Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 2 hours, 28 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 2 hours, 29 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 5 hours, 18 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 6 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 14 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 9 hours, 14 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 33 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 34 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 47 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 22 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 22 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 6 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 9 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 6 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      No. Fruits, veggies and whole grains are too important for our health.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I do not eat keto but it is safe. The term is ketosis which is very different from DKA. “ Ketosis is a normal metabolic process where the body produces ketones for energy when carbohydrate intake is limited, while ketoacidosis is a life-threatening complication of diabetes where dangerously high levels of ketones cause blood to become acidic. Ketosis is typically harmless and can be induced by fasting or following a ketogenic diet, according to Healthline. Ketoacidosis, however, is a serious emergency requiring immediate medical attention, says the Mayo Clinic.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      i agree! eating lower card due to Dr. Bernsteins book was a game changer in my type 1 control. I am so grateful he wrote it. I only found the book 10 years ago but wish I had known about it for the first 32 years of insulin treatment.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I have been a Type 1 since 1976. Back in the early 2000's, a friend gave me the book "Diabetes Solution" written by Dr Richard K Bernstein. Reading that book was a turning point for me in my diabetes control as it made me aware of the HUGE role carbohydrates play in glucose levels. I immediately became "carb-aware" and started tracking and reducing the number of total carbohydrate grams I was eating. My A1c's dropped from 9's and 8's into the low 6's with several higher 5's. My goal is to keep my A1c in the low 6's. As I've aged, (now 75), I've had to reduce the total number of daily carbs I consume in order to maintain my control. I credit becoming carb-aware and reducing my daily carbohydrate intake for not having developed any of the serious long-term diabetes complications that require additional treatment and medication. The diabetic ophthalmopathy that was first noticed in the late 1990's as well as neuropathy in my feet noticed about the same time have not progressed in the intervening 25 years. (I was on MDI until 2011 when I transitioned to an insulin pump. I resisted using a pump for years but love the added control and flexibility the pump gives me.) Life is good!
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?

    Home > LC Polls > How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?
    Previous

    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Next

    In honor of National Neuropathy Awareness Week, have you been diagnosed with neuropathy? If you have tips for how to manage neuropathy, please share them in the comments.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Conditions

    Protected: What to Know About Thyroid Conditions with T1D 

    Michael Howerton, 11 hours ago 7 min read  
    2025 ADA

    T1D Exchange Announces 13 Real-World Data Presentations and Posters at the American Diabetes Association (ADA) 85th Scientific Sessions 

    T1D Exchange, 1 week ago 4 min read  
    Mental Health

    What is the Emotional Impact of Screening for T1D? 

    Hannah Doskicz, 2 weeks ago 5 min read  
    Meet the Expert

    Meet the Expert: Advancing Research To Treat, Delay, and Prevent the Development of T1D 

    Jewels Doskicz, 4 weeks ago 7 min read  
    Advocacy

    Sam Scott, PhD: The Science of Exercise with T1D 

    Jewels Doskicz, 1 month ago 9 min read  
    Research

    The T1D Exchange Fear of Hypoglycemia Screening Project 

    Sarah Howard, 1 month ago 6 min read  

    17 Comments

    1. LizB

      My PCP and endo have both done it occasionally but not on any set schedule.

      4 years ago Log in to Reply
    2. george lovelace

      T1 57 yrs, used to be a yearly check but neuropathy progressed so far haven’t checked for years – “It’s Dead, Jim”

      1
      4 years ago Log in to Reply
    3. Sahran Holiday

      Except my feeling was uneven a few years ago. Endocrinologist said that was extremely unusual. Since then always OK. Maybe shoes.

      4 years ago Log in to Reply
    4. Don P

      Haven’t seen any health care providers for more than two years because of Covid, phone contact only. T1 65+ a few yrs with no complications, just had an eye exam & all is GREAT.

      1
      4 years ago Log in to Reply
    5. cynthia jaworski

      So they can screen. Can somebody please explain what good comes out of it?

      4 years ago Log in to Reply
    6. Sally Numrich

      Every visit both endo & PCP make me take off shoes so they can check feet. Not every visit for all of the above but something is done every visit. Thankfully no problems with neuropathy.

      4 years ago Log in to Reply
    7. Bonnie Lundblom

      My current endocrinologist has only checked my feet once at my initial appointment 4 years ago. She knows I’ve seen podiatrist twice in the past 4 years and he did check for neuropathy. My A1C’s have been good for years now is why I think she hasn’t checked recently as well as the online telehealth visits made checking impossible.

      4 years ago Log in to Reply
    8. Janis Senungetuk

      My endo checked me at my 90 day exam last month. I passed. At previous exams I’ve told her that I’ve been awakened by “electric shock” pain in my toes at night. Because I continue to “pass” the neuropathy screening, there’s no response when I’ve mentioned the discomfort. Sixty-six years living with T1 has left me with nerve damage in my hands, shoulders and feet…but I’ve never received a dx of neuropathy.

      1
      4 years ago Log in to Reply
    9. ConnieT1D62

      At least once a year as an obligatory exam to meet health insurance and Medicare guidelines. However, it is a mute point because I have had progressive, but stable, peripheral neuropathy for years. It hasn’t gotten any better or any worse. It just is what it is. I see a podiatrist every 60 days for ongoing follow-up care – he keeps track of any subtle nerve damage progression or structural changes in my feet.

      4 years ago Log in to Reply
    10. KarenM6

      They used to do the monofilament test and the tuning fork test once a year. But, I haven’t had it done since my PA changed a number of years ago. And, now that appointments are done only online, it’s not likely to get done anytime soon.

      4 years ago Log in to Reply
    11. Jneticdiabetic

      I’ve had T1D for 25 years and I think I’ve only had a monofilament test maybe 2-3 times, when I bought up symptoms of cold feet and foot swelling. Otherwise, the foot exam has been mostly a quick annual look and check of pedal pulses, which have been good. As others have mentioned no physical check-ups in the last year due to COVID.

      4 years ago Log in to Reply
    12. Kelly Steiner

      Used to be annually, but hasn’t been done in the last 4 years or so….

      4 years ago Log in to Reply
    13. Beckett Nelson

      It was every visit, but it’s been a while since covid started since appointments have all been by phone

      4 years ago Log in to Reply
    14. Henry Renn

      I see Podiatrist every 3 months who sends report to T1D care provider.

      4 years ago Log in to Reply
    15. sara falconer

      Back when I had an actual endocrinologist, and not a mirror resident, he tested my feet at every visit. The resident, who I’ve had to deal with for the last two years, tells me that I have to go to Podiatry for that.

      4 years ago Log in to Reply
    16. Glenda Schuessler

      Pre-Covid my Endo would test at each visit, approximately every 6 months.

      4 years ago Log in to Reply
    17. Molly Jones

      I don’t remember ever being tested, but my memory is poor

      4 years ago Log in to Reply

    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]