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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine?

    Home > LC Polls > In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine?
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    On average, how much do you spend (deductible, copay, out-of-pocket) on all of your diabetes supplies for three months?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Molly Jones

      At my Endo appointment in late December, I was told when to hopefully expect vaccinations and to contact the clinic if I needed any certification.

      5 years ago Log in to Reply
    2. Kristen Clifford

      I haven’t directly received any information, but I was planning to call my endocrinologist today to see if they have any insights into when that might be.

      5 years ago Log in to Reply
    3. Patricia Dalrymple

      Answered other because I haven’t researched it but assume I am not yet in line. Last time I looked T2s were in line but saw nothing about T1s. Assuming again because all the research is focused on T2s. Numbers matter unfortunately.

      5 years ago Log in to Reply
    4. Gene Maggard

      I’m in Marietta, Georgia, and was able to schedule my vaccine dose due to my age (over 65). They are currently offering the vaccine to Phase 1A+, then next will be 1B and 1C, then Phase 2 and finally Phase 3. If you’re under age 65 here I think people with T1D or other pre-existing conditions have to wait until Phase 2.

      5 years ago Log in to Reply
    5. Andrew Adams

      My county in Illinois specifically prioritized “Type 2 Diabetes” but has given no higher priority to T1Ds, despite evidence of higher risk. It’s very frustrating. I thought this article had a good summary of where things stand in the U.S. for T1D vaccination priority https://www.statnews.com/2021/01/11/for-people-with-type-1-diabetes-cdc-guidelines-for-covid-19-vaccine-priority-are-puzzling/

      5 years ago Log in to Reply
    6. Bill Williams

      In Tennessee, T1Ds over 16 years of age are in Phase 1c, trailing healthcare workers, teachers and a few other groups. I expect to receive the vaccine based on my age before we reach Phase 1c.

      5 years ago Log in to Reply
    7. Pete Murphy

      I chose OTHER because, yes we’ve received guidance, YET…..Rhode Island is WAY behind other states apparently. I just spoke with my dental hygienist, who informed me their ‘hoping’ to get theirs the first week of February! I called my doctors office that informed me via a generic welcome message not to bother asking about when we would receive the vaccines, as they have not been informed yet by the state! Yet people over 65 (Not front end workers) are receiving the vaccine in Florida!!

      5 years ago Log in to Reply
    8. Kristine Warmecke

      Currently myState has “Diabetic’s” listed in the 1B group. So technically the next the group, but not everyone that wants it has gotten the first injection yet here. Have just started the first dose in some LTC, Assisted Living, Memory Care Homes, etc.

      5 years ago Log in to Reply
    9. Greg Felton

      In Washington persons over 50 with “2 or more comorbidities” are just behind front line workers and persons over 70. “Co-morbidity” is left undefined but I think I have but one with T1. Without some other reason I would get the vaccine after the homeless.

      5 years ago Log in to Reply
    10. Mick Martin

      Yes. I’ve received notification from our Department of Health & Social Care, but I live in the UK, so the information I’ve received will not be applicable to the vast majority of people on here. (I’ll be getting my first ‘jab’ by mid-February.)

      5 years ago Log in to Reply
    11. Rose Lentzke

      In Florida, anyone over 65 can get Covid 19 vaccine. My husband and I are part of a lottery for the vaccine. When your name is drawn, they call you to set up an appointment for both of us.

      5 years ago Log in to Reply
    12. Trina Blake

      I expect I will be in the group of “regular” people over 65. From what I’ve read (TCOYD, JDRF) those with T1D aren’t more likely to contract covid91 than anyone else in their age group as long as our D mgt is good. Not intending to boast, but my A1C’s are consistently 5.3-5.5 and my TIR is in the upper 90’s and I practice safety, I am not concerned about when I get the vaccine. I am more worried about T1D mgt for hospital inpatients (few fingersticks – although some hospitals are using CGM’s in order to save on PPE – use of regular insulin, high targets for bg – 200+).

      5 years ago Log in to Reply
    13. Ken Raiche

      By the way I’m Canadian and live in Canada just to make things clear. So as expected our government is having a hard time getting things organized when it comes to rolling things out as well getting product in. The way I see things it’s going to take quite dinner time for them to get their act together so who knows. Fingers crossed hoping this damn pandemic gets resolved soon.

      5 years ago Log in to Reply
    14. Carol Meares

      I will be getting my vaccine this weekend. Moderna. I qualify because I am 65 or older not because I have diabetes.

      5 years ago Log in to Reply
    15. Christina Trudo

      “Other”- depends on what you mean by received. When I heard something about the next phase on the local news, I checked on the state website and found the current updated information. So I HAVE what I think is current info but was not given it directly. Because of multiple conditions I am in the next phase and will be checking with my doctor(s) to see that they are including me in the next round. BTW in my state there was a list of qualifying conditions which included Type 2 diabetes with no mention of Type 1. (I have CAD, COPD and asthma so I qualify for this earlier round anyway,)

      5 years ago Log in to Reply
    16. Melinda Lipe

      Other – I’m in healthcare, so I got it already – MS

      5 years ago Log in to Reply
    17. Martin Fuhrer

      In Oman we are in phase one of vaccinations, and only diabetics 65 years and older qualify (no specific mention of T1D). The state clinic in Muscat advised me to return next week, when phase two begins, which should include all diabetics.

      5 years ago Log in to Reply
    18. Mark Fuller

      Here in Massachusetts we are in phase 1. I am 71 years old and have T1D. I am not in phase 1. Phase 2 will start in February. If you are over 75 you will be eligible in February. If you are over 65 with two comorbidities , you will be first in line. I have one. Still, I will very likely get my first shot in February.

      5 years ago Log in to Reply
    19. Mary Coleman

      I’m in Indiana, and the vaccine has been given first to Medical personnel and now is being given to those 80 years and older. The next tiers are by age only (next 70+, then 60+), risk factors are not a consideration in this plan.

      5 years ago Log in to Reply
    20. Becky Hertz

      There’s a semi list that shows the sequence of who will get the vaccine, but no timelines. I’m 1b tier3

      5 years ago Log in to Reply
    21. Janis Senungetuk

      Just had my 90 day endo visit and was told that I’d be notified by my primary physician. Since T1D isn’t listed as a priority medical condition, I imagine my age (74) will be the deciding factor. Maybe sometime in the late spring?

      5 years ago Log in to Reply
    22. ANN GALLUZZO

      My diabetes does not count in my state either. They have not finished the senior living people and front line workers yet. They are now doing teachers. After that, they will only do those over 75, so neither I nor my husband will get it, even though we are over 65. Our state is low on the list of vaccines given per capita. It is likely to start in March or April for us to be vaccinated.

      5 years ago Log in to Reply
    23. Annie Simon

      Living in Montreal, Quebec Canada, my condition if T1D is considered underlying condition and will follow over 60 year olds but for now our elderly and health care workers are priority and hopefully my Endocrinolgist feels by April should be realistic in receiving vaccine🙏

      5 years ago Log in to Reply
    24. Robby Doyle

      Well diabetics allegedly can get vaccinated in NYCS

      5 years ago Log in to Reply
    25. Robby Doyle

      While diabetics allegedly can get vaccinated in NYS, good luck finding an appointment! If you are not 65, you are shut out from the pharmacy appointments. If you go to the State site, you think you are going to be able to book an appointment but it eventually locks you out. NY is a mess! Shame on you Governor Cuomo.

      5 years ago Log in to Reply

    In your location, have you received official guidance about when people with T1D will be able to get the COVID-19 vaccine? Cancel reply

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