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    • 4 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 hour, 52 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 1 hour, 52 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 1 hour, 52 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 7 hours, 46 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 7 hours, 46 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 11 hours, 44 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 11 hours, 44 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 11 hours, 44 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 11 hours, 44 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 11 hours, 59 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 12 hours, 20 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 12 hours, 26 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 12 hours, 26 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 13 hours, 24 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 14 hours, 13 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 14 hours, 13 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 14 hours, 13 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 14 hours, 14 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 14 hours, 17 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 14 hours, 17 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 14 hours, 17 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 14 hours, 19 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 14 hours, 19 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 14 hours, 20 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    If you’re at an event that asks guests to “silence devices,” do you adjust the alarms on your CGM and/or insulin pump?

    Home > LC Polls > If you’re at an event that asks guests to “silence devices,” do you adjust the alarms on your CGM and/or insulin pump?
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    Have you ever run out of insulin and had issues getting more because of insurance? Share in the comments what you did.

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    At what age were you (or a loved one) diagnosed with T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    22 Comments

    1. kilupx

      As we all know, once these alarms get going you can a dozen of them. In my case, I get input from 2 apps on the phone (pump and cgm) and the pump itself. By trial and error I have found it’s easiest to turn off my phone completely and set the pump alarms and alerts to vibrate. I would welcome other suggestions.

      2 years ago Log in to Reply
    2. Lawrence S.

      I have never been to an event that asked to silence devices. My pump is set on low alarms already. But, I would have no problems turning off my alarms on my pump and phone, if asked. I can look at my pump occasionally to check my blood glucose levels. Phones have those “Amber Alerts” that are very loud. I don’t know if those turn off.

      2 years ago Log in to Reply
    3. Kelly Wilhelm

      Honestly, I panic! I never know how to completely shut it down where I’m not going to get an alert! I usually set my range so that my alerts are not likely to get triggered. I was so panicked at my daughter’s wedding but it was fine! Phew.

      2 years ago Log in to Reply
    4. Patricia Kilwein

      I leave mine on….but I do silence my phone so the alert won’t be heard by anyone but me.

      1
      2 years ago Log in to Reply
      1. KCR

        And I check my BG on my watch (Bluejay GTS) more frequently.

        2 years ago Log in to Reply
    5. Katrina Mundinger

      I usually turn off bluetooth on my phone and set the pump to vibrate only. Then I check BG via my pump. I am a musician who performs frequently so it comes up often.

      2 years ago Log in to Reply
    6. David & Kaleo of Team Nani

      I wish I could silence my emergency warnings on the Tslim w/ Dexcom cgm, but I can’t

      1
      2 years ago Log in to Reply
    7. Grey Gray

      I guess I am an #$$hole but I never shut my low alarms off. I do try to make sure I am not going to go low but if it happens it happens and I can usually silence it before anyone can figure out its me. Glycemic unawareness can be dangerous. Just don’t feel it changing anymore.

      2 years ago Log in to Reply
    8. Bruce Schnitzler

      I silence my phone and set Tandem:tslim pump to vibrate, but the pump will still provide a loud alarm with low BG that I can’t silence. Advice is welcome! Thanks.

      1
      2 years ago Log in to Reply
    9. Bill Kast

      A new wrinkle for me… I switched to Omnipod 5 and the Pump now makes a warning alert when I go below 55 mg/dL. This is not a bad thing, but there seems to be no way to ‘comply’ and silence this alarm. Not complaining! I think it a good thing that the pump sees the Dexcom with no other electronics in the picture!

      1
      2 years ago Log in to Reply
    10. Yaffa Steubinger

      With the new Dexcom G7, I can silence or have them all vibrate. However, I can still monitor my sugar on my Apple watch

      2 years ago Log in to Reply
    11. Eve Rabbiner

      I turn off my phone. I can go without GGM for an hour or so with no problem.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      I TRY to silence my alarms (vibrate or off) on my pump and phone, but they still sneak through they do, too often tend the annoying repetitive ones. Most recently during my son’s band performance and parent teacher conferences. It’s disruptive.

      2 years ago Log in to Reply
    13. mbulzomi@optonline.net

      I turnoff my Cell, but you can’t silence a Tandem X2 Pump.

      2 years ago Log in to Reply
    14. KarenM6

      I make sure _as best as I can_ (it’s a good but not foolproof method) to not need an alarm during an event that needs silence.

      2 years ago Log in to Reply
    15. Anita Stokar

      I can turn off my phone, but I put my pump on vibrate

      2 years ago Log in to Reply
    16. A Montalbano

      It’s impossible to turn off alarms for very lows, otherwise would just leave on vibrate.

      2 years ago Log in to Reply
    17. A Montalbano

      This is also a huge concern for me if my kid was ever in an active shooter situation at school. Can’t completely silence his pump and CGM alarms.

      2 years ago Log in to Reply
    18. Steve Rumble

      I set my phone to airplane mode, so I will not receive calls or messages, but alarms will still work

      2 years ago Log in to Reply
    19. Jeff Balbirnie

      Never. My need for the alarm SUPERCEEDS by 10,000% anyone’s need for “silence”. So no, if it goes off, I cannot afford to miss it doing so not ever! I would prefer it violently pulse and flash franky such that I cannot even ignore it

      2 years ago Log in to Reply
    20. T1D4LongTime

      I cannot silence the pump’s low alarm, but can make it vibrate. I set the number of alerts to a minimum, but prefer to keep vibrate mode active to avoid a severe low. I am now on the Dexcom G7 CGM which now includes a ‘Quiet Mode’, so I can silence those alarms and just use the pump alarms.

      2 years ago Log in to Reply
    21. Vicki Andersen

      I also wear an Apple Watch that vibrates if I have a problem.

      2 years ago Log in to Reply

    If you’re at an event that asks guests to “silence devices,” do you adjust the alarms on your CGM and/or insulin pump? Cancel reply

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