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    • 2 minutes ago
      Debbie Pine likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      What’s the alternative? I’ve used MDI and I may go back there if I live long enough to not be able to keep up with the tech. But right now, I just keep in mind how lucky I am to have the many choices.
    • 3 minutes ago
      atr likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      What’s the alternative? I’ve used MDI and I may go back there if I live long enough to not be able to keep up with the tech. But right now, I just keep in mind how lucky I am to have the many choices.
    • 3 minutes ago
      atr likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I am not in the least "feeling tired of wearing or managing devices." But device fatigue? It feels like I have 3 samurai wrestlers and Charles Atlas clinging to my back. All the data is a bit heavy and I tire easily. 𓊆ྀི❤︎𓊇ྀི
    • 9 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      Would I prefer to not having devices- yes. But the benefits outweigh the inconvenience so I am happy to wear them.
    • 21 hours, 55 minutes ago
      Natalie Daley likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      Shakespeare knew more about the human condition than most corporations, governments, non-profits, not-for-profit ever will. 🍄🦋🌸
    • 21 hours, 58 minutes ago
      Kristi Warmecke likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      I've done this a couple of times. If researchers can use my CGM data to figure things out and help others, I'm happy to share :)
    • 21 hours, 58 minutes ago
      Kristi Warmecke likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      I already do.
    • 21 hours, 58 minutes ago
      Kristi Warmecke likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      How might your alerts be delayed?
    • 22 hours, 3 minutes ago
      Ahh Life likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      It depends on how the data is maintained and the use of it. Too many corporate entities think the already have a right to data about me and use it with or without notice or approval. It’s about me, my person, its mine and I object believing or saying otherwise, particular corporate entites. While I’m at it, it’s always amazed me that people willing hand over all their data to a corporate entity but get the heebee geebeies if the government asks for the exact same info. What you think the government has nefarious intent and corporations are any different? How do I doubt thee…let me count the ways!
    • 22 hours, 3 minutes ago
      Lawrence S. likes your comment at
      What would make you more likely to participate in a research study? (Select all that apply.)
      I'd be happy to get into a study, but it really would depend on how the study is conducted. Would I need surgery, and if yes, is it only a minor surgery? Are immunosuppressants required (what are the drawbacks of the type of immunosuppressants used?). If the study is not available to be done online, how close is the facility that I would have to visit and how often?
    • 22 hours, 4 minutes ago
      Lawrence S. likes your comment at
      What would make you more likely to participate in a research study? (Select all that apply.)
      For me, assuming I meet the criteria (which I understand are necessary for research design), it's how feasible it is for me to participate within my current life. I'm about to start participation in a study of exercise and t1d that involves answering some surveys and wearing a fitness tracker - very doable for me. I already did this for a different study about cancer prevention.
    • 22 hours, 4 minutes ago
      Lawrence S. likes your comment at
      What would make you more likely to participate in a research study? (Select all that apply.)
      I would want to be relatively certain that the research question is worth the trouble that I would have to go through to help with the results of the research. I would check to ensure that the people doing the research were reputable. I would also have to self evaluate my own reasons for contributing to the research and make sure that I could follow through with any commitments I would make. If it were for a profitable company I would want some compensation. For a non profit organization it would depend heavily on the type of research and the sacrifices and or risks I might endure.
    • 22 hours, 12 minutes ago
