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    • 3 hours, 48 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 3 hours, 48 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 3 hours, 48 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 3 hours, 49 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 4 hours, 3 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 4 hours, 24 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 4 hours, 30 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 4 hours, 31 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 5 hours, 28 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 6 hours, 17 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 6 hours, 17 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 6 hours, 18 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 6 hours, 18 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 6 hours, 21 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 6 hours, 21 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 6 hours, 22 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 6 hours, 23 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 6 hours, 24 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 6 hours, 24 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 6 hours, 29 minutes ago
      Gary R. likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 6 hours, 29 minutes ago
      MT likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 6 hours, 47 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 6 hours, 47 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 6 hours, 51 minutes ago
      Bill Williams likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 6 hours, 51 minutes ago
      Bill Williams likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    If you could guess, about how many times a year do you miss planned events because of something T1D-related?

    Home > LC Polls > If you could guess, about how many times a year do you miss planned events because of something T1D-related?
    Previous

    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?

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    Have you given yourself a rapid-acting insulin injection instead of a long-acting one by mistake (or vice versa)? Share how you handled this situation in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. rick phillips

      My own damn fault

      2 years ago Log in to Reply
    2. Mick Martin

      I selected “Other”, but that could quite as easily have been “0” as I don’t go out of the house, save for hospital and clinical appointments, and simply can’t afford to make plans to attend anywhere.

      1
      2 years ago Log in to Reply
    3. mojoseje

      I’ve never missed anything but I’ve been late because I won’t drive if my bg is too low.

      5
      2 years ago Log in to Reply
    4. Lawrence S.

      I have missed events (or work projects around the house) mostly because of other health issues, asthma, shoulder pain, celiac disease, back pain. T1D mostly effects home work projects. We don’t go out very often. I said “once or twice.” (Maybe).

      2 years ago Log in to Reply
    5. Anita Stokar

      I put 3-4, but it really varies. Could be 0 or could be 6.

      2
      2 years ago Log in to Reply
    6. Anne Blayney

      I almost never miss events because of urgent T1D situations (blood sugar issues, DKA, etc.) — but I frequently miss events because of diabetes complications (gastroparesis flares in particular). Plus there’s the calculus of risk, especially since the pandemic. When COVID and flu rates are high, how many events do I just not even consider because of that risk? That feels very different than bailing on an event that I planned to attend because of a diabetes emergency, but it still has the net result of me not going to an event.

      3
      2 years ago Log in to Reply
    7. cynthia jaworski

      Really, never ever.

      I have missed events due to pregnancy or flu or family responsibilities.

      2 years ago Log in to Reply
    8. Patricia Dalrymple

      I said 1-2. It’s rare but I won’t do things like tubing or kayaking because I don’t want to get my pump wet (live in FL and most involves salt water). Even in fresh water I wouldn’t risk it.

      2 years ago Log in to Reply
    9. Ahh Life

      Prior to gastroparesis, the first 65 – 70 years of T1D, the answer was zero. But alas and alack, I now am enslaved to a spastic digestive nerve that sits there and contemplates to itself in a complete soliloquy, “Will I or won’t I digest this carb?” And I cannot drive, travel, etc. until the dolting dither-er in chief makes up it’s mind.

      1
      2 years ago Log in to Reply
    10. Dave Akers

      Honestly I never miss an event…unless it’s an event I don’t want to attend, then Inuse T1D as a scapegoat to get out of it! 😳

      Or I use it to get me and kids to front of line at Disney! 😬

      1
      2 years ago Log in to Reply
    11. William Bennett

      If having to bail on an event early due to pump failure counts, then yeah, 1-2 a year maybe. Not often but not never.

      1
      2 years ago Log in to Reply
    12. Mark Schweim

      The way my work life went, I gave up planning to do things decades ago. If I wanted to work overtime, the most reliable way to get the overtime was to plan on doing something or going somewhere on my days off. If I had nothing planned, it was almost guaranteed that I’d have the time off. But without fail, if I had made any plans, it was guaranteed that work would require me to work the entire time of whatever I had planned to attend.

      2 years ago Log in to Reply
    13. mbulzomi@optonline.net

      Never is self-explanatory.

      2 years ago Log in to Reply
    14. ConnieT1D62

      Rarely. That should have been an option.

      2 years ago Log in to Reply
    15. Kelly Wilhelm

      The only thing I’ve missed have been 2 workouts when I woke up much lower than planned and was not able to rebound in time to go do a hard work workout. But generally speaking, it’s not an issue.

      2 years ago Log in to Reply
    16. Jeff Balbirnie

      Never considered the question before. Not very often that I am aware of

      2 years ago Log in to Reply

    If you could guess, about how many times a year do you miss planned events because of something T1D-related? Cancel reply

    You must be logged in to post a comment.




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