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    • 1 hour, 29 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 2 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 2 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 2 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 5 hours, 52 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 15 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 12 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Molly Jones

      I keep a few on hand in case they are needed, an older pump, basal insulin, syringes, …. The rest including other pumps and supplies have been donated to the hospital of my endocrinologist.

      5 years ago Log in to Reply
    2. kilupx

      I would love to donate them but when I have asked endocrinologist and diabetic educators to give insulin and sensors to a patient who really can’t afford them, the professionals tell me they are not allowed to suggest drugs and supplies that came from storage that could not be verified. I also tried to do this with my rheumatologist for rheumatoid arthritis medication and was given the same no answer. Such a shame.

      5 years ago Log in to Reply
    3. Ahh Life

      Current laws will dictate the shape of this graphic representation. If it’s acceptable, fine, so be it. If it’s not, then change your current political representation, not your individual behavior. I suspect, in this instance, that individual behavior matters little, even though I would individually give my eye teeth for a $750 bottle of insulin.

      5 years ago Log in to Reply
    4. Larry Martin

      I have all the leftover parts now from my 670G and I have called Endocrinologist, JDRF, Charities. No one wants them. It is sad we throw so much away in this country but there are people in need. I am sure big pharma has mandated it.

      5 years ago Log in to Reply
    5. Ernie Richmann

      I have given devices to a friend in a support group I attend. Opened or expired stuff I throw away. I gave a few pens of insulin to a relative using the same insulin. I have some unopened stuff I will donate to a diabetic camp if the camp accepts.

      5 years ago Log in to Reply
    6. Mick Martin

      I have given supplies, if they are still within their use by date, to my local Diabetes Centre, who ensure that they are redistributed to other patients that need them.

      5 years ago Log in to Reply
    7. Kathy Hanavan

      Insulin for Life will take supplies for those in need.

      5 years ago Log in to Reply
    8. connie ker

      I always give extra supplies to my endo practice to give to patients who could use them. For example, I don’t use a log book anymore, but some senior patients still prefer paper and pen to record readings. So my endo said “I am so glad to get these because I have requests all of the time for these books. I also donate diabetic magazines but you cannot give any RX in your name. Test strips do not have your name on the box, so those are OK for donation too.

      5 years ago Log in to Reply
    9. William Bennett

      Kept ’em. Because the Zombie Apocalypse could strike at any time, and you can’t be sure you’re not gonna need all that stuff. Including that ca. 1996 OneTouch.

      5 years ago Log in to Reply
    10. Tod Herman

      I gave my old G4 Dexcom sensors (2 boxes) to a friend’s dad who was still using the G4. In the past, the Nurse Practitioner at my primary care physician’s office was also a pumper and I gave her my old pump supplies. I still have some extras, but she no longer works there anymore. Some of these responses are giving me some ideas as to where to send them.

      5 years ago Log in to Reply
    11. Kristine Warmecke

      I’ve given them to T1D friends who used the device still, asked the group leader of the Diabetic Divas, support group of T1D women, to ask if anyone can use them, if still no home I ask my CDE if she can find home for them. I’ve also given extra’s to the local doctor’s group that goes to Honduras several times a year, they now have a permeant building with a year round clinic.

      5 years ago Log in to Reply
    12. Emily Meister

      I have supplies for the Animas pump but have been unable to find anyone that wants them.

      5 years ago Log in to Reply
    13. Jennifer Wilson

      Kept a few as backup. Donated extra to my endocrinologist to distribute to patients in need. Listed on community forum as free for anyone in need.

      5 years ago Log in to Reply
    14. Kathleen Begbie

      I asked my Endocrinologist who told me to toss them

      5 years ago Log in to Reply
    15. Mig Vascos

      I’ve saved some for “just in case” but could donate some other things. My endocrinologist office would not take them. I’ll try the divas that someone mentioned. It’s sad to throw supplies away that someone else needs when they are so expensive and hard to get sometimes.

      5 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      The first time I had extra supplies was before the pandemic. I was able to give them to a charitable organization. When I recently had more insulin because my prescription changed I went to the same organization they refused the insulin because of the pandemic. The vials were completely sealed with excellent expiration dates. My daughter had a friend who was having trouble with the expense of insulin so he was quite happy to get the insulin.

      5 years ago Log in to Reply
    17. Becca Gae Leppanen

      I kept my Cozmo along with a month supply of disposables, I have a BNIB MM630g and 2 months of supplies but when I stopped using the MM I donated the 29 months or so of extra supplies I had left squirreled away. When I switched over from the OmniPod Eros to the Dash, I kept them for 5 months then gave them ALL away, kept none. I am soon to be giving away all the Medtronic supplies as well (pump included which is brand new in a sealed box.. DO NOT ASK ME FOR IT!! I will tell you no)..

      5 years ago Log in to Reply
    18. ConnieT1D62

      The diabetes education center where I used to work as a CDE accepted donated supplies unopened and in their original sealed packaging with an unexpired expiration date to pass on to Doctors Without Borders or given directly to patients in need. For awhile old Medtronic Revel pumps were being sought after by patients seeking older model pump parts to make their own loop system with a Riley link. We kept a current list of folks requesting supplies and notified those on the list if, and when, we had such a donation.

      5 years ago Log in to Reply
    19. Janis Senungetuk

      In the past I’ve donated insulin , meters and strips to Insulin for Life. Before the pandemic I donated meters and strips to a community senior center and Animas pump and G5 Dexcom supplies to people I’ve met through online groups.

      5 years ago Log in to Reply
    20. Cheryl Seibert

      Is there an organization that takes them? I’ve given a couple of individual sealed infusion sets and insert devices to my CDE but would love it if T1D would post organizations to take unused products to give to others who can’t afford them

      5 years ago Log in to Reply
    21. Jan Masty

      I tried to give away 3 BOXES of dexcom 5 sensors. Only got 1 response from someone who sounded a bit fishy. Wish there was a good place to donate them!

      5 years ago Log in to Reply
    22. Marie Seymour-Green

      I gave an extra glucose meter and strips to a friend whose cat had been diagnosed with diabetes. Their ears are used for getting the blood sample and she said that it didn’t bother him at all. 😉

      5 years ago Log in to Reply
    23. Leona Hanson

      I share with a friend when I get a new meter I give him my old one with strips and lancet device and lancets he can’t afford insurance so it helps him out and when the doctor changed his insulin he gave me that it was the same I used so it didn’t go to the trash

      5 years ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Cancel reply

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