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    • 6 minutes ago
      Sue Martin likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I use an InPen. Tracts my doses and gives report just like a pump. IOB total insulin etc.
    • 1 hour, 29 minutes ago
      Kris Sykes-David likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 1 hour, 49 minutes ago
      beth nelson likes your comment at
      Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing? Share what works best for you in the comments!
      I’m looking for an app that reminds me of basal doses that keeps the time static as you change time zones. For example, I recently travelled to London. My normal basal dose is at 8 PM at home but currently 1 AM in the UK. The Apple Health app reminded me to take it at 8 PM London time instead of 1 AM. I really just want an app that reminds me at the same time my body is set at without making me think about it.
    • 2 hours, 36 minutes ago
      Mick Martin likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      Echo Mick Martin. Gastroparesis? Try ondonestron (sp?) one of the 10 best medicines ever invented. Also, "a forever learning curve" and "If in doubt, pull it out."
    • 18 hours, 32 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 18 hours, 39 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 19 hours, 5 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 41 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 23 hours, 41 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 1 day ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 16 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 18 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
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    How often do you need to ration your insulin supplies because you’re concerned you could not afford to use it as prescribed?

    Home > LC Polls > How often do you need to ration your insulin supplies because you’re concerned you could not afford to use it as prescribed?
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    During which types of exercise and/or physical activities do you feel most confident in your ability to maintain comfortable blood glucose levels? Select all that apply!

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    For people who use a CGM that does not typically require calibrations: If you were to spend 4 hours away from home but still in your local area (e.g., an afternoon of running errands around town, or going out for dinner and a movie), would you bring a glucose meter with you just in case?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. bobo

      I read this question as “Diabetic Supplies” and lacking a pancreas, the cost of Creon which is ~ $600 with insurance and $1400 without for 3 months is awful. My endo says this used to be $5 per month. What happened?

      1
      9 months ago Log in to Reply
    2. Liz Avery

      Prior to Medicare I seldom rationed my supplies. Now, I don’t feel confident that my suppliers and I can navigate Medicare requirements without interruptions in service that just are not tolerable. I am finally getting insulin at no cost through Walmart. My pump and CGM supplies as well as test strips have been an issue.

      4
      9 months ago Log in to Reply
    3. Kristine Warmecke

      I have rationed my insulin since 2018, except for 2 months this year, when after 2 years of fighting UHC, my endocrinologist team and I got it under $10 for 60 days. 11 days before my next refill, they add Novolog as a Tier 4 drug, making it over $200 for a 30 day supply. Unaffordable on a fixed income. I’m on the Nova nordisc Patient Help, but still ration because I was never informed if it was a one time thing or if I’ll receive more.

      4
      9 months ago Log in to Reply
      1. Wanacure

        Effing OUTRAGEOUS!

        2
        9 months ago Log in to Reply
    4. Jane Cerullo

      Believe me I am well aware how lucky I am to have insurance. As a nurse I have seen what can happen if insulin has to be rationed or skipped.

      8
      9 months ago Log in to Reply
      1. Kristine Warmecke

        I have insurance, too. As a nurse I’ve also had patients tell me how and where they get supplies and it not from a pharmacy or DMR supplier. It’s outrageous anyone living in a supposedly 1st world country should have to worry about being able to get insulin.

        1
        9 months ago Log in to Reply
    5. Mick Martin

      Never. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my prescription costs are met by our NHS (National Health Service), which is funded via direct taxation of all working people.

      7
      9 months ago Log in to Reply
      1. Wanacure

        Thanks, Mick. Please keep reminding us of other non-profit health delivery systems. The Swiss let non-profit health insurance companies compete for subscribers. Why not donate $25 to Medicare for All or Physicians for a National Health Care Program? Why not support politicians signed on to Medicare for All? DEMAND A RESPONSE FROM YOUR SENATORS AND REPRESENTATIVE on Medicare For All. Call them and email them, even better lobby them in person.

        1
        9 months ago Log in to Reply
      2. Mick Martin

        Dear Wanacure,

        I’d gladly demand a response from Senators and/or Representatives, but I’m afraid they’re highly unlikely to ‘listen’ to someone that comes from a country where we have a National Health System that doesn’t charge diabetics … and some other medical conditions … anything for their prescription requirements.

        9 months ago Log in to Reply
    6. stillarobyn

      I have in the past, but i am in a position to pay the premium for insurance that ensures I won’t need to do that as long as I have access.

      1
      9 months ago Log in to Reply
    7. Andrew Aronoff

      Never. I live in France, where T1D is an “ALD” (affection de longue durée, a long-term illness). People with ALD’s pay nothing for the medicine that keeps them alive. (OK, I pay 1 euro every time I fill my prescriptions at the drugstore. That’s per drugstore visit, not per prescription.) The French health system is paid for by contributions from everyone who works and their employers. It’s not cheap, but no diabetic in France has to worry about paying for insulin prescribed by their doctor. FWIW, the unemployed and homeless don’t contribute, but receive the same benefits.

      11
      9 months ago Log in to Reply
      1. Ahh Life

        N’est pas.

        9 months ago Log in to Reply
      2. Lawrence S.

