Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 2 hours, 14 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 2 hours, 14 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 2 hours, 43 minutes ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 11 hours, 5 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 20 hours, 39 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 20 hours, 39 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 20 hours, 39 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 20 hours, 40 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 7 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 11 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 11 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 8 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 9 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 10 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Do you have extra insulin in addition to what you received in your most recent prescription re-fill? If so, how long would that additional insulin last you if needed?

    Home > LC Polls > Do you have extra insulin in addition to what you received in your most recent prescription re-fill? If so, how long would that additional insulin last you if needed?
    Previous

    If you have ever been pregnant while living with T1D, how much did your insulin needs change throughout your pregnancy?

    Next

    On average, how satisfied are you with the general customer service provided by T1D supply companies?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

    6 days ago  
    Meet the Expert

    Meet the Expert: Improving Diabetes Care Through Precision Medicine 

    Jewels Doskicz, 2 weeks ago 8 min read  
    Meet the Expert

    Meet the Expert: Bridging Research, Technology, and Real-World Care 

    Jewels Doskicz, 2 weeks ago 9 min read  
    Insulin & Meds

    Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D 

    Jewels Doskicz, 3 weeks ago 6 min read  
    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 month ago 8 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 2 months ago 6 min read  

    23 Comments

    1. Chris Deutsch

      I do not understand what you are asking…. I have 2

      5 years ago Log in to Reply
    2. Chris Deutsch

      I do not understand what you are asking about “extra insulin”…. Are you asking whether I keep extra (i.e., more than 3 months supply) of my usual insulin on hand as backup or Are you asking whether I have alternate forms of insulin to use if I had none of the usual insulin?? I keep Lantus and Humalog pens on hand as might be needed for pump failure, but don’t consider those are “extra”.

      5 years ago Log in to Reply
    3. LizB

      It is always good to have extra insulin. This past year I have used more insulin in my pump than ever before due to being home almost all the time.

      5 years ago Log in to Reply
    4. Britni Steingard

      I wind up with extra Humalog because of the way the math works out (how many units I need each month plus the fact I can’t get half a bottle from the pharmacy). Lantus, though, I only wind up with extra if I use up the whole bottle instead of discarding it after 28 days.

      5 years ago Log in to Reply
    5. ConnieT1D62

      I always keep extra on hand. I have a 3 to 4 month supply of Novolog on hand for what I use in my pump and to use for bolus injection (w/30cc syringes) when off the pump. I also have Basaglar and Fiasp pens to use as back-up when off pump.

      5 years ago Log in to Reply
    6. Clare Fishman

      My endocrinologist wrote my rx to use up to 100 units per day in my pump. I get 3 vials a month and use a little more 1 so I have what is left in the fridge. I just have to arrange it so the “oldest” is on top. If a friend needs some I am happy to share.

      5 years ago Log in to Reply
    7. Robert Brooks

      I agree with Chris that the question needs clarification. My source of insulin is the refill. the refill carries me for three months. There is no extra insulin.

      5 years ago Log in to Reply
    8. Ken Raiche

      I usually have 1 to 2 spare vials of Humalog in the fridge which in worst case scenarios would last me approximately 1 to 2 months. To top things off I also keep a pen set of Humalog and Tresiba just in case a issue would present itself with my current pump setup. Better safe then sorry as they say.

      5 years ago Log in to Reply
    9. Kathryn Keller

      Trying Fiasp out now, so have extra humalog left over

      5 years ago Log in to Reply
    10. carol Huhn

      I refill my prescription. I don’t know how I could have a back up supply. That would be nice.

      5 years ago Log in to Reply
    11. Gene Maggard

      Because of my changing insurance companies and then going on Medicare, I have been able to hoard about an extra two-month supply. This comes in handy if, pandemic allowing, I go on an extended cruise or other type of vacation when I have to carry extra.

      5 years ago Log in to Reply
    12. Sherolyn Newell

      I build up extra because I use over 1 vial per month, so my prescription is for 2 vials. Since I don’t use a full 2 vials, the extra builds up. Someone else had the same comment.

