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    • 3 hours, 31 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 3 hours, 32 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 3 hours, 32 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 3 hours, 33 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 5 hours, 45 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 8 hours, 18 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 10 hours, 12 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 11 hours, 37 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 12 hours, 20 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 12 hours, 21 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 12 hours, 54 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 1 hour ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 5 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 5 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 9 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 9 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 10 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    If you drink coffee, do you bolus for the coffee itself (not any of the additional cream/sugar)? Share your tips for how to bolus for coffee in the comments!

    Home > LC Polls > If you drink coffee, do you bolus for the coffee itself (not any of the additional cream/sugar)? Share your tips for how to bolus for coffee in the comments!
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    If you were misdiagnosed with something else before being diagnosed with T1D, did you end up in DKA due to the misdiagnosis?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Nicholas Argento

      Coffee with caffeine raises BG due to an increase in liver glucose production, even if black. I see it every day. It varies from person to person and depends on a lot of factors. I think of it as a carb equivalent- a non-carbohydrate that raises BG levels…

      6
      5 years ago Log in to Reply
    2. Jneticdiabetic

      I’ve heard the coffee effect is significant some, but have observed an obvious effect on my BGs. I don’t bolus for it. Most work days I have multiple cups of coffee with heavy cream until I finally get a break in meetings to have “breakfast.” My bigger challenge on the morning: Rapid BG rise when I disconnect my pump to shower. I bolus for 10g before getting in the shower to combat this.

      1
      5 years ago Log in to Reply
    3. connie ker

      If numbers are low I use creamer, sugar free, and if they are higher, I forget the creamer. I never bolus for coffee at all, and use 1/2 package of Splenda or Stevia

      5 years ago Log in to Reply
    4. Nevin Bowman

      I do not need to bolus for the coffee, but I did a survey a year or so ago, and about 60% of those surveyed needed to bolus for black coffee.

      5 years ago Log in to Reply
    5. Ernie Richmann

      I bolus only for coffee first ting in the morning. I take 1 unit if I am at a bg of 110. More or less depending on my morning blood glucose reading. Black coffee in the morning can raise my blood sugar by 40 or more.

      5 years ago Log in to Reply
    6. Grey Gray

      I have to take 1 unit for my morning coffee. Which is 15 carb equivalent for me.. But do not see same effect if I drink coffee later in day. Thought it was dawn phenomenon until I tried to quit drinking coffee for a while and quit experiencing the rise.

      2
      5 years ago Log in to Reply
    7. Philip Bunsick

      Interesting. I use a small amount of milk with my coffee and never bolus and never have had an issue with BG rising due to coffee. As carbs are very low I have never had a problem but interesting to see that black coffee can increase BG on its own.

      5 years ago Log in to Reply
    8. Gary Taylor

      Coffee is the only explanation I have for the fact that my BG rises 50-60 points in the morning as I do not eat until later. I get up at 6:30 and do not eat until 9 or 10 am. Depending on my morning BG, I take one to two units of insulin to counter the coffee’s effect.

      1
      5 years ago Log in to Reply
    9. Sherolyn Newell

      Very interesting comments. I have weird morning readings a lot. Seems like if I get up around 100 or lower, my glucose always goes up. If I get up too high, say around 140, my glucose tends to do down. This is with no bolus or eating, only black coffee. I just figured it was normal diabetes weirdness. Or my liver trying to make up for not eating breakfast right off. Maybe it’s the coffee, but even that doesn’t explain the mornings that it goes down.

      1
      5 years ago Log in to Reply
    10. Beth Franz

      I drink black coffee off and on during the day – no bolus needed. However I do have feet on the floor effect that bounces me 20-25 points that requires a unit or so of rapid acting.

      5 years ago Log in to Reply
    11. George Lovelace

      The only thing I have in my Coffee is Extra Caffeine and hadn’t noticed any Bg issues other than the usual Dawn Phenomenon I’ve dealt with for 57 years. Using CIQ so maybe I’ll check records in there but I doubt it.

      5 years ago Log in to Reply
    12. Tod Herman

      My previous Endo advised me that coffee has a goofy effect on some people. I don’t drink black coffee because I love the sugar free flavored creamers. I only drink coffee in the mornings, and I drink two to three large cups (about five to six cups according to the coffee pot). My I:C ratio is pretty high, 1 to 6 carbs in the am, and with the creamer I take about 2.5 units extended over 1.5 hours (with an average glucose level of 100).

      5 years ago Log in to Reply
    13. Mike S

      At least 1 unit for a cup of coffee, even if I’m having nothing else. Time of day doesn’t seem to be a factor, it always raises my sugars.

      5 years ago Log in to Reply
    14. Jenny Richardson

      Only when I’m at work. My blood sugar tends to slowly rise while sipping coffee and working behind a desk. Just a unit or two keeps me in range. If I’m home moving around it’s not necessary.

      5 years ago Log in to Reply
    15. Tray Geiger

      This was a super interesting question to me as I never knew some people were affected by black coffee! I never have been (luckily!), and I’ve been experiencing what I call a revise dawn phenomenon for years. My basal rate is substantially lower from 5:00-7:00 AM than any other time. All of that to say, no, no bolus for the coffee itself.

      5 years ago Log in to Reply
    16. persevereT1D52

      Before I get out of bed every morning, I bolus for coffee with sugar free creamer. I have dawn phenomena and “feet on the floor” BG issues and that covers it all perfectly.

