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    • 9 hours, 17 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 9 hours, 17 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 9 hours, 18 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 10 hours, 32 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 14 hours, 5 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 14 hours, 6 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 30 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 17 hours, 30 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 17 hours, 30 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 17 hours, 31 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 17 hours, 32 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 17 hours, 55 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 56 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 18 hours, 45 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 41 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 21 hours, 41 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 21 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 21 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 52 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 54 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 55 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 17 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 17 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 19 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 19 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    If you have ever been pregnant while living with T1D, how much did your insulin needs change throughout your pregnancy?

    Home > LC Polls > If you have ever been pregnant while living with T1D, how much did your insulin needs change throughout your pregnancy?
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    Do you currently use any of the following CGM systems?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Vicki Andersen

      I needed less insulin at night and slightly more in the daytime.

      3 years ago Log in to Reply
    2. lis be

      I didn’t want to have a kid because i was scared to give them type 1

      1
      3 years ago Log in to Reply
      1. Wanacure

        lis be, me too. Eugenics never died out, did it? Look at the “desired” qualifications for surrogate parents (or just sperm donors) specified by infertile couples. And designer babies are just a CRISPR snip away. Would you have changed your mind if it were simply a single easy gene to find and “fix”? I’m sure there are already marriage arrangers catering to people who want mates with “desirable” DNA test results. 😎

        3 years ago Log in to Reply
    3. Modee

      For me it fluctuated and there were so many tests and I was seeing the doctor every 2 weeks the whole time. I had c-sections both times and I had a daughter and a son, now 42 and 37. Neither have been diagnosed with T1D. I had been diagnosed in 1970 at 12 years old. Diabetes sucks but life has been good!

      4
      3 years ago Log in to Reply
    4. Deborah Wright

      I don’t remember. That was before cgms and pumps. Long ago!

      2
      3 years ago Log in to Reply
      1. Molly Jones

        “Other” or “don’t remember” was my answer also.

        3 years ago Log in to Reply
    5. Laura Cate

      By the second trimester I needed more insulin. By the third trimester, insulin was almost like water; 1 unit per gram of CHO. Both children born full-term healthy and happy. I managed the pregnacies with an insulin pump and lots of finger sticks. Kids are now 18 and 20 years old.

      1
      3 years ago Log in to Reply
    6. KIMBERELY SMITH

      Was not

      3 years ago Log in to Reply
    7. Lynn Smith

      It’s been over 43 years ago. But, the best I can remember, the first trimester was marked by lower blood sugars and after that higher. Since there were no cgm’s back then, that’s my assumption. EMS was called twice during my first trimester due to low blood sugar. I used a meter that had just come out for testing my blood sugar, but it was very difficult to use. No auto lancing devices yet either and I wasn’t good at stabbing my fingers. Anyway, I went into labor six weeks early and gave birth to a 7 pound 11 ounce son. He has been tested and does not have marker for T1D.

      2
      3 years ago Log in to Reply
    8. MT

      First trimester was filled with lows but then 2nd and 3rd insulin needs slowly crept up. Did not have one single complication from diabetes even tho all the naysayer doctors said I would. We didn’t try for a second child because the stress from the medical staff was ridiculous. My son is healthy and diabetes free. We are happy and live a good life even though diabetes is a brutal disease and a time suck to manage.

      1
      3 years ago Log in to Reply
    9. Amanda Barras

      Maxed out my pump settings by third trimester. 😬 Bit baby was born healthy almost 15 years ago. ❤️

      1
      3 years ago Log in to Reply
    10. Joindy23

      I never attempted pregnancy due to T1D. I’m 50+ years as a T1D and during my child-bearing years I was on MDI without a CGM, so it felt too dangerous. Plus I didn’t want to risk passing T1D onto my child. I wouldn’t wish this disease on anyone.

      1
      3 years ago Log in to Reply
    11. lorischong@gmail.com

      Less at first then consistent need for more insulin starting around 26 weeks, took double – triple normal dose by the end

      1
      3 years ago Log in to Reply
    12. Anneyun

      I don’t remember. I had my three kids 27, 29 and 31 years ago!

      3 years ago Log in to Reply
    13. Janis Senungetuk

      It was in the dark ages, 1970, before meters, pumps or CGM’s. I was still using Reg. (beef/pork) and NPH on MDI with urine testing. The first trimester I had 24 hr. “morning sickness” that made my morning insulin dose a real guess. I was also attempting to get to my 8 AM, 4 hr. painting studio classes. If I managed to get to the class, the smell of the turpentine/mineral spirits, oil paints often resulted in a quick exit. Ended up painting in our apartment and lugging the large canvases via taxi to school for critiques and finals. Graduated with a BFA in Painting and exactly one month later, six weeks early, our 7 lb. 15.5 oz preemie daughter arrived by induced c-section. We both stayed in the hospital for the remainder of the week. She now has three kids, all in their 20’s.

      1
      3 years ago Log in to Reply
    14. Jen Farley

      I have been pregnant twice with type 1. My first child I needed less insulin. She was a small baby at 5lbs 13oz but 23 inches long. She is now almost 30, perfectly healthy and 5 fool 7 inches and a very healthy weight. My second child was 9lbs 1oz and 22 inches long. My insulin needs increased the whole pregnancy. She is now in her mid 20’s and very healthy and 5 feet 4 inches and about 165lbs. She lives in another state so not 100% sure but just moved about 3weeks ago. My husband was a 9 pound baby and I was right at 6 pounds so our kids seem to be just like us.

      3 years ago Log in to Reply
    15. Louise Whiting

      I was on MDI at the time and was shocked at how my basal needed to double almost overnight. Also looked pregnant from 16 weeks!

      3 years ago Log in to Reply
    16. T1D4LongTime

      It’s been 42 years….. I think I took a bit more, but not a significant larger amount.

      3 years ago Log in to Reply
    17. Melissa Childers

      I have not completed first trimester of pregnancy before losing the pregnancy. Both time I used significantly less insulin.

      3 years ago Log in to Reply
    18. Jneticdiabetic

      My recollection is my insulin requirements went up slightly over the pregnancy, No major insulin resistance, I think more for increased food intake as I was hungrier than I’d ever been. Had a few cases later in my pregnancy when I forgot to dose for a snack and worried I was bathing the baby in sugar and found I was low (once 20mg/dl with no symptoms!) Baby’s pancreas at work or some temporary beta cell recovery during pregnancy??

      3 years ago Log in to Reply
    19. PamK

      I was taking Humilin when I was pregnant. Pre/post pregnancy my correction factor was 1 unit of insulin to drop my blood sugar 50mg/dL. While I was pregnant 1 unit would drop my blood glucose 100mg/dL!

      3 years ago Log in to Reply

    If you have ever been pregnant while living with T1D, how much did your insulin needs change throughout your pregnancy? Cancel reply

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