        It makes a lot of sense to me.

        9 months ago Log in to Reply
    8. Carolann Hunt

      Supply chain issue are the problem, not cost, although if we had universal health care this stuff would be priced more reasonably

      1
      9 months ago Log in to Reply
    9. Nicholas Argento

      Never, but there but the grace of God, go I….

      1
      9 months ago Log in to Reply
    10. mojoseje

      I ration my pump supplies. I use my infusion sets for 3 days rather than two but, because of this, my scar tissue is building up and who knows how long until I won’t have anywhere to insert them.
      I also take a week off from CGM to stretch them out.
      Fun time to be a T1 diabetic in the U.S.A.

      1
      9 months ago Log in to Reply
    11. Ernie Richmann

      Only time I rationed was because of delivery hold ups.

      9 months ago Log in to Reply
    12. Drina Nicole Jewell

      It’s happened a few times in the past. But that was several years ago.

      9 months ago Log in to Reply
    13. Gary Taylor

      I am fortunate to have good health insurance. I pay $150 for a 3-month supply, 7 bottles for me, which works out to about $21/bottle.

      9 months ago Log in to Reply
    14. cynthia jaworski

      I said never. But I have been unexpectedly confronted with costs of around $800 for my 3 month supply of 1 of my insulins. I put it on my credit card, and complained about it to anybody who would listen. Costs have come down, bit by bit, since that peak. If this had happened to me when I was younger, it would have been a huge problem. As it is, I am old and frugal.
      I do occasionally worry about using up my insulin before the insurance company feels it is a suitable time for a refill.

      9 months ago Log in to Reply
    15. Louise Robinson

      I was diagnosed a Type 1 in 1976 and transitioned from MDI to my first insulin pump in 2011. Prior to going on Medicare (about 7 years ago), I had no issues with getting the supplies I needed to manage my diabetes. Unfortunately, that has not been my experience with Medicare. I did not begin using a CGM until 2019 and was testing my BG 8X.day to make adjustments. It took me about 18 months of appeals of Medicare denials to obtain the number of test strips I needed to stay in control. In June of 2021, I noticed that on Day 3 of many (not all) of my infusion sites, my BG would go much higher despite eating fewer or no carbs. I concluded that my body wasn’t absorbing the insulin as well and an early site change was needed. Medicare ONLY provides 30 infusion sets and reservoirs/cartridges every 3 months, so, if I changed early, I would run out unless I was able to obtain Medicare approval for earlier site changes. I provided my endo with my documentation supporting this need yet, Medicare would not accept his case notes in support of increasing my pump supplies. After several failed attempts, I concluded I needed to change Endo and did so in January. Yet, the new endo hasn’t been able to write case notes that Medicare will accept, so, I am forced to continue using a site that doesn’t work well unless I pay for the extra infusion sets myself. (I was an analyst in my former career and had provided charts showing the deterioration of my BG readings on Day 3 despite lower carb intake and higher insulin usage than on Days 1 and 2. Not sure what else I could do.) What I have done in order to attempt to maintain control is create an additional Personal Profile on my Tandem X2 w/Control IQ. I call it “Day 3”. (And perhaps that is the problem….I do manage to control my diabetes despite these hurdles placed in my path.) The Total Daily Basal delivery on my Day 3 Profile is nearly double (+90.1%) the TDB on my regular “Louise” profile used on Days 1 and 2. It should NOT be this difficult to obtain the supplies we need!

      3
      9 months ago Log in to Reply
      1. Kristine Warmecke

        Preaching to choir, here. It’s ridiculous what one must do to get what they need, when on a Medicare Advantage plan.

        9 months ago Log in to Reply
    16. William Bennett

      I said never, cause it’s not rationing per se, but I recently had to resort to using expired insulin from my backup supplies for my pump because I couldn’t get Medicare to supply it under Part B (DME) as they’re supposed to do when it’s for use in a pump. Ended up having to pay a pretty high deductible and get it under my pharm coverage because they still haven’t straightened this out.

      1
      9 months ago Log in to Reply
    17. Kathy Morison

      Ive not been faced with rationing as of yet but now on Aetna Medicare the cost of both my insulins have drastically gone up in the 2nd quarter with having to meet this astronomical deductible before the cost goes back down. I managed to stockpile several boxes while my husband was still working. But, now that he’s retired, were both fighting the high cost since he’s type 2 needing his own meds.

      2
      9 months ago Log in to Reply
    18. PamK

      The only time I have ever thought of doing this was when I was without insurance. I didn’t, but the thought did occur to me. I’m just not sure how/why someone would do this!

      9 months ago Log in to Reply
    19. Patricia Kilwein

      I marked all the time. In the middle of switching from private insurance to Medicare. Nuf said.

      9 months ago Log in to Reply
    20. sweet charlie

      NEVER !!! Why when I started 70 years ago, my insulin cost per month was less than an hour of my wages.. My syringe was glass that I boiled every morning along with the needle that I sharpened on the striker paper of a matchbook!!!! Lets see what is really going to happen when Joes law takes over..I have not really looked at the details… $35 per month for insulin… what about the cost and problems of pump, Cgm, etc that so many are using???

      9 months ago Log in to Reply

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