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    • 10 hours, 35 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 36 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 17 hours, 36 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 17 hours, 47 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 17 hours, 47 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 17 hours, 54 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 18 hours, 8 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 18 hours, 43 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 18 hours, 43 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 18 hours, 43 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 21 hours, 52 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 11 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 12 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 12 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 12 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 15 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 17 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 19 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    In the past three years, have you been hospitalized due to T1D?

    Home > LC Polls > In the past three years, have you been hospitalized due to T1D?
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    Do you feel like your close friends have an understanding of your day-to-day T1D management?

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    Aside from the first few months after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Michelle Saunders

      I haven’t been hospitalized due to my diabetes in 15 years.

      4 years ago Log in to Reply
    2. Trish Seidle

      No. I will not go to any hospital to be treated for my t1d. I have been in the hospital for other things and had to sign myself out AMA because they mismanaged my B’s so badly.

      2
      4 years ago Log in to Reply
      1. kristina blake

        Basically, I won’t go to hospital for any reason if I can help it. The mis-mgt of T1D for inpatients is the usual.

        1
        4 years ago Log in to Reply
      2. Anita Galliher

        Hi certainly understand that. I always get permission from my doctor to self-treat when I have to stay overnight or longer. They can screw me up in a heartbeat, and my DM is hard enough to keep in check without their assistance.

        4 years ago Log in to Reply
    3. Virginia Barndollar

      In 56 years have never been hospitalized for T1DM (except initial diagnosis).

      1
      4 years ago Log in to Reply
    4. KCR

      Twice last year I went to the ER for IV fluids for dehydration after a bad bout of gastrointestinal flu and the second time I was admitted overnight because my sodium level was too low.

      4 years ago Log in to Reply
    5. Kevin McCue

      Only time I have been hospitalized due to T1d was at diagnosis. Unfortunately that’s been more than 3 decades. There has been progress on management but I have not seen and cures yet. Hope for a cure doesn’t die but it does run out of time.

      1
      4 years ago Log in to Reply
    6. Mig Vascos

      I only was hospitalized for T1D when I was first started on insulin, not because I was in any health problem, but to receive training on diet and injections. That was in 1973.

      4 years ago Log in to Reply
      1. pru barry

        Same for me in 1954! Diabetes must be treated with respect and diligence. That still leaves time for a very fun life!

        4 years ago Log in to Reply
    7. StPetie

      I was diagnosed in the ICU on 4/7/19 while in a hyperglycemic coma. In for 10 days that time. About 40 more days were due to complications from organ shut down during the coma. Another week or so coming up.

      4 years ago Log in to Reply
    8. LizB

      I was hospitalized only at diagnosis and that was 35 years ago. I have had ambulance rides to the ER a few times due to passing out from lows but I was treated and released within hours. Those were all prior to getting a pump.

      4 years ago Log in to Reply
    9. Joan Fray

      I said no. I got the flu, couldnt eat or drink, vomiting etc, doctor told me to hospital due to dehydration and unbalanced electrolytes

      4 years ago Log in to Reply
    10. Mick Martin

      Although I selected No, I have been hospitalized within the last 3 years, but this was due to COVID-19. (This WAS affecting my blood glucose levels, but not to the extent that I would have needed to have been hospitalized. I’d have dealt with it myself by increasing my basal rates on my insulin pump … as well as boluses, should the need arise.)

      4 years ago Log in to Reply
    11. Bob Durstenfeld

      I said no, but I did have quadruple bypass surgery. Indirectly related to Diabetes

      4 years ago Log in to Reply
    12. Christina Trudo

      My last hospitalization due to Diabetes was almost 42 years ago. My next hospitalization for any cause was 38 years later. So no.

      4 years ago Log in to Reply
    13. M C

      I have had diabetic retinopathy surgery done in hospital – but it was a day surgery and I went home after the surgery was completed. The only time I have been hospitalized due to T1D, like many of the other respondents, was when I was first diagnosed 45 years ago.

      1
      4 years ago Log in to Reply
    14. Becky Hertz

      I’ve only been hospitalized once due to the diabetes, on diagnosis.

      4 years ago Log in to Reply
    15. cynthia jaworski

      Never, not even in the beginning. knock on wood.

      4 years ago Log in to Reply
      1. KarenM6

        I’m gonna knock on wood for you, too! 😀

        4 years ago Log in to Reply
    16. Ahh Life

      Between 1951 and 2022, only once in 1996 when the very conservative practices at the time demanded I be hospitalized for 2 days with new Medtronic pump, the first day on saline solution, the second day on real insulin.