      Lawrence S. likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      It depends on how the data is maintained and the use of it. Too many corporate entities think the already have a right to data about me and use it with or without notice or approval. It’s about me, my person, its mine and I object believing or saying otherwise, particular corporate entites. While I’m at it, it’s always amazed me that people willing hand over all their data to a corporate entity but get the heebee geebeies if the government asks for the exact same info. What you think the government has nefarious intent and corporations are any different? How do I doubt thee…let me count the ways!
    • 22 hours, 56 minutes ago
      Bill Williams likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      I've done this a couple of times. If researchers can use my CGM data to figure things out and help others, I'm happy to share :)
    • 22 hours, 57 minutes ago
      Kathy Hanavan likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      I've done this a couple of times. If researchers can use my CGM data to figure things out and help others, I'm happy to share :)
    • 23 hours, 26 minutes ago
      KCR likes your comment at
      Would you consider participating in a study that involves sharing your CGM data remotely?
      I've done this a couple of times. If researchers can use my CGM data to figure things out and help others, I'm happy to share :)
    • 1 day, 19 hours ago
      Fabio Gobeth likes your comment at
      If you use CGM, how many people “follow” your glucose levels for alerts?
      Honestly shocked to see that high a percentage at 0....we all need help once in awhile and we don't always know when that will be.
    • 1 day, 19 hours ago
      lis be likes your comment at
      How often do you adjust insulin settings (basal rates, correction factors, carb ratios) on your own?
      Rarely, and then I usually change them back.
    • 1 day, 21 hours ago
      Ahh Life likes your comment at
      How often do you adjust insulin settings (basal rates, correction factors, carb ratios) on your own?
      T1D is the ultimate do-it-yourself condition. Endocrinologist is great for advice, but only I know what's working day to day. After 47 years, 32 using a pump, I am darn good at it!
    • 1 day, 21 hours ago
      Ahh Life likes your comment at
      What would make you more likely to participate in a research study? (Select all that apply.)
      I’m going to be 80, T1D for 40 years. — diagnosed on my birthday. I’m a healthy diabetic — no heart issues, etc. but I’m too old. Don’t they want to know how I got old?
    • 1 day, 21 hours ago
      Derek West likes your comment at
      How often do you adjust insulin settings (basal rates, correction factors, carb ratios) on your own?
      T1D is the ultimate do-it-yourself condition. Endocrinologist is great for advice, but only I know what's working day to day. After 47 years, 32 using a pump, I am darn good at it!
    • 1 day, 21 hours ago
      MT likes your comment at
      How often do you adjust insulin settings (basal rates, correction factors, carb ratios) on your own?
      T1D is the ultimate do-it-yourself condition. Endocrinologist is great for advice, but only I know what's working day to day. After 47 years, 32 using a pump, I am darn good at it!
    • 2 days, 8 hours ago
      Carol Meares likes your comment at
      What would make you more likely to participate in a research study? (Select all that apply.)
      Most of the time when I look, I am too old.
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      How comfortable would you feel wearing an additional device for research purposes?
      I answered very comfortable. But...they had better provide the handyman tool-belt to carry the gear! One of the main reasons I prefer the Tandem tubed pump to the Omnipod etc is that I don't have to carry a second device. If I did qualify for a study (I usually don't - too old or bg numbers are too good) I'd be wearing/carrying 2 smart phones (one for work, one personal) the research device and my own pump. I guess a pair of CArhart pants would have the substantially strong waistband to handle it all (said with a smile)
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      How comfortable would you feel wearing an additional device for research purposes?
      Been there. Done that. Wearing 2 pumps & 2 different sensors.
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    In the past three years, have you been hospitalized due to T1D?

