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    • 59 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 2 hours, 55 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 2 hours, 55 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 57 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 2 hours, 58 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 7 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 12 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 14 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 15 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 32 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 32 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 32 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 33 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 33 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 33 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 33 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 52 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 52 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 3 hours, 55 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 25 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 38 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 47 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 49 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 13 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    Do you have extra insulin in addition to what you received in your most recent prescription re-fill? If so, how long would that additional insulin last you if needed?

    Home > LC Polls > Do you have extra insulin in addition to what you received in your most recent prescription re-fill? If so, how long would that additional insulin last you if needed?
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    23 Comments

    1. Chris Deutsch

      I do not understand what you are asking…. I have 2

      2 years ago Log in to Reply
    2. Chris Deutsch

      I do not understand what you are asking about “extra insulin”…. Are you asking whether I keep extra (i.e., more than 3 months supply) of my usual insulin on hand as backup or Are you asking whether I have alternate forms of insulin to use if I had none of the usual insulin?? I keep Lantus and Humalog pens on hand as might be needed for pump failure, but don’t consider those are “extra”.

      2 years ago Log in to Reply
    3. LizB

      It is always good to have extra insulin. This past year I have used more insulin in my pump than ever before due to being home almost all the time.

      2 years ago Log in to Reply
    4. Britni Steingard

      I wind up with extra Humalog because of the way the math works out (how many units I need each month plus the fact I can’t get half a bottle from the pharmacy). Lantus, though, I only wind up with extra if I use up the whole bottle instead of discarding it after 28 days.

      2 years ago Log in to Reply
    5. ConnieT1D62

      I always keep extra on hand. I have a 3 to 4 month supply of Novolog on hand for what I use in my pump and to use for bolus injection (w/30cc syringes) when off the pump. I also have Basaglar and Fiasp pens to use as back-up when off pump.

      2 years ago Log in to Reply
    6. Clare Fishman

      My endocrinologist wrote my rx to use up to 100 units per day in my pump. I get 3 vials a month and use a little more 1 so I have what is left in the fridge. I just have to arrange it so the ā€œoldestā€ is on top. If a friend needs some I am happy to share.

      2 years ago Log in to Reply
    7. Robert Brooks

      I agree with Chris that the question needs clarification. My source of insulin is the refill. the refill carries me for three months. There is no extra insulin.

      2 years ago Log in to Reply
    8. Ken Raiche

      I usually have 1 to 2 spare vials of Humalog in the fridge which in worst case scenarios would last me approximately 1 to 2 months. To top things off I also keep a pen set of Humalog and Tresiba just in case a issue would present itself with my current pump setup. Better safe then sorry as they say.

      2 years ago Log in to Reply
    9. Kathryn Keller

      Trying Fiasp out now, so have extra humalog left over

      2 years ago Log in to Reply
    10. carol Huhn

      I refill my prescription. I don’t know how I could have a back up supply. That would be nice.

      2 years ago Log in to Reply
    11. Gene Maggard

      Because of my changing insurance companies and then going on Medicare, I have been able to hoard about an extra two-month supply. This comes in handy if, pandemic allowing, I go on an extended cruise or other type of vacation when I have to carry extra.

      2 years ago Log in to Reply
    12. Sherolyn Newell

      I build up extra because I use over 1 vial per month, so my prescription is for 2 vials. Since I don’t use a full 2 vials, the extra builds up. Someone else had the same comment.

      2 years ago Log in to Reply
    13. Pat Reynolds

      I don’t understand how people can be prescribed precisely 3 months insulin. Exercise more, you’ll use less. Get sock, you’ll probably use more. And what if you needed 1043 units bu some calculation? Do you ge5 a part-vial/pen for the odd units??? So you will gradually build up a little stock. I have prefilled pens as back ups for my pump (prefer the short acting to be vials, but Dan disagrees. So I have lots of pens that have _technically_ been out of the fridge for too long. Now it seems that Brexit+Covid has not seriously disrupted the supplies, it will be going to a charity to distribute in a developing country.

      2 years ago Log in to Reply
    14. Sarah Austin

      Just ask your Endo to prescribe a little extra for you to have in hand in case of emergency. Most will gladly do so

      2 years ago Log in to Reply
    15. Kristine Warmecke

      When I wet on Medicare I thought my need to ration my Novolog would end. I couldn’t have been more wrong. The cost of my Novolog just rises every year, making it even harder to afford on disability. I REALLY wish I wasn’t allergic to Humalog, the formulary one.

      2 years ago Log in to Reply
    16. Sasha Wooldridge

      I consider this question to be asking if you have a stockpile or safety supply that’s over and above your normal prescription “allowance” so to speak. I had a decent stockpile and then my endo retired and I spent it all during the 1+ year I was looking for a new endo. Almost ran out three times in the last few months, but finally have a new endo and a new script, so I’m working on my stockpile again. Ditto on the comment about asking your endo for a little extra. We’ll never hit the nail on the head and if their any good they’ll know that. Add in all the cannulas, tubing, needles, etc. and you can’t ever be completely exact. My script is for a bit more than my total daily dose and if I need to “save up” I just don’t eat the heavy carb stuff for a while until I’m comfortable with my stockpile size. Nothing major, I just don’t have a piece of cake after dinner, don’t eat out a ton, stay away from potato chips and other snacky items. Stuff like that. It adds up and poof! Extra vials of insulin in the fridge.

      2 years ago Log in to Reply
    17. Chester Oby

      I have about a 4 month supply in my fridge. Living in California my endo told me to keep a earthquake supply on hand.

      2 years ago Log in to Reply
    18. Sally Numrich

      About 3-4 months. Prescription is written with a comfort zone for each bottle. I just feel like I have to have extra in case of natural disaster (earthquake, wildfires) or losing my job. Need that back stock always!

      2 years ago Log in to Reply
    19. Anthony Harder

      Doctors are always willing to prescribe a bit more. They understand the situation and the predicament of running out. Then there is insurance and pharmacy benefit managers. They are a totally different story.

      2 years ago Log in to Reply
    20. Patricia Maddix

      My Endo always writes my prescription of insulin for my pump with a much larger amount than I actually use as he wants me to be prepared for any disaster or problem that might delay prescription orders.

      2 years ago Log in to Reply
    21. Ginger Vieira

      Knowing you cannot live even 24 hours without that liquid gold means T1s practically become hoarding squirrels preparing for winter!

      2 years ago Log in to Reply
    22. Beth Franz

      It’s a shame we need to stockpile in the first place or convince a doctor to write a script on time. How about we make all insulins over the counter with no prescription like many other countries do??

      2 years ago Log in to Reply
    23. Cheryl Seibert

      I have a terrible time with my PBM mail order services unless I sign up with the AutoRefill. A year or so ago, I had just received a refill, then my doctor sent in a new prescription for the year, so I had some on hand. However, now the PBM sends the refills about every 75 days (thus increasing their revenue for the year with the copay). If I try to put it on hold, then it seems to trigger their system to keep reviewing the order, so I just let the refills continue.

      2 years ago Log in to Reply

    Do you have extra insulin in addition to what you received in your most recent prescription re-fill? If so, how long would that additional insulin last you if needed? Cancel reply

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