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    • 1 hour, 7 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 58 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 3 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 4 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 5 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 7 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 15 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 21 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 22 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 23 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 40 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 41 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 41 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 41 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 42 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 3 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 33 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 47 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 55 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 57 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 21 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    How often do you need to ration your insulin supplies because you’re concerned you could not afford to use it as prescribed?

    Home > LC Polls > How often do you need to ration your insulin supplies because you’re concerned you could not afford to use it as prescribed?
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    During which types of exercise and/or physical activities do you feel most confident in your ability to maintain comfortable blood glucose levels? Select all that apply!

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    For people who use a CGM that does not typically require calibrations: If you were to spend 4 hours away from home but still in your local area (e.g., an afternoon of running errands around town, or going out for dinner and a movie), would you bring a glucose meter with you just in case?

    Sarah Howard

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    27 Comments

    1. bobo

      I read this question as “Diabetic Supplies” and lacking a pancreas, the cost of Creon which is ~ $600 with insurance and $1400 without for 3 months is awful. My endo says this used to be $5 per month. What happened?

      1
      5 months ago Log in to Reply
    2. Liz Avery

      Prior to Medicare I seldom rationed my supplies. Now, I don’t feel confident that my suppliers and I can navigate Medicare requirements without interruptions in service that just are not tolerable. I am finally getting insulin at no cost through Walmart. My pump and CGM supplies as well as test strips have been an issue.

      4
      5 months ago Log in to Reply
    3. Kristine Warmecke

      I have rationed my insulin since 2018, except for 2 months this year, when after 2 years of fighting UHC, my endocrinologist team and I got it under $10 for 60 days. 11 days before my next refill, they add Novolog as a Tier 4 drug, making it over $200 for a 30 day supply. Unaffordable on a fixed income. I’m on the Nova nordisc Patient Help, but still ration because I was never informed if it was a one time thing or if I’ll receive more.

      4
      5 months ago Log in to Reply
      1. Wanacure

        Effing OUTRAGEOUS!

        2
        5 months ago Log in to Reply
    4. Jane Cerullo

      Believe me I am well aware how lucky I am to have insurance. As a nurse I have seen what can happen if insulin has to be rationed or skipped.

      8
      5 months ago Log in to Reply
      1. Kristine Warmecke

        I have insurance, too. As a nurse I’ve also had patients tell me how and where they get supplies and it not from a pharmacy or DMR supplier. It’s outrageous anyone living in a supposedly 1st world country should have to worry about being able to get insulin.

        1
        5 months ago Log in to Reply
    5. Mick Martin

      Never. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my prescription costs are met by our NHS (National Health Service), which is funded via direct taxation of all working people.

      7
      5 months ago Log in to Reply
      1. Wanacure

        Thanks, Mick. Please keep reminding us of other non-profit health delivery systems. The Swiss let non-profit health insurance companies compete for subscribers. Why not donate $25 to Medicare for All or Physicians for a National Health Care Program? Why not support politicians signed on to Medicare for All? DEMAND A RESPONSE FROM YOUR SENATORS AND REPRESENTATIVE on Medicare For All. Call them and email them, even better lobby them in person.

        1
        5 months ago Log in to Reply
      2. Mick Martin

        Dear Wanacure,

        I’d gladly demand a response from Senators and/or Representatives, but I’m afraid they’re highly unlikely to ‘listen’ to someone that comes from a country where we have a National Health System that doesn’t charge diabetics … and some other medical conditions … anything for their prescription requirements.

        5 months ago Log in to Reply
    6. stillarobyn

      I have in the past, but i am in a position to pay the premium for insurance that ensures I won’t need to do that as long as I have access.

      1
      5 months ago Log in to Reply
    7. Andrew Aronoff

      Never. I live in France, where T1D is an “ALD” (affection de longue durée, a long-term illness). People with ALD’s pay nothing for the medicine that keeps them alive. (OK, I pay 1 euro every time I fill my prescriptions at the drugstore. That’s per drugstore visit, not per prescription.) The French health system is paid for by contributions from everyone who works and their employers. It’s not cheap, but no diabetic in France has to worry about paying for insulin prescribed by their doctor. FWIW, the unemployed and homeless don’t contribute, but receive the same benefits.

      11
      5 months ago Log in to Reply
      1. Ahh Life

        N’est pas.

        5 months ago Log in to Reply
      2. Lawrence S.

        It makes a lot of sense to me.

        5 months ago Log in to Reply
    8. Carolann Hunt

      Supply chain issue are the problem, not cost, although if we had universal health care this stuff would be priced more reasonably

      1
      5 months ago Log in to Reply
    9. Nicholas Argento

      Never, but there but the grace of God, go I….

