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    • 2 hours, 34 minutes ago
      lis be likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 5 hours, 27 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 6 hours, 49 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 6 hours, 50 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 10 hours, 24 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 8 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 8 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 8 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 3 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 5 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 9 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 10 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 11 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 12 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 12 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 3 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 3 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)

    Home > LC Polls > On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)
    Previous

    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?

    Next

    In a typical week, how often are you woken up by your CGM or other diabetes-related alarms (such as, for a low or a high alert)?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Ahh Life

      Science says that lasting relationships come down to—you guessed it—kindness and generosity. No mention of cancer, T1D, leprosy, or the bubonic plaque. You can do cloud-chasing assemblages of words, but on the whole, people are pretty darn good. 😇👍

      3
      2 years ago Log in to Reply
      1. Russell Buckbee

        Yes, but the problem is they don’t understand my illnesses and I don’t get all of theirs. It’s hard to walk in another shoes especially of a different kind.

        1
        2 years ago Log in to Reply
    2. ConnieT1D62

      Living with T1D is what it is and I am who I am. I have long accepted life with T1D and people who know me totally accept me for being me regardless of whether I have T1D or not. It’s a non-issue in relationships with people – personal, social, professional, casual, and intimate.

      4
      2 years ago Log in to Reply
    3. Steven Gill

      I clicked 2.

      I don’t smoke or do drugs (hmmm… these add risks of complications without diabetes: to worry about a1C than these?), and a light to moderate drinker. Spend a lot of time volunteering (HumaneSociety), in my garden, on my too!s, with my attack pit and SaberTooth Cat, and reading g my days are full.

      But living a somewhat healthy lifestyle kind of separates me? Still a great life.

      1
      2 years ago Log in to Reply
    4. Gary Rind

      as a single guy, I’ve learned the hard way NOT to bring up T1D on a first date!!

      3
      2 years ago Log in to Reply
    5. Lawrence S.

      This question is so vague, any answer from 1 to 5 could be accurate. In as Ahh Life noted. Relationships come down to kindness and generosity … and probably a few other things like that.
      Anyway, I answered “4”. As much as I hate to admit it, Not just my diabetes, but also celiac disease and other autoimmune disorders affect most parts of my life. I have great, loving relationships with my wife and friends. However, intimacy is affected at level “5.” Other activities, like going to restaurants, are limited by celiac disease. Throughout my life low, and high blood glucoses have affected my abilities to do certain things. Some people do not react well to witnessing a low blood glucose reaction.
      Honestly, it’s a tough questions to answer. But, what relationships really come down to is respect for others, sharing thoughts, conversations, doing things together, and spending time together. Oh, and also kindness and generosity.

      4
      2 years ago Log in to Reply
    6. Edward Geary

      As I age, diabetes is increasingly the central focus: meals, travel, medical procedures, bad days…. Trying to be completely honest here

      4
      2 years ago Log in to Reply
      1. Russell Buckbee

        I get you. Me too.

        2 years ago Log in to Reply
    7. Lindsey Whitnell

      As a caregiver for our young T1D child, our relationship has changed and will be very different from what we anticipated, not necessarily in a bad way either!

      2 years ago Log in to Reply
    8. Samantha Hunter

      I actually just broke up with my boyfriend and a big reason was because he never expressed any interest and actively pushed back on learning how my diabetes works. I realized he isn’t a very caring person and that if something happened, he wouldn’t know what to do other than call 911.

      3
      2 years ago Log in to Reply
      1. Joindy23

        You made a smart choice Samantha. It took me many years to find my husband, who always listens attentively and has helped me when I’m too low on numerous occasions. He was worth waiting for so don’t give up, there ARE good men out there.

        1
        2 years ago Log in to Reply
      2. Russell Buckbee

        Good you were wise.

        1
        2 years ago Log in to Reply
    9. Nevin Bowman

      I’m not sure how to answer, but I put 3. My wife gets woken up frequently by all my alarms and cooks special food for me, but she does both gladly. So yes, it affects us, but it could be much worse.

      1
      2 years ago Log in to Reply
    10. Janis Senungetuk

      I chose 4. Life with a chronic disease definitely impacts all aspects of my life. My spouse and I have been together over the past 41 years. Our relationship continues to be strengthened by the compassion, patience and love that we have for each other.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        Well said.

        1
        2 years ago Log in to Reply
    11. Russell Buckbee

      My problem, like I suppose most, is eating. You know what I mean.

      2 years ago Log in to Reply
    12. Amanda Barras

      Intimate, I believe a lot.
      Regular day to day relationships and social encounters little to none.

      1
      2 years ago Log in to Reply
    13. JuJuB

      I dislike how this is worded, as if “affected” is a bad thing. EVERY person in my life who I consider a friend or a close coworker knows that I am T1D. I educate, I advocate, and sometimes I am called on to help when a family member receives he diagnosis.

      Kind of shaking my head at all the people who answered 1 or 2 to this.

      2 years ago Log in to Reply
    14. Jane Cerullo

      On MDI. Sometimes injecting at a lunch or dinner is a hassle. I try to be discreet

      2 years ago Log in to Reply
    15. Karen Brady

      My answer reflects more how it affects my marriage (a decent amount) than all other relationships in my life (not very much at all)

      2 years ago Log in to Reply
    16. T1D4LongTime

      I said “4”. 5 or 10 years ago, I would have said “1”. With CGMs and smartphones/receivers blaring alarms, daily life is affected all the time. My husband, bless his heart, is patient, but he gets tired of hearing the alarms and waiting on me to take care of clearing it or correcting the out-of-range BG (because FDA won’t approve “swipe and clear for alarms”). The alarms are needed, but definitely impact quality of life.

      2 years ago Log in to Reply

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected) Cancel reply

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