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    • 14 hours, 54 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 57 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 58 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 58 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 6 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 59 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 59 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours, 2 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 2 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 4 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 50 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 3 p.m. in your time zone.

    Home > LC Polls > If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 3 p.m. in your time zone.
    Previous

    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Next

    Have you ever changed diabetes healthcare providers because you did not agree on aspects of your T1D management? (E.g., disagreement about device choices, blood glucose goals, management decisions, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Gary Rind

      used to have it set at 200. the TCOYD endos put out a video suggesting that you set CGM at 80 & 150 with the theory being if you hit those numbers, you’re not in trouble like if they were set at 65 and 200

      3
      2 years ago Log in to Reply
    2. Dakota Johnson

      I use a different alert schedule while I’m sleeping. I work overnights and I am asleep at 3pm when my high alert is set to 280. At 3 am which is more of my “3 pm” my alert is set to 180

      1
      2 years ago Log in to Reply
    3. J Mac

      My high alert is set at 140. from there I can decide to adjust if needed.

      1
      2 years ago Log in to Reply
    4. wyndare3

      Currently using Libre 2. I have my low set at 100 and high set at 170. My assigned goals are a target of 70-180. While it is a bit of a pain to have the low alarm go off frequently this setting allows me time to decide what corrections are needed/not needed.

      2
      2 years ago Log in to Reply
    5. Jane Cerullo

      Just in case something happens overnight. Do not use other alerts. Although very low alerts on its own if needed.

      1
      2 years ago Log in to Reply
    6. Tod Herman

      While my CGM is set at 240, it’s only that high to avoid alarms in the evenings when I’m working (as a cook). However, my Omnipod 5 controller is set 170 so it “quietly” alerts me if my levels start to go up (with just a vibration).

      2
      2 years ago Log in to Reply
    7. Trina Blake

      My CGM alerts me at 120 (which is a relative thing, since my target is 80). I can catch things and make decisions being forewarned. If I have no IOB, but still could have FOB (food on board) I will correct. If I have IOB then I will watch to see if the trend arrow tilts upward.

      2 years ago Log in to Reply
    8. Janis Senungetuk

      A couple of years ago I got fed up with constant high alarms between dinner and my midnight bedtime. When I mentioned that during an endo appointment , she (endo) reached over and took my pump and set the high alarm to 225. I’ve left it there and set all of the other alarms that I had the option to set on vibrate.

      1
      2 years ago Log in to Reply
    9. Molly Jones

      I have my Dexcom alerts off as Tandem’s Control-IQ does enough.
      Tandem’s 24hr high is set to 200 and cannot be changed, even though my BG will be “high” no matter what I eat in the first half of the day, for at least half an hour.

      2 years ago Log in to Reply
      1. AnitaS

        I am a little confused. Why not have your high alert set to a shorter time period than 24 hours?

        2 years ago Log in to Reply
    10. KIMBERELY SMITH

      I am Sweating from my sugar

      2 years ago Log in to Reply
    11. Wanacure

      I set my Dexcom 6 high alert at 130 and low alert at 70, because those are normal limits for non-diabetics. If I get back to regular 40’ aerobics 3x/week and resistance training 2 or 3x/week, I’ll probably have to raise that high alert.

      2 years ago Log in to Reply
    12. Jen Farley

      Mine is set at 190, it takes longer to bring blood sugars down than up!

      2 years ago Log in to Reply
    13. T1D4LongTime

      150 plus a Rise Alert of 2mg/dL. I use Sleep mode 24/7 and that means no auto-corrections for highs. 150 and Rise Alert allows me to catch rising BGs and manually bolus for them. 85-95% TIR and StdDev 25-30

      2 years ago Log in to Reply
    14. AnitaS

      I have it set at 150 but I sometimes give corrections at a much lower number

      2 years ago Log in to Reply
    15. PamK

      Mine is set at 180mg/dL.

      2 years ago Log in to Reply

    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 3 p.m. in your time zone. Cancel reply

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