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    • 3 hours, 35 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 3 hours, 36 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 3 hours, 37 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 23 hours, 53 minutes ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 3 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 2 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 19 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 19 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 12 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 12 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 20 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 20 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Home > LC Polls > On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)
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    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    23 Comments

    1. jeredb

      This is a tough one to answer. I answered it looking at does it lead me to not do things because of T1D and for the most part I don’t let it impact my life in that way. On the other hand, planning for T1D impacts nearly every aspect of life so when I do make the decision to do or not do something, the planning for diabetes certainly has an impact. So in this way, it’s major.

      7
      2 years ago Log in to Reply
    2. Patricia Dalrymple

      I had 4 and changed it to 5. Not to be overly dramatic, but it can be a matter of life or death, or at least a trip to the ER if you don’t think about it. I always go low when I change my pump site, I go low when I vacuum, I can go low for no reason I can detect, sometimes the insulin seems to be stronger. Highs are equally dangerous. When I travel it is the last thing I think about before I leave the house: do I have everything? Should I go boating? I live near the gulf. Waterproof does not include salt water. Am I gonna forget one day to take my pump off before I go in the water? Before I go anywhere: do I have food? Do I have my glucometer? Can I even take a purse into a sporting event or do I have to think about that (the answer is yes). It is constant, at least for me because I am a planner and don’t want to ruin other people’s experiences because I haven’t thought things through.

      4
      2 years ago Log in to Reply
    3. Jonathan Strait

      I put 2 because I often make the same decisions I would if I didn’t. However, HOW I do those things is completely affected by T1D. Such as: I will still go on a long run on Sundays as I would have if I wasn’t T1D – just not in the afternoon, not without bringing gels along, and not without telling someone and having my Dex connected and working!

      3
      2 years ago Log in to Reply
    4. Lawrence Stearns

      I try to live my day to day life a normally as possible. However, T1D impacts every decision I make, like it or not. What seems to impact my day to day life more than my T1D is my Celiac disease.

      2
      2 years ago Log in to Reply
    5. Daniel Bestvater

      I put 4.
      After 45 years of T1D I usually run on autopilot. But when I think about I take my T1D into account every time I walk out the door. How far will I walk, how long will l be gone, do I have glucose tabs with me, food …….

      5
      2 years ago Log in to Reply
    6. MARIE

      We live an active full life but diabetes is always there to affect our decisions. We still do most things that we used to, but not all and not the same way. For instance, diabetes has changed the way we travel. We used to go further, stay longer, and travel lighter. Now, two months is the max that we’ll go away and we have an entire piece of luggage devoted to diabetes supplies.

      4
      2 years ago Log in to Reply
    7. Dave Akers

      T1D factors into almost every decision I make. It does not restrict me from doing anything, I merely need to plan for it. Open Water Swimming, eating at restaurants, playing with my kids, waterpolo, gardening and doing the lawn, going for long hikes, etc… it doesn’t matter. Just need to know where your BG is, where it’s going, and know how to correct. After 17 years it’s like walking on river rocks and chewing gum. You’re gonna trip & fall a bit, but you can keep going.

      6
      2 years ago Log in to Reply
    8. connie ker

      I chose #1 because T1D is a full time job each and every day. I am a senior, widow, living alone; so I have to be mindfully present day and night with numbers and dosages of insulin.

      3
      2 years ago Log in to Reply
    9. Amy Schwinghammer

      I put 4. People without T1 will never fully understand the incessant multi-tasking our brains are required to do every moment of every day in order to keep our bodies functioning as best they can. Yes we get used to it (humans are resilient like that) and yes we don’t let us hold us back, but I don’t even remember what it was like to live without T1. Stay strong, everyone!

      13
      2 years ago Log in to Reply
    10. Grey Gray

      I put a 5 since my T1D affects pretty much every decision I make.

      1
      2 years ago Log in to Reply
    11. Ahh Life

      Eudaimonia is the only thing that would get a 5. ( ◡́.◡̀)(^◡^ )

      However, the T1D being so ubiquitous does come in at a 4. I fully embrace the “fix it & forget it” philosophy, but equipment failures, biological failures, man-made insurance failures, to name a few, make this a much bigger challenge than it ought to be. (っ^▿^)💨

      1
      2 years ago Log in to Reply
    12. Ken Raiche

      I guess it really comes down to the individual and hire they are controlling the disease. Honestly I really don’t think there’s anything that a diabetes can’t do if you set your mind to it. For me it’s not to much of a problem being properly prepared for whatever it is that your going to embark on is a good first step. All that to say 2 is the number I selected I’m pretty thorough about everything involving my condition and my needs.

      1
      2 years ago Log in to Reply
    13. cynthia jaworski

      It depends on how you mean impact. It does not change WHAT I choose to do, but it impacts HOW I do things: timing, preparation, etc. Therefore, I answered with a 3.

      8
      2 years ago Log in to Reply
    14. Carol Meares

      24/7, I pack T1D with me wherever I go, whatever I do. T1D is not who I am but it is definitely a part of who I am plain and simple. When I plan for it, my life is so much better, every activity, every inactivity and everything in in between.

      7
      2 years ago Log in to Reply
    15. ConnieT1D62

      5 – T1D impacts planning and decision making 24/7/365. It is a constant underlying thread that is intricately woven into the fabric and design of the magic carpet journey that is my life.

      11
      2 years ago Log in to Reply
    16. Janis Senungetuk

      Life with T1D has had a definite impact on my journey over the past 66 years. Plans have been derailed and choices limited, but I have pursued and persisted in achieving my goals.

      4
      2 years ago Log in to Reply
    17. Bonnie Lundblom

      I said 4 since my T1D factors into so many decisions every single day. I’m very grateful for the technology that at least helps guide so many of my decisions.

      4
      2 years ago Log in to Reply
    18. Sahran Holiday

      Also grateful for the technology. Have always been careful about nutrition and always been active. Subject to serious lows so always carry snacks, enough for everyone.

      1
      2 years ago Log in to Reply
    19. Becky Hertz

      I said 3 but have lived with it for 47 years so probably it affects my decision making more than I’m aware.

      3
      2 years ago Log in to Reply
    20. Germaine Sarda

      I wavered between saying 4 and 5. I said 4 because I overthought it and figured it doesn’t affect small things like what I decide to watch on TV, but then again I watch a lot of T1 stuff, so 5 it is! I can relate to everyone’s comments here. Wishing all of us good health filled with easy blood sugar days.

      1
      2 years ago Log in to Reply
    21. Velika Peterson

      This question doesn’t capture the perspective of T1D caretakers. Which school a child go to in order to accommodate the medical needs, can a parent work and what work hours, is it wise to go on vacation to a location without a hospital for hours, etc

      1
      2 years ago Log in to Reply
    22. Cheryl Seibert

      I answered “3” because it depends on the decision being made. T1D had little impact on daily decisions and tasks. However it has a big impact (5), any kind of long term travel decisions (air vs car, I avoid overseas travel due to potential issues with customs). Travel has the biggest impact and, in the past, the decision to have children also had a big impact.

      2 years ago Log in to Reply
    23. Molly Jones

      I chose 2, as epilepsy impacts my decisions more than any other medical concern I have. I have all I need for diabetes to be fairly well controlled, and it is part of my daily life.

      2 years ago Log in to Reply

    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact) Cancel reply

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