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    • 1 hour, 15 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 15 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 30 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 31 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 52 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 1 minute ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 1 minute ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 57 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 13 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    If you have attended a wedding while wearing T1D devices, do you try to place your pump and/or sensor sites somewhere not visible?

    Home > LC Polls > If you have attended a wedding while wearing T1D devices, do you try to place your pump and/or sensor sites somewhere not visible?
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    28 Comments

    1. Ahh Life

      Yes, but. There’s always a yes–but, isn’t there? I have conveniently and comfortably worn my pump since 1996 by placing it in my pocket. The CGM? Who cares? CGM’s are so ubiquitous in today’s television ads, that the implied only question seems to be, “Well, doesn’t everybody wear them?” ĀÆ\_( Ķ ā›ā€Æļ¹ Ķ ā›ā€Æ)_/ĀÆ

      2
      2 years ago Log in to Reply
    2. Larry Martin

      I have not attended a wedding buy why in the HELL would I want to make a life saving device invisible? What is the deal with you folks. Test on the table in a restaurant. Where the pump where you normally do. I just do not get all the pump shaming from you folks.

      3
      2 years ago Log in to Reply
      1. Amy Jo

        Not so much that I’m ashamed to show off my T1 tech, it’s more the practical side of dressing up as a woman – I still want to wear nice dresses, so I don’t have a choice but to “hide” my pump under it!

        2 years ago Log in to Reply
    3. Patricia Dalrymple

      I agree with Larry. My beef, and could be worse for women, is I don’t care if it shows. I care whether I can wear what I want to without it looking like I have a big lump under my clothes. Call me vain, but I take pride in keep myself trim. First, you can’t wear a dress if there is no belt or pockets. I can’t wear it in my bra (read between the lines) and I feel like it is going to slide down my leg if under the dress and how do you get it out of up on the thigh? They are made for men’s belts. Design one for women please.

      8
      2 years ago Log in to Reply
      1. Sherolyn Newell

        That’s a big part of why I chose Omnipod.

        2 years ago Log in to Reply
    4. Chip Brookes

      My pump is always in my pocket and the CGM sensor is under my shirt, so they are never visible. Ergo I don’t need to conceal for special occasions.

      1
      2 years ago Log in to Reply
    5. Dave Akers

      Hid pump easily at my own wedding under my jacket. Once jacket came off, pretty hard to hide it on my belt. Easy to keep CGM hid on the arm.

      1
      2 years ago Log in to Reply
    6. Maureen Helinski

      Yes, but in places I can get to for boluses or to check numbers. I usually have to cut holes in the dress where I can put in a hand. It is a lot of trouble.

      2 years ago Log in to Reply
    7. connie ker

      When I started wearing a sensor on my arm, I donated all of my sleeveless dresses and tops. Now I only wear tops and dresses with a short sleeve, long sleeve, or jacket to cover. The tape over the top is rather large and keeping it under clothes also keeps it clean.

      2 years ago Log in to Reply
    8. Sahran Holiday

      If I feel like it I do. Change pod every 2 days so put it where I can where it hasn’t been recently, near CGM so I can keep track and knock off accidentally less.

      2 years ago Log in to Reply
    9. Nevin Bowman

      My pump is always in my front-right pocket with a hole near the top to run the tube through.

      2 years ago Log in to Reply
    10. Ernie Richmann

      I have never tried to hide my pump. Not sure why that bothers anyone.

      5
      2 years ago Log in to Reply
    11. Amy Jo

      When I get dressed up I typically wear a little sports belt under the dress to hold my pump. Unfortunately this means I have to go to the bathroom to enter my BG, turn off alerts, etc, but this is where the quick bolus feature of t:slim is great! For my own wedding, I had the seamstress put a little pocket for my pump in the bodice, just to the side of my breast, so I could pull out my pump without having to go to the bathroom. No way I was missing my own wedding! May have looked a little odd if anyone saw me reaching into my dress, but it worked like a charm.

      1
      2 years ago Log in to Reply
    12. Sherolyn Newell

      I have never cared if it shows. I would probably turn off audible alarms, just like I would turn off my cell phone. I wouldn’t want to disrupt the ceremony with noise.

