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    • 10 hours, 33 minutes ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 11 hours, 30 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 11 hours, 37 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 12 hours, 37 minutes ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 12 hours, 40 minutes ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 13 hours, 43 minutes ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 13 hours, 44 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I’m curious about the reasoning behind using a dedicated reader. Could someone please enlighten me?
    • 13 hours, 44 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 13 hours, 45 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      For Minimed, the dedicated reader is the pump.
    • 13 hours, 45 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I chose "dedicated reader". That reader is my pump, a Minimed 780G.
    • 13 hours, 45 minutes ago
      Marthaeg likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 day, 8 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 8 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      Extremely. I have a certificate in Medical Billing & Coding.
    • 1 day, 12 hours ago
      Kathy Hanavan likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 1 day, 12 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Roughly half my lows are caused by my auto correct system now. I expect AI hallucinations to make it worse. I have enough hallucinations when I'm low and need non-hallucinatory help. We all need more info on this subject to make better decisions. As my favorite 80's AI robot (Johnny 5) said, "Need input."
    • 1 day, 12 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I'm not comfortable for many reasons: 1) AI hasn't proven respects boundaries, quite the opposite, too many reports of AI tend to view its responsibilities and decisions as NOT mine; 2) the companies behind AI systems do likewise in not respecting my data as mine and jumble it in with their own; 3) AI systems haven't proven themselves as reliable parties regarding data and actions. There are many more; AI systems have a long way to go before I entrust one with dosing strategies while I'm awake, let alone while I'm asleep!
    • 1 day, 12 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’ve done a large 2 week focus group through Syracuse University on AI. I’ve also been watching shows on European news about AI and medical issues. AI still has too many glitches when it comes to medical issues.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Having recently dealt with ongoing tech issues involving our heat and electrical-use notifications for more than six months — and it’s still not fully resolved — I’m not always a fan of too much technology. That said, I am interested in advances like the Twist Insulin Pump potentially detecting scar tissue or helping with infusion-site issues. But then reality kicks in: taking devices off for MRIs, replacing failed equipment, and navigating Medicare when it’s primary insurance can become a nightmare of paperwork and delays. And honestly, AI in some call centers has been pretty frustrating. Sometimes it feels like no one can answer a real-world question anymore. I think we should tread lightly and make sure technology actually makes life easier for people living with T1D — especially older adults who already manage enough complexity every day. Some days I think about a less stress free life and going back to a syringe and insulin. over 45 years of doing that, and now 25+ of devices, I'm tired of the challenges in getting replacements, and scar tissue, and mail order supplies and on and on.
    • 2 days, 9 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 2 days, 9 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
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    Many people living with T1D also live with other autoimmune diseases. How many other autoimmune diseases do you live with? Share what they are in the comments.

    Home > LC Polls > Many people living with T1D also live with other autoimmune diseases. How many other autoimmune diseases do you live with? Share what they are in the comments.
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    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.

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    Did you update your T1D devices to correspond with daylight saving time?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    38 Comments

    1. Ann Auerbach

      Hashimoto’s

      2 years ago Log in to Reply
    2. Kris Koch

      Hashimoto’s

      2 years ago Log in to Reply
    3. Phyllis Biederman

      Hashimoto’s

      2 years ago Log in to Reply
      1. Phyllis B

        Pardon my typo- it’s Dupuytren’s

        2 years ago Log in to Reply
    4. Shelly Smith

      The same condition that triggered the diabetes also made me epileptic, so I answered “1”.

      2 years ago Log in to Reply
    5. Lawrence S.

      I said 5+. The ones that I know of include, Pemphagoid, hypothyroid, asthma, frozen shoulder (may be some other issue here with pain in shoulder, neck, arm, and chest), and gastroparesis. I usually forget something. Lots of other issues that have not been diagnosed as autoimmune diseases.

      2 years ago Log in to Reply
    6. HMW

      Hashimoto’s

      2 years ago Log in to Reply
    7. Jane Cerullo

      Graves’ disease and TED. Also not sure if autoimmune but have Duputrens contractions.

      2 years ago Log in to Reply
      1. Phyllis B

        Yup Dupetreyn’s counts

        2 years ago Log in to Reply
    8. Jneticdiabetic

      Hashimoto’s (autoimmune hypothyroidism)

      2 years ago Log in to Reply
    9. Beckett Nelson

      Hashimotos and Sjogren’s (working on diagnosis for this one now)

      2 years ago Log in to Reply
    10. Ahh Life

      Hey! I don’t know what it takes to get an olympic medal in this disease-driven olympics I have dived into, but . . . I have experienced at least twenty of these. Also, I’d just like to know what is the world record? ¯\_(ツ)_/¯?