    Home > LC Polls > In the past three years, have you been hospitalized due to T1D?
    Previous

    Do you feel like your close friends have an understanding of your day-to-day T1D management?

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    Aside from the first few months after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Michelle Saunders

      I haven’t been hospitalized due to my diabetes in 15 years.

      4 years ago Log in to Reply
    2. Trish Seidle

      No. I will not go to any hospital to be treated for my t1d. I have been in the hospital for other things and had to sign myself out AMA because they mismanaged my B’s so badly.

      2
      4 years ago Log in to Reply
      1. kristina blake

        Basically, I won’t go to hospital for any reason if I can help it. The mis-mgt of T1D for inpatients is the usual.

        1
        4 years ago Log in to Reply
      2. Anita Galliher

        Hi certainly understand that. I always get permission from my doctor to self-treat when I have to stay overnight or longer. They can screw me up in a heartbeat, and my DM is hard enough to keep in check without their assistance.

        4 years ago Log in to Reply
    3. Virginia Barndollar

      In 56 years have never been hospitalized for T1DM (except initial diagnosis).

      1
      4 years ago Log in to Reply
    4. KCR

      Twice last year I went to the ER for IV fluids for dehydration after a bad bout of gastrointestinal flu and the second time I was admitted overnight because my sodium level was too low.

      4 years ago Log in to Reply
    5. Kevin McCue

      Only time I have been hospitalized due to T1d was at diagnosis. Unfortunately that’s been more than 3 decades. There has been progress on management but I have not seen and cures yet. Hope for a cure doesn’t die but it does run out of time.

      1
      4 years ago Log in to Reply
    6. Mig Vascos

      I only was hospitalized for T1D when I was first started on insulin, not because I was in any health problem, but to receive training on diet and injections. That was in 1973.

      4 years ago Log in to Reply
      1. pru barry

        Same for me in 1954! Diabetes must be treated with respect and diligence. That still leaves time for a very fun life!

        4 years ago Log in to Reply
    7. StPetie

      I was diagnosed in the ICU on 4/7/19 while in a hyperglycemic coma. In for 10 days that time. About 40 more days were due to complications from organ shut down during the coma. Another week or so coming up.

      4 years ago Log in to Reply
    8. LizB

      I was hospitalized only at diagnosis and that was 35 years ago. I have had ambulance rides to the ER a few times due to passing out from lows but I was treated and released within hours. Those were all prior to getting a pump.

      4 years ago Log in to Reply
    9. Joan Fray

      I said no. I got the flu, couldnt eat or drink, vomiting etc, doctor told me to hospital due to dehydration and unbalanced electrolytes

      4 years ago Log in to Reply
    10. Mick Martin

      Although I selected No, I have been hospitalized within the last 3 years, but this was due to COVID-19. (This WAS affecting my blood glucose levels, but not to the extent that I would have needed to have been hospitalized. I’d have dealt with it myself by increasing my basal rates on my insulin pump … as well as boluses, should the need arise.)

      4 years ago Log in to Reply
    11. Bob Durstenfeld

      I said no, but I did have quadruple bypass surgery. Indirectly related to Diabetes

      4 years ago Log in to Reply
    12. Christina Trudo

      My last hospitalization due to Diabetes was almost 42 years ago. My next hospitalization for any cause was 38 years later. So no.

      4 years ago Log in to Reply
    13. M C

      I have had diabetic retinopathy surgery done in hospital – but it was a day surgery and I went home after the surgery was completed. The only time I have been hospitalized due to T1D, like many of the other respondents, was when I was first diagnosed 45 years ago.

      1
      4 years ago Log in to Reply
    14. Becky Hertz

      I’ve only been hospitalized once due to the diabetes, on diagnosis.

      4 years ago Log in to Reply
    15. cynthia jaworski

      Never, not even in the beginning. knock on wood.

      4 years ago Log in to Reply
      1. KarenM6

        I’m gonna knock on wood for you, too! 😀

        4 years ago Log in to Reply
    16. Ahh Life

      Between 1951 and 2022, only once in 1996 when the very conservative practices at the time demanded I be hospitalized for 2 days with new Medtronic pump, the first day on saline solution, the second day on real insulin.

      Needless to say, times have changed a bit. Now they tell you to go home, watch a half dozen UTube videos, and have a beer. . . . Well, I’m not really sure of that last one. ヽ(ຈل͜ຈ)ノ︵ ┻━┻

      3
      4 years ago Log in to Reply
    17. Anita Galliher

      I was hospitalized as a result of long-term T1D (59 years tomorrow.) I had a blister on a hammer toe that wouldn’t heal because the scab kept getting knocked off. Eventually it became infected and had to be amputated. That was in 2020 along with the Covid pandemic, a broken shoulder that had to have a shoulder replacement, a broken rib and major back surgery. The amputation was the least of my worries! 😁

      4 years ago Log in to Reply
    18. Bridget Riegsecker

      I haven’t been hospitalized because of T1d in 35 years

      4 years ago Log in to Reply
    19. KarenM6

      Last time I was hospitalized for T1D was 1996 when I started pump therapy. They had me there because of hypo unawareness and a pattern of severe overnight lows.
      But, I would have done just as well (or better) at home… my blood sugar got down to 50 before dinner and I had to go find a nurse… I told her my number and she looked at me like, “Ok, what do you want _me_ to do about it.” (I expect because I looked and sounded like nothing was going on she prioritized my needs below that of other patients. I can understand that.)
      I said then, “Can I have my dinner?”
      And, more crickets.

