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    • 1 hour, 5 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 2 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 2 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 4 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 5 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 14 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 19 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 21 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 22 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 59 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 59 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 1 minute ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 32 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 45 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 54 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 56 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 19 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    In the past three years, have you been hospitalized due to T1D?

    Home > LC Polls > In the past three years, have you been hospitalized due to T1D?
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    Do you feel like your close friends have an understanding of your day-to-day T1D management?

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    Aside from the first few months after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?

    Samantha Robinson

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    31 Comments

    1. Michelle Saunders

      I haven’t been hospitalized due to my diabetes in 15 years.

      11 months ago Log in to Reply
    2. Trish Seidle

      No. I will not go to any hospital to be treated for my t1d. I have been in the hospital for other things and had to sign myself out AMA because they mismanaged my B’s so badly.

      2
      11 months ago Log in to Reply
      1. kristina blake

        Basically, I won’t go to hospital for any reason if I can help it. The mis-mgt of T1D for inpatients is the usual.

        1
        11 months ago Log in to Reply
      2. Anita Galliher

        Hi certainly understand that. I always get permission from my doctor to self-treat when I have to stay overnight or longer. They can screw me up in a heartbeat, and my DM is hard enough to keep in check without their assistance.

        11 months ago Log in to Reply
    3. Virginia Barndollar

      In 56 years have never been hospitalized for T1DM (except initial diagnosis).

      1
      11 months ago Log in to Reply
    4. KCR

      Twice last year I went to the ER for IV fluids for dehydration after a bad bout of gastrointestinal flu and the second time I was admitted overnight because my sodium level was too low.

      11 months ago Log in to Reply
    5. Kevin McCue

      Only time I have been hospitalized due to T1d was at diagnosis. Unfortunately that’s been more than 3 decades. There has been progress on management but I have not seen and cures yet. Hope for a cure doesn’t die but it does run out of time.

      1
      11 months ago Log in to Reply
    6. Mig Vascos

      I only was hospitalized for T1D when I was first started on insulin, not because I was in any health problem, but to receive training on diet and injections. That was in 1973.

      11 months ago Log in to Reply
      1. pru barry

        Same for me in 1954! Diabetes must be treated with respect and diligence. That still leaves time for a very fun life!

        11 months ago Log in to Reply
    7. StPetie

      I was diagnosed in the ICU on 4/7/19 while in a hyperglycemic coma. In for 10 days that time. About 40 more days were due to complications from organ shut down during the coma. Another week or so coming up.

      11 months ago Log in to Reply
    8. LizB

      I was hospitalized only at diagnosis and that was 35 years ago. I have had ambulance rides to the ER a few times due to passing out from lows but I was treated and released within hours. Those were all prior to getting a pump.

      11 months ago Log in to Reply
    9. Joan Fray

      I said no. I got the flu, couldnt eat or drink, vomiting etc, doctor told me to hospital due to dehydration and unbalanced electrolytes

      11 months ago Log in to Reply
    10. Mick Martin

      Although I selected No, I have been hospitalized within the last 3 years, but this was due to COVID-19. (This WAS affecting my blood glucose levels, but not to the extent that I would have needed to have been hospitalized. I’d have dealt with it myself by increasing my basal rates on my insulin pump … as well as boluses, should the need arise.)

      11 months ago Log in to Reply
    11. Bob Durstenfeld

      I said no, but I did have quadruple bypass surgery. Indirectly related to Diabetes

      11 months ago Log in to Reply
    12. Christina Trudo

      My last hospitalization due to Diabetes was almost 42 years ago. My next hospitalization for any cause was 38 years later. So no.

      11 months ago Log in to Reply
    13. M C

      I have had diabetic retinopathy surgery done in hospital – but it was a day surgery and I went home after the surgery was completed. The only time I have been hospitalized due to T1D, like many of the other respondents, was when I was first diagnosed 45 years ago.

      1
      11 months ago Log in to Reply
    14. Becky Hertz

      I’ve only been hospitalized once due to the diabetes, on diagnosis.

      11 months ago Log in to Reply
    15. cynthia jaworski

      Never, not even in the beginning. knock on wood.

      11 months ago Log in to Reply
      1. KarenM6

        I’m gonna knock on wood for you, too! šŸ˜€

        11 months ago Log in to Reply
    16. Ahh Life

      Between 1951 and 2022, only once in 1996 when the very conservative practices at the time demanded I be hospitalized for 2 days with new Medtronic pump, the first day on saline solution, the second day on real insulin.

