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    • 10 hours, 36 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 10 hours, 36 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 11 hours, 52 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 11 hours, 52 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 11 hours, 52 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 11 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 11 hours, 55 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 55 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 11 hours, 55 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 13 hours, 57 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 14 hours, 35 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 14 hours, 35 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 15 hours, 18 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 15 hours, 40 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 16 hours, 4 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 16 hours, 4 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 16 hours, 5 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 16 hours, 20 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 17 hours, 21 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 17 hours, 21 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 8 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 8 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 8 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 14 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?

    Home > LC Polls > How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?
    Previous

    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Next

    In honor of National Neuropathy Awareness Week, have you been diagnosed with neuropathy? If you have tips for how to manage neuropathy, please share them in the comments.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. LizB

      My PCP and endo have both done it occasionally but not on any set schedule.

      5 years ago Log in to Reply
    2. george lovelace

      T1 57 yrs, used to be a yearly check but neuropathy progressed so far haven’t checked for years – “It’s Dead, Jim”

      1
      5 years ago Log in to Reply
    3. Sahran Holiday

      Except my feeling was uneven a few years ago. Endocrinologist said that was extremely unusual. Since then always OK. Maybe shoes.

      5 years ago Log in to Reply
    4. Don P

      Haven’t seen any health care providers for more than two years because of Covid, phone contact only. T1 65+ a few yrs with no complications, just had an eye exam & all is GREAT.

      1
      5 years ago Log in to Reply
    5. cynthia jaworski

      So they can screen. Can somebody please explain what good comes out of it?

      5 years ago Log in to Reply
    6. Sally Numrich

      Every visit both endo & PCP make me take off shoes so they can check feet. Not every visit for all of the above but something is done every visit. Thankfully no problems with neuropathy.

      5 years ago Log in to Reply
    7. Bonnie Lundblom

      My current endocrinologist has only checked my feet once at my initial appointment 4 years ago. She knows I’ve seen podiatrist twice in the past 4 years and he did check for neuropathy. My A1C’s have been good for years now is why I think she hasn’t checked recently as well as the online telehealth visits made checking impossible.

      5 years ago Log in to Reply
    8. Janis Senungetuk

      My endo checked me at my 90 day exam last month. I passed. At previous exams I’ve told her that I’ve been awakened by “electric shock” pain in my toes at night. Because I continue to “pass” the neuropathy screening, there’s no response when I’ve mentioned the discomfort. Sixty-six years living with T1 has left me with nerve damage in my hands, shoulders and feet…but I’ve never received a dx of neuropathy.

      1
      5 years ago Log in to Reply
    9. ConnieT1D62

      At least once a year as an obligatory exam to meet health insurance and Medicare guidelines. However, it is a mute point because I have had progressive, but stable, peripheral neuropathy for years. It hasn’t gotten any better or any worse. It just is what it is. I see a podiatrist every 60 days for ongoing follow-up care – he keeps track of any subtle nerve damage progression or structural changes in my feet.

      5 years ago Log in to Reply
    10. KarenM6

      They used to do the monofilament test and the tuning fork test once a year. But, I haven’t had it done since my PA changed a number of years ago. And, now that appointments are done only online, it’s not likely to get done anytime soon.

      5 years ago Log in to Reply
    11. Jneticdiabetic

      I’ve had T1D for 25 years and I think I’ve only had a monofilament test maybe 2-3 times, when I bought up symptoms of cold feet and foot swelling. Otherwise, the foot exam has been mostly a quick annual look and check of pedal pulses, which have been good. As others have mentioned no physical check-ups in the last year due to COVID.

      5 years ago Log in to Reply
    12. Kelly Steiner

      Used to be annually, but hasn’t been done in the last 4 years or so….

      5 years ago Log in to Reply
    13. Beckett Nelson

      It was every visit, but it’s been a while since covid started since appointments have all been by phone

      5 years ago Log in to Reply
    14. Henry Renn

      I see Podiatrist every 3 months who sends report to T1D care provider.

      5 years ago Log in to Reply
    15. sara falconer

      Back when I had an actual endocrinologist, and not a mirror resident, he tested my feet at every visit. The resident, who I’ve had to deal with for the last two years, tells me that I have to go to Podiatry for that.

      5 years ago Log in to Reply
    16. Glenda Schuessler

      Pre-Covid my Endo would test at each visit, approximately every 6 months.

      5 years ago Log in to Reply
    17. Molly Jones

      I don’t remember ever being tested, but my memory is poor

      5 years ago Log in to Reply

    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet? Cancel reply

    You must be logged in to post a comment.




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