      *Arteriosclerosis

      Autoimmune gastritis

      Autoimmune progesterone dermatitis

      *Autoimmune retinopathy (AIR)

      Dermatitis herpetiformis

      Dermatomyositis

      Diabetes, type 1

      Eosinophilic fasciitis

      *Interstitial cystitis

      *Ligneous conjunctivitis

      Mixed connective tissue disease (MCTD)

      *Multifocal motor neuropathy

      *Pernicious anemia

      POEMS syndrome

      Palmoplantar Pustulosis

      *Reflex sympathetic dystrophy syndrome (RSD) / Complex regional pain syndrome (CRPS)

      *Restless leg syndrome (RLS) / Willis-Ekbom disease

      Rheumatoid arthritis

      *Stiff person syndrome (SPS)

      Small fiber sensory neuropathy

      1
      2 years ago Log in to Reply
      1. KarenM6

        I think you have the gold medal there, Ahh Life! =:o

        2 years ago Log in to Reply
      2. Sherrie Johnson

        Must be fun when you have to fill out forms for new doctor

        2 years ago Log in to Reply
    11. Sherolyn Newell

      Rheumatoid arthritis.

      2 years ago Log in to Reply
    12. audrey coleman

      Psoriatic Arthritis

      2 years ago Log in to Reply
    13. Sheldon Schwartz

      Rheumatoid arthritis

      2 years ago Log in to Reply
    14. Lisa Anderson

      Grave’s Disease
      Celiac Disease

      2 years ago Log in to Reply
    15. GiGi

      Hashimoto’s Thyroiditis

      2 years ago Log in to Reply
    16. Beckie McCammitt

      Low thyroid and celiac

      2 years ago Log in to Reply
    17. Janice B

      Hashimoto Thyroiditis

      2 years ago Log in to Reply
    18. Jonathan Knight

      Eczema

      2 years ago Log in to Reply
    19. KarenM6

      I have trigger finger, but don’t know if that’s autoimmune.
      I have an arthritis, but I don’t know what kind…
      I said “no”, but my answer may be limited to my knowledge of all the autoimmune conditions out there!

      2 years ago Log in to Reply
    20. Kathryn Keller

      celiac

      2 years ago Log in to Reply
    21. lis be

      Hashimoto’s
      Atrophic gastritis
      Fibromyalgia (not sure if that is an auto immune?)

      2 years ago Log in to Reply
    22. Bret Itskowitch

      rheumatoid arthritis. Research has found that people with T1D have a higher risk of developing RA. Lucky me

      2 years ago Log in to Reply
    23. Karen DeVeaux

      Celiac

      2 years ago Log in to Reply
    24. mbulzomi@optonline.net

      Just little old ME!

      1
      2 years ago Log in to Reply
    25. kilupx

      Hashimoto’s, psoriasis and rheumatoid arthritis. The only serious one is RA.

      2 years ago Log in to Reply
    26. George Rich

      Hypothyroid

      2 years ago Log in to Reply
    27. Molly Jones

      Crohn’s Disease/Ulcerative Colitis
      Hashimoto’s Disease
      Rosacea
      Sjogren’s
      Pernicious anemia
      GAD65 Antibody-Associated Epilepsy
      I wonder how many conditions will be found to be autoimmune related.

      2 years ago Log in to Reply
    28. Carl Robertson

      Addison’s disease, aka primary adrenal insufficiency, caused by autoimmune attack on the adrenal cortex

      2 years ago Log in to Reply
    29. Kathleen Juzenas

      RA

      2 years ago Log in to Reply
    30. Anneyun

      RA, many trigger fingers, I had frozen shoulder in both shoulders for 6 years.

      2 years ago Log in to Reply
    31. Carrolyn Barloco

      tacrolimus and polymyalgia reumatica

      2 years ago Log in to Reply
    32. Twinniepoo74

      Lupus, esophagitis, and gerd

      2 years ago Log in to Reply
    33. Lynn Green

      Psoriatic arthritis

      2 years ago Log in to Reply
    34. PamK

      I have Ulcerative Colitis and Symbiotic Psoriasis (caused by Humira).

      2 years ago Log in to Reply

    Many people living with T1D also live with other autoimmune diseases. How many other autoimmune diseases do you live with? Share what they are in the comments. Cancel reply

    You must be logged in to post a comment.




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