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    • 3 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 3 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 3 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 3 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 3 hours, 49 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 5 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 5 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 5 hours, 45 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 45 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 11 hours, 47 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 29 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 33 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 12 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 12 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 12 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 13 hours, 2 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 13 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 6 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 13 hours, 6 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 13 hours, 19 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 48 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you have T1D, have you also been diagnosed with Dupuytren’s contracture? (Dupuytren’s contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.)

    Home > LC Polls > If you have T1D, have you also been diagnosed with Dupuytren's contracture? (Dupuytren's contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.)
    Previous

    Which of the following options best describes your primary insulin delivery method (the one you use most) and your most recent A1c? (Note: 7% is equivalent to 53 mmol/mol)

    Next

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. ConnieT1D62

      I have neuropathy in my hands and fingers, including contracture and stiffening of the finger joints and muscle wasting at the base of my thumbs. I was once told it was carpal tunnel syndrome, but not Dupuytren’s since most of my fingers could still touch when I placed my palms together in prayer position. Now the joints in my first and middle fingers are bent and don’t quite straighten out.

      Several years ago I was also told i needed surgery to correct it all with no guarantees. I refused and went to see an occupational therapist instead and learned very effective hand flexibility and strengthening exercises that I still do today. My hands are still affected by neuropathic numbness, tingling, and stiff fingers but I have adapted and have learned to live with it.

      3
      4 years ago Log in to Reply
      1. lis be

        almost the same story for me, myofascial massage therapy and stretches have helped quite a bit over time.

        1
        4 years ago Log in to Reply
    2. Jane Cerullo

      Duputrens name of my existence. My mother had very mild case. I have had three surgeries. Not a bad surgery but when my little finger was bending again I opted for Xiaflex injection. Worked like a charm. Only problem was bleeding because not one told me to stop baby aspirin. It has been a year and finger still straight. Wish i did injection first time. I do wear my splint at night. Not sure if help but makes me feel proactive. I have never gone this long without finger starting to bend again.

      4 years ago Log in to Reply
    3. Louise Robinson

      I had surgery for Duputryn’s contracture on my left hand six years ago and should have it done on my right hand as it has become more pronounced. A brother and husband, who do NOT have diabetes, also have Duputryn’s. I’m reluctant to have the right hand done because I never fully recovered the feeling in my left hand post-surgery. I am right-handed and an avid quilter. As long as I can continue to function without any pain in the right hand, I most likely will defer any surgery…although the right hand deformity does have “witchy” aspects.

      1
      4 years ago Log in to Reply
    4. Nancy Burgess

      I’ve struggled with Dupuytren’s contracture for many years having had surgery 5 times for the condition. I have a growth now on my little & ring fingers of my left hand. Previously it’s always been on my right hand.

      4 years ago Log in to Reply
    5. Tod Herman

      I answered no, but my primary care doctor once diagnosed me with having this. But when I went to a specialist it turned out to be something else called trigger finger. Turns out I have since had that in both hands and three different fingers.

      4 years ago Log in to Reply
      1. Vivian Moon

        Trigger finger is Dupuytrens

        1
        4 years ago Log in to Reply
      2. AnitaS

        I have read where Dupuytren’s contracture is not the same thing as trigger finger. In fact they are considered very different medical conditions. I have had surgery for trigger finger myself.

        4 years ago Log in to Reply
    6. Tina Roberts

      Yes and it’s worse in the right hand.

      4 years ago Log in to Reply
    7. Bob Durstenfeld

      I had them in the past and they receded with improved control with a pump and cgm.

      1
      4 years ago Log in to Reply
    8. Joan Fray

      Yes, in several fingers. Had to have surgery on left hand b/c i couldn’t be thpe. Worked for a few years then came back. Now in foue fingers but I can still workdo anything worth doing……

      4 years ago Log in to Reply
    9. Teri Morris

      I hit my thumb on something in the past, maybe injured/dislocated it, as the last knuckle in my thumb was bent about 90 degrees for around two years. It did look quite unusual, and I was unable to straighten it. I just noticed, when reading your question, that it is pretty much back to normal.

      4 years ago Log in to Reply
    10. Jillmarie61

      Dupuytren’s Contracture (aka Palmer’s Fibromatosis) is NOT the thickening of the skin of the palm. It’s inflammation of the tendons that causes scar tissue on the sheaths covering the tendon as it rubs under the bands in the palm. While it is considered an inheritable disease common in Eastern or Northern Europeans, it also is common diabetics.

      1
      4 years ago Log in to Reply
      1. Jillmarie61

        BTW, I have it in both hands and had numerous surgeries over the years to remove the scar tissue.

        4 years ago Log in to Reply
      2. Modee

        I think you may be mistaken.

        4 years ago Log in to Reply
      3. Stang777

        According to the Mayo Clinic (for those who want to know for sure what it is)…

        Dupuytren’s contracture typically progresses slowly, over years. The condition usually begins as a thickening of the skin on the palm of your hand. As it progresses, the skin on your palm might appear puckered or dimpled. A firm lump of tissue can form on your palm. This lump might be sensitive to the touch but usually isn’t painful.

        In later stages of Dupuytren’s contracture, cords of tissue form under the skin on your palm and can extend up to your fingers. As these cords tighten, your fingers might be pulled toward your palm, sometimes severely.

        The two fingers farthest from the thumb are most commonly affected, though the middle finger also can be involved. Only rarely are the thumb and index finger affected. Dupuytren’s contracture can occur in both hands, though one hand is usually affected more severely.

        That and more info is from…
        https://www.mayoclinic.org/diseases-conditions/dupuytrens-contracture/symptoms-causes/syc-20371943

        4 years ago Log in to Reply
    11. KarenM6

      I’ve had trigger finger but not Dupuytren’s contracture.

      4 years ago Log in to Reply
    12. Modee

      I have had trigger finger in 7 different fingers. I have dupuytren’s in right ring finger which is not one of the 7 that triggered. These two conditions are completely different and don’t feel anything alike.

      4 years ago Log in to Reply
    13. Cheryl Seibert

      Yes, on both hands. It is stable and not interfering with daily tasks. Interestingly, my son, age 39, is NOT diabetic and is developing the condition as well, but he does have gout. We have no family history of the condition though.

      4 years ago Log in to Reply

    If you have T1D, have you also been diagnosed with Dupuytren's contracture? (Dupuytren's contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.) Cancel reply

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