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    • 2 hours, 44 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 12 hours, 18 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 12 hours, 18 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 12 hours, 18 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 12 hours, 19 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 16 hours, 34 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 22 hours, 52 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 2 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 2 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 1 hour ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 1 hour ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days, 2 hours ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 2 days, 2 hours ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days, 3 hours ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    If you have T1D, which of your family members have been screened for T1D autoantibodies? Please select all options that apply.

    Home > LC Polls > If you have T1D, which of your family members have been screened for T1D autoantibodies? Please select all options that apply.
    Previous

    Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!

    Next

    At what age could you (or your child) apply a new sensor independently without help?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    19 Comments

    1. Carolann Hunt

      We were over 45 so we were too old. The cousins weren’t interested

      3 years ago Log in to Reply
    2. jamesmpii

      Only 1 of 5 sons has agreed to be tested.

      3 years ago Log in to Reply
    3. Lawrence S.

      I have no awareness of other family members medical details. However, I don’t believe that any of my relatives have been screened for T1D antibodies.
      I had two cousins who were T1D’s.

      3 years ago Log in to Reply
      1. Molly Jones

        Same here, I chose N/A, but this is not something I definitely know.
        I have one family member with type 2 diabetes who is able to control BG with diet and pills. I don’t know if he was screened or not.

        3 years ago Log in to Reply
    4. Kristen Clifford

      This is seriously something like the fifth time you’ve asked this question! Get something new!

      3 years ago Log in to Reply
    5. Lori Lehnen

      I wish they would get tested but no one in my family has and many have aged out of trialnet.

      Other than me, we have no family history and I wasn’t diagnosed until age 51. My family sees me enjoying a normal life so they think this disease isn’t that bad!?! I think if I had been diagnosed at a young age or was suffering, every relative would have been tested.

      1
      3 years ago Log in to Reply
      1. Ginger Vieira

        They can still get tested using an at-home testkit from JDRF’s “T1Detect” program.

        Here’s more about this:
        https://t1dexchange.org/tzield-delaying-type-1-diabetes/
        https://t1dexchange.org/fda-approval-teplizumab-type-1-diabetes/

        3 years ago Log in to Reply
    6. Edward Geary

      My adult children are not interested

      3 years ago Log in to Reply
    7. Carol Meares

      My sister was tested because she developed diabetes as an adult and was tested for autoantibodies when they learned I had developed T1D as an adult.

      3 years ago Log in to Reply
    8. Joan Benedetto

      My son’s half brother was tested thru TrialNet

      3 years ago Log in to Reply
    9. Bob Durstenfeld

      I have Monogenic T1D, not much point.

      3 years ago Log in to Reply
      1. Ginger Vieira

        90 percent of the cases of T1D are in people with no family history…so recent research suggests EVERYONE should start screening children regardless of family history:

        Here’s more about this:
        https://t1dexchange.org/tzield-delaying-type-1-diabetes/
        https://t1dexchange.org/fda-approval-teplizumab-type-1-diabetes/

        3 years ago Log in to Reply
    10. Wanacure

      My younger cousin was told by a doctor (“she does not like him”) that she has “the eyes of a diabetic.” Though her two cousins & her elder sister developed T1D as kids, she has ignored getting tested, not even for pre-diabetes. She has not had her children or grandchildren checked.

      3 years ago Log in to Reply
    11. Kristine Warmecke

      My two youngest nieces are the only ones who have been that I know of. They were because my oldest niece was diagnosed a month before my second one was born.

      3 years ago Log in to Reply
    12. Janis Senungetuk

      I was unable to convince my daughter to get herself and her three kids tested. She said that since there wasn’t a cure she saw no benefit in being aware.

      3 years ago Log in to Reply
      1. Ginger Vieira

        Janis! Tell your sister that there is an FDA-approved drug that can DELAY the full onset of the disease called TZield. Read more about it here: https://t1dexchange.org/tzield-delaying-type-1-diabetes/

        As a mother of two, and having lived with T1D myself for 25 years and written extensively about Tzield, I’ve had my children screened multiple times while knowing Tzield is available if they tested positive for T1D autoantibodies.

        3 years ago Log in to Reply
    13. Ann Auerbach

      My of my two children tested and was negative. My other child did not want to know if she was positive. She felt she would be dreading getting T1D her entire life. She knows the symptoms and will deal with Diabetes if she needs to. I wish she would get tested but I respect her decision.

      3 years ago Log in to Reply
      1. Ginger Vieira

        HI Ann! I encourage you to read our resources of WHY it’s so impactful to catch it before symptoms. Waiting until symptoms arrive mean damage has already been done, the risk of DKA is higher, etc.

        Here’s more about this:
        https://t1dexchange.org/tzield-delaying-type-1-diabetes/
        https://t1dexchange.org/fda-approval-teplizumab-type-1-diabetes/

        3 years ago Log in to Reply
    14. Steven Gill

      A younger brother diagnosed TYPE1 several months before my “TYPE 2” diagnosis and a 2nd brother at his diagnosis. With two brothers confirmed as TYPE 1 the Iabwork was run: no markers and C-peptides in range. A true TYPE 2.

      3 years ago Log in to Reply

    If you have T1D, which of your family members have been screened for T1D autoantibodies? Please select all options that apply. Cancel reply

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