting my new pump and CGM when the old one expired was horrendous (months on end, many many people involved, a nightmare), getting pump supplies isn’t too bad with the supplier. But because of the Medicare regs for the CGM, it IS another nightmare. They only allow a 30 day supply of sensors, but 7 months have 31 days!!! By the time you add in holidays and whatever, you end up without supplies. I have for the past two months and was notified of my next shipment which will mean I am out of supplies for 3 to 5 days with shipping date. Of course I can finger prick but I use Control IQ with my Tandem pump and I am under MUCH better control with it. Finger pricks six times a day doesn’t cut it for my management, hence going to Control IQ. I am a T1 diabetic for 59 years and am thrilled with the technology. But Medicare needs to do the math and allow 90 day supplies and Dexcom needs to keep pushing for a longer lasting sensor. Something’s got to give.

      2 years ago Log in to Reply
    19. Shelley Fenn

      I use Solara for DME through my husband’s insurance. I have been extremely unhappy with their customer service. In the past 2 years they have shorted me a box of Dexcom G6 sensors and denied it when I realized it. They also sent a Dexcom reorder to the wrong address and when I didn’t realize it right away, they pushed out the prescription one month because it took them 2 weeks to log the return ; I lost a month of supply. They blame all the errors on my insurance, but it’s been their fault. They NEVER return your call though sometimes you are forced to leave a message after waiting on hold. They do not take thorough notes. They will send you to a “supervisor” though it isn’t one. The list goes on and on. I will be so happy when I can get my supplies at a pharmacy.

      2 years ago Log in to Reply
    20. Cheryl Seibert

      I use EdgePark and answered “Very Satisfied”. Their website has a couple of minor challenges, but their customer service representatives are very responsive and friendly. Most of the challenges are insurance requirements like not being able to order even 3 days before the 90 days are up from the last order. I’ve received all my supplies very quickly since switching to a Tandem pump and using EdgePark.

      2 years ago Log in to Reply
    21. Robby Doyle

      Same issues with Medicare as has already been noted. Downright stupidity on the part of my Bose who implemented this program… or, was it intentional?! Follow the money…

      2 years ago Log in to Reply
    22. Jennifer Yeomans

      Ditto E.H’s comments. When I turned 65 and went on a Medicare plan refilling Dexcom supplies became a nightmare. They only allow a 30 day supply of sensors. With shipping and reordering regulations I am often out of supplies for 3 to 5 days. I use a Tandem pump with Control IQ and when I am out of supplies my diabetes management suffers. This could be REMEDIED with a 90 day supply of sensors. Medicare needs to allow a 90 day supply. I’ve had T1D for 50 years and I expect a CGM will continue to be apart of my management. Hey Medicare are you listening to us?

      2 years ago Log in to Reply
    23. Rose Ryder

      Dexcom is a dismal, irritating experience (follow a script, patronizing almost). Understand they outsourced the ordering to another company; hopefully it’ll be better.

      2 years ago Log in to Reply
    24. Bonatay

      I chose “other”. Up until last October I had a supplier for my cartridges and infusion sets different from my supplier for CGM supplies. I put in a supply request for refill. I never received them. Didn’t get a call that there was an issue. I would call and the call would drop after holding for 15 or 20 minutes. Would leave a callback # and never received a call. I was done with them and went to my CGM supplier for everything. It took 3 months of MDI before I started receiving all my supplies from 1 supplier. Now I receive call and email and text when it is time for reorders. So far so good with new supplier. The customer service was excellent in helping me getting started with doctors office coordination. I’m ticked pink so far with DMS.

      2 years ago Log in to Reply
    25. Luke Smith

      I feel like Dexcom has good products but everyone that works there seems to follow like a guideline I wish they were more a little more genuine and concerned for the customer

      2 years ago Log in to Reply
    26. T1D5/1971

      I’ve had very good experiences with CCS under Humana Medicare Advantage. They are now my source for both pump and CGM supplies. Other suppliers have not been great – Edgepark, Byram, etc. Dexcom was my CGM supplier last year – and that was a constant pain. I frequently had to get sensors through alternative means. Having been with Dexcom since 2006, I was sad to see their attitude towards customers descend to such a terrible state. I was happy to hear that they have given up the process of being a direct supplier, but I am still eagerly awaiting the Tandem/Libre combo, as I can no longer recommend Dexcom as a company. If my life matters so little to you…

      2 years ago Log in to Reply

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