Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.
I would have chosen an answer of “No” if it were available but chose other.
I searched for a list of eating disorders on the internet and found the PICA qualified.
I had PICA, a desire for a non-food, for a short amount of time during my adolescence, fifteen years before my diagnosis of T1D. It was due to low vitamin B which was treated by injections.
No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don’t we?
Not a disorder I don’t think but right now I’m in the midst of seeing whether I need to eliminate tyranime from my diet. For the past 3 years I have been getting headaches on the left side of my face, neck, shoulders. I started eating nuts about that time. Boy, is avoiding THAT difficult! It eliminates many of my most beloved foods: avocados, nuts, chocolate, any and all condiments pretty much. But my headaches are lessening and go away faster. So far I’ve only gone 4 days max without one. But thankfully they are only about. 4 on the pain scale. More annoying than debilitating. Would love to hear any advice from other sufferers (this is probably some other post 🙄).
I forget to eat. Often times getting light headed before the “Oh Yea!” moment comes. I can’t smell at all and 90% of my taste is gone (TBI). After multiple surgeries and stage 3 (current) renal cancer, food doesn’t process the same. I gain lots of weight or lose lots and my diet & activity hasn’t changed. So eating for me has become an annoying requirement to live. Since I want to live I do my best to remember…
Living alone with no friends or family within 130 miles…
Awhile ago, I purposely stopped eating breakfast because I was testing for “boots on the ground” BS increases… The doctor I had at the time seemed to ignore this phenomenon… they always thought my morning highs were food related (even after I told them I don’t eat breakfast).
I never started eating breakfast back up and got into the habit of not eating.
Then, I had to test my afternoon basals and was asked to not eat lunch for 3 or 4 days. After the testing was done, I just never picked the eating thing back up.
I do eat lunch very occasionally, but it involves someone making me eat.
I don’t like eating because it makes my blood sugar rise.
But, I don’t think I can stop eating dinner. I don’t think I _want_ to stop eating dinner. The tremendous focus on post-prandial highs and hardly any on the 3 to 4am lows is interesting, though.
I said no, but I tend to forget to eat. I’m not hungry very often have to force myself like today. I had a yogurt now it’s 3 o’clock no lunch guess it’s a disorder at times. The only time I do have trouble with my blood sugar is when I eat Never seem to get the carb ratio right?
I usually only eat breakfast or Lunch or snack if my Blood Sugar is low. I rarely eat when I feel hungry because when I am hungry my blood sugar is higher than I want. I ear in response to low blood sugars even if I am not hungry. Is eating or not eating based on what your Blood Sugars are an eating disorder? My meals and snacks are not regular because I never know what my sugars will be during the day. By dinner time I usually eat because I can take insulin far enough in advance to keep them from rising too quickly and if they do I can get in the exercise bike and try to get them to come down.
I would have chosen an answer of “No” if it were available but chose other.
I searched for a list of eating disorders on the internet and found the PICA qualified.
I had PICA, a desire for a non-food, for a short amount of time during my adolescence, fifteen years before my diagnosis of T1D. It was due to low vitamin B which was treated by injections.
No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don’t we?
I’m actually a really good snacker! But not sure if that falls under “disordered eating”
Not a disorder I don’t think but right now I’m in the midst of seeing whether I need to eliminate tyranime from my diet. For the past 3 years I have been getting headaches on the left side of my face, neck, shoulders. I started eating nuts about that time. Boy, is avoiding THAT difficult! It eliminates many of my most beloved foods: avocados, nuts, chocolate, any and all condiments pretty much. But my headaches are lessening and go away faster. So far I’ve only gone 4 days max without one. But thankfully they are only about. 4 on the pain scale. More annoying than debilitating. Would love to hear any advice from other sufferers (this is probably some other post 🙄).
I forget to eat. Often times getting light headed before the “Oh Yea!” moment comes. I can’t smell at all and 90% of my taste is gone (TBI). After multiple surgeries and stage 3 (current) renal cancer, food doesn’t process the same. I gain lots of weight or lose lots and my diet & activity hasn’t changed. So eating for me has become an annoying requirement to live. Since I want to live I do my best to remember…
Living alone with no friends or family within 130 miles…
For a few years when I was in college, I was omitting insulin in order to lose weight. It was really dangerous and scary.
After 60 years and other stress in my life I think I am becoming addicted to Ice Cream, but I think I can handle it at 5 foot 6, 140-150 lbs.
Awhile ago, I purposely stopped eating breakfast because I was testing for “boots on the ground” BS increases… The doctor I had at the time seemed to ignore this phenomenon… they always thought my morning highs were food related (even after I told them I don’t eat breakfast).
I never started eating breakfast back up and got into the habit of not eating.
Then, I had to test my afternoon basals and was asked to not eat lunch for 3 or 4 days. After the testing was done, I just never picked the eating thing back up.
I do eat lunch very occasionally, but it involves someone making me eat.
I don’t like eating because it makes my blood sugar rise.
But, I don’t think I can stop eating dinner. I don’t think I _want_ to stop eating dinner. The tremendous focus on post-prandial highs and hardly any on the 3 to 4am lows is interesting, though.
I said no, but I tend to forget to eat. I’m not hungry very often have to force myself like today. I had a yogurt now it’s 3 o’clock no lunch guess it’s a disorder at times. The only time I do have trouble with my blood sugar is when I eat Never seem to get the carb ratio right?
Other than eating the wrong things, or too much of them sometimes. NO.
I usually only eat breakfast or Lunch or snack if my Blood Sugar is low. I rarely eat when I feel hungry because when I am hungry my blood sugar is higher than I want. I ear in response to low blood sugars even if I am not hungry. Is eating or not eating based on what your Blood Sugars are an eating disorder? My meals and snacks are not regular because I never know what my sugars will be during the day. By dinner time I usually eat because I can take insulin far enough in advance to keep them from rising too quickly and if they do I can get in the exercise bike and try to get them to come down.