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    • 1 hour, 10 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    In which room(s) of your home do you keep your diabetes supplies? Select all that apply.

    Home > LC Polls > In which room(s) of your home do you keep your diabetes supplies? Select all that apply.
    Previous

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

    Next

    When your pump or CGM sites feel irritated or uncomfortable on your skin, do you change your site or wait for the session to be over?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Carol Meares

      I wait for CGM to expire because insurance won’t allow me to get additional CGMs. For infusion sites I use a Tru Steel for TSlim. The trusteel I can take out and prepare another location to insert the same one. I only go 2-3 days with it, so it works just fine. The worst part with either CGM or infusion site is whether it is a bleeder or I get it too close to a rib or other bone, or something like hitting a nerve. A bleeder, dexcom will replace. Most bleeders I have found to work after a couple days but have to calibrate a lot during that time from pump requests. I take baby aspirin daily. I get annoyed with the new Dexcom insertion that wakes me up with wild numbers that make no sense either high or low, and invalidated with finger pricks. But overall, Dexcom is the very best and I look forward to the G7 and easier access and smaller. I have had very few replacements in the overall scheme of things, I think. Perhaps 2-3/year. I don’t know. Is that high? A little less than 10%. Hmmm

      5 years ago Log in to Reply
    2. Carol Meares

      The comment above was supposed to go to a different question. Don’t know how that happened, sorry

      5 years ago Log in to Reply
    3. Pat Reynolds

      Don’t worry, Carol. Something at t1d exchange has broken – emails no longer link to the correct questions!

      5 years ago Log in to Reply
    4. Ahh Life

      Other. Closet next to secondary bathroom. Why or why are closets not listed? Also in there are towels, pillow cases, other medicines, old Christmas wrapping paper, USB rechargers, spare eye glasses, pill boxes, appliance instructions, cough drops and other absolutely delightful curiosity items. Some closet, that one. (>‿◠)✌

      5 years ago Log in to Reply
    5. Anthony Harder

      Other – I keep insulin I’m not currently using in the basement fridge.

      5 years ago Log in to Reply
    6. Britni Steingard

      Kitchen: insulin, sharps container, snacks Bedroom: mores snacks plus syringes, strips, lancets, spare meters, spare inject-eases, extra glucagon kits, glucose tablets, simpatches… all the spare stuff, basically Living room: test kit (logbook, calculator, and inject-ease plus syringes, lancets, and strips for the day) and CGM sensor (at least while I’m home and not I’m not out and about)

      5 years ago Log in to Reply
    7. Shannon Barnaby

      Other than insulin, I keep other supplies in a hall closet.

      5 years ago Log in to Reply
    8. Mick Martin

      I keep insulin and glucagon kits in the refrigerator in the kitchen. The rest of my supplies, such as sharps container, blood glucose test strips, Beta-ketone test strips, lancets, glucose tablets, insulin set changes, CGM supplies, log books, batteries, USB chargers, etc. are kept in my bedroom.

      5 years ago Log in to Reply
    9. connie ker

      I keep a stash of supplies in an upstairs bathroom, and bring them downstairs by packages as needed. I keep all cgm supplies in a downstairs closet, and all insulin is kept in the refrigerator, even the vials in use. This is kind of a personal question, you just do what works for you with your floorplan and living arrangements. If you want something to pray about today, think of the type 1 diabetics living in Texas this week without power, heat, water, food and security. The pictures are horrifying and I can’t help but think of the insulin dependent diabetics.

      5 years ago Log in to Reply
    10. MARIE PEELER

      First floor hall closet, near kitchen.

      5 years ago Log in to Reply
    11. Amanda Barras

      Bathroom and hall linen closet.

      5 years ago Log in to Reply
    12. mwmeganwolff@gmail.com

      I use a shelf in my closet for things I use often (meter, insulin pens in use currently, pen needles) and a drawer below with extra supplies and other items and extra pens in the kitchen fridge.