      So… I went back to my room… changed the settings on the pump… I _think_ (but am not sure) I had some peanut butter pretzels… I must have had a glucose tablet or two, too. And waited for the hospital food to arrive. It took awhile.
      But, I did think, “So, why am I here? Oh, yes, I’m here so you can wake me up every two hours so that I can take a blood sugar reading… *sigh”

      4 years ago Log in to Reply
    20. Sarah Berry

      I have never been hospitalized in 50 years of t1d except diagnosis in 1972, and to start my first insulin pump in 1994.

      4 years ago Log in to Reply
    21. Karen Brady

      I answered yes but my true answer is “kind of.” I couldn’t stop vomiting so I went into DKA. I was vomiting for over 48 hours so regardless of having diabetes I would’ve gone to the ER anyways. I was kept longer due to going into DKA.

      (Unrelated: Unlike most Type 1s I was NOT hospitalized upon diagnosis. My older sister had had T1D for several years by the time I was diagnosed, so my parents realized right away and I was able to avoid hospitalization. I just went to my sister’s endo (who became mine as well) to get checked out and for prescriptions for insulin, etc.)

      4 years ago Log in to Reply
    22. Stephen Woodward

      Never in 51 T1D years. Lucky I guess.

      4 years ago Log in to Reply
    23. karolinamalecki7@gmail.com

      I answered yes but I’ve only had t1d for 9 months. I was hospitalized at diagnosis in DKA.

      4 years ago Log in to Reply
    24. Ceolmhor

      Three or four years ago, I got a bacterial infection at the end of a trip to Nepal. If It hadn’t started the day of my return to the U.S., I would probably have taken the antibiotic I had with me for the trip, but it was really for diarrhea, which I didn’t have. The day after our return, I lost control of my blood sugar, which went high. The next day, I experienced cognitive effects. When I couldn’t figure out how to operate my insulin pump (I’m normally a very capable techie, even in my 70s), I went to the ER, believing it was probably diabetic ketoacidosis. It wasn’t, but I still spent pretty much the whole day in the ER while they got my blood glucose stabilized. That was a little before the 3 years of the question, and probably doesn’t count as “hospitalized”, so I answered “no”, but thought I would add the comment. BTW, after the culture results came back, the ER physician had me take the antibiotic I already had with me on the trip, as it was appropriate for the particular bug that caused the problem.

      4 years ago Log in to Reply
    25. Iva Conrad

      I was never hospitalzed for my T1D except when first diagnosed in 1943. In 1998 I had a triple by-pass surgery because of my heart. I have been on a pump since ’99 and am currently on a Tandem pump, and DexCom CGM. I thank God for HIS watchcare over me all these years. In less than a month I will turn 91!

      1
      4 years ago Log in to Reply
    26. NAK Marshall

      Last hospitalization was 37 years ago when my 2nd child was born! No diabetes related since high school. (diagnosed at age 9)

      4 years ago Log in to Reply
    27. Andrea J. Schedel

      I have been to the ER twice in the past 3 years for Glucose readings beyond my meter(s) ranges. I go in, ask for fluids and phenagren, because I have already bolused my max dose of 25 units and not gone down after 2 hours. They release me when my sugars are below 250 and advise me to come back if they don’t continue to go down. One time I was given an additional dose of insulin via IV (3 Units) and was asked to disconnect my pump. Again released when sugar “normalized” for me. Both times, Doc gave me fluids & the phenagren I asked for when I came in, about 2 hours later. Neither time did they test for ketones, although my home strips only said moderate anyway.

      4 years ago Log in to Reply

    In the past three years, have you been hospitalized due to T1D? Cancel reply

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