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    • 12 hours, 56 minutes ago
      John Henninger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 13 hours, 11 minutes ago
      ChrisW likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      I was recruited by the CIA when I graduated from college and was well into the process when somebody asked me why my draft status was 4F. I was out the door about an hour later.
    • 13 hours, 12 minutes ago
      ChrisW likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      I was diagnosed with t1 41 years ago. I was told to NOT have children. But I did not listen and had two healthy children.
    • 13 hours, 40 minutes ago
      ChrisW likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 14 hours, 13 minutes ago
      ChrisW likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 14 hours, 17 minutes ago
      ChrisW likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 14 hours, 25 minutes ago
      ChrisW likes your comment at
      Has your cost of insulin changed in 2025?
      Price is OK. But the bureaucratic migraine is amplified a hundred fold. ᕙ( •̀ ᗜ •́ )ᕗ
    • 18 hours, 41 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 18 hours, 42 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 19 hours, 14 minutes ago
      Kathy Hanavan likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 19 hours, 35 minutes ago
      Bill Williams likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 19 hours, 42 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 19 hours, 42 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 19 hours, 51 minutes ago
      John Barbuto likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 1 day, 10 hours ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 17 hours ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 1 day, 17 hours ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 1 day, 19 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 1 day, 19 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 1 day, 22 hours ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 2 days ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 2 days, 11 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
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    How often do you experience alarm fatigue?

    Home > LC Polls > How often do you experience alarm fatigue?
    Previous

    If you live with T1D, does another family member have a T1D diagnosis too? Choose all that apply.

    Next

    Before you were diagnosed with T1D, how long were you experiencing “T1D-related” symptoms?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    23 Comments

    1. Tod Herman

      Assuming I understand this term of “alarm fatigue” as a frustration of the various alerts, reminders, or alarms when the CGM and/or pump goes off, I get very frustrated. Especially when those occur in the middle of the night.

      1
      2 years ago Log in to Reply
    2. kristina blake

      I answered never, I truly appreciate what I am being told. Yeah I wish there was a way to tell the device, okay I know, and I’ve taken appropriate action, but considering all the years I operated in the dark – I am grateful

      3
      2 years ago Log in to Reply
    3. TomH

      With Dexcom G6, most of the time due to the limited choices of alarms. I tried TCOYD’s Edelman’s idea of lowering high alarms looking at it as an opportunity to impact, but the G6 limited choices drove me nuts. The G7 offers more choice (should have been incorporated in G6), more soothing tones (the jury’s still out whether it makes a significant difference), and the ability to shut them down for a period of time (also should have been incorporated with G6). While there’s been discussion whether the G6 issue was Dexcom’s or the FDA’s doing, I can’t get past the point that I could have used finger sticks and eliminated the issue altogether, but because I took the “safer” route, I had to deal with issue at all!

      2 years ago Log in to Reply
    4. Clare Tuson

      My phone is on silent all the time. My watch will vibrate if I get low but there is no alarm until I have a severe low which happens very infrequently.

      2 years ago Log in to Reply
    5. Phyllis Biederman

      Increased annoyance/fatigue with alerts/alarms from Dexcom G7 cgm linked to my Tandem pump. Many lost connection and false low blood glucose alerts, which I rarely experienced with the G6.

      2 years ago Log in to Reply
      1. Karen Tay

        Phyllis, that’s interesting to know. I just asked to upgrade to the G7
        Thanks for the info
        Does anyone else have this issue?

        2 years ago Log in to Reply
      2. Anita Stokar

        @KarenTay Just during the first day

        2 years ago Log in to Reply
    6. mlettinga

      I have so many beeps and alarms that sometimes I tune them out. At least I have a Diabetic alert dog who alerts me when I’ve tuned out my alerts.

      2 years ago Log in to Reply
    7. Nevin Bowman

      A lot, but I’m to blame. I run a very tight ship with my sugars so I’m asking for more alarms.

      2
      2 years ago Log in to Reply
    8. Jane Cerullo

      Turn most of them off except for low BS. Tandem will vibrate so not loud. But wakes me up. Only one I don’t like is the lost sensor connection.

      1
      2 years ago Log in to Reply
    9. Molly Jones

      I used to experience irritation at all the alarms, but with the newer settings I am much happier and capable of sleep or paying attention to them when I actually need to.

      1
      2 years ago Log in to Reply
    10. Janice B

      The alarm that is most annoying in the OmiPod alarm lettin you know that in a few hours the pump needs to be changed – for me that alarm is every three days at 2:00 a.m.
      Most annoying!

      1
      2 years ago Log in to Reply
      1. kristina blake

        CAn you change a pod a few hours early? I know that means loss of some insulin, but if it is regularly alarming at 2:00 am, perhaps changing at 8:00 pm would work.

        1
        2 years ago Log in to Reply
    11. Karen DeVeaux

      I answered never, but that’s because all of my alarms are turned off except for a 55 low. I check my CGM often.

      1
      2 years ago Log in to Reply
    12. cynthia jaworski

      Really, never. My only device is a cgm. I don’t need a high alarm because I check my readings so often. It is turned off. The no connection alarm has always been off. As for the low alarm, it doesn’t happen that often. Like others here have stated, I am grateful for it.

      2 years ago Log in to Reply
    13. Lawrence S.

      I HATE my alarms, especially when I’m asleep. I get alarms from my pump, from my Dexcom app and from my t:connect app. The Dexcom app alarm is extremely loud. I’ve been listening to alarms, every day for 26 years. The technology is nice to have, but I HATE the alarms!

      2 years ago Log in to Reply
    14. Kate Kuhn

      I appreciate one Low BS alarm from my Dexcom/Tandem combo. What I hate is that the alarms come at separate times (one from my pump, another from my sensor) and neither waits 15 minutes for the carb intake to take effect. Like, I’m sitting at a wedding, waiting for the Bride to appear, and both alarms start sounding! I wish there was a response button on the pump/sensor that would indicate: “Relax, I got this!”

      4
      2 years ago Log in to Reply
      1. TEH

        Yeah. I hate that too. That was one nice thing about Medtronic’s solutions.

        1
        2 years ago Log in to Reply
    15. Karen Mielish-Clausell

      TOO OFTEN

      1
      2 years ago Log in to Reply
    16. JeremyW

      Interacting with dexcom alerts makes me feel like the character in the show Lost who’s lot in life is to “push the button” continuously

      1
      2 years ago Log in to Reply
    17. Anita Stokar

      Not really sure if “fatigue” or just annoyance when it warns me my sugar is low but I have already eaten glucose and I am just waiting for sugar to rise.

      1
      2 years ago Log in to Reply
    18. David Hedeen

      Prior to placing CGM on back of arm, answer was always!
      Still can not place sensor solo

      2 years ago Log in to Reply
    19. Jeff Balbirnie

      I do NOT want to hear the alarm E-V-E-R!!! During the day, I’ll endure it ONCE, after that literally shut up! Clearly rising, do NOT waste my time with more stupid alarms period. *Telling me for a half hour I’m going back up is violently irritating, entirely 100% worthless). As long as it is going upwards STOP, period. At NGHT, I do not want to hear it EVER regardless…. waking me is bad enough, waking ANYBODY else is NOT forgivable. I want a DISABLE the alarm feature ….

      2 years ago Log in to Reply

    How often do you experience alarm fatigue? Cancel reply

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