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    • 8 hours, 7 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 8 hours, 57 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 9 hours, 53 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 36 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 56 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 11 hours, 27 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 31 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 26 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 12 hours, 28 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 56 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 13 hours, 5 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 13 hours, 10 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 7 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 8 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant?

    Home > LC Polls > If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant?
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    If you use an insulin pump, how long have you this brand/model of pump?

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    If you use a CGM that requires a “warm-up period” before the sensor is active, how often do you need to check your blood glucose level with a glucose meter during the warm-up?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. ELYSSE HELLER

      I gave birth to my son back in 1984 and I was in a high risk maternity unit for 6 months. I did not make any healthcare plans before the pregnancy.

      5 months ago Log in to Reply
    2. Barbara Bubar

      In 1973 the pregnancy test came back negative —although later it was determined that I was three months along. So little was known where we lived about managing a diabetic pregnancy but our darling daughter is now 49! My pregnancy was induced because I had gained so much weight and the thought was that she would be premature but no, she was 9-1/2 lbs and full-term. Ignorance was bliss??

      5 months ago Log in to Reply
    3. Karen Tay

      My Opthamologist told me I should never get pregnant because I had severe proliferative retinopathy. He was treating me with laser treatments in 1976.
      I did go on and had my son in 1979 with no increased issues with my eyes.
      I didn’t have an endocrinologist at the time. I was in the medical system with the Air Force

      5 months ago Log in to Reply
    4. GLORIA MILLER

      I lived in a rural area and checked with many doctors before I could find one who was willing to take me if I got pregnant. I finally found a GP who told me to get my insulin requirement down as low as I could before getting pregnant since I would need much more during the pregnancy. This was in 1970. I had a healthy, full term son in September 1971 weighing 8 lb. 2.5 oz. I was very careful about my weight then as well.

      1
      5 months ago Log in to Reply
    5. LZ

      In 1968, after my husband and I agreed I would stop taking birth control pills, I told my endo, and we had a long discussion. The main tool I had, in those days, was a consistent diet, eaten to match when my 2 shots/day of Regular and NPH insulins tended to have their peaks (which, of course, was not all that consistent) and based on the definitions in the ADA exchange system, but adapted to what he and I considered, at that time, a somewhat healthier menu, and also somewhat adjusted to my preferences of ratios and timing of Carb/Protein/Fat. He and the OB he recommended all agreed the baby should be taken early, as did the new doctors I saw after I moved during the pregnancy.

      During the last months of the pregnancy, when I wasn’t actually hospitalized, I would once a week go to a nearby hospital lab to get a fasting blood sugar test, which I would learn the results of when I next saw the doctor. So I couldn’t have been using that info very effectively. During my second pregnancy, my downstairs neighbor would come up and draw my blood occasionally and take it to his lab, test it and call me, a definite improvement but still far, far from what is available now.

      1
      5 months ago Log in to Reply
    6. cynthia jaworski

      When I asked about birth control, I had been told by several doctors that there was very little likelihood of my ever becoming pregnant. Nevertheless, I had been advised to get my tubes tied. That was not the solution I had been looking for.
      When I did manage to become pregnant in 1987 (at the age of 35) it was a delightful surprise, and obviously no planning had been done for it. At least blood glucose monitors had become available by then. My son was perfect. Still is.

      2
      5 months ago Log in to Reply
    7. Nicholas Argento

      I am a diabetes specialist and could not personally get pregnant, but I try to discuss need for tight control and outline best practices before a T1d pregnancy with women I see w T1D where it is a possibility, if possible. I then offer to continue T1D treatment when they get pregnant w maternal fetal med (MFM) expert also following for OB side, or they follow w MFM for everything. Critical to stay well controlled for both mom and baby…:)

      2
      5 months ago Log in to Reply
      1. Nicholas Argento

        Key points for successful pregnancy w T1D IMHO:
        1) CGM a must these days
        2) limit but not eliminate carbs and avoid spike foods- breakfast cereal, fruit juice, white rice especially
        3) multiple small meals w snacks- spread out eating
        4) pre dose insulin by 2-30 minutes when possible to lower post meal BG
        5) goals post meal < 140- hard to pull off unless doing the above, pre meal <100, mean BG on CGM < 125, best 115 if possible, rec A1c <6 if possible wo undue hypoglycemia – which is tough!
        6) meet w nutritionist
        7) dont over treat lows
        8) Hybrid closed loop are not approved but the reality is that people do better with these than open loop pumps, even though they are not designed for pregnancy
        9) understand what you are getting in to, and know you will be a moving target, especially in the second half when needs for insulin go up gradually
        10) practice pre conception to try to get to these targets
        11) close follow up w retinal specialist during pregnancy if any existing retinopathy, which can worsen during pregnancy
        12) believe that all this greatly improves the chance for a healthy baby and mom at the end

        Its work, but it works…:)

        3
        5 months ago Log in to Reply
      2. PamK

        Nicholas, I’m guessing you mean limit simple carbs? When I was pregnant I followed a high fiber diet (still do!) and would treat any lows with juice.

        4 months ago Log in to Reply
    8. anj1832

      I mentioned that my husband and I were going to try soon beforehand, but my doctor basically just gave me the rundown of how many appointments I would have and the range my a1c would need to stay in. I wouldn’t necessarily call that a plan.

      5 months ago Log in to Reply
    9. PamK

      I was always under good control. My A1c was 6.0. So, I don’t think planning would have been necessary. Although at the time, I did not even think of it.
      I did call my endo as soon as I knew I was pregnant. He told me that fetus’ like low blood sugar and so, the 60 mg/dl I was seeing in the morning was perfect! He advised I keep my BG between 60 – 80 mg/dl. I did and had a full term, normal weight baby girl – – 7lbs 3oz.

