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    • 13 hours, 26 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 13 hours, 32 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 13 hours, 32 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 13 hours, 41 minutes ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 15 hours, 2 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 16 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 16 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 16 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 16 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 17 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 17 hours, 48 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 17 hours, 48 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 17 hours, 48 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 17 hours, 55 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 18 hours, 1 minute ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 18 hours, 5 minutes ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 20 hours, 37 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      So far since Jan 1, ‘26, I’ve spent nearly 30 hours on the phone battling and trying to get Medicare covered diabetes supplies. Called 5 different suppliers t get what I need to use my pump.
    • 20 hours, 39 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      You are too modest. That hurdle is on fire and you have to juggle chainsaws as you jump over it. Congratulations and good luck making it over the next one in 90 days.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 12 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 12 hours ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 12 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
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    On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most)

    Home > LC Polls > On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most)
    Previous

    Before you were diagnosed with type 1 diabetes, did a healthcare provider tell you that you had prediabetes, or inform you that you had elevated blood glucose levels?

    Next

    Have you ever had a diabetes alert dog? If not, would you ever consider it?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Ahh Life

      Uh-oh. I checked 1 thinking that was the most instead of 5. Then I got around to doing “due consideration.” Medicare is primary. It has a 237 page book to explain details. So do some quantum mechanics text books. Therefore, I am quite sure I do not understand 237 pages of details in either of those books. Therefore, perhaps 1 really is the best answer. ¯\_( ͡❛ ͜ʖ ͡❛)_/¯

      3
      5 years ago Log in to Reply
    2. TEH

      I just changed from emloyer provided health insurance to Medicare. I looked at advantage plans and found only one plan that covered insulin in my area. I went with a “G” gap plan allowing me to choose which pharmacy had the best insulin coverage. That took a lot of research.

      5 years ago Log in to Reply
      1. RobbyLee

        I did the same thing. In addition, the G plan keeps you from being required to use physicians within a specific network. More options for sure.

        FYI, I also learned that Medicare part B will pay for your insulin if you’re using an insulin pump.

        5 years ago Log in to Reply
    3. Mick Martin

      Although I selected “I do not have health insurance”, what I actually mean is that I don’t have a separate, paid for insurance. I live in the United Kingdom of Great Britain and Northern Ireland, where are ‘insurance’ is our NHS (National Health Service), which is financed via direct taxation of all working people. You CAN, of course, opt to pay for an ‘external’ insurance, which has advanatages in that you get a higher priority treatment when needed.

      Apart from the above, my medical needs, prescriptions, doctor’s consultations, etc. are all covered by our NHS system.

      5 years ago Log in to Reply
      1. Gustavo Avitabile

        Same answer for me, in Italy.

        5 years ago Log in to Reply
    4. George Hamilton

      I think I have a good understanding of the basic structure and a clear understanding of the parts I need on a regular basis. I defy anyone to claim the have full knowledge of the DETAILS of every part of the whole plan

      3
      5 years ago Log in to Reply
    5. Steve Rumble

      I have had the same coverage from Kaiser Mid-Atlantic for the past 32 years. I recently switched to Kaiser’s Medicare Advantage plan, but the coverage did not change much.

      5 years ago Log in to Reply
    6. Kevin McCue

      Between co-insurance, co-pays, and deductibles, it’s all ways to shift liability to the customer and give the company you pay to cover your needs less responsibility but more revenue. It would be nice to have an advocate on the individuals side.

      2
      5 years ago Log in to Reply
    7. Lawrence Stearns

      I am on Medicare. And quite frankly, it makes no sense to me at all. I find it to be a giant step down from my previous employment health insurance plan.

      1
      5 years ago Log in to Reply
    8. Stephen Woodward

      Medicare, like fishing in muddy water with a blindfold.

      5 years ago Log in to Reply
    9. Cheryl Seibert

      It’s too bad the mail-order pharmacies don’t understand the plan as well. I’ve found one pharmacy that doesn’t even follow it’s own formulary applying it’s own interpretation to pre-authorization and quantity limits contrary to the the formulary.

