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    • 22 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 10 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 53 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 16 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 39 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 36 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant?

    Home > LC Polls > If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Chris Deutsch

      I had 2 pregnancies in the 1980’s, but due to living in a small town in NM, there were few specialists available. Both pregnancies were surprises, but I was in the care of obstetricians both deliveries. I was managing my T1D myself, but we were fortunate to have no complications except for the predictable neonatal hyperglycemia. I realize that I was dependent on the skill of the OB’s. God blessed us with 2 healthy children, now adults.

      2
      4 years ago Log in to Reply
    2. AimmcG

      Other than her stressing keeping my sugars under control we didn’t make any changes. I stayed pretty normal. I craved healthier things which was good. I had a terrible low during my pregnancy but all was well. I suppose the plan was that should my sugars trend high or are low we would adjust my insulin but that never happened.

      4 years ago Log in to Reply
    3. Gary Taylor

      I am male, so obviously no. However, my daughter, who is also T1D did plan for managing her two successful pregnancies.

      1
      4 years ago Log in to Reply
    4. Joan Fray

      I got pregnant while on a mountain climbing trip to the Andes in 1975. I hadn’t planned it, bit it was a happy surprise. I was 25 and had had Td for 13 years already. Once I knew, I went to Kaiser every week for labwork and was really strict about my care. (First time in my life, really. Responsability for another life and all. Against all odds, we got a perfect 9 pound baby boy. The most amazing thing I’ve ever done.

      1
      4 years ago Log in to Reply
    5. GLORIA MILLER

      My pregnancy was in 1971. I lived in a small town and had a heck of a time even finding a doctor in the only larger town nearby who would be willing to take me when I got pregnant due to the high risk they thought I faced. I found one that told me to get my insulin requirements down as low as I could before getting pregnant since it would go way up with the latter stage of pregnancy. He was correct in that assumption. No problems whatsoever with the pregnancy.

      4 years ago Log in to Reply
    6. RegMunro

      I am male

      4 years ago Log in to Reply
    7. Mick Martin

      Personally, I haven’t experienced pregnancy with T1D as I’m male, but my wife carried two beautiful sons for us since I was diagnosed with Type 1.

      4 years ago Log in to Reply
    8. Trena harrow

      No plan. It was 51 years and 56 years ago. No technology then. Had 2 healthy babies by the grace of God.

      1
      4 years ago Log in to Reply
    9. Sue Martin

      I talked to my doctor when we were thinking about it and she indicated it would be a high-risk pregnancy but manageable. I got a little spooked by the movie Steele Magnolia’s so we determined not to have a baby. My husband said he’d rather keep me healthy then gamble with it for a child.

      4 years ago Log in to Reply
    10. Modee

      T1D since 1970 at age 12 and was always encouraged to not get pregnant. As every thing else I wasn’t supposed to do, I did it! 1982 and 1985 I had successful pregnancies and healthy beautiful babies. But the nine months were stress filled. I had lab work twice monthly that included 24 hour urine collections to track for protein. My daughter and my son were both delivered by C-section a week prior to my due date following an amniocentesis to confirm proper lung development. Our plan to not have baby experience harmful weight gain in last couple of weeks proved successful with my daughter weighing 5’15” and my son 7’14”. Neither have ever experienced any signs of T1D. I am so thankful for our plan!

      4 years ago Log in to Reply
    11. cynthia jaworski

      When I first asked my endo about birth control, I was advised to get my tubes tied. I didn’t bring the subject up again. A few years later,I was delighted to find myself pregnant. Both my (new) endo and obgyn asked if I were happy about this turn of events. When I said emphatically yes, each said something along the lines of “well, we know what to do!). So, I had a healthy baby boy in 1988. I had enjoyed a tremendous sense of well-being throughout the experience.

      4 years ago Log in to Reply
    12. Janis Senungetuk

      There weren’t that many plans available in 1969 when we met with my doctor, an Internist, to discuss the possibility of a successful pregnancy. He suggested we not delay since I was was in fairly good health and in my early twenties. Several months later it was confirmed that I was pregnant. I started seeing an OB who had an interest in high-risk pregnancies. All he asked of me was to keep a logbook of my urine test results and continue to eat fresh food. I started experiencing blood pressure issues by the end of the sixth month ending in a c-section delivery 6 weeks early. Our 6 lbs 15.5oz preemie daughter came home with us three days later.

      2
      4 years ago Log in to Reply
    13. Claire Tallman

      I spent the year prior to getting pregnant tightening my control to pregnancy target/time in range goals. My baby and I stayed healthy throughout 🙂 it wasn’t always easy, but it was totally worth it! And, I had an excellent healthcare team – could not have done it without them!

      1
      4 years ago Log in to Reply
    14. Anneyun

      I had three healthy daughters in the 1990’s. I was followed by a good team of doctors. They were all large babies at birth. Knock on wood, none have shown signs of developing diabetes themselves.

      4 years ago Log in to Reply
    15. Amy Jo

      Had a pre-conception consult with an MFM to discuss what steps I needed to take before getting pregnant. She recommended A1c <6% and extra folic acid supplementation. Once I became pregnant, I sent my BG every week for adjustments, in addition to more frequent appointments, US, and NST twice weekly for the last 10 weeks of pregnancy. I was really lucky to have an MFM who did not induce early "just because" I have T1 – she was comfortable letting my body go into labor naturally since my A1c was well-controlled (<5.5%) and NST looked good. I could not have done it without my excellent care team, but I also acknowledge it was super challenging! I am proud of my two children and myself, and look forward to more babies in the future. So grateful for modern medicine, I can't even imagine what you ladies went through decades ago!!

      4 years ago Log in to Reply
    16. KarenM6

      I was basically told I was not allowed to get pregnant because it was too dangerous for me and any potential children. I took the doctors at their word. After the “you can’t have children” came, “how are you going to avoid pregnancy?”
      So, no children for me.

      4 years ago Log in to Reply
    17. JuJuB

      I *made* a plan – get my A1C under 7%. Didn’t stick to it though. Turned up pregnant two months later. My endo asked, “How did THAT happen?” I nearly fell of the table laughing. “Well, doc, when a man and a woman love each other VERY much…”

      She took my A1C that day and it was 7.1%. Since then I have gone on a pump and am using a CGM. My most recent A1C (about six months ago) was 5.4%. I’m gonna stick with that.

      1
      4 years ago Log in to Reply
    18. John McHenery

      It would be unusual for a man

      4 years ago Log in to Reply
    19. Wanacure

      I’m happy to read about so many successful pregnancies. Back in the 1950’s a doctor angrily told a T1D cousin her pregnancy would “blow her blood sugars to hell.” Back then urine tests were the norm. Sure enough, she miscarried. So she and her partner adopted. 🙂 It’s really encouraging to read how far we’ve come…at least in the high income countries.

      1
      4 years ago Log in to Reply
    20. Cheryl Seibert

      I never make major life decisions affecting my health without thoroughly discussing it with my endo.

      4 years ago Log in to Reply

    If you have experienced pregnancy with T1D, did you make a plan for managing T1D and pregnancy with your healthcare provider before getting pregnant? Cancel reply

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