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    • 3 minutes ago
      Mary Coleman likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 hour, 35 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 1 hour, 35 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
    • 1 hour, 35 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 1 hour, 36 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 1 hour, 36 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 13 hours, 5 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 13 hours, 5 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 13 hours, 7 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 16 hours, 10 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 20 hours, 7 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 21 hours, 15 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 38 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 22 hours, 38 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 22 hours, 38 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 23 hours, 2 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 23 hours, 2 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 23 hours, 2 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 23 hours, 2 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 23 hours, 12 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 23 hours, 13 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 23 hours, 13 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 23 hours, 14 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 23 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
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    If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant?

    Home > LC Polls > If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant?
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    If you use an insulin pump, how long have you this brand/model of pump?

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    If you use a CGM that requires a “warm-up period” before the sensor is active, how often do you need to check your blood glucose level with a glucose meter during the warm-up?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    26 Comments

    1. ELYSSE HELLER

      I gave birth to my son back in 1984 and I was in a high risk maternity unit for 6 months. I did not make any healthcare plans before the pregnancy.

      4 weeks ago Log in to Reply
    2. Barbara Bubar

      In 1973 the pregnancy test came back negative —although later it was determined that I was three months along. So little was known where we lived about managing a diabetic pregnancy but our darling daughter is now 49! My pregnancy was induced because I had gained so much weight and the thought was that she would be premature but no, she was 9-1/2 lbs and full-term. Ignorance was bliss??

      4 weeks ago Log in to Reply
    3. Karen Tay

      My Opthamologist told me I should never get pregnant because I had severe proliferative retinopathy. He was treating me with laser treatments in 1976.
      I did go on and had my son in 1979 with no increased issues with my eyes.
      I didn’t have an endocrinologist at the time. I was in the medical system with the Air Force

      4 weeks ago Log in to Reply
    4. GLORIA MILLER

      I lived in a rural area and checked with many doctors before I could find one who was willing to take me if I got pregnant. I finally found a GP who told me to get my insulin requirement down as low as I could before getting pregnant since I would need much more during the pregnancy. This was in 1970. I had a healthy, full term son in September 1971 weighing 8 lb. 2.5 oz. I was very careful about my weight then as well.

      1
      4 weeks ago Log in to Reply
    5. LZ

      In 1968, after my husband and I agreed I would stop taking birth control pills, I told my endo, and we had a long discussion. The main tool I had, in those days, was a consistent diet, eaten to match when my 2 shots/day of Regular and NPH insulins tended to have their peaks (which, of course, was not all that consistent) and based on the definitions in the ADA exchange system, but adapted to what he and I considered, at that time, a somewhat healthier menu, and also somewhat adjusted to my preferences of ratios and timing of Carb/Protein/Fat. He and the OB he recommended all agreed the baby should be taken early, as did the new doctors I saw after I moved during the pregnancy.

      During the last months of the pregnancy, when I wasn’t actually hospitalized, I would once a week go to a nearby hospital lab to get a fasting blood sugar test, which I would learn the results of when I next saw the doctor. So I couldn’t have been using that info very effectively. During my second pregnancy, my downstairs neighbor would come up and draw my blood occasionally and take it to his lab, test it and call me, a definite improvement but still far, far from what is available now.

      1
      4 weeks ago Log in to Reply
    6. cynthia jaworski

      When I asked about birth control, I had been told by several doctors that there was very little likelihood of my ever becoming pregnant. Nevertheless, I had been advised to get my tubes tied. That was not the solution I had been looking for.
      When I did manage to become pregnant in 1987 (at the age of 35) it was a delightful surprise, and obviously no planning had been done for it. At least blood glucose monitors had become available by then. My son was perfect. Still is.

