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    • 10 hours, 16 minutes ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 10 hours, 18 minutes ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 15 hours, 1 minute ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
    • 15 hours, 1 minute ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Quick real-time checks? About 32 million per day. Uploading pump data for analysis? Once a week, usually Saturday or Sunday. Graphs are much to be preferred to just eyeballing numbers. 🙇‍♀️⌇ ⌇ ⌇
    • 17 hours, 26 minutes ago
      atr likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Quick real-time checks? About 32 million per day. Uploading pump data for analysis? Once a week, usually Saturday or Sunday. Graphs are much to be preferred to just eyeballing numbers. 🙇‍♀️⌇ ⌇ ⌇
    • 19 hours, 9 minutes ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      “At appointments” was the best option for me, my medical appointments are only every 6 months, so this definition really means appointments with myself! I check my bg all the time, then review trends every 2-3 months, depending on the need. I’ve been traveling quite a bit so my need to review and make pump (AID) adjustments has been more frequent.
    • 19 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
    • 20 hours, 19 minutes ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Getting motivated to leave my cozy recliner!!
    • 20 hours, 20 minutes ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Nothing usually gets in the way of exercising besides motivation
    • 21 hours, 58 minutes ago
      Ahh Life likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Old age (86). I'm tired.
    • 1 day, 12 hours ago
      Derek West likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      If I am below 100 and haven't eaten recently or I am below 100 and trending downward, I eat and suspend pump before walking my dogs. Sometimes I have to postpone walks or intentionally plan them after a meal in order to prevent a low.
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 16 hours ago
      Marty likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 17 hours ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 17 hours ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not fear to practice exercise
    • 1 day, 18 hours ago
      TEH likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Nothing usually gets in the way of exercising besides motivation
    • 2 days, 14 hours ago
      Bob Durstenfeld likes your comment at
      Which part of your diabetes routine feels the most consistent day-to-day?
      Successful diabetes management requires consistent routines. I picked morning, but all apply.
    • 2 days, 18 hours ago
      Derek West likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      I chose real life practical tips because of a suggestion I saw in an online forum. For the last week and a half I have been running my Tandem sleep mode 24/7, except while playing golf when I switched to exercise mode. My TIR has been higher than it’s been in a long time. I use a higher temp basil if I need more insulin for a short time and use a 0 temp basil if I get too low but mostly I just sail along keeping in range.
    • 3 days, 9 hours ago
      Tracy Jean likes your comment at
      Do you feel like diabetes-related decisions take more time and energy than other people realize?
      Most people think you wear a pump and it does everything. They have no idea about pre-bolus for food and adjustments, site changes or any of the other issues and decisions and actions we make every day.
    • 3 days, 18 hours ago
      Danielle Eastman likes your comment at
      Do you feel T1D has made you more adaptable to change, in general?
      I think it's actually made me go the opposite way - I really don't like change and cling to my routines 😂
    • 3 days, 20 hours ago
      lis be likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      A choice that was not available but one that is really needed is: " Aging with Type 1".
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    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.

    Home > LC Polls > In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.
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    Many people living with T1D also live with other autoimmune diseases. How many other autoimmune diseases do you live with? Share what they are in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    11 Comments

    1. Molly Jones

      I would have chosen an answer of “No” if it were available but chose other.
      I searched for a list of eating disorders on the internet and found the PICA qualified.
      I had PICA, a desire for a non-food, for a short amount of time during my adolescence, fifteen years before my diagnosis of T1D. It was due to low vitamin B which was treated by injections.

      2 years ago Log in to Reply
    2. Jian

      No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don’t we?

      4
      2 years ago Log in to Reply
    3. Dave Akers

      I’m actually a really good snacker! But not sure if that falls under “disordered eating”

      1
      2 years ago Log in to Reply
    4. Patricia Dalrymple

      Not a disorder I don’t think but right now I’m in the midst of seeing whether I need to eliminate tyranime from my diet. For the past 3 years I have been getting headaches on the left side of my face, neck, shoulders. I started eating nuts about that time. Boy, is avoiding THAT difficult! It eliminates many of my most beloved foods: avocados, nuts, chocolate, any and all condiments pretty much. But my headaches are lessening and go away faster. So far I’ve only gone 4 days max without one. But thankfully they are only about. 4 on the pain scale. More annoying than debilitating. Would love to hear any advice from other sufferers (this is probably some other post 🙄).

      2 years ago Log in to Reply
    5. Andrew Carpenter

      I forget to eat. Often times getting light headed before the “Oh Yea!” moment comes. I can’t smell at all and 90% of my taste is gone (TBI). After multiple surgeries and stage 3 (current) renal cancer, food doesn’t process the same. I gain lots of weight or lose lots and my diet & activity hasn’t changed. So eating for me has become an annoying requirement to live. Since I want to live I do my best to remember…
      Living alone with no friends or family within 130 miles…

      2
      2 years ago Log in to Reply
    6. Karen Brady

      For a few years when I was in college, I was omitting insulin in order to lose weight. It was really dangerous and scary.

      2 years ago Log in to Reply
    7. George Lovelace

      After 60 years and other stress in my life I think I am becoming addicted to Ice Cream, but I think I can handle it at 5 foot 6, 140-150 lbs.

      2 years ago Log in to Reply
    8. KarenM6

      Awhile ago, I purposely stopped eating breakfast because I was testing for “boots on the ground” BS increases… The doctor I had at the time seemed to ignore this phenomenon… they always thought my morning highs were food related (even after I told them I don’t eat breakfast).
      I never started eating breakfast back up and got into the habit of not eating.
      Then, I had to test my afternoon basals and was asked to not eat lunch for 3 or 4 days. After the testing was done, I just never picked the eating thing back up.
      I do eat lunch very occasionally, but it involves someone making me eat.
      I don’t like eating because it makes my blood sugar rise.
      But, I don’t think I can stop eating dinner. I don’t think I _want_ to stop eating dinner. The tremendous focus on post-prandial highs and hardly any on the 3 to 4am lows is interesting, though.

      2 years ago Log in to Reply
    9. Sherrie Johnson

      I said no, but I tend to forget to eat. I’m not hungry very often have to force myself like today. I had a yogurt now it’s 3 o’clock no lunch guess it’s a disorder at times. The only time I do have trouble with my blood sugar is when I eat Never seem to get the carb ratio right?

      1
      2 years ago Log in to Reply
    10. Amanda Barras

      Other than eating the wrong things, or too much of them sometimes. NO.

      2 years ago Log in to Reply
    11. Kim Murphy

      I usually only eat breakfast or Lunch or snack if my Blood Sugar is low. I rarely eat when I feel hungry because when I am hungry my blood sugar is higher than I want. I ear in response to low blood sugars even if I am not hungry. Is eating or not eating based on what your Blood Sugars are an eating disorder? My meals and snacks are not regular because I never know what my sugars will be during the day. By dinner time I usually eat because I can take insulin far enough in advance to keep them from rising too quickly and if they do I can get in the exercise bike and try to get them to come down.

      2 years ago Log in to Reply

    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more. Cancel reply

    You must be logged in to post a comment.




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