      3
      2 years ago Log in to Reply
    13. Kristine Warmecke

      If I am a member of of the wedding party I do, otherwise no. Why fret about when I’m, thankfully, not the center of attention.

      2 years ago Log in to Reply
    14. Ken Raiche

      No I usual put it in my front pocket if there tubing shows so be it. The only reason I would hide anything would be to look classy if that’s at all possible.

      2 years ago Log in to Reply
    15. Grey Gray

      I remember when I was young. And pumps 1st became commercially available. I didn’t want one because of the tube… 30 years later and I could care less. As for cgm recent advertising has educated too many people as to what it is and I now try to keep it under my shirt sleeve. Back of arm. Unless you know me well, you would not know I am T1D

      1
      2 years ago Log in to Reply
    16. Bill Williams

      I don’t think I own any wedding-appropriate clothes that would expose my Libre.

      2 years ago Log in to Reply
    17. Carol Meares

      Going to a wedding is not about me;) I just wear my sensor or infusion sites where they are. But I do have to make sure I can access my pump. I don’ wear dresses. I wear skirt and blouse and I love skirts with pockets:) as I prefer not to wear my pump on my waistband.

      2 years ago Log in to Reply
    18. Becky Hertz

      Pump usually ends up in my bra, my pump site is where it is.

      2 years ago Log in to Reply
      1. Tracy Jean

        Me too!

        2 years ago Log in to Reply
    19. Janis Senungetuk

      I wear my pump and CGM where they’re easily accessible. The last two weddings I attended were in the summer during very hot, humid weather. I chose clothing that was appropriate for the occasion and comfortable. If my CGM was visible on my arm when I wore short sleeves, no big deal.

      1
      2 years ago Log in to Reply
    20. ConnieT1D62

      My priority concern is about placing it where it is (1) secure and (2) easily accessible. I harbor no shame or blame, or even vanity, about wearing diabetes devices. They are what they are – necessary tools. Fortunately family, friends and professional colleagues are supportive, kind, understanding and harbor no ill will or judgement towards me for wearing diabetes devices.

      When I remarried in 2007, I wore my pump clipped to the outside of my dress with a slit in the side seam for the tubing. Most guests knew I have diabetes. However, nobody knew, suspected, or cared anything about pump placement except me and the diabetes sister friends who attended. For the rest of the uninitiated wedding guests, pump awareness never, ever crossed their thought process mindset.

      2
      2 years ago Log in to Reply
    21. Bob Durstenfeld

      I was at two weddings in April, I always wear my pump on my belt in a case. If I take my coat off, my CGM transmitter can be seen through my shirt. It is part of who I am. No big deal.

      2
      2 years ago Log in to Reply
    22. kristina blake

      My infusion sets are pretty much hidden by clothing, and depending on the dress – since we are talking a dress-up event here – I look to see if wearing my pump “between the girls” – does it look like I have a third member of that “girl tribe?” I also like men’s lightweight boxer shorts for under the dress. They are cool cloth, and have a great waistband. For my sensor, since my upper arms is my favorite place, I use hand-painted adhesive patches. I have “ink” already so the sensor patch just blends in. At one wedding, the owner of the venue said (in true southern style “bless yer heart” when she managed to still see the sensor. She thought I was on Nulasta (spelling?) that chemo-therapy drug. I took it as a kind thing to say.

      2 years ago Log in to Reply
    23. Christina Trudo

      I do that no matter where I am.

      1
      2 years ago Log in to Reply
    24. Verna Holcomb

      At my brother-in-law’s wedding, I wore my pump clipped to my dress and clearly visible. I got to have a nice conversation with one of the caterers about our pumps. At my own wedding, I clipped the pump onto the back of the dress so it wasn’t in the way but I could still reach it easily – and you can see it in any picture of me from the side. I’m thrilled to have this technology and happy to start up a conversation with someone, even at a formal event like a wedding!

      2
      2 years ago Log in to Reply
    25. Cheryl Seibert

      i answered yes. My pump and CGM are seldom visible anyway. I used to enjoy doing the “insulin pump demo” to interested people, but now my life situation does not give me the freedom of time to sit and chat with people about the pump (except if I’m in the ER with my husband or my elderly relative and have no critical things to take care of). Nurses are very interested in the pump when they see it and ask intelligent questions! šŸ™‚

      2 years ago Log in to Reply

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