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    • 3 hours, 44 minutes ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 3 hours, 44 minutes ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 4 hours, 50 minutes ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
    • 4 hours, 52 minutes ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
    • 6 hours, 27 minutes ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
    • 6 hours, 28 minutes ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
    • 6 hours, 29 minutes ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 6 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 6 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 1 day, 2 hours ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 4 hours ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 6 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 6 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 6 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 7 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 1 day, 7 hours ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 7 hours ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
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    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?

    Home > LC Polls > If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?
    Previous

    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Next

    Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. PamK

      When I was younger I went first to a day camp that was not specifically for children with T1D and then to an overnight camp that was specifically for children with T1D (run by the ADA).

      3 years ago Log in to Reply
    2. Britni

      I don’t have kids, so I answered N/A. When I was a kid I went to day camps. I was 17 when I went to my first (and only) sleep away camp and it wasn’t specifically for diabetics. My family and I did spend a weekend at the Clara Barton camp once; my parents were hoping I’d like it enough to go by myself the following the summer. I enjoyed the weekend, but I refused to go to the camp anyway.

      3 years ago Log in to Reply
    3. KIMBERELY SMITH

      My son isn’t DIABETIC

      1
      3 years ago Log in to Reply
    4. Velika Peterson

      My daughter is 12 and has never been able to wake up from her Dexcom alarms (even Omnipod alarms which can wake a dead man) or a phone call, so all sleepovers happen at our place and no overnight camp is in the cards for her yet.

      3 years ago Log in to Reply
    5. Karen Mielish-Clausell

      I was a child with type 1 and I went to diabetic camp it was call camp njeda in new jersey

      3 years ago Log in to Reply
    6. Bob Durstenfeld

      I went to 6th grade science camp with T1D. As did my son with T1D. I expect that my granddaughter with T1D will do the same.

      3 years ago Log in to Reply
    7. Anneyun

      When I was 14 I went to a sleep away camp for 2 weeks. I was not diagnosed as diabetic yet. While at the camp about 6 of us went away on a canoeing trip that involved canoeing all day, multiple portages (carrying the canoe and all supplies past rapids) and sleeping in tents. It was during this canoeing trip that I had my first diabetic experience, but I didn’t know what it was at the time, and I didn’t tell anyone about it. During a portage I felt extremely weak and tired and couldn’t carry the canoe. I know now it was a low blood sugar. After that we had a big snack of s’mores. And the next day while canoeing I was so thirsty I was secretly scooping handfuls of water from the lake to drink (a big no-no). I know now that was because of high blood sugar.
      I wasn’t diagnosed as diabetic for another 6 months.

      3 years ago Log in to Reply
    8. cynthia jaworski

      I had gone several years as a camper and later as a counselor to a diabetic 2 week overnight camp.

      I had gone on shorter overnight camping trips with Girl Scouts.

      No one had to worry about e hearing my dexcom because there were no dexcoms. Or blood tests either.

      3 years ago Log in to Reply
    9. Wanacure

      Side note: I always enjoy reading comments by other PERSONS WITH DIABETES (nod to Kimberly.) Now to the Q. Thanks to the eugenics movement’s influence on Mom, then me, one of the reasons I never had kids was because I worried they might “inherit” the “defect” of T1D. Mom abruptly gave up her eugenics ideology after I became T1D, but sort of blamed my Dad’s DNA. (And my Dad blamed himself!) After reading John Hersey’s book Hiroshima, and Rachel Carson’s Silent Spring, and remembering our living at Hanford for at least 4 years when U-238 was produced, our family became aware of radioactivity as a significant ENVIRONMENTAL factor affecting DNA. Assorted governments testing nuclear bombs in the atmosphere, “accidents” (Three Mile Island, Chernobyl, Fukushima, et al), and dumping of radioactive waste from nuclear reactors plus jet streams and ocean currents, guarantee the human genome has been altered. “Downwinders” from around the world have sued governments and corporations for decades. Helpful hint: make sure your salt has iodine. 🥴

      3 years ago Log in to Reply
    10. Samantha Hunter

      I dont have a kid, but when I was a kid with diabetes I would regularly go to non-diabetic sleep away camps.

      1
      3 years ago Log in to Reply
    11. KarenM6

      When I was a kid, I went to a couple of non-diabetic specific camps. I have never been to a diabetic one.

      3 years ago Log in to Reply
    12. Hadley Horton

      When I was a kid, I attended a diabetes camp for a week long session in the summer

      3 years ago Log in to Reply
    13. Kris van Bergen

      Yes, but only when I’ve gone with her because the camps in our area do not have nursing or health staff who are educated in diabtetes care.

      3 years ago Log in to Reply
    14. Anthony Harder

      Neither of my children have T1D. However, when I was a child, in the 1960’s I would attend a church camp in South Dakota by myself.

      3 years ago Log in to Reply

    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes? Cancel reply

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