      1
      5 years ago Log in to Reply
    10. TomH

      I have Medicare as primary with Tricare for Life (military retiree) as secondary. It’s supposed to be a very good set up with most needs covered by one or the other. Tricare’s formulary seems grotesquely out of date for diabetes meds, but good for CGM and pump coverage. Medicare seems crazy as to what is/isn’t covered by which part. All of it seems written by lawyers for lawyers as a full employment scheme for them, convoluted and indecipherable by most people that actually need it.

      2
      5 years ago Log in to Reply
    11. Kim Murphy

      I understand it way too well and it sucks that they don’t pay for my pump supplies (omnipod dash or the sensors and transmitters for my CGM) even though I met my deductible in January.

      5 years ago Log in to Reply
    12. dave hedeen

      I am one of the lucky. I had 30 years experience in health care finance and my wife was career social worker who also assisted patients with their queries. Still not all Medicare policies or regulations make sense.

      2
      5 years ago Log in to Reply
    13. Sahran Holiday

      I understand. CIGNA recently changed pharmacy and DME providers to very stupid vendors. When I call CIGNA often get representatives who don’t understand and outright lie. CGM transmitter expiring July 17th. Ordered replacement June 18th. Solara never shipped it, repeated phone calls to Solara and CIGNA. Promised me, nothing came, No CGM for 7 weeks thanks to gross incompetence. CIGNA is employer provided, my part of the premium is 19% of my net income.
      Switching insurance end of the year.

      5 years ago Log in to Reply
    14. kristina blake

      I know that I have to deal with referrals all the time, I know that when you have to switch plans (due to cost of premiums or employer changes) I have to “prove” that yes, I still have T1D, and that yes, there are adults with T1D, I know that shareholders are ore important to the health plan than those paying premiums (i.e. their customer policy holders). I have also learned that if I assist my HCP with the language getting something approved (one good one is comparing the costs to the health plan if they don’t cover pumps, CGMs etc) And I know that they change network providers, pharmacies etc at the drop of a hat, so call first!

      5 years ago Log in to Reply
    15. Mig Vascos

      I’m sure I don’t know every provision in my health care plan, but after several years of hitting bumps, I now understand everything I need to do to keep all my device supplies and all my meds delivered on time. Medicare is my primary, so that was quite a challenge. Two years ago I upgraded my secondary to an “enhanced plan” and my premium is a tad higher but I don’t have to worry about deductibles or copayments on my medical plan. I still have them on my prescription plan though. But all the maneuvers with the insurance plans I’ve faced thru out the years have kept my brain functioning. Trying to be positive. LOL.

      5 years ago Log in to Reply
    16. Janis Senungetuk

      I’ve tried, but the answers received before signing up last year have little relation to the EOB we’re receiving now.

      2
      5 years ago Log in to Reply
    17. connie ker

      I am on Medicare, Anthem Blue Cross supplement, and a senior RX plan with Cigna. Yes, I understand the plans and review them annually. Cigna is the best plan for insulin coverage by far, witha tier six for diabetics.

      5 years ago Log in to Reply
    18. AnitaS

      Not sure if I understand everything, but I believe I understand everything that I need to keep up with my health care. After seeing comments about medicare, I dread the day when that is something I will have to look into.

      1
      5 years ago Log in to Reply
    19. Derek West

      I am on a Medicare advantage plan with Aetna. I understand it well enough to get what I need, and if something new comes up I look at the manual or call the help line. Not difficult.

      1
      5 years ago Log in to Reply
    20. Molly Jones

      3 was my choice. Once married, I have my husband’s insurance plan along with choosing to keep just Medicare part b.
      I do not understand how they play together, but I understand what/ who is covered and how to access needed information.

      5 years ago Log in to Reply
    21. Bonnie Lundblom

      I’m on Medicare with a United Healthcare Supplement plan. Most of their language in the book is understandable but often not comprehensive enough and calling their number to inquire you getting some pretty interesting responses that I’m not convinced are accurate. Time and the medicare statements will answer those worries.

      5 years ago Log in to Reply
    22. PamK

      I have worked in health benefits administration.

      4 years ago Log in to Reply
    23. Sadie Robinson

      I am a retired nurse and I worked for a health plan . I recently changed health plans and the EOB is much clearer and the services are great even though it is a Medicare advantage plan. Humana has several good perks.

      4 years ago Log in to Reply

    On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most) Cancel reply

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