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    • 4 hours, 32 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 4 hours, 33 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 4 hours, 33 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 5 hours, 47 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 9 hours, 20 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 9 hours, 22 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 12 hours, 45 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 12 hours, 46 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 12 hours, 46 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 12 hours, 46 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 12 hours, 47 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 13 hours, 11 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 11 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 14 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 16 hours, 57 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 16 hours, 57 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 17 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 17 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 7 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 9 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 10 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 12 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 14 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 14 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine?

    Home > LC Polls > In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine?
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    On average, how much do you spend (deductible, copay, out-of-pocket) on all of your diabetes supplies for three months?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Molly Jones

      At my Endo appointment in late December, I was told when to hopefully expect vaccinations and to contact the clinic if I needed any certification.

      5 years ago Log in to Reply
    2. Kristen Clifford

      I haven’t directly received any information, but I was planning to call my endocrinologist today to see if they have any insights into when that might be.

      5 years ago Log in to Reply
    3. Patricia Dalrymple

      Answered other because I haven’t researched it but assume I am not yet in line. Last time I looked T2s were in line but saw nothing about T1s. Assuming again because all the research is focused on T2s. Numbers matter unfortunately.

      5 years ago Log in to Reply
    4. Gene Maggard

      I’m in Marietta, Georgia, and was able to schedule my vaccine dose due to my age (over 65). They are currently offering the vaccine to Phase 1A+, then next will be 1B and 1C, then Phase 2 and finally Phase 3. If you’re under age 65 here I think people with T1D or other pre-existing conditions have to wait until Phase 2.

      5 years ago Log in to Reply
    5. Andrew Adams

      My county in Illinois specifically prioritized “Type 2 Diabetes” but has given no higher priority to T1Ds, despite evidence of higher risk. It’s very frustrating. I thought this article had a good summary of where things stand in the U.S. for T1D vaccination priority https://www.statnews.com/2021/01/11/for-people-with-type-1-diabetes-cdc-guidelines-for-covid-19-vaccine-priority-are-puzzling/

      5 years ago Log in to Reply
    6. Bill Williams

      In Tennessee, T1Ds over 16 years of age are in Phase 1c, trailing healthcare workers, teachers and a few other groups. I expect to receive the vaccine based on my age before we reach Phase 1c.

      5 years ago Log in to Reply
    7. Pete Murphy

      I chose OTHER because, yes we’ve received guidance, YET…..Rhode Island is WAY behind other states apparently. I just spoke with my dental hygienist, who informed me their ‘hoping’ to get theirs the first week of February! I called my doctors office that informed me via a generic welcome message not to bother asking about when we would receive the vaccines, as they have not been informed yet by the state! Yet people over 65 (Not front end workers) are receiving the vaccine in Florida!!

      5 years ago Log in to Reply
    8. Kristine Warmecke

      Currently myState has “Diabetic’s” listed in the 1B group. So technically the next the group, but not everyone that wants it has gotten the first injection yet here. Have just started the first dose in some LTC, Assisted Living, Memory Care Homes, etc.

      5 years ago Log in to Reply
    9. Greg Felton

      In Washington persons over 50 with “2 or more comorbidities” are just behind front line workers and persons over 70. “Co-morbidity” is left undefined but I think I have but one with T1. Without some other reason I would get the vaccine after the homeless.

      5 years ago Log in to Reply
    10. Mick Martin

      Yes. I’ve received notification from our Department of Health & Social Care, but I live in the UK, so the information I’ve received will not be applicable to the vast majority of people on here. (I’ll be getting my first ‘jab’ by mid-February.)

      5 years ago Log in to Reply
    11. Rose Lentzke

      In Florida, anyone over 65 can get Covid 19 vaccine. My husband and I are part of a lottery for the vaccine. When your name is drawn, they call you to set up an appointment for both of us.