      1
      5 months ago Log in to Reply
    10. mojoseje

      I ration my pump supplies. I use my infusion sets for 3 days rather than two but, because of this, my scar tissue is building up and who knows how long until I won’t have anywhere to insert them.
      I also take a week off from CGM to stretch them out.
      Fun time to be a T1 diabetic in the U.S.A.

      1
      5 months ago Log in to Reply
    11. Ernie Richmann

      Only time I rationed was because of delivery hold ups.

      5 months ago Log in to Reply
    12. Drina Nicole Jewell

      It’s happened a few times in the past. But that was several years ago.

      5 months ago Log in to Reply
    13. Gary Taylor

      I am fortunate to have good health insurance. I pay $150 for a 3-month supply, 7 bottles for me, which works out to about $21/bottle.

      5 months ago Log in to Reply
    14. cynthia jaworski

      I said never. But I have been unexpectedly confronted with costs of around $800 for my 3 month supply of 1 of my insulins. I put it on my credit card, and complained about it to anybody who would listen. Costs have come down, bit by bit, since that peak. If this had happened to me when I was younger, it would have been a huge problem. As it is, I am old and frugal.
      I do occasionally worry about using up my insulin before the insurance company feels it is a suitable time for a refill.

      5 months ago Log in to Reply
    15. Louise Robinson

      I was diagnosed a Type 1 in 1976 and transitioned from MDI to my first insulin pump in 2011. Prior to going on Medicare (about 7 years ago), I had no issues with getting the supplies I needed to manage my diabetes. Unfortunately, that has not been my experience with Medicare. I did not begin using a CGM until 2019 and was testing my BG 8X.day to make adjustments. It took me about 18 months of appeals of Medicare denials to obtain the number of test strips I needed to stay in control. In June of 2021, I noticed that on Day 3 of many (not all) of my infusion sites, my BG would go much higher despite eating fewer or no carbs. I concluded that my body wasn’t absorbing the insulin as well and an early site change was needed. Medicare ONLY provides 30 infusion sets and reservoirs/cartridges every 3 months, so, if I changed early, I would run out unless I was able to obtain Medicare approval for earlier site changes. I provided my endo with my documentation supporting this need yet, Medicare would not accept his case notes in support of increasing my pump supplies. After several failed attempts, I concluded I needed to change Endo and did so in January. Yet, the new endo hasn’t been able to write case notes that Medicare will accept, so, I am forced to continue using a site that doesn’t work well unless I pay for the extra infusion sets myself. (I was an analyst in my former career and had provided charts showing the deterioration of my BG readings on Day 3 despite lower carb intake and higher insulin usage than on Days 1 and 2. Not sure what else I could do.) What I have done in order to attempt to maintain control is create an additional Personal Profile on my Tandem X2 w/Control IQ. I call it “Day 3”. (And perhaps that is the problem….I do manage to control my diabetes despite these hurdles placed in my path.) The Total Daily Basal delivery on my Day 3 Profile is nearly double (+90.1%) the TDB on my regular “Louise” profile used on Days 1 and 2. It should NOT be this difficult to obtain the supplies we need!

      3
      5 months ago Log in to Reply
      1. Kristine Warmecke

        Preaching to choir, here. It’s ridiculous what one must do to get what they need, when on a Medicare Advantage plan.

        5 months ago Log in to Reply
    16. William Bennett

      I said never, cause it’s not rationing per se, but I recently had to resort to using expired insulin from my backup supplies for my pump because I couldn’t get Medicare to supply it under Part B (DME) as they’re supposed to do when it’s for use in a pump. Ended up having to pay a pretty high deductible and get it under my pharm coverage because they still haven’t straightened this out.

      1
      5 months ago Log in to Reply
    17. Kathy Morison

      Ive not been faced with rationing as of yet but now on Aetna Medicare the cost of both my insulins have drastically gone up in the 2nd quarter with having to meet this astronomical deductible before the cost goes back down. I managed to stockpile several boxes while my husband was still working. But, now that he’s retired, were both fighting the high cost since he’s type 2 needing his own meds.

      2
      5 months ago Log in to Reply
    18. PamK

      The only time I have ever thought of doing this was when I was without insurance. I didn’t, but the thought did occur to me. I’m just not sure how/why someone would do this!

      5 months ago Log in to Reply
    19. Patricia Kilwein

      I marked all the time. In the middle of switching from private insurance to Medicare. Nuf said.

      5 months ago Log in to Reply
    20. sweet charlie

      NEVER !!! Why when I started 70 years ago, my insulin cost per month was less than an hour of my wages.. My syringe was glass that I boiled every morning along with the needle that I sharpened on the striker paper of a matchbook!!!! Lets see what is really going to happen when Joes law takes over..I have not really looked at the details… $35 per month for insulin… what about the cost and problems of pump, Cgm, etc that so many are using???

      5 months ago Log in to Reply

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