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    • 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 55 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 18 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 15 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 38 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 42 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 50 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 43 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 43 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 45 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?

    Home > LC Polls > If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?
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    If you use an insulin pump, where do you get your insulin pump supplies from?

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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    28 Comments

    1. Phyllis Biederman

      Byram – overall they do a pretty good job! Though I usually contact Dexcom directly for technical assistance or replacements.

      2 years ago Log in to Reply
    2. Ahh Life

      Medicare is the Grand Wizard with the magic wand who waves it every 30 days (I wish it were 90). Then, magically, the DME / CGM ‘s show up on the front step. Wow! I love magic.😍

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        I have Medicare, and I get 90 day supplies on my CGM, transmitters, infusion sets and pump cartridges. Perhaps, your secondary insurance may be the problem? You might want to give Medicare a phone call.

        2
        2 years ago Log in to Reply
    3. Rob Smith

      Meijer (grocery store) pharmacy with GoodRx is best deal I can find and better than my insurance.

      2 years ago Log in to Reply
    4. terrih57@msn.com

      Is Edgepark a DME or an online Pharmacy? I get supplies from Edgepark.

      1
      2 years ago Log in to Reply
    5. Sheldon Schwartz

      Byram is the absolute worst to deal with. COMPLETELY INCOMPETENT!

      3
      2 years ago Log in to Reply
      1. Annie Wall

        I’ve used Byram for years but for pump supplies. I’ve never had a problem with them.

        2 years ago Log in to Reply
    6. Annie Wall

      I use US Med for CGM, Medicare.

      2 years ago Log in to Reply
    7. Lawrence S.

      My secondary insurance company requires that I use “in network” Durable Medical Equipment (DME) companies to get my supplies. The only in network companies that they deal with are Byram and Edgepark. I had very bad luck and service with Byram, so I now get my supplies from Edgepark.

      3
      2 years ago Log in to Reply
    8. Jane Cerullo

      I like to pick up and not wait for a supplier or mail order pharmacy. I can get them earlier and not have to worry about delivery being delayed.

      1
      2 years ago Log in to Reply
    9. lis be

      CCS medical (durable medical). They aren’t terrible, better than the last one I had, however if you switch anything up in what you need to order, the AI bots blow a fuse and chaos ensues.

      1
      2 years ago Log in to Reply
      1. TEH

        I use CCSmed also. They were shipping 90 days of G6 but only 30 days of G7 now. This is Medicare issue. I picked them because they have a distribution CTR close to me and I usually the next day.

        2 years ago Log in to Reply
    10. Mark Schweim

      No idea with current insurance, but from 2021 until the end of last month, all my medical supplies (I found out after the order was placed, that included the insulin pump I received in October) was all covered under my pharmacy benefits.

      My current insurance says CGM supplies are available either from pharmacy or DME, but pump supplies are exclusively DME, so I now have to find an in-network DME supplier that handles insulin pump supplies, and none of the local DME suppliers handle any insulin pump or other Diabetes supplies!

      2 years ago Log in to Reply
    11. Greg Felton

      DME, but I don’t really have an option with my insurance.

      2
      2 years ago Log in to Reply
    12. beth nelson

      Does anybody on Medicare have a supplier they really like. I know the supplier is burdened by a lot of extra requirements from Medicare, but I’m thinking my company could be more on top of it! I finally spoke to somebody higher up and was told I should ask my doctor to send records immediately after every visit (every 3 months) and that should help speed the process a lot!

      2 years ago Log in to Reply
      1. Bob Durstenfeld

        I have had good success with CCS medical supply.
        They have some beauracracy., but overall service has been acceptable.

        2 years ago Log in to Reply
      2. kilupx

        I’m on Medicare in New York State. Medicare has assigned my account for Dexcom supplies to US MED, a very professional company. Reordering works seamlessly. Good luck.

        2 years ago Log in to Reply
    13. cynthia jaworski

      BC/BS insurance has a CVS-run mail-order pharmacy. I started using them when a local pharmacy refuse to fill my entire amount for an insulin prescription. I moved ALL my t1d supplies to them, and they have been astonishingly good.

      2 years ago Log in to Reply
    14. Steve Rumble

      Because my T1D developed while I was in the USAF it is considered service connected so my CGM supplies are provided by the Veterans Administration (along with my insulin supplies).

      2 years ago Log in to Reply
      1. Joindy23

        Hi Steve, I assume you have Tricare (I do, I have Tricare East)- which DME company are you using ? I’ve been using Solara (owned by Adapt Health) and have had nothing but problems with them. Thanks for any recommendation, Joanne

        2 years ago Log in to Reply
    15. Tina Roberts

      Online pharmacy that my insurance (Tricare) uses. Express Scripts.

      2 years ago Log in to Reply
    16. Dan Diehl

      I’m using an Eversense E3. The CRNP who does the implant provides the supplies needed.

      2 years ago Log in to Reply
    17. Katrina Mundinger

      Local but not online mail-order pharmacy…it’s what my endo’s clinic worked out would be the best with my insurance.

      2 years ago Log in to Reply
    18. Kathryn Keller

      i put department store though technically i get through Costco Mail Order

      2 years ago Log in to Reply
    19. george lovelace

      All DME through DiabetesMS.com (Management Supplies) part of the AdaptHealth System. If one outlet doesn’t have it then another will back them up. Been using an AdaptHealth System for about 5 years and it never fails to get Supplies on time covered by Insurance and Medicare!

      2 years ago Log in to Reply
      1. Russell Buckbee

        Only once have they failed me, but it always takes 2nd or 3rd checking .

        2 years ago Log in to Reply
    20. Russell Buckbee

      I’d like to get them directly from Dexcom, but they insist they don’t sell directly.

      2 years ago Log in to Reply
    21. Joindy23

      Until last year when I had commercial insurance I could obtain 90 day CGM supplies either at my local CVS pharmacy. Now with Tricare I have to get them from a DME company via mail and I despise this. I’ve used Solara/Adapt Health & had continued problems, need to find a better DME company that is contracted with Tricare.

      2 years ago Log in to Reply

    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from? Cancel reply

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