      5 years ago Log in to Reply
    12. Trina Blake

      I expect I will be in the group of “regular” people over 65. From what I’ve read (TCOYD, JDRF) those with T1D aren’t more likely to contract covid91 than anyone else in their age group as long as our D mgt is good. Not intending to boast, but my A1C’s are consistently 5.3-5.5 and my TIR is in the upper 90’s and I practice safety, I am not concerned about when I get the vaccine. I am more worried about T1D mgt for hospital inpatients (few fingersticks – although some hospitals are using CGM’s in order to save on PPE – use of regular insulin, high targets for bg – 200+).

      5 years ago Log in to Reply
    13. Ken Raiche

      By the way I’m Canadian and live in Canada just to make things clear. So as expected our government is having a hard time getting things organized when it comes to rolling things out as well getting product in. The way I see things it’s going to take quite dinner time for them to get their act together so who knows. Fingers crossed hoping this damn pandemic gets resolved soon.

      5 years ago Log in to Reply
    14. Carol Meares

      I will be getting my vaccine this weekend. Moderna. I qualify because I am 65 or older not because I have diabetes.

      5 years ago Log in to Reply
    15. Christina Trudo

      “Other”- depends on what you mean by received. When I heard something about the next phase on the local news, I checked on the state website and found the current updated information. So I HAVE what I think is current info but was not given it directly. Because of multiple conditions I am in the next phase and will be checking with my doctor(s) to see that they are including me in the next round. BTW in my state there was a list of qualifying conditions which included Type 2 diabetes with no mention of Type 1. (I have CAD, COPD and asthma so I qualify for this earlier round anyway,)

      5 years ago Log in to Reply
    16. Melinda Lipe

      Other – I’m in healthcare, so I got it already – MS

      5 years ago Log in to Reply
    17. Martin Fuhrer

      In Oman we are in phase one of vaccinations, and only diabetics 65 years and older qualify (no specific mention of T1D). The state clinic in Muscat advised me to return next week, when phase two begins, which should include all diabetics.

      5 years ago Log in to Reply
    18. Mark Fuller

      Here in Massachusetts we are in phase 1. I am 71 years old and have T1D. I am not in phase 1. Phase 2 will start in February. If you are over 75 you will be eligible in February. If you are over 65 with two comorbidities , you will be first in line. I have one. Still, I will very likely get my first shot in February.

      5 years ago Log in to Reply
    19. Mary Coleman

      I’m in Indiana, and the vaccine has been given first to Medical personnel and now is being given to those 80 years and older. The next tiers are by age only (next 70+, then 60+), risk factors are not a consideration in this plan.

      5 years ago Log in to Reply
    20. Becky Hertz

      There’s a semi list that shows the sequence of who will get the vaccine, but no timelines. I’m 1b tier3

      5 years ago Log in to Reply
    21. Janis Senungetuk

      Just had my 90 day endo visit and was told that I’d be notified by my primary physician. Since T1D isn’t listed as a priority medical condition, I imagine my age (74) will be the deciding factor. Maybe sometime in the late spring?

      5 years ago Log in to Reply
    22. ANN GALLUZZO

      My diabetes does not count in my state either. They have not finished the senior living people and front line workers yet. They are now doing teachers. After that, they will only do those over 75, so neither I nor my husband will get it, even though we are over 65. Our state is low on the list of vaccines given per capita. It is likely to start in March or April for us to be vaccinated.

      5 years ago Log in to Reply
    23. Annie Simon

      Living in Montreal, Quebec Canada, my condition if T1D is considered underlying condition and will follow over 60 year olds but for now our elderly and health care workers are priority and hopefully my Endocrinolgist feels by April should be realistic in receiving vaccine🙏

      5 years ago Log in to Reply
    24. Robby Doyle

      Well diabetics allegedly can get vaccinated in NYCS

      5 years ago Log in to Reply
    25. Robby Doyle

      While diabetics allegedly can get vaccinated in NYS, good luck finding an appointment! If you are not 65, you are shut out from the pharmacy appointments. If you go to the State site, you think you are going to be able to book an appointment but it eventually locks you out. NY is a mess! Shame on you Governor Cuomo.

      5 years ago Log in to Reply

    In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine? Cancel reply

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