      Needless to say, times have changed a bit. Now they tell you to go home, watch a half dozen UTube videos, and have a beer. . . . Well, I’m not really sure of that last one. ヽ(ຈل͜ຈ)ノ︵ ┻━┻

      3
      4 years ago Log in to Reply
    17. Anita Galliher

      I was hospitalized as a result of long-term T1D (59 years tomorrow.) I had a blister on a hammer toe that wouldn’t heal because the scab kept getting knocked off. Eventually it became infected and had to be amputated. That was in 2020 along with the Covid pandemic, a broken shoulder that had to have a shoulder replacement, a broken rib and major back surgery. The amputation was the least of my worries! 😁

      4 years ago Log in to Reply
    18. Bridget Riegsecker

      I haven’t been hospitalized because of T1d in 35 years

      4 years ago Log in to Reply
    19. KarenM6

      Last time I was hospitalized for T1D was 1996 when I started pump therapy. They had me there because of hypo unawareness and a pattern of severe overnight lows.
      But, I would have done just as well (or better) at home… my blood sugar got down to 50 before dinner and I had to go find a nurse… I told her my number and she looked at me like, “Ok, what do you want _me_ to do about it.” (I expect because I looked and sounded like nothing was going on she prioritized my needs below that of other patients. I can understand that.)
      I said then, “Can I have my dinner?”
      And, more crickets.

      So… I went back to my room… changed the settings on the pump… I _think_ (but am not sure) I had some peanut butter pretzels… I must have had a glucose tablet or two, too. And waited for the hospital food to arrive. It took awhile.
      But, I did think, “So, why am I here? Oh, yes, I’m here so you can wake me up every two hours so that I can take a blood sugar reading… *sigh”

      4 years ago Log in to Reply
    20. Sarah Berry

      I have never been hospitalized in 50 years of t1d except diagnosis in 1972, and to start my first insulin pump in 1994.

      4 years ago Log in to Reply
    21. Karen Brady

      I answered yes but my true answer is “kind of.” I couldn’t stop vomiting so I went into DKA. I was vomiting for over 48 hours so regardless of having diabetes I would’ve gone to the ER anyways. I was kept longer due to going into DKA.

      (Unrelated: Unlike most Type 1s I was NOT hospitalized upon diagnosis. My older sister had had T1D for several years by the time I was diagnosed, so my parents realized right away and I was able to avoid hospitalization. I just went to my sister’s endo (who became mine as well) to get checked out and for prescriptions for insulin, etc.)

      4 years ago Log in to Reply
    22. Stephen Woodward

      Never in 51 T1D years. Lucky I guess.

      4 years ago Log in to Reply
    23. karolinamalecki7@gmail.com

      I answered yes but I’ve only had t1d for 9 months. I was hospitalized at diagnosis in DKA.

      4 years ago Log in to Reply
    24. Ceolmhor

      Three or four years ago, I got a bacterial infection at the end of a trip to Nepal. If It hadn’t started the day of my return to the U.S., I would probably have taken the antibiotic I had with me for the trip, but it was really for diarrhea, which I didn’t have. The day after our return, I lost control of my blood sugar, which went high. The next day, I experienced cognitive effects. When I couldn’t figure out how to operate my insulin pump (I’m normally a very capable techie, even in my 70s), I went to the ER, believing it was probably diabetic ketoacidosis. It wasn’t, but I still spent pretty much the whole day in the ER while they got my blood glucose stabilized. That was a little before the 3 years of the question, and probably doesn’t count as “hospitalized”, so I answered “no”, but thought I would add the comment. BTW, after the culture results came back, the ER physician had me take the antibiotic I already had with me on the trip, as it was appropriate for the particular bug that caused the problem.

      4 years ago Log in to Reply
    25. Iva Conrad

      I was never hospitalzed for my T1D except when first diagnosed in 1943. In 1998 I had a triple by-pass surgery because of my heart. I have been on a pump since ’99 and am currently on a Tandem pump, and DexCom CGM. I thank God for HIS watchcare over me all these years. In less than a month I will turn 91!

      1
      4 years ago Log in to Reply
    26. NAK Marshall

      Last hospitalization was 37 years ago when my 2nd child was born! No diabetes related since high school. (diagnosed at age 9)

      4 years ago Log in to Reply
    27. Andrea J. Schedel

      I have been to the ER twice in the past 3 years for Glucose readings beyond my meter(s) ranges. I go in, ask for fluids and phenagren, because I have already bolused my max dose of 25 units and not gone down after 2 hours. They release me when my sugars are below 250 and advise me to come back if they don’t continue to go down. One time I was given an additional dose of insulin via IV (3 Units) and was asked to disconnect my pump. Again released when sugar “normalized” for me. Both times, Doc gave me fluids & the phenagren I asked for when I came in, about 2 hours later. Neither time did they test for ketones, although my home strips only said moderate anyway.

      4 years ago Log in to Reply

    In the past three years, have you been hospitalized due to T1D? Cancel reply

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