      5 years ago Log in to Reply
    17. Joanne Milo

      I just started to bolus this week, after noticing a spike in my Loop carb absorption screen. I only use 5g carb … it is dependent on what my current bg is. If I’m under 120, it doesn’t bolus.

      5 years ago Log in to Reply
    18. Bob Durstenfeld

      I drink tea, usually mid-morning and I do not see this phenomenon. This is very interesting. Thank you for the eye opening question.

      5 years ago Log in to Reply
    19. William Bennett

      For decades since DX I’ve bolused for my a.m. coffee (Splenda and light cream, no carbs) as 32 grams of carb. Which works but I’m not sure why. Except some years ago someone told me about a thing called “feet on the ground,” which is kind of like Dawn Phenomenon but kicks in after you get up and persists for an hour or so. So it may be that it’s actually that that I’m blousing for, maybe kicked up a bit by the effect of caffeine. But hey, it works.

      5 years ago Log in to Reply
      1. Germaine Sarda

        Everything you wrote is exactly how it is for me, even the way I take my coffee.

        5 years ago Log in to Reply
    20. Carol Meares

      I drink half caffeine coffee. My basal is set for dawn effect starting gradually from 3 am to 7:30 am with increased basal. I bolus .5 units for half caffeinated coffee and may bolus another .5 if the trend continues up after FOF. Unfortunately it is not always the same. But my BS will do from 90 or 100 to 130 and higher if I don’t intervene. This is with my black coffee alone. If I go out for a walk with my dog I will skip the second .5 dose.

      5 years ago Log in to Reply
    21. Becky Hertz

      I quit drinking coffee about 5 years ago because 1. It was too acidic for me and 2. I had to bolus 3 units to cover it, (2 shots of espresso), and this was decaf.

      5 years ago Log in to Reply
    22. Christina Trudo

      Yes, I bolus for three grams. For reasons unknown, there are times this seems a little too much… or not quite enough. So it goes.

      5 years ago Log in to Reply
    23. Julie Akawie

      Depends on the time of day, bG, and IOB. But, yes, I do on occasion bolus for coffee.

      5 years ago Log in to Reply
    24. Bonnie Lundblom

      I said “Other” since I bolus for the small amount (1-2 teaspoons) of milk I add to my coffee each morning to prevent my blood sugar spiking by 60-80 points if I don’t bolus, dawn phenomenon is my assumption.

      1
      5 years ago Log in to Reply
    25. Sally Numrich

      Coffee is always black, nothing added and I have never had issues with my coffee consumption. Even when I was a manager for Starbucks for many years, I never took insulin for my black coffee. Of course I had to for fancy espresso drinks but not my favorite black coffee.

      5 years ago Log in to Reply
    26. Patricia Dalrymple

      I drink international coffee, sugar free decaffeinated because caffeine gives me headaches. But the interesting part is it had 5 grams of carbs years ago. The company took it off the market and put it back on with zero carbs. I wish every company with a sugar free statement on their labels would do the same! Kudos to them.

      5 years ago Log in to Reply
    27. Mitch Chernoff

      Interesting to learn even black coffee may impact some. I always drink coffee black with no influence on my blood sugar.

      1
      5 years ago Log in to Reply
    28. Tina Roberts

      Black coffee raises my sugars like crazy! I have to bolus with 25 carbs every morning for my one cup of coffee.

      5 years ago Log in to Reply
    29. ConnieT1D62

      I usually drink 1 or 2 cups of coffee a day with a splash of regular milk: 1 cup in the early AM with breakfast and 1 cup later in the day with or w/o food – depends on my scheduled agenda for the day. I take 1 or 1.5 u to cover the coffee excursion.

      5 years ago Log in to Reply
    30. lorraine zephir

      i was told by the diabetic education to program 10 units of carbs due to coffee increasing blood sugar

      5 years ago Log in to Reply
    31. Leona Hanson

      I use to bolus for coffee because I use cream the found out when I did 30min later I would be really low .so I had to stop bolusing for coffee yes I would go up 40-60points and then come down just as quick

      5 years ago Log in to Reply
    32. Sahran Holiday

      Seeing the comments realizing why my adjustments for the milk in coffee and tea were insufficient especially the giant iced coffee.

      5 years ago Log in to Reply
    33. Sealani Weiner

      The prejudice of people…..I am a tea drinker!! (This is humor people…)
      I don’t bolus for the tea but I do bolus for the combination of stevia, KITU super creamer, cream, and premier protein vanilla I put in there. ADD nutmeg and cinnamon on top. (and that is my fill of chemicals for the day.)
      I am finding lately that I have to give myself coverage for 15 units of carbs. Each one has just a small amount of carbs, but combined, they can throw me up fairly quickly.

      5 years ago Log in to Reply
    34. Cheryl Seibert

      Coffee doesn’t affect my BG

      5 years ago Log in to Reply
    35. CindyGoddard

      I bolus for coffee 1.5 units for 14oz of coffee. I’m never sure if it is Dawn phenomenon or for the coffee.

      1
      5 years ago Log in to Reply

    If you drink coffee, do you bolus for the coffee itself (not any of the additional cream/sugar)? Share your tips for how to bolus for coffee in the comments! Cancel reply

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