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    • 2 hours, 55 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 2 hours, 56 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 3 hours, 53 minutes ago
      Ahh Life likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 4 hours, 27 minutes ago
      Steve Rumble likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 4 hours, 35 minutes ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 4 hours, 36 minutes ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Read up on Eladon and Tegoprubart. You might be shocked at the lack of side effects. Although I’m interested to hear how long term goes in the next few years.
    • 4 hours, 52 minutes ago
      John Barbuto likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 5 hours, 52 minutes ago
      KCR likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 6 hours, 11 minutes ago
      Kathy Hanavan likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 6 hours, 26 minutes ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 6 hours, 26 minutes ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 6 hours, 31 minutes ago
      TEH likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 23 hours, 56 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 23 hours, 56 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 day, 1 hour ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 1 hour ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 1 day, 1 hour ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 3 hours ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)

    Home > LC Polls > On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)
    Previous

    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?

    Next

    In a typical week, how often are you woken up by your CGM or other diabetes-related alarms (such as, for a low or a high alert)?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Ahh Life

      Science says that lasting relationships come down to—you guessed it—kindness and generosity. No mention of cancer, T1D, leprosy, or the bubonic plaque. You can do cloud-chasing assemblages of words, but on the whole, people are pretty darn good. 😇👍

      3
      2 years ago Log in to Reply
      1. Russell Buckbee

        Yes, but the problem is they don’t understand my illnesses and I don’t get all of theirs. It’s hard to walk in another shoes especially of a different kind.

        1
        2 years ago Log in to Reply
    2. ConnieT1D62

      Living with T1D is what it is and I am who I am. I have long accepted life with T1D and people who know me totally accept me for being me regardless of whether I have T1D or not. It’s a non-issue in relationships with people – personal, social, professional, casual, and intimate.

      4
      2 years ago Log in to Reply
    3. Steven Gill

      I clicked 2.

      I don’t smoke or do drugs (hmmm… these add risks of complications without diabetes: to worry about a1C than these?), and a light to moderate drinker. Spend a lot of time volunteering (HumaneSociety), in my garden, on my too!s, with my attack pit and SaberTooth Cat, and reading g my days are full.

      But living a somewhat healthy lifestyle kind of separates me? Still a great life.

      1
      2 years ago Log in to Reply
    4. Gary Rind

      as a single guy, I’ve learned the hard way NOT to bring up T1D on a first date!!

      3
      2 years ago Log in to Reply
    5. Lawrence S.

      This question is so vague, any answer from 1 to 5 could be accurate. In as Ahh Life noted. Relationships come down to kindness and generosity … and probably a few other things like that.
      Anyway, I answered “4”. As much as I hate to admit it, Not just my diabetes, but also celiac disease and other autoimmune disorders affect most parts of my life. I have great, loving relationships with my wife and friends. However, intimacy is affected at level “5.” Other activities, like going to restaurants, are limited by celiac disease. Throughout my life low, and high blood glucoses have affected my abilities to do certain things. Some people do not react well to witnessing a low blood glucose reaction.
      Honestly, it’s a tough questions to answer. But, what relationships really come down to is respect for others, sharing thoughts, conversations, doing things together, and spending time together. Oh, and also kindness and generosity.

      4
      2 years ago Log in to Reply
    6. Edward Geary

      As I age, diabetes is increasingly the central focus: meals, travel, medical procedures, bad days…. Trying to be completely honest here

      4
      2 years ago Log in to Reply
      1. Russell Buckbee

        I get you. Me too.

        2 years ago Log in to Reply
    7. Lindsey Whitnell

      As a caregiver for our young T1D child, our relationship has changed and will be very different from what we anticipated, not necessarily in a bad way either!

      2 years ago Log in to Reply
    8. Samantha Hunter

      I actually just broke up with my boyfriend and a big reason was because he never expressed any interest and actively pushed back on learning how my diabetes works. I realized he isn’t a very caring person and that if something happened, he wouldn’t know what to do other than call 911.

      3
      2 years ago Log in to Reply
      1. Joindy23

        You made a smart choice Samantha. It took me many years to find my husband, who always listens attentively and has helped me when I’m too low on numerous occasions. He was worth waiting for so don’t give up, there ARE good men out there.

        1
        2 years ago Log in to Reply
      2. Russell Buckbee

        Good you were wise.

        1
        2 years ago Log in to Reply
    9. Nevin Bowman

      I’m not sure how to answer, but I put 3. My wife gets woken up frequently by all my alarms and cooks special food for me, but she does both gladly. So yes, it affects us, but it could be much worse.

      1
      2 years ago Log in to Reply
    10. Janis Senungetuk

      I chose 4. Life with a chronic disease definitely impacts all aspects of my life. My spouse and I have been together over the past 41 years. Our relationship continues to be strengthened by the compassion, patience and love that we have for each other.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        Well said.

        1
        2 years ago Log in to Reply
    11. Russell Buckbee

      My problem, like I suppose most, is eating. You know what I mean.

      2 years ago Log in to Reply
    12. Amanda Barras

      Intimate, I believe a lot.
      Regular day to day relationships and social encounters little to none.

      1
      2 years ago Log in to Reply
    13. JuJuB

      I dislike how this is worded, as if “affected” is a bad thing. EVERY person in my life who I consider a friend or a close coworker knows that I am T1D. I educate, I advocate, and sometimes I am called on to help when a family member receives he diagnosis.

      Kind of shaking my head at all the people who answered 1 or 2 to this.

      2 years ago Log in to Reply
    14. Jane Cerullo

      On MDI. Sometimes injecting at a lunch or dinner is a hassle. I try to be discreet

      2 years ago Log in to Reply
    15. Karen Brady

      My answer reflects more how it affects my marriage (a decent amount) than all other relationships in my life (not very much at all)

      2 years ago Log in to Reply
    16. T1D4LongTime

      I said “4”. 5 or 10 years ago, I would have said “1”. With CGMs and smartphones/receivers blaring alarms, daily life is affected all the time. My husband, bless his heart, is patient, but he gets tired of hearing the alarms and waiting on me to take care of clearing it or correcting the out-of-range BG (because FDA won’t approve “swipe and clear for alarms”). The alarms are needed, but definitely impact quality of life.

      2 years ago Log in to Reply

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected) Cancel reply

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