      5 years ago Log in to Reply
    13. Pat Reynolds

      I don’t understand how people can be prescribed precisely 3 months insulin. Exercise more, you’ll use less. Get sock, you’ll probably use more. And what if you needed 1043 units bu some calculation? Do you ge5 a part-vial/pen for the odd units??? So you will gradually build up a little stock. I have prefilled pens as back ups for my pump (prefer the short acting to be vials, but Dan disagrees. So I have lots of pens that have _technically_ been out of the fridge for too long. Now it seems that Brexit+Covid has not seriously disrupted the supplies, it will be going to a charity to distribute in a developing country.

      5 years ago Log in to Reply
    14. Sarah Austin

      Just ask your Endo to prescribe a little extra for you to have in hand in case of emergency. Most will gladly do so

      5 years ago Log in to Reply
    15. Kristine Warmecke

      When I wet on Medicare I thought my need to ration my Novolog would end. I couldn’t have been more wrong. The cost of my Novolog just rises every year, making it even harder to afford on disability. I REALLY wish I wasn’t allergic to Humalog, the formulary one.

      5 years ago Log in to Reply
    16. Sasha Wooldridge

      I consider this question to be asking if you have a stockpile or safety supply that’s over and above your normal prescription “allowance” so to speak. I had a decent stockpile and then my endo retired and I spent it all during the 1+ year I was looking for a new endo. Almost ran out three times in the last few months, but finally have a new endo and a new script, so I’m working on my stockpile again. Ditto on the comment about asking your endo for a little extra. We’ll never hit the nail on the head and if their any good they’ll know that. Add in all the cannulas, tubing, needles, etc. and you can’t ever be completely exact. My script is for a bit more than my total daily dose and if I need to “save up” I just don’t eat the heavy carb stuff for a while until I’m comfortable with my stockpile size. Nothing major, I just don’t have a piece of cake after dinner, don’t eat out a ton, stay away from potato chips and other snacky items. Stuff like that. It adds up and poof! Extra vials of insulin in the fridge.

      5 years ago Log in to Reply
    17. Chester Oby

      I have about a 4 month supply in my fridge. Living in California my endo told me to keep a earthquake supply on hand.

      5 years ago Log in to Reply
    18. Sally Numrich

      About 3-4 months. Prescription is written with a comfort zone for each bottle. I just feel like I have to have extra in case of natural disaster (earthquake, wildfires) or losing my job. Need that back stock always!

      5 years ago Log in to Reply
    19. Anthony Harder

      Doctors are always willing to prescribe a bit more. They understand the situation and the predicament of running out. Then there is insurance and pharmacy benefit managers. They are a totally different story.

      5 years ago Log in to Reply
    20. Patricia Maddix

      My Endo always writes my prescription of insulin for my pump with a much larger amount than I actually use as he wants me to be prepared for any disaster or problem that might delay prescription orders.

      5 years ago Log in to Reply
    21. Ginger Vieira

      Knowing you cannot live even 24 hours without that liquid gold means T1s practically become hoarding squirrels preparing for winter!

      5 years ago Log in to Reply
    22. Beth Franz

      It’s a shame we need to stockpile in the first place or convince a doctor to write a script on time. How about we make all insulins over the counter with no prescription like many other countries do??

      5 years ago Log in to Reply
    23. Cheryl Seibert

      I have a terrible time with my PBM mail order services unless I sign up with the AutoRefill. A year or so ago, I had just received a refill, then my doctor sent in a new prescription for the year, so I had some on hand. However, now the PBM sends the refills about every 75 days (thus increasing their revenue for the year with the copay). If I try to put it on hold, then it seems to trigger their system to keep reviewing the order, so I just let the refills continue.

      5 years ago Log in to Reply

    Do you have extra insulin in addition to what you received in your most recent prescription re-fill? If so, how long would that additional insulin last you if needed? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]