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    • 18 hours, 56 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 19 hours, 3 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 19 hours, 3 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 19 hours, 12 minutes ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 20 hours, 32 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 21 hours, 44 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 21 hours, 44 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 21 hours, 44 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 21 hours, 44 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 22 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 23 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 23 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 23 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 23 hours, 26 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 23 hours, 32 minutes ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 23 hours, 36 minutes ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 2 hours ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      So far since Jan 1, ‘26, I’ve spent nearly 30 hours on the phone battling and trying to get Medicare covered diabetes supplies. Called 5 different suppliers t get what I need to use my pump.
    • 1 day, 2 hours ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      You are too modest. That hurdle is on fire and you have to juggle chainsaws as you jump over it. Congratulations and good luck making it over the next one in 90 days.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 17 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 17 hours ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 17 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)

    Home > LC Polls > On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)
    Previous

    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?

    Next

    In a typical week, how often are you woken up by your CGM or other diabetes-related alarms (such as, for a low or a high alert)?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Ahh Life

      Science says that lasting relationships come down to—you guessed it—kindness and generosity. No mention of cancer, T1D, leprosy, or the bubonic plaque. You can do cloud-chasing assemblages of words, but on the whole, people are pretty darn good. 😇👍

      3
      2 years ago Log in to Reply
      1. Russell Buckbee

        Yes, but the problem is they don’t understand my illnesses and I don’t get all of theirs. It’s hard to walk in another shoes especially of a different kind.

        1
        2 years ago Log in to Reply
    2. ConnieT1D62

      Living with T1D is what it is and I am who I am. I have long accepted life with T1D and people who know me totally accept me for being me regardless of whether I have T1D or not. It’s a non-issue in relationships with people – personal, social, professional, casual, and intimate.

      4
      2 years ago Log in to Reply
    3. Steven Gill

      I clicked 2.

      I don’t smoke or do drugs (hmmm… these add risks of complications without diabetes: to worry about a1C than these?), and a light to moderate drinker. Spend a lot of time volunteering (HumaneSociety), in my garden, on my too!s, with my attack pit and SaberTooth Cat, and reading g my days are full.

      But living a somewhat healthy lifestyle kind of separates me? Still a great life.

      1
      2 years ago Log in to Reply
    4. Gary Rind

      as a single guy, I’ve learned the hard way NOT to bring up T1D on a first date!!

      3
      2 years ago Log in to Reply
    5. Lawrence S.

      This question is so vague, any answer from 1 to 5 could be accurate. In as Ahh Life noted. Relationships come down to kindness and generosity … and probably a few other things like that.
      Anyway, I answered “4”. As much as I hate to admit it, Not just my diabetes, but also celiac disease and other autoimmune disorders affect most parts of my life. I have great, loving relationships with my wife and friends. However, intimacy is affected at level “5.” Other activities, like going to restaurants, are limited by celiac disease. Throughout my life low, and high blood glucoses have affected my abilities to do certain things. Some people do not react well to witnessing a low blood glucose reaction.
      Honestly, it’s a tough questions to answer. But, what relationships really come down to is respect for others, sharing thoughts, conversations, doing things together, and spending time together. Oh, and also kindness and generosity.

      4
      2 years ago Log in to Reply
    6. Edward Geary

      As I age, diabetes is increasingly the central focus: meals, travel, medical procedures, bad days…. Trying to be completely honest here

      4
      2 years ago Log in to Reply
      1. Russell Buckbee

        I get you. Me too.

        2 years ago Log in to Reply
    7. Lindsey Whitnell

      As a caregiver for our young T1D child, our relationship has changed and will be very different from what we anticipated, not necessarily in a bad way either!

      2 years ago Log in to Reply
    8. Samantha Hunter

      I actually just broke up with my boyfriend and a big reason was because he never expressed any interest and actively pushed back on learning how my diabetes works. I realized he isn’t a very caring person and that if something happened, he wouldn’t know what to do other than call 911.

      3
      2 years ago Log in to Reply
      1. Joindy23

        You made a smart choice Samantha. It took me many years to find my husband, who always listens attentively and has helped me when I’m too low on numerous occasions. He was worth waiting for so don’t give up, there ARE good men out there.

        1
        2 years ago Log in to Reply
      2. Russell Buckbee

        Good you were wise.

        1
        2 years ago Log in to Reply
    9. Nevin Bowman

      I’m not sure how to answer, but I put 3. My wife gets woken up frequently by all my alarms and cooks special food for me, but she does both gladly. So yes, it affects us, but it could be much worse.

      1
      2 years ago Log in to Reply
    10. Janis Senungetuk

      I chose 4. Life with a chronic disease definitely impacts all aspects of my life. My spouse and I have been together over the past 41 years. Our relationship continues to be strengthened by the compassion, patience and love that we have for each other.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        Well said.

        1
        2 years ago Log in to Reply
    11. Russell Buckbee

      My problem, like I suppose most, is eating. You know what I mean.

      2 years ago Log in to Reply
    12. Amanda Barras

      Intimate, I believe a lot.
      Regular day to day relationships and social encounters little to none.

      1
      2 years ago Log in to Reply
    13. JuJuB

      I dislike how this is worded, as if “affected” is a bad thing. EVERY person in my life who I consider a friend or a close coworker knows that I am T1D. I educate, I advocate, and sometimes I am called on to help when a family member receives he diagnosis.

      Kind of shaking my head at all the people who answered 1 or 2 to this.

      2 years ago Log in to Reply
    14. Jane Cerullo

      On MDI. Sometimes injecting at a lunch or dinner is a hassle. I try to be discreet

      2 years ago Log in to Reply
    15. Karen Brady

      My answer reflects more how it affects my marriage (a decent amount) than all other relationships in my life (not very much at all)

      2 years ago Log in to Reply
    16. T1D4LongTime

      I said “4”. 5 or 10 years ago, I would have said “1”. With CGMs and smartphones/receivers blaring alarms, daily life is affected all the time. My husband, bless his heart, is patient, but he gets tired of hearing the alarms and waiting on me to take care of clearing it or correcting the out-of-range BG (because FDA won’t approve “swipe and clear for alarms”). The alarms are needed, but definitely impact quality of life.

      2 years ago Log in to Reply

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected) Cancel reply

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