Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 5 hours, 39 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 7 hours, 6 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 7 hours, 6 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 7 hours, 6 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 9 hours, 19 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 9 hours, 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 10 hours, 2 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 11 hours, 25 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 13 hours, 23 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 12 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 13 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past three years, have you been hospitalized due to T1D?

    Home > LC Polls > In the past three years, have you been hospitalized due to T1D?
    Previous

    Do you feel like your close friends have an understanding of your day-to-day T1D management?

    Next

    Aside from the first few months after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    31 Comments

    1. Michelle Saunders

      I haven’t been hospitalized due to my diabetes in 15 years.

      4 years ago Log in to Reply
    2. Trish Seidle

      No. I will not go to any hospital to be treated for my t1d. I have been in the hospital for other things and had to sign myself out AMA because they mismanaged my B’s so badly.

      2
      4 years ago Log in to Reply
      1. kristina blake

        Basically, I won’t go to hospital for any reason if I can help it. The mis-mgt of T1D for inpatients is the usual.

        1
        4 years ago Log in to Reply
      2. Anita Galliher

        Hi certainly understand that. I always get permission from my doctor to self-treat when I have to stay overnight or longer. They can screw me up in a heartbeat, and my DM is hard enough to keep in check without their assistance.

        4 years ago Log in to Reply
    3. Virginia Barndollar

      In 56 years have never been hospitalized for T1DM (except initial diagnosis).

      1
      4 years ago Log in to Reply
    4. KCR

      Twice last year I went to the ER for IV fluids for dehydration after a bad bout of gastrointestinal flu and the second time I was admitted overnight because my sodium level was too low.

      4 years ago Log in to Reply
    5. Kevin McCue

      Only time I have been hospitalized due to T1d was at diagnosis. Unfortunately that’s been more than 3 decades. There has been progress on management but I have not seen and cures yet. Hope for a cure doesn’t die but it does run out of time.

      1
      4 years ago Log in to Reply
    6. Mig Vascos

      I only was hospitalized for T1D when I was first started on insulin, not because I was in any health problem, but to receive training on diet and injections. That was in 1973.

      4 years ago Log in to Reply
      1. pru barry

        Same for me in 1954! Diabetes must be treated with respect and diligence. That still leaves time for a very fun life!

        4 years ago Log in to Reply
    7. StPetie

      I was diagnosed in the ICU on 4/7/19 while in a hyperglycemic coma. In for 10 days that time. About 40 more days were due to complications from organ shut down during the coma. Another week or so coming up.

      4 years ago Log in to Reply
    8. LizB

      I was hospitalized only at diagnosis and that was 35 years ago. I have had ambulance rides to the ER a few times due to passing out from lows but I was treated and released within hours. Those were all prior to getting a pump.

      4 years ago Log in to Reply
    9. Joan Fray

      I said no. I got the flu, couldnt eat or drink, vomiting etc, doctor told me to hospital due to dehydration and unbalanced electrolytes

      4 years ago Log in to Reply
    10. Mick Martin

      Although I selected No, I have been hospitalized within the last 3 years, but this was due to COVID-19. (This WAS affecting my blood glucose levels, but not to the extent that I would have needed to have been hospitalized. I’d have dealt with it myself by increasing my basal rates on my insulin pump … as well as boluses, should the need arise.)

      4 years ago Log in to Reply
    11. Bob Durstenfeld

      I said no, but I did have quadruple bypass surgery. Indirectly related to Diabetes

      4 years ago Log in to Reply
    12. Christina Trudo

      My last hospitalization due to Diabetes was almost 42 years ago. My next hospitalization for any cause was 38 years later. So no.

      4 years ago Log in to Reply
    13. M C

      I have had diabetic retinopathy surgery done in hospital – but it was a day surgery and I went home after the surgery was completed. The only time I have been hospitalized due to T1D, like many of the other respondents, was when I was first diagnosed 45 years ago.

      1
      4 years ago Log in to Reply
    14. Becky Hertz

      I’ve only been hospitalized once due to the diabetes, on diagnosis.

      4 years ago Log in to Reply
    15. cynthia jaworski

      Never, not even in the beginning. knock on wood.

      4 years ago Log in to Reply
      1. KarenM6

        I’m gonna knock on wood for you, too! 😀

        4 years ago Log in to Reply
    16. Ahh Life

      Between 1951 and 2022, only once in 1996 when the very conservative practices at the time demanded I be hospitalized for 2 days with new Medtronic pump, the first day on saline solution, the second day on real insulin.

