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    • 2 hours, 14 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 4 hours, 8 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 5 hours, 33 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 6 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 6 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 6 hours, 51 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 18 hours, 40 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 18 hours, 41 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 19 hours, 55 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 23 hours, 28 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 23 hours, 29 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 2 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 2 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 2 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 2 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 2 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 3 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 3 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 4 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 7 hours ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 7 hours ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
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    How old were you when you were first diagnosed with T1D?

    Home > LC Polls > How old were you when you were first diagnosed with T1D?
    Previous

    If you wear an insulin pump, how often do you carry a backup method of insulin delivery when you leave your home? (I.e. supplies for a pump site change, an insulin pen, syringes, etc.)

    Next

    On a scale of 1-5, how satisfied are you with your current T1D therapy regimen? (5 = the most satisfied, 1 = the least satisfied)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. gordon girdwood

      12 years old

      5 years ago Log in to Reply
    2. Kristen Clifford

      I was diagnosed eight days before my 24th birthday.

      5 years ago Log in to Reply
    3. Amanda Barras

      Looks like so many get it as older kids! I just barely had turned 4.

      1
      5 years ago Log in to Reply
    4. Shannon Barnaby

      13

      5 years ago Log in to Reply
    5. Rose Lentzke

      4

      1
      5 years ago Log in to Reply
    6. Greg Felton

      I was a juvenile, back when T1D was called juvenile diabetes. I’m glad I was diagnosed at age 5 rather than 25, honestly.

      5 years ago Log in to Reply
    7. Kristine Warmecke

      I was 11, my brother was 7 months old & his oldest daughter was 23 months old when we were diagnosed.

      5 years ago Log in to Reply
    8. Beckett Nelson

      I was diagnosed on my 10th birthday. Easy to remember the date

      5 years ago Log in to Reply
    9. Kaylea Bowers

      I was almost 11, little sister was 11 and little brother was 16 at our diagnoses.

      5 years ago Log in to Reply
    10. Nevin Bowman

      4

      1
      5 years ago Log in to Reply
    11. Christina Trudo

      I was 11. this summer I celebrate 59 years LIVING with it. (I have a brother who was diagnosed at 18, and his son was diagnosed at 4. )

      5 years ago Log in to Reply
    12. Ceolmhor

      72. I’m 77 now. Our oldest son was diagnosed with T1D at age 29. I like to say that I inherited it from him. 🙂

      5 years ago Log in to Reply
    13. Jana Foley

      I was just turning 61 when I received an accurate diagnosis, but was misdiagnosed as a T2 twenty years earlier. My two youngest children were diagnosed at 11 and 6 however. They were diagnosed at just three months and four days apart.

      5 years ago Log in to Reply
    14. Janis Senungetuk

      8 yrs old

      5 years ago Log in to Reply
    15. Angela Naccari

      I was 6 years old. 60 year ago in November!

      5 years ago Log in to Reply
    16. ConnieT1D62

      I was diagnosed at age 8 in late December 1962.

      5 years ago Log in to Reply
    17. Ann Taylor

      I was diagnosed at age 62 on July 2, 2015. Not too many of us older ones

      5 years ago Log in to Reply
    18. Sally Numrich

      8

      5 years ago Log in to Reply
    19. Daniel Bestvater

      I was a bit of an odd T1D. Some symptoms and elevated BG appeared at about 13 and it was somewhat controlled by diet and exercise until I was 15.
      Right on my 15th birthday I ended up in the hospital and started insulin. I’m now 58 so I guess type 1 for 43-45 years.

      5 years ago Log in to Reply
    20. Tracy Jean

      22

      5 years ago Log in to Reply
    21. Nicole Libby

      1 month before my 54th birthday.

      5 years ago Log in to Reply
    22. William Bennett

      I was. in grad school and had just turned 28. I thought the symptoms must have something to do with exam and paper writing pressure as it was near end of term. Came on pretty suddenly–over a few weeks–and I had no idea what it was. Fortunately my wife mentioned it to my m-i-l, an occupational therapist, and she said “Get him to a dr stat!” This was back in 1983 and the “Type” nomenclature wasn’t instituted yet, though my Dr told me about it by way of explaining that the auto-immune kind doesn’t track with age. So it says “Juvenile type” on my record.

      1
      5 years ago Log in to Reply
      1. Henry Renn

        Dx in 1955, age 4 yr, 7 mos. Called Juvenile Diabetes no matter what the age of the person. Tyoe 2 was adult onset. Later I remember Insulin Dependent Diabetes. I have tried to stay fairly educated about Diabetes. I think bc the disease has been nearly lifelong I didn’t note points of change in terminology.

        5 years ago Log in to Reply
    23. KarenM6

      I had just turned 5 and was in the hospital from Thanksgiving until Christmas Eve.

      5 years ago Log in to Reply
    24. Ernie Richmann

      At 57 I was diagnosed as diabetic. Within 2 more years, I was diagnosed type 1.

      5 years ago Log in to Reply
    25. Sasha Wooldridge

      Diagnosed T1 at 21 years old.

      5 years ago Log in to Reply
    26. Holly Miller

      I was 12yo (1975) and our daughter was 9yo (2006) when dx’d. The differences in our initial experiences with T1D were HUGE. I decided to learn the ‘new’ management techniques with fresh eyes, even though I was well-controlled on a pump for the previous 13 years. Now we’re our own support group!

      5 years ago Log in to Reply
    27. James Goldman

      I had just turned 5 in 1957. I was very fortunate to have Drs. Joslin, White and Krall as my early physicians in Boston.

      5 years ago Log in to Reply
    28. Ahh Life

      4. (👍 ͡❛ ᴗ ͡❛)👍 Thumbs up to all you 4-year-olds. That was 70 years ago for me . . . . . . during the technological ice age. Biggest first advance was test-tape in 1956, ref. https://www.washingtonpost.com/local/obituaries/helen-murray-free-dead/2021/05/04/7757199a-ace8-11eb-b476-c3b287e52a01_story.html

      5 years ago Log in to Reply
    29. Bruce Schnitzler

      Diagnosed in 1951 when I was five years old

      1
      5 years ago Log in to Reply
    30. Leona Hanson

      I was in my early 30s when diagnosed with t1d.was 7 when diagnosed with pre diabetic

      5 years ago Log in to Reply
    31. Megan L

      I was 3. A few days marked 25 years.

      5 years ago Log in to Reply

    How old were you when you were first diagnosed with T1D? Cancel reply

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