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    • 15 hours, 3 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 15 hours, 5 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 15 hours, 6 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 15 hours, 6 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 15 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 17 hours, 7 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 17 hours, 8 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours, 10 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 10 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 12 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 58 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    How often do you typically make updates to your basal rate (whether with your doctor’s guidance or on your own)?

    Home > LC Polls > How often do you typically make updates to your basal rate (whether with your doctor’s guidance or on your own)?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Ahh Life

      We once had a rocket scientist who had 23 or 24 different basal rates per day, I wonder how many time she updated hers? 🙈 🙈 🙈

      5 years ago Log in to Reply
    2. Kathy Hanavan

      I go back and forth between different profiles at least once daily for exercise, but update each profile maybe a few times/year.

      5 years ago Log in to Reply
    3. Gerald Oefelein

      My t:slim x2 adjusts basal rates frequently in response to Dexcom G6 CGM data.

      5 years ago Log in to Reply
    4. Dave Akers

      I notice when I travel to higher altitudes (Lake Tahoe) I tend to decrease my basal slightly. Or it could be due to vacation and less daily stresses… either way.

      5 years ago Log in to Reply
    5. Sherolyn Newell

      I have a couple different ones for time of the day, but I only make permanent changes after an enduring trend shows up. I make temporary adjustments as needed, but I didn’t take the question to mean that.

      5 years ago Log in to Reply
    6. connie ker

      I have trouble throwing insulin in the trash after 28 days, and was told by the endo NP if you keep it cold, it will be fine for 42 days. With the high cost of insulin, it is like throwing gold in the trash. Short acting seems to last well til gone, Long acting seems to become weaker before gone. I am on MDI with 2 kinds of insulin, but am in a good routine that works.

      5 years ago Log in to Reply
    7. Grey Gray

      Before cgm I had to change them in the summer or when job physical or stress demands changed. When I started cgm I got obsessed did it alot gave up and tried minimed 670 auto mode. I don’t mind having an a1c of 7 when my time in range is 70% with only 1 or 2 hypoglycemic episodes a month. I’m happy and no longer hypoglycemic alot of the time. Always trying to chase the bg to get an 8 or so. I wonder how much extra insulin you use for the stress of worrying about your blood sugar 🤔

      5 years ago Log in to Reply
    8. Liz Avery

      My Endo used to change my basal every season. Now with more than 15 years pumping, he ignores most of the seasonal changes. My last basal change was due to a trend of hypoglycemia an hour after meals in the evening. I believe some of this is due to aging and the condition of my stomach/digestion. Like others I stay in the 7 range for A1C. 55 years and counting.

      5 years ago Log in to Reply
    9. kristina blake

      It depends on any worrisome trends I might see. I upload my Tandem/Dexcom data once a month and look at he reports. If I notice a consistent issue (higher than I like or lower than I like) I will tweak the basal rate around that time zone. I have 9 “time zones” for basal, ISF and carb:insulin ratios.

      5 years ago Log in to Reply
    10. George Hamilton

      I wear a Tandem X2 pump running Control-IQ, so that system changes Basal rates as needed. I only change the default rates when I see a longer term pattern where the Basal rates are regularly too high or too low. I try to review that about once a month, but I rarely modify them.

      5 years ago Log in to Reply
    11. Jana Foley

      While I use the Tandem X2 with Control IQ which can make temporary changes to my basel rate, I also make manual changes wherever my endo thinks we need to.

      5 years ago Log in to Reply
    12. Becky Hertz

      When changes are warranted.

      5 years ago Log in to Reply
    13. LuckyPineapple

      17 years and I’m still sitting well at the same amount of lantus that was given to me when I was diagnosed!

      5 years ago Log in to Reply
    14. Nick Trubov

      Whenever I feel that it is needed

      5 years ago Log in to Reply
    15. Eve Rabbiner

      I change my basal as needed. Don’t need anyone’s input or approval.

      5 years ago Log in to Reply
    16. Patricia Dalrymple

      I have about 3 standard rates I use for various times of the day. I also have a high activity rate and a low one, preset. The high activity I use when doing more than my usual amount of exercise, every time I vacuum my house because that always makes me go low, and the first day I change my insulin reservoir in my pump – always go low then to. Then, I use low activity when I eat a high carb meal. My doctor and I are always tweaking. Sometimes he tweaks and I tweak back.

      5 years ago Log in to Reply
    17. carol Huhn

      I’m in the process of backing down my Tresiba (I use MDI along with a Dexcom G6). I don’t consult my Endocrinologist before doing so.

      5 years ago Log in to Reply
    18. Nicole Alexander

      I don’t update it too often but I have a couple patterns set.

      5 years ago Log in to Reply
    19. Steven Gill

      Started shots during the medical trials, was told I needed to control my own doses. I’ve adjusted my own BOLUS through the years although may call the doc or tell them the next visit. I chose several times a week because I have a temp bolus set (might be in a crawlspace out tear a house apart) unsure of that answers correctly. Generally a unit or so ever 3-4 years (started LANTUS 22 years ago at 9 units, just before pumping up the 15). This post year was the most dramatic, from 14 units a day to 25 after that 7-8 week flu last spring. My temp BASAL it’s still 50%.

      5 years ago Log in to Reply

    How often do you typically make updates to your basal rate (whether with your doctor’s guidance or on your own)? Cancel reply

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