Sarah Howard
Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.
Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.
Except for this one.
I was once was invited to participate in drug trial for treatment of neuropathy. I would have had to be ready to go to the University Med Center at various times & on a moments notice. Because I was still in my working years I couldn’t commit to that demand. The nurse trying to recruit me was rather brusque & unpleasant about it when I declined.
Being a 50-yr Joslin Medalist at Joslin Diabetes Center, Boston, MA and living 1.3 miles from Joslin, I can take part in any study that Joslin has that the requirements for the study I could meet.
I particpated twice in a month long study on how different types of exercise affects your blood sugar. I also wore 4 Medtronic sensors for 2 weeks to see which ones stuck the best. They were bad!! I had so much extra tape applied to keep them attached. I love being involved with studies!
Only this echange.I’m surprised I even frequent this site. But I have been doing my own study for many many years
Outside of antibodies or slowing, I have done many of these over the years. I volunteer at two research centers in my county and am willing to try anything to help move the cure along and to make our lives easier. I am currently in an iLet pump trial. I did drug trials over the past few years and I did the Viactye stem cell trial here in San Diego. Some are very challenging and hard. Some are very easy. Many have a tremendous amount of paperwork. Some were great for my management and some were horrible, but I feel it is all for the greater good!
Study to document impact of hypoglycemia on the brain—long term effects, short term effects, confusion response, etc. Involved MRI and manipulation of BG’s using glucose and IV fluids.
Well, I am in the T1D Exchange database, so I guess I answered this incorrectly.
The only one I turned down was an early early one for oral insulin. I was afraid to put my lungs at risk. I’ve done many others and love being involved in the future of treatment. If it seems too risky though, I will explore in detail and then decide.
What about studies related to generalised diabetes management recommendations for real world situations? I participated in several exercise studies looking at my bodies response to different exercise intensity with glucose levels being either within a low, normal or high range. The aim was to create some generalised management guidelines for people with t1 while exercising based on the exercise intensity. I don’t think that’s covered by any of your options