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    • 2 hours, 46 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 29 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 14 hours, 55 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 14 hours, 55 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 14 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 8 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 17 hours, 52 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 15 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 12 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 18 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 20 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?

    Home > LC Polls > Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. Lawrence S.

      I answered, “unsure.” I have never been diagnosed with attention-deficit hyperactivity disorder, but I believe I exhibited symptoms, especially when I was young. Also, my brother, and his son, who was diagnosed, exhibit the symptoms. I often get distracted and have difficulty concentrating. Sometimes I find myself stopping in the middle of what I am doing to do something else that distracted me. I am easily distracted.

      2
      2 years ago Log in to Reply
      1. Ahh Life

        Lawrence S, you and billions of Earth’s residence are being encouraged, reinforced, and mandated by the digital likes of Amazon, Meta, Google, Microsoft, et al to shorter and shorter attention spans. Most of society hates it, while the big. monster companies just rake in the cash. Sigh!

        1
        2 years ago Log in to Reply
    2. mlettinga

      I thought I was the only one with adhd. I think of many times I had to check my trash when I was young to see if I gave my shot. Or gave double insulin forgetting I already gave my shot. So much easier now when I can just look at my pump. 55 years type 1 and still going strong.

      4
      2 years ago Log in to Reply
    3. Bob Durstenfeld

      I live with mild AdD. One of my sons has ADD, but not T1D. My son with T1D does not have ADD.

      2 years ago Log in to Reply
    4. mbulzomi@optonline.net

      I check-off “NO”, no comment necessary.

      2 years ago Log in to Reply
    5. ConnieT1D62

      yes I live with both TID and ADHD (non-attentive type) since my early childhood. However the ADHD was not diagnosed until I was in my late 40’s. I have been on a very low dose of generic Adderall for several years and it does make a difference to stabilize my scattered attention difficulties and tendencies.

      2 years ago Log in to Reply
    6. Kristi Warmecke

      I’ve not heard of connection between T1D & ADHD before. Is this a new discovery from some research?

      1
      2 years ago Log in to Reply
    7. Daniel Bestvater

      T1D for 45 years and I most definitely have many of the behaviours associated with ADHD. I have a brother without T1D that exhibits many of the same behaviours. At least 10 things on the go at the same time and nothing ever gets finished!!

      2 years ago Log in to Reply
    8. Richard Vaughn

      My wife is diagnosed with Dementia. She has the symptoms of ADHD, too. The symptoms of both ADHD and Dementia can be very similar.

      1
      2 years ago Log in to Reply
    9. Edward Geary

      Diagnosed at age 50. Routinely told it was diabetic fatigue until I consulted a neuropharmacologist.

      2 years ago Log in to Reply
    10. Lynn Smith

      I answered No, but I probably have symptoms. I have always had trouble sitting still and at times I know my focus should be better. But, my judgment of symptoms is greatly affected by raising my severely ADHD son, who is not a T1D. He is grown now and has a daughter who is ADHD and is also not T1D. Both have been tested for T1 autoantibodies and they were both negative.

      2 years ago Log in to Reply
    11. Andrea Panganiban

      I have type 1 diabetes. My husband has ADHD.

      2 years ago Log in to Reply
    12. Ceolmhor

      I said “Other”. I have T1D. Our oldest son has T1D, our youngest son has ADD (i.e., ADHD without the hyperactivity — they never should have combined the two names). Our middle son has MS. We all seem to have very active immune systems. 😉

      2 years ago Log in to Reply
    13. Sue Herflicker

      My son diagnosed at 23 months with T1D had some form of ADD. We managed it without meds but as an adult he has had to seek help for it. He is doing excellent on his new medication. It has made the world of difference for him.

      2 years ago Log in to Reply
    14. kim bullock

      I have type 1 diabetes and possibly ADD. I don’t have the hyperactive but I am do have the symptoms of other stuff.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      Badly phrased question. Irrelevant someone else’s ADD/ADHD has no affect or influence of my D symptoms, or treatment. They are entirely separate creatures.

      2 years ago Log in to Reply

    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love? Cancel reply

    You must be logged in to post a comment.




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