      Needless to say, times have changed a bit. Now they tell you to go home, watch a half dozen UTube videos, and have a beer. . . . Well, I’m not really sure of that last one. ヽ(ຈل͜ຈ)ノ︵ ┻━┻

      3
      4 years ago Log in to Reply
    17. Anita Galliher

      I was hospitalized as a result of long-term T1D (59 years tomorrow.) I had a blister on a hammer toe that wouldn’t heal because the scab kept getting knocked off. Eventually it became infected and had to be amputated. That was in 2020 along with the Covid pandemic, a broken shoulder that had to have a shoulder replacement, a broken rib and major back surgery. The amputation was the least of my worries! 😁

      4 years ago Log in to Reply
    18. Bridget Riegsecker

      I haven’t been hospitalized because of T1d in 35 years

      4 years ago Log in to Reply
    19. KarenM6

      Last time I was hospitalized for T1D was 1996 when I started pump therapy. They had me there because of hypo unawareness and a pattern of severe overnight lows.
      But, I would have done just as well (or better) at home… my blood sugar got down to 50 before dinner and I had to go find a nurse… I told her my number and she looked at me like, “Ok, what do you want _me_ to do about it.” (I expect because I looked and sounded like nothing was going on she prioritized my needs below that of other patients. I can understand that.)
      I said then, “Can I have my dinner?”
      And, more crickets.

      So… I went back to my room… changed the settings on the pump… I _think_ (but am not sure) I had some peanut butter pretzels… I must have had a glucose tablet or two, too. And waited for the hospital food to arrive. It took awhile.
      But, I did think, “So, why am I here? Oh, yes, I’m here so you can wake me up every two hours so that I can take a blood sugar reading… *sigh”

      4 years ago Log in to Reply
    20. Sarah Berry

      I have never been hospitalized in 50 years of t1d except diagnosis in 1972, and to start my first insulin pump in 1994.

      4 years ago Log in to Reply
    21. Karen Brady

      I answered yes but my true answer is “kind of.” I couldn’t stop vomiting so I went into DKA. I was vomiting for over 48 hours so regardless of having diabetes I would’ve gone to the ER anyways. I was kept longer due to going into DKA.

      (Unrelated: Unlike most Type 1s I was NOT hospitalized upon diagnosis. My older sister had had T1D for several years by the time I was diagnosed, so my parents realized right away and I was able to avoid hospitalization. I just went to my sister’s endo (who became mine as well) to get checked out and for prescriptions for insulin, etc.)

      4 years ago Log in to Reply
    22. Stephen Woodward

      Never in 51 T1D years. Lucky I guess.

      4 years ago Log in to Reply
    23. karolinamalecki7@gmail.com

      I answered yes but I’ve only had t1d for 9 months. I was hospitalized at diagnosis in DKA.

      4 years ago Log in to Reply
    24. Ceolmhor

      Three or four years ago, I got a bacterial infection at the end of a trip to Nepal. If It hadn’t started the day of my return to the U.S., I would probably have taken the antibiotic I had with me for the trip, but it was really for diarrhea, which I didn’t have. The day after our return, I lost control of my blood sugar, which went high. The next day, I experienced cognitive effects. When I couldn’t figure out how to operate my insulin pump (I’m normally a very capable techie, even in my 70s), I went to the ER, believing it was probably diabetic ketoacidosis. It wasn’t, but I still spent pretty much the whole day in the ER while they got my blood glucose stabilized. That was a little before the 3 years of the question, and probably doesn’t count as “hospitalized”, so I answered “no”, but thought I would add the comment. BTW, after the culture results came back, the ER physician had me take the antibiotic I already had with me on the trip, as it was appropriate for the particular bug that caused the problem.

      4 years ago Log in to Reply
    25. Iva Conrad

      I was never hospitalzed for my T1D except when first diagnosed in 1943. In 1998 I had a triple by-pass surgery because of my heart. I have been on a pump since ’99 and am currently on a Tandem pump, and DexCom CGM. I thank God for HIS watchcare over me all these years. In less than a month I will turn 91!

      1
      4 years ago Log in to Reply
    26. NAK Marshall

      Last hospitalization was 37 years ago when my 2nd child was born! No diabetes related since high school. (diagnosed at age 9)

      4 years ago Log in to Reply
    27. Andrea J. Schedel

      I have been to the ER twice in the past 3 years for Glucose readings beyond my meter(s) ranges. I go in, ask for fluids and phenagren, because I have already bolused my max dose of 25 units and not gone down after 2 hours. They release me when my sugars are below 250 and advise me to come back if they don’t continue to go down. One time I was given an additional dose of insulin via IV (3 Units) and was asked to disconnect my pump. Again released when sugar “normalized” for me. Both times, Doc gave me fluids & the phenagren I asked for when I came in, about 2 hours later. Neither time did they test for ketones, although my home strips only said moderate anyway.

      4 years ago Log in to Reply

    In the past three years, have you been hospitalized due to T1D? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]