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    • 7 hours, 8 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 7 hours, 58 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 8 hours, 54 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 37 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 56 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 10 hours, 28 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 32 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 27 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 28 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 57 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 6 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 12 hours, 11 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 23 hours, 26 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 23 hours, 27 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 23 hours, 27 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 4 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 6 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 7 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    In the past three years, have you been hospitalized due to T1D?

    Home > LC Polls > In the past three years, have you been hospitalized due to T1D?
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    Aside from the first few months after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Michelle Saunders

      I haven’t been hospitalized due to my diabetes in 15 years.

      2 years ago Log in to Reply
    2. Trish Seidle

      No. I will not go to any hospital to be treated for my t1d. I have been in the hospital for other things and had to sign myself out AMA because they mismanaged my B’s so badly.

      2
      2 years ago Log in to Reply
      1. kristina blake

        Basically, I won’t go to hospital for any reason if I can help it. The mis-mgt of T1D for inpatients is the usual.

        1
        2 years ago Log in to Reply
      2. Anita Galliher

        Hi certainly understand that. I always get permission from my doctor to self-treat when I have to stay overnight or longer. They can screw me up in a heartbeat, and my DM is hard enough to keep in check without their assistance.

        2 years ago Log in to Reply
    3. Virginia Barndollar

      In 56 years have never been hospitalized for T1DM (except initial diagnosis).

      1
      2 years ago Log in to Reply
    4. KCR

      Twice last year I went to the ER for IV fluids for dehydration after a bad bout of gastrointestinal flu and the second time I was admitted overnight because my sodium level was too low.

      2 years ago Log in to Reply
    5. Kevin McCue

      Only time I have been hospitalized due to T1d was at diagnosis. Unfortunately that’s been more than 3 decades. There has been progress on management but I have not seen and cures yet. Hope for a cure doesn’t die but it does run out of time.

      1
      2 years ago Log in to Reply
    6. Mig Vascos

      I only was hospitalized for T1D when I was first started on insulin, not because I was in any health problem, but to receive training on diet and injections. That was in 1973.

      2 years ago Log in to Reply
      1. pru barry

        Same for me in 1954! Diabetes must be treated with respect and diligence. That still leaves time for a very fun life!

        2 years ago Log in to Reply
    7. StPetie

      I was diagnosed in the ICU on 4/7/19 while in a hyperglycemic coma. In for 10 days that time. About 40 more days were due to complications from organ shut down during the coma. Another week or so coming up.

      2 years ago Log in to Reply
    8. LizB

      I was hospitalized only at diagnosis and that was 35 years ago. I have had ambulance rides to the ER a few times due to passing out from lows but I was treated and released within hours. Those were all prior to getting a pump.

      2 years ago Log in to Reply
    9. Joan Fray

      I said no. I got the flu, couldnt eat or drink, vomiting etc, doctor told me to hospital due to dehydration and unbalanced electrolytes

      2 years ago Log in to Reply
    10. Mick Martin

      Although I selected No, I have been hospitalized within the last 3 years, but this was due to COVID-19. (This WAS affecting my blood glucose levels, but not to the extent that I would have needed to have been hospitalized. I’d have dealt with it myself by increasing my basal rates on my insulin pump … as well as boluses, should the need arise.)

      2 years ago Log in to Reply
    11. Bob Durstenfeld

      I said no, but I did have quadruple bypass surgery. Indirectly related to Diabetes

      2 years ago Log in to Reply
    12. Christina Trudo

      My last hospitalization due to Diabetes was almost 42 years ago. My next hospitalization for any cause was 38 years later. So no.

      2 years ago Log in to Reply
    13. M C

      I have had diabetic retinopathy surgery done in hospital – but it was a day surgery and I went home after the surgery was completed. The only time I have been hospitalized due to T1D, like many of the other respondents, was when I was first diagnosed 45 years ago.

      1
      2 years ago Log in to Reply
    14. Becky Hertz

      I’ve only been hospitalized once due to the diabetes, on diagnosis.

      2 years ago Log in to Reply
    15. cynthia jaworski

      Never, not even in the beginning. knock on wood.

      2 years ago Log in to Reply
      1. KarenM6

        I’m gonna knock on wood for you, too! 😀

        2 years ago Log in to Reply
    16. Ahh Life

      Between 1951 and 2022, only once in 1996 when the very conservative practices at the time demanded I be hospitalized for 2 days with new Medtronic pump, the first day on saline solution, the second day on real insulin.

