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    • 6 hours, 18 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 6 hours, 18 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 6 hours, 29 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 6 hours, 29 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 6 hours, 37 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 6 hours, 50 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 7 hours, 25 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 7 hours, 26 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 7 hours, 26 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 10 hours, 35 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 23 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 1 hour ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 1 hour ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 1 hour ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 3 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 3 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 3 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 4 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 5 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 7 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?

    Home > LC Polls > If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?
    Previous

    How often do you clean your skin with an alcohol wipe before giving yourself an injection or inserting a new pump site or sensor?

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    Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Scott Rudolph

      It was two weeks before my eighteenth birthday.

      2 years ago Log in to Reply
    2. lynda meyer

      I was 4 when I was diagnosed. In May I “celebrated” my 70th year living with T1D!

      10
      2 years ago Log in to Reply
      1. Mick Martin

        @lynda meyer. Bless you, ma’am. May you survive a long and healthy life.

        2 years ago Log in to Reply
    3. dholl62@gmail.com

      I was diagnosed at age 18

      2 years ago Log in to Reply
    4. Joan Benedetto

      My son, now 11.5, was diagnosed at 18 months of age.

      2 years ago Log in to Reply
    5. Kristine Warmecke

      I was diagnosed at 11 years in 1982, my brother was diagnosed at 7 months old in 1972 and his oldest daughter was 23 months old in 2004.

      2 years ago Log in to Reply
    6. mlettinga

      My younger brother was diagnosed at 5 and I at 8. My poor parents as this was 55 years ago in the dark ages of juvenile diabetes as it was called back then. Average life span after diagnosis 20 years.

      2 years ago Log in to Reply
    7. Edward Geary

      Barely, I was eighteen and totally unprepared for what lay ahead. As the saying goes
      : “if I knew then….”

      2 years ago Log in to Reply
    8. Lyn McQuaid

      I was diagnosed shortly after I turned 20, which is technically “adult” status, but I was in college and still living at home. Now, 30 years later, I think of myself as being a “kid” at diagnosis as I was not yet living what I think of as my “adult” life.

      2 years ago Log in to Reply
    9. Ahh Life

      At age 4, life was as simple as an Amazon 1-swipe—poke a syringe in with NPH and regular.

      Now life is more complicated than Byzantine philosophy—insulin, inserts, tubing, syringes, skin wipes, alcohol, algorithms, adjustments, hardware, software, vaporware, cgm’s, overpatches, signal interference, test strips, glucometers, , steroid interferences, PPI interferences, and other complications to be tended to.

      And I haven’t even gotten to the Byzantine-squared public/private/not-for-profit/for-some-profit-but-not-all-profit gargantuan American medical system frustrations and delays.

      Dying unto one’s former self to be born anew is an old Christian trope. I think I know where its appeal comes from. Sigh! 😖🤣😑

      2 years ago Log in to Reply
    10. George Lovelace

      15 and ever since Life has been a “Shot in the Dark” even with CGMs and Control IQ

      2 years ago Log in to Reply
    11. Bob Durstenfeld

      I was dx’ed at 18 months of age, my eldest son was dx’ed by me at 8 months of age and his eldest daughter was dx’ed at 18 months. Sort of runs on the family.

      2 years ago Log in to Reply
    12. Barb Robertson

      I was in dka and told I was diabetic on my 10th birthday…….61 years ago.

      2 years ago Log in to Reply
    13. KIMBERELY SMITH

      I am Type 2 Dietetic

      2 years ago Log in to Reply
    14. Jen Farley

      I was 13. I was a defiant kid and feel now I am glad I was not my parents. That is, looking back on the situation now. Back then, they just did not understand but being a parent now they were trying to save my life from complications down the way. I have a younger brother with adult onset and a sister with pancreatic cancer, I wish there was a way to help them besides advice and recipes.

      1
      2 years ago Log in to Reply
    15. Juha Kankaanpaa

      I have always believed that while we T1s are born with the predispositions to this disease, there usually is some trigger to activate it. In my case this was stress at the last year of university, and in my daughter’s case, move to a new country and starting school at the age of 4.

      2 years ago Log in to Reply
    16. Mark Schweim

      Diagnosed at age 24, well into adulthood, but not yet transitioned from childhood into adultery.

      2 years ago Log in to Reply
    17. Janis Senungetuk

      I was 8 when dx in 1955.

      2 years ago Log in to Reply
    18. Kristen Clifford

      I once again reiterate that you guys are in dire need of new questions. This one has been asked at least twice before.

      2 years ago Log in to Reply

    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed? Cancel reply

    You must be logged in to post a comment.




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