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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?

    Home > LC Polls > How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?
    Previous

    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Next

    In honor of National Neuropathy Awareness Week, have you been diagnosed with neuropathy? If you have tips for how to manage neuropathy, please share them in the comments.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. LizB

      My PCP and endo have both done it occasionally but not on any set schedule.

      5 years ago Log in to Reply
    2. george lovelace

      T1 57 yrs, used to be a yearly check but neuropathy progressed so far haven’t checked for years – “It’s Dead, Jim”

      1
      5 years ago Log in to Reply
    3. Sahran Holiday

      Except my feeling was uneven a few years ago. Endocrinologist said that was extremely unusual. Since then always OK. Maybe shoes.

      5 years ago Log in to Reply
    4. Don P

      Haven’t seen any health care providers for more than two years because of Covid, phone contact only. T1 65+ a few yrs with no complications, just had an eye exam & all is GREAT.

      1
      5 years ago Log in to Reply
    5. cynthia jaworski

      So they can screen. Can somebody please explain what good comes out of it?

      5 years ago Log in to Reply
    6. Sally Numrich

      Every visit both endo & PCP make me take off shoes so they can check feet. Not every visit for all of the above but something is done every visit. Thankfully no problems with neuropathy.

      5 years ago Log in to Reply
    7. Bonnie Lundblom

      My current endocrinologist has only checked my feet once at my initial appointment 4 years ago. She knows I’ve seen podiatrist twice in the past 4 years and he did check for neuropathy. My A1C’s have been good for years now is why I think she hasn’t checked recently as well as the online telehealth visits made checking impossible.

      5 years ago Log in to Reply
    8. Janis Senungetuk

      My endo checked me at my 90 day exam last month. I passed. At previous exams I’ve told her that I’ve been awakened by “electric shock” pain in my toes at night. Because I continue to “pass” the neuropathy screening, there’s no response when I’ve mentioned the discomfort. Sixty-six years living with T1 has left me with nerve damage in my hands, shoulders and feet…but I’ve never received a dx of neuropathy.

      1
      5 years ago Log in to Reply
    9. ConnieT1D62

      At least once a year as an obligatory exam to meet health insurance and Medicare guidelines. However, it is a mute point because I have had progressive, but stable, peripheral neuropathy for years. It hasn’t gotten any better or any worse. It just is what it is. I see a podiatrist every 60 days for ongoing follow-up care – he keeps track of any subtle nerve damage progression or structural changes in my feet.

      5 years ago Log in to Reply
    10. KarenM6

      They used to do the monofilament test and the tuning fork test once a year. But, I haven’t had it done since my PA changed a number of years ago. And, now that appointments are done only online, it’s not likely to get done anytime soon.

      5 years ago Log in to Reply
    11. Jneticdiabetic

      I’ve had T1D for 25 years and I think I’ve only had a monofilament test maybe 2-3 times, when I bought up symptoms of cold feet and foot swelling. Otherwise, the foot exam has been mostly a quick annual look and check of pedal pulses, which have been good. As others have mentioned no physical check-ups in the last year due to COVID.

      5 years ago Log in to Reply
    12. Kelly Steiner

      Used to be annually, but hasn’t been done in the last 4 years or so….

      5 years ago Log in to Reply
    13. Beckett Nelson

      It was every visit, but it’s been a while since covid started since appointments have all been by phone

      5 years ago Log in to Reply
    14. Henry Renn

      I see Podiatrist every 3 months who sends report to T1D care provider.

      5 years ago Log in to Reply
    15. sara falconer

      Back when I had an actual endocrinologist, and not a mirror resident, he tested my feet at every visit. The resident, who I’ve had to deal with for the last two years, tells me that I have to go to Podiatry for that.

      5 years ago Log in to Reply
    16. Glenda Schuessler

      Pre-Covid my Endo would test at each visit, approximately every 6 months.

      5 years ago Log in to Reply
    17. Molly Jones

      I don’t remember ever being tested, but my memory is poor

      5 years ago Log in to Reply

    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet? Cancel reply

    You must be logged in to post a comment.




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