      Needless to say, times have changed a bit. Now they tell you to go home, watch a half dozen UTube videos, and have a beer. . . . Well, I’m not really sure of that last one. ヽ(ąŗˆŁ„Ķœąŗˆ)ノ︵ ┻━┻

      3
      11 months ago Log in to Reply
    17. Anita Galliher

      I was hospitalized as a result of long-term T1D (59 years tomorrow.) I had a blister on a hammer toe that wouldn’t heal because the scab kept getting knocked off. Eventually it became infected and had to be amputated. That was in 2020 along with the Covid pandemic, a broken shoulder that had to have a shoulder replacement, a broken rib and major back surgery. The amputation was the least of my worries! 😁

      11 months ago Log in to Reply
    18. Bridget Riegsecker

      I haven’t been hospitalized because of T1d in 35 years

      11 months ago Log in to Reply
    19. KarenM6

      Last time I was hospitalized for T1D was 1996 when I started pump therapy. They had me there because of hypo unawareness and a pattern of severe overnight lows.
      But, I would have done just as well (or better) at home… my blood sugar got down to 50 before dinner and I had to go find a nurse… I told her my number and she looked at me like, “Ok, what do you want _me_ to do about it.” (I expect because I looked and sounded like nothing was going on she prioritized my needs below that of other patients. I can understand that.)
      I said then, “Can I have my dinner?”
      And, more crickets.

      So… I went back to my room… changed the settings on the pump… I _think_ (but am not sure) I had some peanut butter pretzels… I must have had a glucose tablet or two, too. And waited for the hospital food to arrive. It took awhile.
      But, I did think, “So, why am I here? Oh, yes, I’m here so you can wake me up every two hours so that I can take a blood sugar reading… *sigh”

      11 months ago Log in to Reply
    20. Sarah Berry

      I have never been hospitalized in 50 years of t1d except diagnosis in 1972, and to start my first insulin pump in 1994.

      11 months ago Log in to Reply
    21. Karen Brady

      I answered yes but my true answer is “kind of.” I couldn’t stop vomiting so I went into DKA. I was vomiting for over 48 hours so regardless of having diabetes I would’ve gone to the ER anyways. I was kept longer due to going into DKA.

      (Unrelated: Unlike most Type 1s I was NOT hospitalized upon diagnosis. My older sister had had T1D for several years by the time I was diagnosed, so my parents realized right away and I was able to avoid hospitalization. I just went to my sister’s endo (who became mine as well) to get checked out and for prescriptions for insulin, etc.)

      11 months ago Log in to Reply
    22. Stephen Woodward

      Never in 51 T1D years. Lucky I guess.

      11 months ago Log in to Reply
    23. karolinamalecki7@gmail.com

      I answered yes but I’ve only had t1d for 9 months. I was hospitalized at diagnosis in DKA.

      11 months ago Log in to Reply
    24. Ceolmhor

      Three or four years ago, I got a bacterial infection at the end of a trip to Nepal. If It hadn’t started the day of my return to the U.S., I would probably have taken the antibiotic I had with me for the trip, but it was really for diarrhea, which I didn’t have. The day after our return, I lost control of my blood sugar, which went high. The next day, I experienced cognitive effects. When I couldn’t figure out how to operate my insulin pump (I’m normally a very capable techie, even in my 70s), I went to the ER, believing it was probably diabetic ketoacidosis. It wasn’t, but I still spent pretty much the whole day in the ER while they got my blood glucose stabilized. That was a little before the 3 years of the question, and probably doesn’t count as “hospitalized”, so I answered “no”, but thought I would add the comment. BTW, after the culture results came back, the ER physician had me take the antibiotic I already had with me on the trip, as it was appropriate for the particular bug that caused the problem.

      11 months ago Log in to Reply
    25. Iva Conrad

      I was never hospitalzed for my T1D except when first diagnosed in 1943. In 1998 I had a triple by-pass surgery because of my heart. I have been on a pump since ’99 and am currently on a Tandem pump, and DexCom CGM. I thank God for HIS watchcare over me all these years. In less than a month I will turn 91!

      1
      11 months ago Log in to Reply
    26. NAK Marshall

      Last hospitalization was 37 years ago when my 2nd child was born! No diabetes related since high school. (diagnosed at age 9)

      11 months ago Log in to Reply
    27. Andrea J. Schedel

      I have been to the ER twice in the past 3 years for Glucose readings beyond my meter(s) ranges. I go in, ask for fluids and phenagren, because I have already bolused my max dose of 25 units and not gone down after 2 hours. They release me when my sugars are below 250 and advise me to come back if they don’t continue to go down. One time I was given an additional dose of insulin via IV (3 Units) and was asked to disconnect my pump. Again released when sugar “normalized” for me. Both times, Doc gave me fluids & the phenagren I asked for when I came in, about 2 hours later. Neither time did they test for ketones, although my home strips only said moderate anyway.

      11 months ago Log in to Reply

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