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    • 4 hours, 27 minutes ago
      lis be likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 7 hours, 20 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 8 hours, 42 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 8 hours, 43 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 12 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 10 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 10 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 10 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 5 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 7 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 11 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 11 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 12 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 13 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 14 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 14 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 5 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 5 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?

    Home > LC Polls > If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?
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    If you use an insulin pump, where do you get your insulin pump supplies from?

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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    28 Comments

    1. Phyllis Biederman

      Byram – overall they do a pretty good job! Though I usually contact Dexcom directly for technical assistance or replacements.

      2 years ago Log in to Reply
    2. Ahh Life

      Medicare is the Grand Wizard with the magic wand who waves it every 30 days (I wish it were 90). Then, magically, the DME / CGM ‘s show up on the front step. Wow! I love magic.😍

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        I have Medicare, and I get 90 day supplies on my CGM, transmitters, infusion sets and pump cartridges. Perhaps, your secondary insurance may be the problem? You might want to give Medicare a phone call.

        2
        2 years ago Log in to Reply
    3. Rob Smith

      Meijer (grocery store) pharmacy with GoodRx is best deal I can find and better than my insurance.

      2 years ago Log in to Reply
    4. terrih57@msn.com

      Is Edgepark a DME or an online Pharmacy? I get supplies from Edgepark.

      1
      2 years ago Log in to Reply
    5. Sheldon Schwartz

      Byram is the absolute worst to deal with. COMPLETELY INCOMPETENT!

      3
      2 years ago Log in to Reply
      1. Annie Wall

        I’ve used Byram for years but for pump supplies. I’ve never had a problem with them.

        2 years ago Log in to Reply
    6. Annie Wall

      I use US Med for CGM, Medicare.

      2 years ago Log in to Reply
    7. Lawrence S.

      My secondary insurance company requires that I use “in network” Durable Medical Equipment (DME) companies to get my supplies. The only in network companies that they deal with are Byram and Edgepark. I had very bad luck and service with Byram, so I now get my supplies from Edgepark.

      3
      2 years ago Log in to Reply
    8. Jane Cerullo

      I like to pick up and not wait for a supplier or mail order pharmacy. I can get them earlier and not have to worry about delivery being delayed.

      1
      2 years ago Log in to Reply
    9. lis be

      CCS medical (durable medical). They aren’t terrible, better than the last one I had, however if you switch anything up in what you need to order, the AI bots blow a fuse and chaos ensues.

      1
      2 years ago Log in to Reply
      1. TEH

        I use CCSmed also. They were shipping 90 days of G6 but only 30 days of G7 now. This is Medicare issue. I picked them because they have a distribution CTR close to me and I usually the next day.

        2 years ago Log in to Reply
    10. Mark Schweim

      No idea with current insurance, but from 2021 until the end of last month, all my medical supplies (I found out after the order was placed, that included the insulin pump I received in October) was all covered under my pharmacy benefits.

      My current insurance says CGM supplies are available either from pharmacy or DME, but pump supplies are exclusively DME, so I now have to find an in-network DME supplier that handles insulin pump supplies, and none of the local DME suppliers handle any insulin pump or other Diabetes supplies!

      2 years ago Log in to Reply
    11. Greg Felton

      DME, but I don’t really have an option with my insurance.

      2
      2 years ago Log in to Reply
    12. beth nelson

      Does anybody on Medicare have a supplier they really like. I know the supplier is burdened by a lot of extra requirements from Medicare, but I’m thinking my company could be more on top of it! I finally spoke to somebody higher up and was told I should ask my doctor to send records immediately after every visit (every 3 months) and that should help speed the process a lot!

      2 years ago Log in to Reply
      1. Bob Durstenfeld

        I have had good success with CCS medical supply.
        They have some beauracracy., but overall service has been acceptable.

        2 years ago Log in to Reply
      2. kilupx

        I’m on Medicare in New York State. Medicare has assigned my account for Dexcom supplies to US MED, a very professional company. Reordering works seamlessly. Good luck.

        2 years ago Log in to Reply
    13. cynthia jaworski

      BC/BS insurance has a CVS-run mail-order pharmacy. I started using them when a local pharmacy refuse to fill my entire amount for an insulin prescription. I moved ALL my t1d supplies to them, and they have been astonishingly good.

      2 years ago Log in to Reply
    14. Steve Rumble

      Because my T1D developed while I was in the USAF it is considered service connected so my CGM supplies are provided by the Veterans Administration (along with my insulin supplies).

      2 years ago Log in to Reply
      1. Joindy23

        Hi Steve, I assume you have Tricare (I do, I have Tricare East)- which DME company are you using ? I’ve been using Solara (owned by Adapt Health) and have had nothing but problems with them. Thanks for any recommendation, Joanne

        2 years ago Log in to Reply
    15. Tina Roberts

      Online pharmacy that my insurance (Tricare) uses. Express Scripts.

      2 years ago Log in to Reply
    16. Dan Diehl

      I’m using an Eversense E3. The CRNP who does the implant provides the supplies needed.

      2 years ago Log in to Reply
    17. Katrina Mundinger

      Local but not online mail-order pharmacy…it’s what my endo’s clinic worked out would be the best with my insurance.

      2 years ago Log in to Reply
    18. Kathryn Keller

      i put department store though technically i get through Costco Mail Order

      2 years ago Log in to Reply
    19. george lovelace

      All DME through DiabetesMS.com (Management Supplies) part of the AdaptHealth System. If one outlet doesn’t have it then another will back them up. Been using an AdaptHealth System for about 5 years and it never fails to get Supplies on time covered by Insurance and Medicare!

      2 years ago Log in to Reply
      1. Russell Buckbee

        Only once have they failed me, but it always takes 2nd or 3rd checking .

        2 years ago Log in to Reply
    20. Russell Buckbee

      I’d like to get them directly from Dexcom, but they insist they don’t sell directly.

      2 years ago Log in to Reply
    21. Joindy23

      Until last year when I had commercial insurance I could obtain 90 day CGM supplies either at my local CVS pharmacy. Now with Tricare I have to get them from a DME company via mail and I despise this. I’ve used Solara/Adapt Health & had continued problems, need to find a better DME company that is contracted with Tricare.

      2 years ago Log in to Reply

    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from? Cancel reply

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