      5 years ago Log in to Reply
    13. Ceolmhor

      In addition to storing the bulk of my supplies and equipment in the master bathroom, I keep a two-month supply in a downstairs storage room in an emergency evacuation tub prepared for my car. I rotate the supplies through there so nothing goes out of date.

      5 years ago Log in to Reply
    14. Sherolyn Newell

      Insulin in refrigerator in kitchen. Omnipods, G6 sensors in bedroom closet. Alcohol wipes in a candy box on table by sofa, because I usually sit there to change stuff. Lancets and test strips in a decorative box in dining room, only reason is because that’s where the box is.

      5 years ago Log in to Reply
    15. Gene Maggard

      Although I only take one fingerstick test a day on average, I have glucose meters in the kitchen, bedroom, and “one for the road” (travel). My other supplies (pump and CGM) I keep in the bedroom closet. Keeping a set of everything in the basement in case of emergency (like a tornado, we live in the south) is a great idea and one that I’ll implement immediately.

      5 years ago Log in to Reply
    16. Megen Blackburn

      Between my insulin pump, CGM, and related belts, cases, adhesive tapes, and insulin coolers for travel, I keep my supplies in cloth storage cubes in my closet. There are way too many pieces of my diabetic supplies to keep them in my limited bathroom or kitchen cabinets.

      5 years ago Log in to Reply
    17. Carol Meares

      I answered other. It should have been bedroom and bathroom.

      5 years ago Log in to Reply
    18. Molly Jones

      I keep all insulin in the fridge besides the next full cartridge to use which is in a closed bag on the kitchen counter. All other diabetic supplies are in their specific shelf I have in a hall closet with other shelves for other supplies: medications, colostomy supplies, and bath room supplies.

      5 years ago Log in to Reply
    19. Ann Taylor

      My youngest sons’ bedroom (he’s 34 now) has become my “medical room”. I have a cute desk I keep wipes, test strips and other odds and ends. Plus lots of pictures of my grandkids. I remember when I first started using the Dexcom G5 I would watch videos of my grandson. Made it a lot easier. Then I keep my supplies of pods and sensors and used sharps, etc in the closet. That’s a good idea about keeping supplies in the basement. We have tornados here in the Midwest too. I keep my bag on the kitchen table that has my testing supplies in it

      5 years ago Log in to Reply
    20. ConnieT1D62

      Most diabetes supply stuff is kept in a hallway linen closet between the dining room and living room. Spare injectable hormone replacements not currently in use (Novolog, Victoza, Fiasp, Basaglar) are stored in the fridge. Glucagon supplies are kept in the linen closet, as well as an up-to-date grab & go diabetes stuff supply kit. The few oral meds I take everyday are kept on a countertop in the kitchen.

      5 years ago Log in to Reply
    21. Debbie Knowles

      I had an extra Tupperware divided vegetable/dip serving tray. It has 7 compartments. I keep it on my kitchen counter. Separate sections for needles, lancets, alcohol swabs, enzyme pills, blood tester, meter, test strips, etc. Extra insulin in fridge. Extra supplies in my living room, in a drawer and cabinet at one end of my entertainment center.

      5 years ago Log in to Reply
    22. Chris Deutsch

      Both of our cars

      5 years ago Log in to Reply
    23. Leona Hanson

      I live in an rv I keep my supplies in the cabinet over the couch in the living room insulin in the fridge and what is use in the day in my purse

      5 years ago Log in to Reply
    24. Sally Numrich

      I also use the linen cabinets outside my bedroom. Everything is I. There except for the whole shelve I. The refrigerator for all my supplies that need to be refrigerated. My emergency kit is always in this cabinet right outside my door. Easy to grab if I have to run out of the house.

      5 years ago Log in to Reply

    In which room(s) of your home do you keep your diabetes supplies? Select all that apply. Cancel reply

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