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    • 4 hours, 23 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 4 hours, 29 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 4 hours, 35 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 23 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 1 hour ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 7 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 8 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 23 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 23 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 1 hour ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 2 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 3 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 5 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 5 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.

    Home > LC Polls > In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.
    Previous

    If you use an insulin pump, when do you change your infusion set after getting a “no insulin delivery” alarm?

    Next

    Many people living with T1D also live with other autoimmune diseases. How many other autoimmune diseases do you live with? Share what they are in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    11 Comments

    1. Molly Jones

      I would have chosen an answer of “No” if it were available but chose other.
      I searched for a list of eating disorders on the internet and found the PICA qualified.
      I had PICA, a desire for a non-food, for a short amount of time during my adolescence, fifteen years before my diagnosis of T1D. It was due to low vitamin B which was treated by injections.

      2 years ago Log in to Reply
    2. Jian

      No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don’t we?

      4
      2 years ago Log in to Reply
    3. Dave Akers

      I’m actually a really good snacker! But not sure if that falls under “disordered eating”

      1
      2 years ago Log in to Reply
    4. Patricia Dalrymple

      Not a disorder I don’t think but right now I’m in the midst of seeing whether I need to eliminate tyranime from my diet. For the past 3 years I have been getting headaches on the left side of my face, neck, shoulders. I started eating nuts about that time. Boy, is avoiding THAT difficult! It eliminates many of my most beloved foods: avocados, nuts, chocolate, any and all condiments pretty much. But my headaches are lessening and go away faster. So far I’ve only gone 4 days max without one. But thankfully they are only about. 4 on the pain scale. More annoying than debilitating. Would love to hear any advice from other sufferers (this is probably some other post 🙄).

      2 years ago Log in to Reply
    5. Andrew Carpenter

      I forget to eat. Often times getting light headed before the “Oh Yea!” moment comes. I can’t smell at all and 90% of my taste is gone (TBI). After multiple surgeries and stage 3 (current) renal cancer, food doesn’t process the same. I gain lots of weight or lose lots and my diet & activity hasn’t changed. So eating for me has become an annoying requirement to live. Since I want to live I do my best to remember…
      Living alone with no friends or family within 130 miles…

      2
      2 years ago Log in to Reply
    6. Karen Brady

      For a few years when I was in college, I was omitting insulin in order to lose weight. It was really dangerous and scary.

      2 years ago Log in to Reply
    7. George Lovelace

      After 60 years and other stress in my life I think I am becoming addicted to Ice Cream, but I think I can handle it at 5 foot 6, 140-150 lbs.

      2 years ago Log in to Reply
    8. KarenM6

      Awhile ago, I purposely stopped eating breakfast because I was testing for “boots on the ground” BS increases… The doctor I had at the time seemed to ignore this phenomenon… they always thought my morning highs were food related (even after I told them I don’t eat breakfast).
      I never started eating breakfast back up and got into the habit of not eating.
      Then, I had to test my afternoon basals and was asked to not eat lunch for 3 or 4 days. After the testing was done, I just never picked the eating thing back up.
      I do eat lunch very occasionally, but it involves someone making me eat.
      I don’t like eating because it makes my blood sugar rise.
      But, I don’t think I can stop eating dinner. I don’t think I _want_ to stop eating dinner. The tremendous focus on post-prandial highs and hardly any on the 3 to 4am lows is interesting, though.

      2 years ago Log in to Reply
    9. Sherrie Johnson

      I said no, but I tend to forget to eat. I’m not hungry very often have to force myself like today. I had a yogurt now it’s 3 o’clock no lunch guess it’s a disorder at times. The only time I do have trouble with my blood sugar is when I eat Never seem to get the carb ratio right?

      1
      2 years ago Log in to Reply
    10. Amanda Barras

      Other than eating the wrong things, or too much of them sometimes. NO.

      2 years ago Log in to Reply
    11. Kim Murphy

      I usually only eat breakfast or Lunch or snack if my Blood Sugar is low. I rarely eat when I feel hungry because when I am hungry my blood sugar is higher than I want. I ear in response to low blood sugars even if I am not hungry. Is eating or not eating based on what your Blood Sugars are an eating disorder? My meals and snacks are not regular because I never know what my sugars will be during the day. By dinner time I usually eat because I can take insulin far enough in advance to keep them from rising too quickly and if they do I can get in the exercise bike and try to get them to come down.

      2 years ago Log in to Reply

    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more. Cancel reply

    You must be logged in to post a comment.




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