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    • 12 hours, 34 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 12 hours, 34 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 12 hours, 36 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 14 hours, 40 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 14 hours, 40 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 15 hours, 22 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 16 hours, 26 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 16 hours, 26 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 18 hours, 5 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 18 hours, 6 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
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    In the past 12 months, have you attended any virtual or in-person diabetes community events? For this question, we include any event that brings together people with diabetes, such as a fundraising event, research update, conference, info session, or something else!

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    Do you keep a low treatment in your vehicle?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. mbulzomi@optonline.net

      As I have stated several times before, every time I change my set after the first day most of the time, I need to reset the Basels. (The first day is just to monitor the numbers.)

      3 years ago Log in to Reply
    2. Jane Cerullo

      I have turned off alerts for Dexcom. Changed sensor and had to turn off again. Last night woke me up. I answered 4 because I usually get up to use bathroom at least once during night and I check to make sure I am not high or low. And fix.

      3 years ago Log in to Reply
    3. Sherolyn Newell

      I managed to get poison ivy all around my eyes, so I have been on prednisone for the past 5 days. Despite increased basal (45%) and frequent extra boluses, I haven’t been below 200, so I have been disrupted all the time. Normally, in 7 days, it’s more like 2 times.

      1
      3 years ago Log in to Reply
      1. Becky Hertz

        I usually have to temp basal 200% when on steroids.

        2
        3 years ago Log in to Reply
      2. KarenM6

        Hi Sherolyn –
        I’m so sorry about getting poison ivy around your eyes and having to take prednisone to help. Steroids are the WORST thing for blood sugars!
        Hope you are feeling better now!

        1
        3 years ago Log in to Reply
    4. Karen DeVeaux

      I answered 0, but I have no devices.

      1
      3 years ago Log in to Reply
    5. Marty

      I happened to get one of those “signal loss” error messages from my Dexcom last night at 3 am. I thought I woke up enough to turn off my CGM to avoid more alerts but it was up and running this morning and had managed to guide my BG to my typical morning BG of 115. I very rarely have any problems at night since I started using sleep mode in Tandem Control IQ.

      1
      3 years ago Log in to Reply
    6. GLORIA MILLER

      I answered zero. I think I have received alerts at night about three times since I started the Omnipod 5 and Dexcom since August.

      3 years ago Log in to Reply
    7. Georgina Sokol

      My DEXCOM sensor was faulty.

      3 years ago Log in to Reply
    8. Nicholas Argento

      With control IQ, sleep disturbance from low BG are far less common than before using it. CGM protected me from severe hypoglycemia, but often caused sleep disturbance; w CIQ, lows at night are infrequent and my fault for over treating snacks before bed.

      1
      3 years ago Log in to Reply
    9. Becky Hertz

      Going to give CIQ a try when I get my new pump. Hoping it will cut down on the night disturbances.

      3 years ago Log in to Reply
    10. ConnieT1D62

      in the past 7 days? None at all. I usually sleep through the night with Tandem CQI. Occasionally I may get an alarm with arrows indicating high or low BG, or announcing it’s time to insert new sensor or to fill and insert a new cartridge.

      3 years ago Log in to Reply
    11. Steven Gill

      From a CGM and pumping learned I needed quite a bit less basal overnight than through the day, with just a CGM now playing a balancing game. Dose for overnight levels rise in the day, dose for the day levels plummet overnight. My alarms are tight (70-130), I get frequent alarms to correct to stay as close to a normal range and live (am retired, always lived on 4-5 hours sleep so this is no problem). Plan on a pump next year, just which?

      3 years ago Log in to Reply
    12. sweetcharlie

      Every night for lows.. never for highs… For past 70 years, I guess..

      3 years ago Log in to Reply
      1. sweetcharlie

        I forgot, I always wake up around 5 or 6 AM to pee, so I check my CGM..

        3 years ago Log in to Reply

    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

    You must be logged in to post a comment.




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