      Needless to say, times have changed a bit. Now they tell you to go home, watch a half dozen UTube videos, and have a beer. . . . Well, I’m not really sure of that last one. ヽ(ຈل͜ຈ)ノ︵ ┻━┻

      3
      2 years ago Log in to Reply
    17. Anita Galliher

      I was hospitalized as a result of long-term T1D (59 years tomorrow.) I had a blister on a hammer toe that wouldn’t heal because the scab kept getting knocked off. Eventually it became infected and had to be amputated. That was in 2020 along with the Covid pandemic, a broken shoulder that had to have a shoulder replacement, a broken rib and major back surgery. The amputation was the least of my worries! 😁

      2 years ago Log in to Reply
    18. Bridget Riegsecker

      I haven’t been hospitalized because of T1d in 35 years

      2 years ago Log in to Reply
    19. KarenM6

      Last time I was hospitalized for T1D was 1996 when I started pump therapy. They had me there because of hypo unawareness and a pattern of severe overnight lows.
      But, I would have done just as well (or better) at home… my blood sugar got down to 50 before dinner and I had to go find a nurse… I told her my number and she looked at me like, “Ok, what do you want _me_ to do about it.” (I expect because I looked and sounded like nothing was going on she prioritized my needs below that of other patients. I can understand that.)
      I said then, “Can I have my dinner?”
      And, more crickets.

      So… I went back to my room… changed the settings on the pump… I _think_ (but am not sure) I had some peanut butter pretzels… I must have had a glucose tablet or two, too. And waited for the hospital food to arrive. It took awhile.
      But, I did think, “So, why am I here? Oh, yes, I’m here so you can wake me up every two hours so that I can take a blood sugar reading… *sigh”

      2 years ago Log in to Reply
    20. Sarah Berry

      I have never been hospitalized in 50 years of t1d except diagnosis in 1972, and to start my first insulin pump in 1994.

      2 years ago Log in to Reply
    21. Karen Brady

      I answered yes but my true answer is “kind of.” I couldn’t stop vomiting so I went into DKA. I was vomiting for over 48 hours so regardless of having diabetes I would’ve gone to the ER anyways. I was kept longer due to going into DKA.

      (Unrelated: Unlike most Type 1s I was NOT hospitalized upon diagnosis. My older sister had had T1D for several years by the time I was diagnosed, so my parents realized right away and I was able to avoid hospitalization. I just went to my sister’s endo (who became mine as well) to get checked out and for prescriptions for insulin, etc.)

      2 years ago Log in to Reply
    22. Stephen Woodward

      Never in 51 T1D years. Lucky I guess.

      2 years ago Log in to Reply
    23. karolinamalecki7@gmail.com

      I answered yes but I’ve only had t1d for 9 months. I was hospitalized at diagnosis in DKA.

      2 years ago Log in to Reply
    24. Ceolmhor

      Three or four years ago, I got a bacterial infection at the end of a trip to Nepal. If It hadn’t started the day of my return to the U.S., I would probably have taken the antibiotic I had with me for the trip, but it was really for diarrhea, which I didn’t have. The day after our return, I lost control of my blood sugar, which went high. The next day, I experienced cognitive effects. When I couldn’t figure out how to operate my insulin pump (I’m normally a very capable techie, even in my 70s), I went to the ER, believing it was probably diabetic ketoacidosis. It wasn’t, but I still spent pretty much the whole day in the ER while they got my blood glucose stabilized. That was a little before the 3 years of the question, and probably doesn’t count as “hospitalized”, so I answered “no”, but thought I would add the comment. BTW, after the culture results came back, the ER physician had me take the antibiotic I already had with me on the trip, as it was appropriate for the particular bug that caused the problem.

      2 years ago Log in to Reply
    25. Iva Conrad

      I was never hospitalzed for my T1D except when first diagnosed in 1943. In 1998 I had a triple by-pass surgery because of my heart. I have been on a pump since ’99 and am currently on a Tandem pump, and DexCom CGM. I thank God for HIS watchcare over me all these years. In less than a month I will turn 91!

      1
      2 years ago Log in to Reply
    26. NAK Marshall

      Last hospitalization was 37 years ago when my 2nd child was born! No diabetes related since high school. (diagnosed at age 9)

      2 years ago Log in to Reply
    27. Andrea J. Schedel

      I have been to the ER twice in the past 3 years for Glucose readings beyond my meter(s) ranges. I go in, ask for fluids and phenagren, because I have already bolused my max dose of 25 units and not gone down after 2 hours. They release me when my sugars are below 250 and advise me to come back if they don’t continue to go down. One time I was given an additional dose of insulin via IV (3 Units) and was asked to disconnect my pump. Again released when sugar “normalized” for me. Both times, Doc gave me fluids & the phenagren I asked for when I came in, about 2 hours later. Neither time did they test for ketones, although my home strips only said moderate anyway.

      2 years ago Log in to Reply

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