      2
      4 weeks ago Log in to Reply
    7. Nicholas Argento

      I am a diabetes specialist and could not personally get pregnant, but I try to discuss need for tight control and outline best practices before a T1d pregnancy with women I see w T1D where it is a possibility, if possible. I then offer to continue T1D treatment when they get pregnant w maternal fetal med (MFM) expert also following for OB side, or they follow w MFM for everything. Critical to stay well controlled for both mom and baby…:)

      2
      4 weeks ago Log in to Reply
      1. Nicholas Argento

        Key points for successful pregnancy w T1D IMHO:
        1) CGM a must these days
        2) limit but not eliminate carbs and avoid spike foods- breakfast cereal, fruit juice, white rice especially
        3) multiple small meals w snacks- spread out eating
        4) pre dose insulin by 2-30 minutes when possible to lower post meal BG
        5) goals post meal < 140- hard to pull off unless doing the above, pre meal <100, mean BG on CGM < 125, best 115 if possible, rec A1c <6 if possible wo undue hypoglycemia – which is tough!
        6) meet w nutritionist
        7) dont over treat lows
        8) Hybrid closed loop are not approved but the reality is that people do better with these than open loop pumps, even though they are not designed for pregnancy
        9) understand what you are getting in to, and know you will be a moving target, especially in the second half when needs for insulin go up gradually
        10) practice pre conception to try to get to these targets
        11) close follow up w retinal specialist during pregnancy if any existing retinopathy, which can worsen during pregnancy
        12) believe that all this greatly improves the chance for a healthy baby and mom at the end

        Its work, but it works…:)

        3
        4 weeks ago Log in to Reply
    8. anj1832

      I mentioned that my husband and I were going to try soon beforehand, but my doctor basically just gave me the rundown of how many appointments I would have and the range my a1c would need to stay in. I wouldn’t necessarily call that a plan.

      4 weeks ago Log in to Reply
    9. PamK

      I was always under good control. My A1c was 6.0. So, I don’t think planning would have been necessary. Although at the time, I did not even think of it.
      I did call my endo as soon as I knew I was pregnant. He told me that fetus’ like low blood sugar and so, the 60 mg/dl I was seeing in the morning was perfect! He advised I keep my BG between 60 – 80 mg/dl. I did and had a full term, normal weight baby girl – – 7lbs 3oz.

      2
      4 weeks ago Log in to Reply
    10. Jen Farley

      Both pregnancies were unexpected. I had great specialist doctors and they were wonderful. Both girls born beautiful.

      2
      4 weeks ago Log in to Reply
    11. Joan Fray

      Didn’t intend to get pregnant, but oops! 1976. Had great son, spent a few days in hospital twice for doctors to check on progress, then had induced labor (didn’t work- did c section) three weeks before due date. No perfect baby. Three grandkids. Happiness.

      4 weeks ago Log in to Reply
      1. Joan Fray

        Yes perfect baby.

        2
        4 weeks ago Log in to Reply
    12. Jneticdiabetic

      No real planning. Was told by my OBGYN that I might have trouble getting pregnant. My husband and I decided to not use birth control anticipating it would take a while. The only precautionary step I took was to discontinue my ARB that I was taking for kidney protection as it’s not safe during pregnancy. I became pregnant 3 weeks later. Then had baby #2 16 mo later. Then my husband got a vasectomy because clearly we couldn’t be trusted. Haha Saw my endo and OGYN frequently during both pregnancies. What’s on a pump, and used a CGM intermittently, as the tech wasn’t great at that point Thankfully, both boys born full term and healthy, but BIG (10lbs). They’re now teens. Crazy how time flies.

      1
      4 weeks ago Log in to Reply
    13. Amy Petrenko

      I got diagnosed with Gestational Diabetes at 30 weeks and had to take insulin the rest of my pregnancy. I’m not sure we had a great plan other than the doctor telling me everything that went into my mouth would affect my blood sugar and health of the baby. I got pregnant again when Baby 1 was 11 months old and got diagnosed with gestational again at 9 weeks of pregnancy. Dr had me diet and exercise until month 7 when we moved cross country and I was put on insulin again. Supposedly T1 D went away when baby 2 was delivered. I got diagnosed for good when Baby 2 was 9 months old and both kids and I got a cold. So I don’t think I had all of the correct resources that I could have had. Thank God we are all healthy.