      2
      5 months ago Log in to Reply
    10. Jen Farley

      Both pregnancies were unexpected. I had great specialist doctors and they were wonderful. Both girls born beautiful.

      2
      5 months ago Log in to Reply
    11. Joan Fray

      Didn’t intend to get pregnant, but oops! 1976. Had great son, spent a few days in hospital twice for doctors to check on progress, then had induced labor (didn’t work- did c section) three weeks before due date. No perfect baby. Three grandkids. Happiness.

      5 months ago Log in to Reply
      1. Joan Fray

        Yes perfect baby.

        2
        5 months ago Log in to Reply
    12. Jneticdiabetic

      No real planning. Was told by my OBGYN that I might have trouble getting pregnant. My husband and I decided to not use birth control anticipating it would take a while. The only precautionary step I took was to discontinue my ARB that I was taking for kidney protection as it’s not safe during pregnancy. I became pregnant 3 weeks later. Then had baby #2 16 mo later. Then my husband got a vasectomy because clearly we couldn’t be trusted. Haha Saw my endo and OGYN frequently during both pregnancies. What’s on a pump, and used a CGM intermittently, as the tech wasn’t great at that point Thankfully, both boys born full term and healthy, but BIG (10lbs). They’re now teens. Crazy how time flies.

      1
      5 months ago Log in to Reply
    13. Amy Petrenko

      I got diagnosed with Gestational Diabetes at 30 weeks and had to take insulin the rest of my pregnancy. I’m not sure we had a great plan other than the doctor telling me everything that went into my mouth would affect my blood sugar and health of the baby. I got pregnant again when Baby 1 was 11 months old and got diagnosed with gestational again at 9 weeks of pregnancy. Dr had me diet and exercise until month 7 when we moved cross country and I was put on insulin again. Supposedly T1 D went away when baby 2 was delivered. I got diagnosed for good when Baby 2 was 9 months old and both kids and I got a cold. So I don’t think I had all of the correct resources that I could have had. Thank God we are all healthy.

      2
      5 months ago Log in to Reply
    14. Lynn Smith

      It was not a planned pregnancy. Didn’t even have an endocrinologist at the time (back in 1979).

      5 months ago Log in to Reply
    15. Jan Brooks

      I was diagnosed with diabetes at 6 months pregnant. So no plan was in place.

      5 months ago Log in to Reply
    16. Becky Hertz

      By the time I was ready to have a child I was advised against it, on bp meds and in early 30’s.

      5 months ago Log in to Reply
    17. Lee Johnson

      My girlfriend, a T1D, was pregnant with her 3 child and also the previous 2 children. She had a great gyn and they both handled the result well. We have been married since 1987 and shared our T1D well and supportive.

      5 months ago Log in to Reply
    18. marge slater

      Back in the 60’s I was just under the care of my regular doctor and the GYN team

      5 months ago Log in to Reply
    19. Lena Selbrand

      Yes, 3 children. No 1, no plans with doctors, but read everything I could find at the university library regarding diabetes & pregnancy (No internet back then). The clinic lended me my first glucometer, that was the size of an old casette player! Spent entire winter cross country skiing, then biking up to date of delivery. Healthy baby girl (1979) 7 lb. No 2. Got a pump but CGMs did not exist, took the bike into hospital in time for the delivery this time! Healthy boy (1982) 7.4 lb. No 3, I ended up in hospital due to a placenta previa, catastrophy C-section at week 28, but healthy baby boy (1987 on St. Valentine Day!) 2.4 lb.
      Best “pregnancy” no 4, since he was adopted. 🙂

      1
      5 months ago Log in to Reply
    20. Eva

      Oh Yes, we did! I planned to get pregnant at 28 years of age or older since the risk of having a child with type 1 diabetes declines significantly. And, my A1C was 5.8% at least six-months before getting pregnant.
      Once I met those criteria, I got pregnant right away. I took the job of controlling my diet, exercise, and blood sugar very, very seriously for nine months. My blood sugar was 120 1-1/2 hours after meals. And, it was not greater than 200 ever. My A1C didn’t get above 5.9%.
      Delivered a healthy boy weighing 6 lbs. 11oz. Who is not type 1.

      5 months ago Log in to Reply
    21. Janis Senungetuk

      Both before our marriage in 1969 and six months later before stopping my birth control medication, my spouse and I had appointments with my physician, an internist, to discuss first the possibility of a successful pregnancy and methods of glucose management. There really wasn’t much available. I was still on MDI using U 80 Regular (beef/pork) and NPH insulin with test tape urine testing. My physician told us that as a 21 year old, after 13 years with T1, I was as healthy as I was ever going to be and that we shouldn’t delay if we wanted children. Since we were both still going to school that wasn’t exactly our plan. Six months later we changed our plans and had a second appointment. I was told that with pregnancy I would be referred to the care of a high-risk OB-GYN physician and to apply for medical financial assistance thru the State (California). That was the total before pregnancy plan. We graduated that June 20th and exactly one month later, 6 weeks early, on July 20th, 1970 our 7 lb. 15.5 oz. healthy “premie” daughter arrived.

      5 months ago Log in to Reply
    22. mbulzomi@optonline.net

      This question does not apply to real men!

      5 months ago Log in to Reply
    23. Bruce Johnson

      No pregnancy.

      4 months ago Log in to Reply
    24. T1D4LongTime

      I do not do ANYTHING that would greatly impact my T1D without discussing it with my endo and having a plan in place.

      4 months ago Log in to Reply

    If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant? Cancel reply

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