      2
      4 weeks ago Log in to Reply
    14. Lynn Smith

      It was not a planned pregnancy. Didn’t even have an endocrinologist at the time (back in 1979).

      4 weeks ago Log in to Reply
    15. Jan Brooks

      I was diagnosed with diabetes at 6 months pregnant. So no plan was in place.

      4 weeks ago Log in to Reply
    16. Becky Hertz

      By the time I was ready to have a child I was advised against it, on bp meds and in early 30’s.

      4 weeks ago Log in to Reply
    17. Lee Johnson

      My girlfriend, a T1D, was pregnant with her 3 child and also the previous 2 children. She had a great gyn and they both handled the result well. We have been married since 1987 and shared our T1D well and supportive.

      4 weeks ago Log in to Reply
    18. marge slater

      Back in the 60’s I was just under the care of my regular doctor and the GYN team

      4 weeks ago Log in to Reply
    19. Lena Selbrand

      Yes, 3 children. No 1, no plans with doctors, but read everything I could find at the university library regarding diabetes & pregnancy (No internet back then). The clinic lended me my first glucometer, that was the size of an old casette player! Spent entire winter cross country skiing, then biking up to date of delivery. Healthy baby girl (1979) 7 lb. No 2. Got a pump but CGMs did not exist, took the bike into hospital in time for the delivery this time! Healthy boy (1982) 7.4 lb. No 3, I ended up in hospital due to a placenta previa, catastrophy C-section at week 28, but healthy baby boy (1987 on St. Valentine Day!) 2.4 lb.
      Best “pregnancy” no 4, since he was adopted. 🙂

      1
      4 weeks ago Log in to Reply
    20. Eva

      Oh Yes, we did! I planned to get pregnant at 28 years of age or older since the risk of having a child with type 1 diabetes declines significantly. And, my A1C was 5.8% at least six-months before getting pregnant.
      Once I met those criteria, I got pregnant right away. I took the job of controlling my diet, exercise, and blood sugar very, very seriously for nine months. My blood sugar was 120 1-1/2 hours after meals. And, it was not greater than 200 ever. My A1C didn’t get above 5.9%.
      Delivered a healthy boy weighing 6 lbs. 11oz. Who is not type 1.

      4 weeks ago Log in to Reply
    21. Janis Senungetuk

      Both before our marriage in 1969 and six months later before stopping my birth control medication, my spouse and I had appointments with my physician, an internist, to discuss first the possibility of a successful pregnancy and methods of glucose management. There really wasn’t much available. I was still on MDI using U 80 Regular (beef/pork) and NPH insulin with test tape urine testing. My physician told us that as a 21 year old, after 13 years with T1, I was as healthy as I was ever going to be and that we shouldn’t delay if we wanted children. Since we were both still going to school that wasn’t exactly our plan. Six months later we changed our plans and had a second appointment. I was told that with pregnancy I would be referred to the care of a high-risk OB-GYN physician and to apply for medical financial assistance thru the State (California). That was the total before pregnancy plan. We graduated that June 20th and exactly one month later, 6 weeks early, on July 20th, 1970 our 7 lb. 15.5 oz. healthy “premie” daughter arrived.

      4 weeks ago Log in to Reply
    22. mbulzomi@optonline.net

      This question does not apply to real men!

      3 weeks ago Log in to Reply
    23. Bruce Johnson

      No pregnancy.

      3 weeks ago Log in to Reply
    24. T1D4LongTime

      I do not do ANYTHING that would greatly impact my T1D without discussing it with my endo and having a plan in place.

      1 week ago Log in to Reply

    If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant? Cancel reply

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